Sickle Cell Dɔléle ƒe Kuxiwo: Nusiwo Wòle Be Nànya

Ðewohĩ èse Sickle Cell Disease ŋkɔ kpɔ . Kpuie ko la, enye nɔnɔme si kpɔa ŋusẽ ɖe alesi míaƒe ŋutilã wɔa ʋumenugbagbevi dzĩwoe dzi . Ènyaa, ʋumenugbagbevi dzĩ siawoe tsɔa ɔksidzin yia míaƒe ŋutilã katã me. Zi geɖe la, lãmenugbagbevi siawo nyea disk siwo le gbadzaa, siwo le goglo, eye wote ŋu trɔna bɔbɔe. Gake ʋumenugbagbevi dzĩwo sesẽ siwo le abe aŋɔ ene la vaa ame aɖe si ŋu sickle cell dɔlélea le. Eyata, nɔnɔme sia si mesɔ o ate ŋu ahe lãmesẽkuxi geɖe, alo ‘ kuxiwo ’ vɛ. Gake mègatsi dzi o, wò ɖɔkta ate ŋu akpe ɖe ŋuwò nàda kuxi siawo dometɔ geɖe, eye wòaxe mɔ ɖe wo dometɔ aɖewo gɔ̃ hã nu. Mina míaƒo nu tso wo dometɔ ɖesiaɖe ŋu.

Vevesese - kuxi si bɔ wu

Kuxi si bɔ wu eye wòdoa dziku le sickle cell dɔléle ŋue nye vevesese . Esia le alea elabena lãmenugbagbevi siwo le abe ʋuƒo ene la tsia ʋuka suewo me . Bu nusi dzɔna ne ʋu gã aɖe tsi mɔ xaxɛ aɖe dzi ŋu kpɔ. Nenemae wòdzɔna ne lãmenugbagbevi siawo xe ʋukawo.

Zi geɖe la, vevesese sia ate ŋu adzɔ le akɔta, afɔ, abɔ, ƒodo, alo akɔta. Ate ŋu ava kpata abe amedzidzedze sesẽ ene (xaxa alo nudzɔdzɔ aɖe). Le sɔhɛwo kple ame tsitsiwo gome la, ate ŋu anye vevesese ɣeyiɣi didi ɣeaɖewoɣi.

Zi geɖe la, ne vevesese aɖe dze dziwò alea la, àte ŋu akpɔ gbɔdzɔe to vevesesenutsitikewo abe Paracetamol alo Ibuprofen ene zazã me. Gake ɖo ŋku edzi be mègana aspirin ame aɖeke si mexɔ ƒe 19 haɖe o. Ɣeaɖewoɣi la, ne vevesesea nu sẽ la, ɖɔkta ate ŋu aŋlɔ vevesesenutsitike sesẽ aɖe tso opioid ƒe ƒuƒoƒoa me. Ele be woaxɔ ame aɖewo gɔ̃ hã ɖe kɔdzi be woawɔ atike na wo.

Wò ɖɔkta ate ŋu aɖo aɖaŋu siwo gbɔna na wò be nàxe mɔ ɖe vevesese siawo nu alo aɖe wo dzi akpɔtɔ:

• No tsi geɖe.
• Ƒo asa na dzoxɔxɔ si nu sẽ kple vuvɔ si nu sẽ.
• Mègazã ɣeyiɣi geɖe le teƒe kɔkɔwo, abe tonyigbawo ene o.
• Atike aɖe si woyɔna be Hydroxyurea kpena ɖe ame ŋu be vevesese siawo ƒe amedzidzedzewo dzi ɖena kpɔtɔna le ɖeviwo kple ame tsitsiwo me.

Ʋusɔgbɔdɔ

Esia nye kuxi bubu si bɔ ɖe sickle cell dɔlélea me. Afi siae ʋumenugbagbevi dzĩ siwo le abe aŋe ene kuna kabakaba wu lãmenugbagbevi siwo sɔ.. Eyata ŋutilãa mate ŋu awɔ lãmenugbagbevi yeyewo le alesi wokunae nu o. Esia wɔnɛ be ɔksidzin si ɖoa ŋutilãa ƒe lãmenugbagbeviwo me dzi ɖena kpɔtɔna, eye ɖewohĩ ɖeɖi te ŋuwò ŋutɔ, gbɔdzɔgbɔdzɔ, eye taɖuame . Àte ŋu akpɔ nuwo abe dzi ƒe tsotso kabakaba kple gbɔgbɔ sesẽ hã. Le ɖevi gome la, ʋusɔgbɔdɔ ate ŋu ana wòatsi gɔ̃ hã.

Ne ʋusɔgbɔdɔ nu sẽ la, ate ŋu ahiã be woado ʋu na ame . Gake ʋudodo enuenu ate ŋu ana iron ƒe agbɔsɔsɔ nadzi ɖe edzi eye wòagblẽ nu le dzi, aklã, kple dɔgbo ŋu. Eyata wò ɖɔkta alé ŋku ɖe wò iron ƒe agbɔsɔsɔ ŋu edziedzi be wòakpe ɖe ŋuwò nàkpɔ egbɔ. Le ame tsitsiwo gome la, atike si nye Hydroxyurea ate ŋu akpe ɖe ʋusɔgbɔdɔ hã ŋu.

Dɔlékuiwo kple nɔnɔme kpata bubuwo

Dɔlékuiwo xɔxɔ bɔbɔe ƒe dzidziɖedzi

Amesiwo ŋu sickle cell dɔléle le, vevietɔ ɖevi suewo, ate ŋu axɔ dɔlékuiwo. Esia le alea elabena dɔlélea gblẽa nu le aɖuɖɔtoea ŋu . Ènyaa, aɖuɖɔtoe nye ŋutinu vevi aɖe si ɖea dɔlékuiwo abe dɔlékuiwo ene ɖa le míaƒe ʋu me. Eyata ne mewɔ dɔ nyuie o la, dɔlékuiwo ate ŋu age ɖe ŋutilãa me bɔbɔe.

Akɔta ƒe Ʋuʋudedi

Esia nye nudzɔdzɔ kpata si ate ŋu ade ame ƒe agbe afɔku me, vevietɔ le ɖevi suewo gome. Esia dzɔna ne sickle cells xe mɔ na ʋu ƒe sisi yi dɔgboa me. Aɖuɖɔtoea vuvu eye wònɔa veve sem. Ðewohĩ dzesi gã aɖeke manɔ ɖevi aɖewo ŋu o. Gake ame bubuwo ate ŋu akpɔ dzesiwo abe gbɔdzɔgbɔdzɔ, ŋutigbalẽ kple nuyiwo ƒe ɣie, alɔ̃dɔdɔ fũ akpa, vevesese le ƒodo ƒe miame, kple dzi ƒe tsotso kabakaba . Ne èkpɔ dzesi siawo la, yi kɔdzi enumake .

Akɔta ƒe Dɔléle Sesẽ

Esia hã nye nɔnɔme sesẽ aɖe ŋutɔ. Afi siae sickle cell dɔléle xea ʋuka siwo le lãkusiwo me le. Ne dzesiwo abe asrã, gbɔgbɔ sesẽ, akɔtave, kple kɔdzidɔ ene le ŋuwò la, yi kɔdzi enumake. Ðɔktawo ate ŋu ana oxygen, dɔlékuiwutikewo, eye ɖewohĩ woado ʋu na wò.

Kuxi bubu siwo nɔa anyi ɣeyiɣi didi

Sickle cell dɔléle ate ŋu ahe kuxi geɖe vɛ le ɣeyiɣi aɖe megbe.

• Ƒu ƒe gbagbã (Avascular Necrosis): Ne wotso ʋu ƒe sisi yi ƒunukpeƒe gãwo (abe akɔta ene) la, ƒu ƒe lãkusiwo dzea kuku gɔme. Esia bɔ ɖe sɔhɛwo kple ame tsitsiwo siaa me. Vevesesenutsitikewo ate ŋu ana gbɔdzɔe ame, gake ahiã be woawɔ dɔ na ame aɖewo.
• Nusiwo gblẽna le ŋutinu bubuwo ŋu: Kuxi siwo le ŋku, dzi, ayiku, kple aklã ŋu la ate ŋu ana ʋu natsi eye woaxɔ ʋusɔgbɔdɔ. Esia tae wò ɖɔkta alé ŋku ɖe ŋutinu siawo ƒe dɔwɔwɔ ŋu edziedzi ɖo.

Ƒumeŋuɖui Dodo na Ame Kple Egbegbe Atikewɔwɔ

Le amesiwo doa go kuxi sesẽwo enuenu gome la, woate ŋu abu atikewɔwɔ si woyɔna be ƒumeŋuɖui dodo na ame ŋu. Esia bia be woatsɔ lãmenugbagbevi siwo le lãmesẽ me aɖɔli ƒumeŋuɖui ƒe lãmenugbagbevi siwo wɔa sicklecell. Esia ate ŋu ada dɔlélea keŋkeŋ.

Gake esia menye nusi ame sia ame ate ŋu awɔ o. Ele be nàdi nunala si le lãmesẽ me si ƒe lãmekawo sɔ kple wò lãkusi. Azɔ hã, ne ŋutinuwo abe dzi alo ayiku ene ŋu kuxiwo le fu ɖem na wò la, amekoko sia ate ŋu anye afɔku. Ðewohĩ ahiã be nànɔ kɔdzi ɣeyiɣi didi aɖe. Ɣeaɖewoɣi la, atikewɔwɔ sia mate ŋu akpɔ dzidzedze o. Eyata ele be ƒomea naƒo nu kple ɖɔktaa nyuie eye woatso nya me nenye be dɔdamɔnu sia sɔ na yewo.

Tsɔ kpe ɖe eŋu la, atike yeyewo li, abe Crizanlizumab ene, siwo ate ŋu akpe ɖe ame ŋu be vevesese ƒe amedzidzedze dzi naɖe akpɔtɔ. Bia wò ɖɔkta tso esiawo hã ŋu.