Hiki iā ʻoe ke kulou i kou kino e like me ka laholio? E kamaʻilio kākou e pili ana i ka Beighton Score

Ua haʻi aku anei kou mau hoaaloha iā ʻoe mai kou wā liʻiliʻi, "Ua like kēia kanaka me ka pōpō laholio, hiki iā ia ke pelu iā ia i kēlā me kēia ʻano āna e makemake ai"? Malia paha hiki iā ʻoe ke pelu i kou mau manamana wāwae i hope ma mua o nā poʻe ʻē aʻe. A i ʻole manaʻo paha ʻoe e hoʻi ana kou mau kuli i hope ke hoʻopololei ʻoe iā lākou. ʻO kēia ʻano palupalu nui i nā hono, ʻo ia hoʻi, i nā hono, ʻo ia ka mea a mākou e kapa nei ma ke ʻano lapaʻau ʻo 'joint hypermobility'. No laila he maʻi anei kēia? He mea weliweli anei kēia? Ke noʻonoʻo nei paha ʻoe pehea e hoʻāʻo ai no kēia. ʻO ia ka mea a mākou e kamaʻilio nei i kēia lā.

He aha ka helu Beighton?

I ka ʻōlelo maʻalahi, ʻo ka Beighton Score kahi hoʻāʻo maʻalahi e ana i ke ʻano o ka palupalu, a i ʻole ke pelu ʻia, o kou mau hono. ʻAʻole ia he hoʻāʻo weliweli e pili ana i kahi mīkini nui, nā huki koko, a i ʻole kekahi mea ʻē aʻe. He mau hana maʻalahi wale nō ia a kāu kauka e hana ai ma ke kino.

Hoʻohana kēia hoʻāʻo i kahi pālākiō 9-kiko. ʻO ke kiʻekiʻe o kāu helu, ʻoi aku ka maʻalahi o kou mau hono. Ua like ia me ka helu ʻana i kahi hoʻokolohua, akā ʻo ka loaʻa ʻana o kahi helu kiʻekiʻe ʻaʻole paha he mea maikaʻi. E kamaʻilio kākou e pili ana i kēlā ma hope.

Ke nānā nui nei kēia hoʻāʻo ma kēia mau hono o ʻoe:

• Ke kumu o nā manamana nui o kou mau lima ʻelua
• ʻElua kuʻekuʻe lima
• ʻElua kuli
• ʻO nā hono waena o nā manamana lima liʻiliʻi
• Iwi kuamoʻo (iwi kuamoʻo)

No ke aha he mea nui kēia hoʻāʻo baton?

Hana pinepine ʻia kēia hoʻāʻo e kōkua i ka ʻike ʻana i kahi maʻi i kapa ʻia ʻo joint hypermobility syndrome , kahi maʻi maʻamau e hoʻopilikia ana ma kahi o 3% o ka heluna kanaka, a i ʻole ma kahi o ʻekolu i hoʻokahi haneli kānaka.

Akā eia kekahi mea nui e hoʻomaopopo ai. ʻAʻole nā ​​​​kānaka a pau i maʻalahi loa i loaʻa i kēia maʻi. ʻO ka poʻe e like me nā mea hula a me nā gymnasts he mau hono maʻalahi loa. He hopena ia o kā lākou hoʻomaʻamaʻa ʻana. Akā i kekahi manawa, hiki i kēia maʻalahi nui ke lilo i hōʻailona o kahi maʻi ʻē aʻe.

ʻOi aku ka maikaʻi, hiki ke pili kēia ʻano me nā maʻi pili pili hoʻoilina (HCTD). I ka ʻōlelo maʻalahi, ua like ka ʻiʻo pili me ka 'gum' e hoʻopaʻa ana i nā ʻōpū a me nā ʻiʻo o ko mākou kino a hāʻawi i ke kākoʻo. Ke nāwaliwali kēia ʻiʻo pili, hoʻomaka nā hono e kūlou nui. ʻO kekahi o kēia mau ʻano:

• ʻO ka maʻi ʻo Ehlers-Danlos (EDS)
• ʻO ka maʻi Marfan
• ʻOsteogenesis imperfecta

Pehea ʻoe e hana ai i kēia hoʻāʻo? E nānā kākou.

ʻElua ʻāpana o kēia hoʻāʻo. Ma ka mua, hoʻoneʻe ʻia kou mau hono i kekahi mau kūlana. Ma ka lua, ua nīnau ʻia ʻoe i kekahi mau nīnau. Hana ʻia kēia mau mea a pau e kāu kauka. ʻAʻole ʻoe e hoʻāʻo e hana i kēia mau mea iā ʻoe iho ma ka home.

He aha ka mea e manaʻo ai i ka wā o ka hoʻāʻo?

He hoʻāʻo maʻalahi loa kēia a wikiwiki hoʻi. E noi aku kāu kauka iā ʻoe e noho, kū, a moe paha ma kahi moe. A laila e hoʻopā mālie ʻo ia i kou mau hono a hana iā ʻoe e hana i nā hana i ʻōlelo ʻia ma luna.

ʻAʻohe pilikia a i ʻole nā ​​​​hopena ʻaoʻao o kēia.

Pehea ʻoe e maopopo ai i nā hopena o kēia?

Hiki iā ʻoe ke ʻike koke i nā hopena. E hana pū ke kauka me ʻoe i nā hana, e hoʻohui i nā helu, a e haʻi koke iā ʻoe.

Hoʻomaopopo pinepine ʻia ka Joint hypermobility syndrome i nā hihia aʻe:

• Inā he 4 a ʻoi aku paha kāu helu ma kēlā pālākiō hana kino a ua loaʻa iā ʻoe ka ʻeha ma 4 a ʻoi aku paha o kou mau hono no nā mahina he 3 a ʻoi.
• A i ʻole, inā ua pane ʻoe 'ʻae' i 2 a ʻoi aku paha o nā nīnau i nīnau ʻia e pili ana i ka wā i hala .

Akā eia kekahi mea e pono ai ʻoe e hoʻomanaʻo: ʻO ka helu Batten kiʻekiʻe ʻaʻole ia he manaʻo he maʻi koʻikoʻi kou e like me ka Ehlers-Danlos syndrome a mākou i kamaʻilio ai ma mua.

ʻAe, kiʻekiʻe kaʻu helu. He aha kaʻu e hana ai i kēia manawa?

Inā kiʻekiʻe kāu helu Batten, mai hopohopo. ʻO ka mea mua e hana ai, ʻo ia ke kamaʻilio me kāu kauka e pili ana i ia mea. E wehewehe ʻo ia i kāu mea e pono ai ke hana ma hope. Hiki iā ʻoe ke nīnau iā ia i nā nīnau e like me:

• "E ke kauka, pono anei iaʻu e hana i kekahi mau hoʻokolohua hou aku?"
• Pehea ʻoe e mālama ai i kēia maʻi 'joint hypermobility syndrome'?
• "He aha kaʻu e hana ai e hoʻomaikaʻi i ke olakino o koʻu mau hono a hoʻoikaika iā lākou? He maikaʻi anei nā mea e like me ka hoʻoikaika kino?"
• "Pehea lā wau e hana ai i kaʻu hana o kēlā me kēia lā me kēia kūlana?"

E hāʻawi aku kāu kauka iā ʻoe i nā ʻōlelo aʻoaʻo āu e pono ai, me ka hāʻawi ʻana paha i kahi kuhikuhi no ka physiotherapy.