I kekahi manawa, loaʻa iā mākou nā maʻi like ʻole e pili ana i nā māmā . I waena o lākou, ʻo kahi mea i lohe pinepine ʻole ʻia, akā he mea nui, ʻo ia ka maʻi māmā i hoʻokumu ʻia e ka nele o ka enzyme alpha-1 antitrypsin. He kūlana genetic kēia. No laila, i kēia lā ke kamaʻilio nei mākou e pili ana i kahi lāʻau kūikawā no kēia kūlana. E kamaʻilio wale kākou e pili ana i nā mea āpau e pono ai ʻoe e ʻike e pili ana i kēia lāʻau.
He aha kēia mea hoʻopaʻa i ka Alpha-1-proteinase?
I ka ʻōlelo maʻalahi, he lāʻau lapaʻau kēia e hoʻihoʻi i kahi enzyme koʻikoʻi i nele i kou kino. Loaʻa i ko mākou kino kahi enzyme i kapa ʻia ʻo Alpha-1 Antitrypsin (ATA) e pale ana i ko mākou mau māmā. He haʻahaʻa loa nā pae o kēia enzyme i loko o kekahi poʻe. Hiki i kēia ke hōʻino maʻalahi i ko lākou mau māmā.
E noʻonoʻo ua nalowale kou kino i kēia enzyme koʻikoʻi e pale ana i kou mau māmā. ʻO ka hana a kēia lāʻau pale `Alpha-1-proteinase`, ʻo ia ke hoʻihoʻi i kēlā enzyme nalowale i kou kino. Ua like ia me ke kau ʻana i kahi ʻaila i loko o kahi kaʻa haʻahaʻa.
Akā, hoʻokahi mea e pono e hoʻomanaʻo ʻia. ʻAʻole kēia he lāʻau lapaʻau no ka maʻi. Akā, kōkua ia i ka hoʻomalu ʻana i ka hōʻino hou ʻana i nā māmā i hoʻokumu ʻia e ka maʻi. Kāhea mākou i kēia lāʻau lapaʻau pani.
Nā mea e haʻi aku i kāu kauka ma mua o ka hoʻohana ʻana i kēia lāʻau lapaʻau
Ma mua o kou hoʻomaka ʻana i kēia lāʻau lapaʻau, he mea nui loa ia e hāʻawi i kāu kauka i kahi wehewehe piha o kou kūlana olakino. ʻO ka mea nui, pono ʻoe e haʻi iā ia e pili ana i kēia mau mea.
- Inā loaʻa iā ʻoe kahi maʻi i kapa ʻia ʻo IgA deficiency (Immunoglobulin A deficiency) .
- Inā he maʻi ʻaleka kou i kēia lāʻau i kapa ʻia ʻo 'Alpha-1-proteinase Inhibitor' a i ʻole kekahi lāʻau lapaʻau ʻē aʻe, meaʻai, a mea hoʻoluʻu paha.
- Inā hāpai ʻoe a i ʻole e hoʻāʻo nei e hāpai .
- Inā he makuahine hānai waiū ʻoe .
Ma muli o kēia ʻike, hiki i kāu kauka ke hoʻoholo inā kūpono kēia lāʻau lapaʻau iā ʻoe a ʻaʻole paha.
Pehea ʻoe e hoʻohana ai i kēia lāʻau lapaʻau?
Hāʻawi ʻia kēia lāʻau lapaʻau ma ke ʻano he infusion i loko o kahi aa. Hāʻawi pinepine ʻia kēia i hoʻokahi manawa i ka pule.
I ka wā mua, hāʻawi ʻia kēia lāʻau pale ma kahi haukapila a i ʻole ke keʻena lapaʻau. Eia nō naʻe, i kekahi manawa, ma hope o kou loaʻa ʻana o ke aʻo ʻana e pono ai, hiki i kāu kauka ke ʻae iā ʻoe e loaʻa i kēia lāʻau pale ma ka home. I kēia hihia, pono ʻoe e hahai pono i nā kuhikuhi i hāʻawi ʻia e ke kauka a i ʻole nā limahana kahu maʻi. Mai hoʻohana ʻoi aku ma mua o ka nui i kuhikuhi ʻia.
He aha kāu e hana ai me nā nila i hoʻohana ʻia?
He mea nui loa kēia. ʻAʻole ia he manaʻo maikaʻi e hoʻolei i nā nila a me nā syringe i hoʻohana ʻia i loko o ka ʻōpala. Pono e waiho ʻia i loko o kahi pahu ʻoi kūikawā. Inā ʻaʻohe āu, e noi i kāu kauka no hoʻokahi.
He aha inā lawe nui wau i ka lāʻau lapaʻau?
Inā manaʻo ʻoe ua lawe nui ʻoe i kēia lāʻau lapaʻau, mai hopohopo. E kāhea koke aku i ke Kikowaena ʻIke Poisons Lahui ma ka Halemai Lahui ʻo Colombo . A i ʻole e hele i ka ETU (Emergency Treatment Unit) o ka haukapila kokoke loa.
He aha kāu e hana ai inā e hala ʻoe i kahi manawa hoʻopaʻa lāʻau lapaʻau?
He lāʻau lapaʻau kēia e hāʻawi pinepine ʻia i hoʻokahi manawa i ka pule, no laila he mea nui loa ia e lawe iā ia i ka manawa kūpono. Inā ʻoe e poina i kahi lāʻau, mai hopohopo a kāhea aku i kāu kauka no ka ʻōlelo aʻo. Inā ʻoe e lawe ana i kāu lāʻau lapaʻau ma ka home, e lawe koke iā ia i kou hoʻomanaʻo ʻana a hoʻi i kāu papa hana hebedoma maʻamau. Eia nō naʻe, ʻoi aku ka maikaʻi o ke kamaʻilio ʻana me kāu kauka e pili ana i kēia.
Nā mea e makaʻala ai i ka wā e lawe ai i ka lāʻau lapaʻau
E makaʻala i kāu mau hōʻailona i ka wā e lawe ana i kēia lāʻau. Inā ʻaʻole hoʻomaikaʻi kāu mau hōʻailona a i ʻole e ʻoi aku ka ʻino, e haʻi i kāu kauka.
- Nā Allergies: Hiki i kēia lāʻau lapaʻau ke hana i nā hopena allergies koʻikoʻi i kekahi manawa. No laila, e nīnau i kāu kauka inā pono ʻoe e mālama i kahi mea e like me ka peni epinephrine i ka wā e loaʻa ai kahi hopena allergies.
- Ka pilikia o ka maʻi: No ka mea, ua hana ʻia kēia lāʻau lapaʻau mai ka plasma koko kanaka, aia kahi pilikia liʻiliʻi o ka loaʻa ʻana o nā virus a bacteria paha. Akā, mai hopohopo, hoʻohana ʻia nā ʻano hana kūikawā e pepehi i kēlā mau germs i ka wā e hana ai i kēia mau huahana. Inā he mau nīnau kāu e pili ana i kēia, e ʻoluʻolu e kamaʻilio me kāu kauka.
He aha nā hopena ʻaoʻao e hiki mai ana?
E like me nā lāʻau lapaʻau āpau, hiki i kēia ke loaʻa kekahi mau hopena ʻaoʻao . E nānā kākou i ke ʻano o lākou.
| Ka hopena ʻaoʻao | Wehewehena |
|---|---|
| Nā maʻi ʻaleʻale koʻikoʻi | ʻŌhūhū ʻili, maneʻo, pehu o ka maka, nā lehelehe a i ʻole ke alelo. |
| Paʻakikī ka hanu ʻana | Paʻakikī ka hanu ʻana, pōkole ka hanu. |
| ʻEha a ʻeha paha ka umauma | Paʻa ka umauma, ʻeha. |
| Pōʻino a i ʻole ka nawaliwali | Pōniuniu , maule, hāʻule. |
| Nā hōʻailona o ka maʻi | Kuni, anu, ʻū, ʻeha ka puʻu. |
| Pehu wāwae | Ka pehu ʻana o nā kuʻekuʻe wāwae a i ʻole nā wāwae. |
| Luhi maʻamau ʻole | Ka luhi nui o ke kino. |
| Nā hopena ʻaoʻao maʻamau | Ka maʻi kahe, ka poniuniu, ka ʻeha poʻo, ka wela, ka ʻeha o nā hono a i ʻole nā ʻiʻo, ka nausea, ka ʻeha a i ʻole ka ʻulaʻula ma kahi i ini ʻia, ka ihu wai. |
ʻAʻole i hoʻokomo ʻia nā hopena ʻaoʻao āpau i kēia papa inoa. Inā loaʻa iā ʻoe kekahi mea ʻē aʻe, e kamaʻilio me kāu kauka e pili ana i ia mea.
Pehea ʻoe e mālama ai i kāu lāʻau lapaʻau?
- Mai waiho i kēia lāʻau lapaʻau i kahi hiki ʻole i nā keiki ke loaʻa .
- E mālama i nā ʻōmole i wehe ʻole ʻia i loko o ka pahu hau ma 2-8 °C. Mai hoʻopaʻahau .
- Hiki ke mālama ʻia ma ka mahana o ka lumi (ma lalo o 25 kekelē Celsius) a hiki i hoʻokahi mahina. Eia naʻe, mai hoʻokomo hou i loko o ka friji ma hope o ka mālama ʻia ʻana ma ka mahana o ka lumi.
- Mai hoʻoluliluli i ka ʻōmole lāʻau lapaʻau.
- E hoʻolei i ka lāʻau lapaʻau i pau me ka hoʻohana ʻole ʻana.
Inā he mau nīnau hou aku kāu e pili ana i kēia lāʻau lapaʻau, mai kānalua e kamaʻilio me kāu kauka a hoʻoponopono iā lākou.
Leka Lawe-Home
- He lāʻau lapaʻau kēia no nā maʻi māmā i hoʻokumu ʻia e ka hemahema o ka 'Alpha-1 Antitrypsin', akā ʻaʻole ia he lāʻau lapaʻau e ho'ōla loa ai i ka maʻi.
- Ma mua o ka hoʻohana ʻana i ka lāʻau lapaʻau, e haʻi i kāu kauka e pili ana i kou mau maʻi āpau a me nā maʻi allergies.
- Inā loaʻa iā ʻoe nā hōʻailona maʻi ʻaleka koʻikoʻi ( paʻakikī ka hanu ʻana , ka pehu ʻana , ka ʻeha o ka umauma ), e ʻimi koke i ke kōkua lapaʻau.
- E hoʻolei wale i nā nila i hoʻohana ʻia me ka palekana i loko o kahi pahu ʻoi.
- Inā ʻoe e poina i kahi lāʻau a lawe nui paha, e kāhea koke i kāu kauka.
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