Sabuwar magani don maganin hemophilia? Bari mu koyi game da Qfitlia (fitusiran)?

Idan kana da cutar hemophilia, wataƙila ka san yadda zubar jini ke da ban haushi da ban tsoro a kullum, wani lokacin ba tare da wani dalili ba, kuma kana fuskantar matsala wajen dakatar da zubar jini ko da ƙananan raunuka ne. Wataƙila kana shan magani don magance zubar jininka, ko kuma kana shan magani don hana shi. Duk da haka, tare da ci gaban kimiyyar likitanci, yanzu akwai magunguna masu tasiri da yawa don wannan yanayin. Don haka a yau, bari mu yi magana game da sabon magani daban. Ana kiransa Qfitlia (fitusiran).

Da farko, bari mu gani, me yasa zubar jini baya tsayawa a cikin jinin haila?

A taƙaice, akwai sunadarai na musamman waɗanda ke taimaka wa jini ya yi gudawa. Muna kiran waɗannan " masu samar da jini ." Kamar yadda ake buƙatar turmi don haɗa tubali yayin gina bango, waɗannan ma'adanai suna da mahimmanci don dakatar da zubar jini. Mutumin da ke fama da cutar hemophilia yana da ƙarancin ɗaya daga cikin waɗannan ma'adanai masu samar da jini.

• Mutane masu fama da cutar hemophilia A ba su da wani sinadari mai suna Factor VIII.
• Mutane masu fama da cutar hemophilia B ba su da wani sinadari mai suna Factor IX.

Idan waɗannan abubuwan suka ragu, samar da wani muhimmin mataki a cikin tsarin zubar jini, wanda ake kira thrombin , yana raguwa. Thrombin shine babban abin da ke haifar da gudan jini kuma yana dakatar da zubar jini. Don haka lokacin da thrombin ya ragu, yana da wuya a dakatar da zubar jini idan ya faru. Shin ka fahimta? Yawanci, abin da muke yi a matsayin magani na dogon lokaci shine a yi sinadarin hada jini (factor 8 ko 9) wanda ba shi da shi a jikinka ta hanyar roba sannan a yi masa allura a cikin jijiya. Amma maganin Qfitlia da muke magana a kai a yau yana aiki ta wata hanya daban.

To menene wannan sabon maganin da ake kira Qfitlia (fitusiran)?

Wannan magani ne da ke aiki ta wata hanya mai ban mamaki. Mun yi magana a baya game da gaskiyar cewa jini yana buƙatar wani abu da ake kira thrombin don ya yi gudawa. A cikin jikinmu, akwai wani furotin da ke sarrafa samar da wannan thrombin, wato, yana dakatar da samar da ƙarin thrombin. Ana kiransa antithrombin .Ka yi tunanin haka. Kana da sinadarin hada jini (thrombin) a jikinka wanda ke taimakawa wajen zubar jini. Amma akwai wani abu (antithrombin) wanda ke sarrafa shi kuma yana hana shi aiki. A cikin hemophilia, samar da sinadarin da ke taimakawa (thrombin) da farko yana da ƙasa. Don haka lokacin da sinadarin da ke hana (antithrombin) ya yi aiki yadda ya kamata, toshewar jini yana raguwa sosai. Abin da Qfitlia ke yi shi ne rage adadin antithrombin da ke hana shi. Sannan, adadin thrombin da jikinka ke samarwa a zahiri yana barin shi ya yi aiki yadda ya kamata ba tare da an hana shi ba. Wannan yana nufin yana amfani da tsarin jiki don ƙarfafa zubar jini, maimakon ba ka sinadarin hada jini da ka rasa. Wannan shine maganin farko da ke rage thrombin da za a yi amfani da shi wajen magance hemophilia.

Bari mu ƙara bayani game da bambancin da ke tsakanin waɗannan hanyoyin magani guda biyu.

Za ka iya fahimtar wannan bambanci cikin sauƙi daga teburin da ke ƙasa.

Shin wannan maganin ya dace da ni kuma ta yaya zan yi amfani da shi?

Idan kana da hemophilia A ko B kuma kana da shekaru sama da 12, likitanka zai iya la'akari da ko wannan maganin ya dace da kai. Abu mafi mahimmanci shine ana iya amfani da shi ga mutanen da suka sami magungunan hana haihuwa (juriya) ga maganin da ya gabata. Duk da haka, kafin fara wannan maganin, likitanka zai yi gwaje-gwajen jini da yawa. 1. Matsayin antithrombin: Wannan yana auna adadin antithrombin da ke cikin jininka. Ana ƙayyade adadin Qfitlia bisa ga wannan ƙimar. 2. Aikin hanta: Ana sa ido kan hanta kafin da kuma lokacin magani. Ana ba da wannan maganin a matsayin allura a ƙarƙashin fata (a ƙarƙashin fata). Wannan yana nufin cewa ba a ba shi cikin jijiya ba. Kai ko mai kula da kai za ka iya ba ka a gida bayan horo. Ana ba da shi a fatar ciki, cinya, ko bayan hannun sama. Ya kamata ka guji wuraren da ke da raunuka ko yankewa. Idan kana shan wasu magungunan hemophilia, ƙila ka buƙaci dakatar ko canza waɗannan jiyya bayan fara Qfitlia. Likitanka zai yi maka bayani a sarari. Kada ka daina shan magungunan da kake amfani da su a yanzu ko kuma ka daina shan Qfitlia ba tare da shawarar likita ba. Yin hakan na iya ƙara haɗarin zubar jini.

Ya kamata mu kuma san illolin da ke tattare da hakan? Ta yaya za mu iya hana su?

Kamar kowace magani, Qfitlia na iya samun wasu illoli. Yana da muhimmanci a san su kuma a ɗauki matakai don hana su.

• • Kumburin Jini : Saboda wannan maganin yana ƙarfafa zubar jini, yana da matuƙar wuya a sami kumburin jini da ba a so a cikin jijiyoyin. Likitanka zai ƙayyade adadin da ya dace don matakin antithrombin ɗinka don rage wannan haɗarin.

Yana da matuƙar muhimmanci a yi gwajin jini akai-akai kamar yadda likitanka ya ba da shawara. Yawanci ana duba matakin antithrombin a watanni na farko, na uku, na biyar, da na shida na magani. Ta haka ne za a iya tantance adadin maganin da ya dace a gare ku da kuma yadda za a rage wannan haɗarin.

• Karin enzymes na hanta: Wasu mutane na iya samun karin enzymes na hanta. Shi ya sa likitoci ke yawan lura da yanayin hanta ta hanyar gwajin jini .

• Duwatsun Gallstone da Kumburin Gallbladder: Idan kwatsam ka fuskanci alamun kamar ciwon ciki mai tsanani, tashin zuciya, da amai , sanar da likitanka nan da nan.

• Kamuwa da cuta: Akwai ƙaramin haɗarin kamuwa da cuta a wurin allurar. Saboda haka, yana da mahimmanci a koyaushe a yi allurar tsafta kuma kamar yadda likitanka ya umarta. Kyakkyawan ayyukan tsafta, kamar wanke hannu akai-akai, suma suna da mahimmanci.

Bincike ya nuna cewa mutanen da ke fama da cutar hemophilia (duk waɗanda ke da maganin hana haihuwa da kuma waɗanda ba su da shi) waɗanda suka sha Qfitlia sun sami ƙarancin zubar jini fiye da waɗanda ba su sha wani maganin rigakafi ba. Haka kuma, mutanen da ke da maganin hana haihuwa waɗanda suka canza daga wasu magunguna zuwa Qfitlia sun sami ƙarancin zubar jini. Amma ku tuna cewa waɗannan sakamakon na iya bambanta daga mutum zuwa mutum.

Saƙon Ɗauka Gida

• Qfitlia (fitusiran) sabuwar hanyar magance hemophilia A da B ce wadda ke aiki ta wata hanya daban.
• Wannan yana aiki ta hanyar rage adadin antithrombin, wanda ke hana zubar jini, maimakon ba wa jiki ƙarancin zubar jini a waje.
• Wannan maganin allura ce a ƙarƙashin fata, ba a cikin jijiya ba, kuma yawanci ana ba da shi ba kasafai ba, kamar sau ɗaya a wata ko bayan wata biyu.
• Likitan ku zai tantance ko wannan maganin ya dace da ku bayan gwaje-gwajen jini da yawa.
• Domin gujewa illa, yana da mahimmanci a yi gwajin jini (musamman aikin antithrombin da hanta) akai-akai kamar yadda likitanka ya umarta.
• A guji dakatar da maganin Qfitlia ba tare da shawarar likita ba saboda kowane dalili.

Hemophilia, Hemophilia, Qfitlia, fitusiran, toshewar jini, zubar jini, sinadarin hada jini, antithrombin, maganin hemophilia, sabon magani, illolin da ke tattare da hakan