Inā ʻoe a i ʻole kahi mea aloha e loaʻa ana i ka Beta Thalassemia, ʻike paha ʻoe i ka luhi o ka hoʻoili pinepine ʻana i ke koko. Eia nō naʻe, me ka holomua o ka ʻepekema lapaʻau, ua hoʻohui ʻia ka manaʻolana hou i kēia maʻi. I kēia lā, e kamaʻilio mākou e pili ana i kekahi o ia ʻano lāʻau lapaʻau hou a holomua loa. ʻO Betibeglogene Autotemcel kona inoa. Ua ʻike nui ʻia ʻo ia ma ka inoa inoa ʻo ZYNTEGLO.
I ka ʻōlelo maʻalahi, he aha kēia Betibeglogene Autotemcel?
ʻAʻole kēia he pila a he capsule maʻamau. He lāʻau lapaʻau gene kikoʻī loa kēia a holomua. ʻO ka pahuhopu nui o kēia, ʻo ia ke kōkua i ke kino o ke kanaka me ka beta thalassemia e hana i nā hunaola koko ʻulaʻula olakino a hana maikaʻi.
E noʻonoʻo he wahi kīnā liʻiliʻi ko ka hale hana e hana ana i nā hunaola koko ʻulaʻula i loko o ko kākou kino. ʻO ia ka mea e hana ʻia ana i ka thalassemia. Kōkua kēia lāʻau lapaʻau hou i ka hoʻoponopono ʻana i kēlā kīnā. Inā holomua, hiki iā ia ke hōʻemi nui i ka pono no ke kahe koko pinepine ʻana. He mea hōʻoluʻolu maoli ia, ʻeā?
Pehea e hāʻawi ʻia ai kēia lāʻau lapaʻau?
He ʻano paʻakikī kēia ʻano lapaʻau. No laila, ʻaʻole hiki ke hana ʻia kēia ma ka home. Pono e hana ʻia kēia ma ka haukapila, ma lalo o ka nānā ʻana o kahi hui o nā kauka loea.
ʻO ka mea nui loa, ʻo ia ka hana ʻia ʻana o kēia lāʻau lapaʻau mai kou mau pūnaewele ponoʻī . ʻAe, hoʻololi ʻia nā pūnaewele pale i lawe ʻia mai ou aku i loko o kahi keʻena hoʻokolohua me ka hoʻohana ʻana i kahi kaʻina hana kūikawā, i hāʻawi ʻia i ka hiki ke hana i nā pūnaewele koko ʻulaʻula olakino, a laila hoʻokomo hou ʻia i loko o kou kino ponoʻī ma o kahi aʻa. He ʻenehana kupaianaha maoli kēia.
Hiki ke hāʻawi ʻia kēia lāʻau lapaʻau i nā keiki ma luna o 4 mau makahiki. Eia nō naʻe, pono ia i ka hoʻomākaukau kūikawā a me nā hana palekana. Na kāu kauka e wehewehe i kēia iā ʻoe.
ʻO ka mea nui loa: He lāʻau lapaʻau kēia i hana kūikawā ʻia nou. No laila, ʻaʻole hiki ke kaʻana like ʻia a hāʻawi ʻia paha i kekahi no kekahi kumu.
Nā mea e pono ai ʻoe e haʻi i kāu kauka ma mua o ka hoʻomaka ʻana i ka lāʻau lapaʻau
Ma mua o ka hoʻomaka ʻana i ia ʻano lapaʻau holomua, he mea nui loa ia e ʻike kāu kauka i kou mōʻaukala olakino piha. Inā pili kekahi o kēia mau mea iā ʻoe, e hōʻoia e haʻi iā lākou e pili ana i ia mea.
- Inā loaʻa iā ʻoe kahi maʻi e like me ka maʻi HIV a i ʻole AIDS .
- Inā ua loaʻa iā ʻoe kahi lāʻau pale i hala koke aku nei, a i ʻole e loaʻa koke ana iā ʻoe kekahi (ʻoiai nā lāʻau pale i loaʻa nā maʻi ola).
- Inā loaʻa iā ʻoe kahi hopena maʻi i kēia lāʻau lapaʻau, nā lāʻau lapaʻau ʻē aʻe, nā meaʻai, nā kala, a i ʻole nā mea mālama.
- Inā ʻoe e hāpai ana a i ʻole e hoʻāʻo ana e hāpai . (He mea nui loa kēia!)
- Inā he makuahine hānai waiū ʻoe.
Nā mea e makaʻala nui ai i ka wā o ka mālama ʻana
E nānā pono ana kāu hui lapaʻau iā ʻoe i kou wā e lawe ana i kēia lāʻau lapaʻau a ma hope, a he mea nui iā ʻoe e makaʻala i kēia mau mea.
ʻO ka hāpai ʻana a me ka kaohi hānau
He mea kēia e pono ai ke mālama nui ʻia.
- No nā wāhine: ʻO ka hāpai ʻana i ka wā e lawe ana i kēia lāʻau lapaʻau hiki ke hana i nā kīnā hānau koʻikoʻi. No laila, e hana ʻia kahi hoʻāʻo e hōʻoia ʻaʻole ʻoe e hāpai ma mua o ka hoʻomaka ʻana i ka lāʻau lapaʻau. Pono ʻoe e hoʻohana i kahi ʻano kaohi hānau, e like me ka condom a i ʻole diaphragm, i ka wā o ka lāʻau lapaʻau a no 6 mau mahina ma hope o ka hoʻōki ʻana i ka lāʻau lapaʻau.
- No nā kāne: Pono ke kāne e lawe ana i kēia lāʻau lapaʻau e hoʻohana i ka condom inā moe ʻo ia me kahi wahine hiki ke hāpai i kahi keiki. Pono ʻoe e hoʻomau i ka hoʻohana ʻana i kēia ʻano pale no 6 mau mahina ma hope o ka hoʻōki ʻana i ka lāʻau lapaʻau. ʻO kēia no ka mea inā hāpai kāu hoa, aia kahi pilikia o ka hōʻeha i ke keiki i hānau ʻole ʻia. Inā he kānalua kou ua hāpai kāu hoa, e haʻi koke i kāu kauka.
Nā mea nui ʻē aʻe
- Mai hāʻawi koko: Mai hāʻawi koko i ka wā e lawe ana i kēia lāʻau lapaʻau a i ʻole ma hope o ka hoʻōki ʻana.
- Ka pilikia o ke kanesa: Hiki i kēia lāʻau lapaʻau ke hoʻonui iki i kou pilikia o ka loaʻa ʻana o kekahi mau ʻano kanesa. Mai hopohopo i kēia, akā e wehe a makaʻala i kēia pilikia ma ke kamaʻilio ʻana me kāu hui lapaʻau.
- Nā lāʻau lapaʻau ʻē aʻe: E haʻi i kāu kauka e pili ana i nā lāʻau lapaʻau āpau āu e lawe nei (me nā huaora a me nā lāʻau lapaʻau lāʻau). Ma ke ʻano kūikawā, hiki i nā lāʻau lapaʻau ma lalo nei ke launa pū me kēia lāʻau lapaʻau.
- ʻO ka mea hoʻouluulu kolone granulocyte
- Nā lāʻau lapaʻau chelator hao
- Nā lāʻau pale ola
He aha nā hopena ʻaoʻao e hiki mai ana?
E like me nā lāʻau lapaʻau a pau, hiki ke loaʻa nā hopena ʻaoʻao. Pono e hōʻike koke ʻia kekahi o lākou, aʻo kekahi ʻaʻole koʻikoʻi. Hiki ke hoʻomaopopo maopopo ʻia kēia mau mea mai ka papa ma lalo nei.
| Ka hoʻokaʻawale ʻana o nā hopena ʻaoʻao | |
|---|---|
| 🚨 Nā mea e hōʻike koke aku ai i kāu hui lapaʻau | |
| Nā hōʻailona alerika | ʻŌhūhū ʻili, maneʻo, pehu o ka maka, nā lehelehe, ke alelo a i ʻole ka puʻu. |
| Nā hōʻailona o ke kahe ʻana o ke koko | ʻO ka ʻōpala ʻeleʻele a koko paha, ka luaʻi ʻana i ke koko e like me ke ʻano o ka lepo kofe, ka mimi ʻulaʻula/ʻeleʻele ʻeleʻele, nā kiko liʻiliʻi ʻulaʻula/poni ma ka ʻili, a me ka palapū a i ʻole ke kahe koko ʻana i wehewehe ʻole ʻia. |
| Nā hōʻailona o ka maʻi | Kuni, anu, ʻū, ʻeha ka puʻu. |
| 🙂 Nā mea e haʻi aku ai i kāu kauka inā ʻaʻole lākou i koʻikoʻi, akā hoʻomau | |
| Nā hopena ʻaoʻao ʻē aʻe |
|
Inā kānalua ʻoe ua lawe hewa ʻoe i kahi lāʻau lapaʻau, e hōʻike koke iā ia i ka Emergency Treatment Unit (ETU) o ka haukapila. Hiki iā ʻoe ke hoʻokaʻaʻike aku i ke National Poisons Information Centre ma ka Halemai Lahui ʻo Colombo no ka ʻōlelo aʻoaʻo no ia mau kūlana.
Leka Lawe-Home
- He lāʻau lapaʻau gene holomua loa ʻo Betibeglogene Autotemcel no ka beta thalassemia hiki ke hōʻemi i ka pono no ke kahe koko pinepine.
- Hana ʻia kēia lāʻau lapaʻau mai kou mau pūnaewele ponoʻī a hāʻawi ʻia e kahi hui o nā kauka loea ma kahi haukapila.
- Ma mua o ka hoʻomaka ʻana i ka lāʻau lapaʻau, pono ʻoe e haʻi i kāu kauka e pili ana i kāu ʻike olakino āpau, nā lāʻau lapaʻau āu e lawe nei, a me nā maʻi allergies.
- He mea nui e hahai nā wāhine a me nā kāne i nā ʻano kaohi hānau ikaika loa i ka wā o ka mālama ʻana a no 6 mau mahina ma hope.
- Mai hāʻawi koko ma hope o ka loaʻa ʻana o kēia lāʻau.
- Mai makaʻu e kamaʻilio ākea me kāu kauka e pili ana i nā hopena a i ʻole nā pilikia.
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