Ke manaʻo nei ʻoe he ʻoʻoleʻa a ʻeha paha kou kua ke ala ʻoe mai kahi moe i ke kakahiaka? Ke emi nei kēia ʻeha ma hope o kekahi manawa, ke hele ʻoe? A i ʻole ke hakakā nei ʻoe me ka ʻeha mau ma nā wahi e like me kou mau pūhaka a me nā kuʻekuʻe wāwae? He mau hōʻailona mua paha kēia o kahi maʻi i kapa ʻia ʻo Ankylosing Spondylitis (AS). I ka ʻōlelo maʻalahi, he maʻi ia e hoʻoulu ai i ka pehu a me ka mumū o nā hono ma ka iwi kuamoʻo a me ka pelvis. ʻOiai he maʻi ia no ke ola holoʻokoʻa, ʻaʻole hiki ke hana ʻia e hoʻokahi kanaka wale nō ka mālama ʻana. Pono ia i kahi hui maikaʻi o nā kauka akamai a me nā loea olakino. I kēia lā, e kamaʻilio kākou e pili ana i kēia hui waiwai nui e kōkua iā ʻoe i kāu huakaʻi olakino.
ʻO ka hana mua a me ke kumu nui o ka huakaʻi lapaʻau
Kou kauka ʻohana (Kauka Mālama Ola Mua)
I ka hapanui o nā hihia, ʻo ka mea mua āu e ʻike ai ke loaʻa iā ʻoe kēia mau hōʻailona, ʻo ia kāu kauka ʻohana a kauka lapaʻau paha (GP). E hoʻolohe pono ʻo ia i kāu mau hōʻailona, e nānā iā ʻoe, a inā manaʻo lākou he AS paha kāu, e kuhikuhi lākou iā ʻoe no nā hoʻokolohua kumu e pono ai. Hiki iā lākou ke kuhikuhi i nā lāʻau ʻeha maʻamau. Eia nō naʻe, no ka ʻike pololei ʻana i ka maʻi a hoʻomohala i ka hoʻolālā lapaʻau kūpono loa, pono ʻoe e kuhikuhi ʻia i kahi loea.
Rheumatologist - ʻO kāu kauka mālama mua
I ka ʻōlelo maʻalahi, he kauka rheumatologist kahi kauka loea i nā maʻi o nā hono, nā ʻiʻo, a me nā iwi. ʻOiai ʻo Ankylosing Spondylitis kahi maʻi rheumatic nō hoʻi, ʻo ia ke kanaka koʻikoʻi i kāu huakaʻi lapaʻau.
E nānā kahi kauka rheumatologist i kou kūlana, e loiloi i kona koʻikoʻi, a e hoʻomohala i kahi hoʻolālā lapaʻau kūpono iā ʻoe. E kuhikuhi ʻo ia i nā lāʻau lapaʻau e kāohi i ka ʻeha, ka pehu, a me ka ʻoʻoleʻa ma kou kua a me nā hono ʻē aʻe. I ka wā mua, pono ʻoe e ʻike i kāu kauka i kēlā me kēia ʻelua a ʻehā pule e ʻike ai pehea e hana ai ka lāʻau lapaʻau iā ʻoe a inā ua kaohi ʻia ke kūlana. Ke kaohi ʻia ke kūlana, pono paha ʻoe e ʻike i kāu kauka i hoʻokahi manawa i ka mahina a i ʻole i kēlā me kēia mau mahina.
I kou noho ʻana me ka Ankylosing Spondylitis, ua like kou kauka rheumatologist me kou hoaaloha maikaʻi loa. Mai makaʻu e kamaʻilio me ia e pili ana i nā nīnau a hopohopo paha āu e loaʻa ai.
No ka hoʻomaikaʻi ʻana i ka hana a me ka neʻe ʻana o ke kino
Kauka Lapaʻau Kino
I ka AS, hiki i ka iwi kuamoʻo ke ʻoʻoleʻa mālie a piʻo i mua. No ka pale ʻana i kēia a mālama i ka maʻalahi a me ka neʻe ʻana, he mea nui ka physiotherapy. ʻO ka physiotherapist kahi kanaka i loaʻa i ka hoʻomaʻamaʻa kūikawā i ke kōkua ʻana i nā poʻe me nā pilikia neʻe.
E loiloi ʻo ia i kou kūlana a hoʻokumu i kahi papahana hoʻoikaika kino kūikawā nāu.
- Nā kīkoʻo: Kōkua kēia i ka hōʻemi ʻana i ka ʻoʻoleʻa ma nā wahi e like me ke kua, ka ʻāʻī, a me nā pūhaka.
- Kōkua i ka mālama ʻana i ke kūlana maikaʻi: Ke aʻo nei pehea e hoʻopololei ai i kou kua, e noho, a kū pono.
- Nā hana hanu hohonu: ʻOiai hiki iā AS ke hoʻopaʻa i ka umauma, he mea nui kēia mau hoʻomaʻamaʻa e mālama pono i nā māmā.
- Nā hana ʻauʻau a me ka wai: He mea maikaʻi kēia no ka hoʻoneʻe ʻana i nā hono me ka ʻeha ʻole, ʻoiai ua emi ke kaumaha o ke kino i loko o ka wai.
Luna Hoʻōla Hana
Ke lohe ka hapa nui o ka poʻe i ka inoa ʻo occupational therapist, manaʻo lākou i kahi mea e hana ana ma kahi hana. Akā, ʻaʻole ia ka hihia. Kōkua kahi occupational therapist iā ʻoe e hana i kāu mau hana o kēlā me kēia lā me ka maʻalahi a me ka ʻeha ʻole.
Eia kekahi laʻana, inā loaʻa iā ʻoe ka ʻeha o ke kua a ke pilikia nei ʻoe i ka hāpai ʻana i kahi mea mai ka papahele a i ʻole ke kau ʻana i kou mau kāmaʻa a i ʻole nā socks, hiki i kahi mea lapaʻau hana ke kōkua iā ʻoe e ʻimi i kahi ala e hana maʻalahi ai i kēlā hana, a i ʻole kahi mea kōkua. Eia kekahi laʻana:
- He papa ʻauʻau no ka hoʻohana ʻana i loko o ka lumi ʻauʻau
- He mea kōkua ka mea hopu lima inā pilikia ʻoe i ke kiko ʻana aku i kahi mea i hāʻule ma ka papahele.
- He mea hana e maʻalahi ai ke komo a me ka puka ʻana i waho o ke kaʻa (alapiʻi kaʻa)
Ma kēia ʻano, e kōkua ʻo ia iā ʻoe e hoʻolilo i kou home a me kou wahi hana i mea ʻoluʻolu nou.
Nā loea no nā pilikia ʻē aʻe e kū mai ana ma muli o AS
| Kauka loea | Pehea e hiki ai iaʻu ke kōkua iā ʻoe? |
|---|---|
| Kauka maka | He nui ka poʻe maʻi AS e loaʻa i kahi maʻi i kapa ʻia ʻo iritis , ʻo ia hoʻi ka mumū o ka ʻāpana kala o ka maka. ʻO nā hōʻailona e komo pū me ka ʻulaʻula, ka ʻeha, a me ka ʻike i ka mālamalama. I kekahi manawa, ʻike mua ʻia ka AS e kahi kauka maka. ʻOi aku ka maʻalahi o ka mālama ʻana i ka ʻike mua ʻana. |
| Kauka ʻōpū | Ua loaʻa i ka noiʻi kahi pilina ma waena o AS a me ka mumū o ka ʻōpū. Hiki i kahi helu liʻiliʻi o nā maʻi AS ke loaʻa i nā maʻi ʻōpū mumū (IBD) e like me ka maʻi Crohn a i ʻole ka ulcerative colitis . |
Meaʻai Meaʻai
Hiki i kekahi mau meaʻai ke hoʻonui i ka mumū, aʻo kekahi e hiki ke hoʻēmi iā ia. Eia kekahi, he mea nui ka kaohi ʻana i kou kaumaha e hōʻemi i ke kaomi ma kou mau hono. Hiki i kahi meaʻai meaʻai ke hāʻawi iā ʻoe i nā ʻōlelo aʻoaʻo pololei e pili ana i nā meaʻai maikaʻi loa iā ʻoe, nā meaʻai e hōʻemi i ka mumū, a me nā meaʻai e pale aku ai.
Luna Hoʻōla Ola Kino
Hiki i ka noho ʻana me kahi maʻi no ke ola holoʻokoʻa ke paʻakikī i ka naʻau. Hiki iā ʻoe ke manaʻo i ka huhū, ke kaumaha, a i ʻole ka hopohopo i kekahi manawa ma muli o ka ʻeha a me ka paʻakikī i ka hoʻokō ʻana i nā hana o kēlā me kēia lā. He mea nui e loaʻa kahi mea e kamaʻilio pū ai e pili ana i kēia. Hiki i kahi kākāʻōlelo olakino noʻonoʻo ke kōkua iā ʻoe e hoʻokele i kou mau manaʻo a kū i kēia pilikia me ka ikaika.
Ma ke ʻano he koho hope loa wale nō ...
Nā kauka lapaʻau
He mea nui loa kēia: ʻAʻole pono pinepine nā poʻe maʻi AS i ke ʻoki kino. Hiki i ka hapa nui o ka poʻe ke mālama maikaʻi i ka maʻi me ka lāʻau lapaʻau, ka hoʻoikaika kino, a me nā lāʻau ʻē aʻe.
Eia nō naʻe, i nā hihia koʻikoʻi loa, inā ua hōʻino loa ʻia kahi hui, e like me ka ʻūhā, hiki i ke kauka ʻokiʻoki orthopedic ke hana i kahi ʻoki pani ʻūhā. Pēlā nō, inā he kīnā koʻikoʻi o ka iwi kuamoʻo e hoʻoulu ai i kahi aʻalolo i ʻoki ʻia, pono paha kahi neurosurgeon. Eia naʻe, e hoʻomanaʻo, he mau hihia kakaikahi loa kēia.
Leka Lawe-Home
- He maʻi ola ka Ankylosing Spondylitis (AS). Eia nō naʻe, me ka mālama pono ʻana a me ka hoʻokele ʻana, hiki iā ʻoe ke ola i kahi ola maʻamau a hana.
- No kēia, he mea nui loa e ʻimi i ke kākoʻo o kahi hui o nā loea like ʻole, ma mua o hoʻokahi kanaka hoʻokahi.
- He kauka rheumatologist kāu kauka mālama mua. He mea nui e hahai i kāna mau kuhikuhi a hele i nā keʻena lapaʻau i ka manawa kūpono.
- ʻO ka hoʻoikaika kino a me ka hoʻōla kino ke kumu o ka mālama ʻana i kēia maʻi. Mai hoʻowahāwahā iā lākou.
- Inā loaʻa iā ʻoe ka ʻeha o ka maka, ka ʻulaʻula, a i ʻole nā pilikia o ka ʻōpū, e hoʻomaopopo koke i kāu kauka.
- Mai makaʻu e kamaʻilio e pili ana i ke kaumaha e hiki ai i kēia maʻi ke hana. E ʻimi i ke kōkua o kahi loea olakino noʻonoʻo inā pono.
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