Ke pilikia nei kāu pēpē i ka hanu ʻana? Ke paʻa nei kona ihu? E aʻo kākou e pili ana i ka Choanal Atresia

Ua ʻike anei ʻoe i kahi ʻokoʻa iki i ke ʻano o ka hanu ʻana o kāu pēpē hānau hou i kou nānā ʻana iā ia? Malia paha ua hanu maikaʻi ʻo ia i kona wā e uē ana, akā i kona hiamoe ʻana a mālie, me he mea lā he pilikia iki kona hanu ʻana ma kona ihu? A i ʻole ua hoʻōki ʻo ia i ka hānai waiū no ka mea ke hāmama mau nei kona waha e hanu? He mea maʻamau no ka makuahine a makua paha ke manaʻo iki i ka makaʻu ke ʻike lākou i nā mea e like me kēia. I kēia lā e kamaʻilio mākou e pili ana i kahi maʻi hānau e hiki ke hana i nā hōʻailona like, akā ʻaʻole i ʻike nui ʻia. ʻO ia ka 'Choanal Atresia'.

I ka ʻōlelo maʻalahi, he aha ʻo Choanal Atresia?

ʻO Choanal Atresia (puana ʻia: ko-a-nal atre-sia) kahi kūlana i hānau ʻia ai kahi pēpē me kahi paʻa ma ke kua o ko lākou ihu, kahi e pili ai i ko lākou puʻu (i kapa ʻia ʻo choana), e kahi ʻāpana membrane a iwi paha. E noʻonoʻo i ka ihu e like me ʻelua keʻena, me ʻelua puka ma ke kua o kēlā me kēia keʻena i paʻa. Hiki ke hana ʻia kēia paʻa e ka iwi, a i ʻole ka hui pū ʻana o ka iwi a me nā ʻiʻo palupalu.

Hiki i kēia kūlana ke hoʻopilikia i hoʻokahi wale nō puka ihu o ka pēpē (`Unilateral`) a i ʻole nā ​​puka ihu ʻelua (`Bilateral`). ʻO ke koʻikoʻi a me ka wikiwiki o ka mālama ʻana e pili ana i ka mea inā aia ka paʻa ma kekahi ʻaoʻao a i ʻole nā ​​ʻaoʻao ʻelua, a pehea ka mamao.

He aha nā ʻano nui ʻelua o Choanal Atresia?

E hoʻomaopopo pono kākou i nā ʻano nui ʻelua o kēia. E maʻalahi iā ʻoe ke nānā ʻoe iā ia ma kahi papa.

ʻIke ʻia ka choanal atresia ma kahi o 1 i loko o 7,000 mau hānau ʻana. Ma waena o kēia mau mea, ʻoi aku ma mua o 60% he unilateral. ʻElua hoʻi ka nui o ia mea i nā kaikamahine ma mua o nā keikikāne.

He aha nā hōʻailona o kēia maʻi?

ʻOkoʻa nā hōʻailona ma muli o nā ʻano ʻelua a mākou i kūkākūkā ai ma mua.

Inā paʻa nā ʻaoʻao ʻelua o ka ihu (Bilateral Choanal Atresia)

Hiki i nā kauka ke ʻike i kēia mau hōʻailona i ka wā e hānau ai ke pēpē.

• Paʻakikī nui ka hanu ʻana: Paʻakikī ka pēpē e hanu i ka wā ʻaʻole ia e uē ana.
• ʻIli polū a me nā lehelehe (`Cyanosis`): Hoʻomaka ka ʻili, nā lehelehe, a me nā kui o ke pēpē e polū no ka mea ʻaʻole lawa ka oxygen i ke kino.
• ʻO ka hanu ʻana i ka wā e uē ana: ʻOiai ʻo ka pēpē e hāmama ana i kona waha i ka wā e uē ai, hanu wale ʻo ia i kēlā manawa, a emi iho ka polū o ka ʻili a lilo i poni. Ke pau ka uē ʻana, lilo ia i mea paʻakikī ke hanu hou a lilo ia i polū.

Inā ua ālai ʻia kekahi ʻaoʻao o ka ihu (Unilateral Choanal Atresia)

No ka mea, ʻaʻole maopopo loa kēia mau hōʻailona, ​​ʻaʻole paha ʻoe e ʻike iā lākou a hiki i kou lawe ʻana mai i kāu pēpē i ka home. ʻAʻole paha ʻoe e ʻike iā lākou a hiki i nā makahiki ma hope.

• Hoʻomaha ʻole i ka wā e hānai waiū ana: Pono ka pēpē e hanu ma kona ihu i ka wā e hānai waiū ana. Ma muli o ka paʻa ʻana o kekahi ʻaoʻao, he paʻakikī ke hanu a hoʻōki ka pēpē i ka hānai waiū a hāmama i kona waha. Hiki i kēia ke hoʻomaha loa i ka pēpē a hiki ʻole ke omo pono.
• Ka ihu kahe mau ma kekahi ʻaoʻao: Inā hoʻomau ka ihu o kāu pēpē i ka kahe ma kekahi ʻaoʻao me ke kumu ʻole, me ke anu ʻole, ʻo ia ka hōʻailona nui a maʻamau o kēia maʻi.
• E piholo ana i loko i ka wā e uē ana:Ke ʻole ka uē ʻana o ke pēpē, me he mea lā e piholo ana ka umauma i loko i kona hakakā ʻana e hanu.
• Sinusitis mau loa: Inā ʻelemakule iki ʻoe, loaʻa pinepine paha iā ʻoe nā maʻi sinus ma muli o ka hōʻiliʻili ʻana o ka mucus ma kekahi ʻaoʻao o kou ihu.

No ke aha lā kēia e hana nei? He aha ke kumu?

ʻAʻole ʻike ʻia ke kumu kikoʻī o kēia ʻano. Eia nō naʻe, manaʻoʻiʻo nā kauka i ka wā mua o ka ulu ʻana o ka pēpē i loko o ka ʻōpū, aia kahi membrane e hoʻokaʻawale ana i ka ihu a me ka waha. ʻO ka maʻamau, hoʻoheheʻe kēia membrane iā ia iho i ka wā e ulu ana ka pēpē. Eia nō naʻe, i kekahi mau pēpē, e mau ana kēia membrane a mau, i ʻike ʻia ʻo 'Choanal Atresia'.

Nā kūlana pili ʻē aʻe

Ma kahi o ka hapalua o nā pēpē me Choanal Atresia he mau maʻi genetic ʻē aʻe a i ʻole nā ​​​​pilikia hānau. ʻOiai ʻaʻole maopopo ke kumu, hana pinepine ʻia kēia ʻano me nā syndromes ʻē aʻe.

Ma waena o lākou, ʻo nā mea nui loa:

• ʻO ka maʻi CHARGE: Ma kahi o 60% o nā pēpē me ka pale ʻana o ka ihu bilateral e loaʻa ana i ka maʻi CHARGE.
• ʻO ka maʻi Treacher Collins
• ʻO ka maʻi Crouzon
• ʻO ka maʻi Pfeiffer

Hiki ke ʻike ʻia ʻo Choanal Atresia me nā kūlana genetic ʻē aʻe e like me kēia. No laila, e nānā pū ke kauka i kēia.

He aha nā pilikia e hiki mai ana inā ʻaʻole mālama ʻia?

ʻOiai inā he ālai ma kekahi ʻaoʻao, ʻo ka ʻike ʻole e pili ana i ia mea hiki ke hoʻopaneʻe i ka mālama ʻana. Hiki i kēia ke loaʻa nā hopena lōʻihi.

• Nā maʻi pepeiao pinepine: Ma muli o ka pilina ma waena o ka ihu a me ka pepeiao, ke ālai mau ʻia kekahi ʻaoʻao o ka ihu a piha i ka mucus, hiki iā ia ke hoʻopilikia i ka pepeiao a hoʻoulu i nā maʻi pepeiao pinepine.
• Poho lohe: Hiki i nā maʻi pepeiao lōʻihi ke hōʻino i ka pepeiao a, i ka hala ʻana o ka manawa, e hoʻolilo i ka pohō lohe.
• Ka hanu ʻana: Aia kahi pilikia o ka hanu ʻana i ka waiū a i ʻole ka meaʻai i loko o ke ala ea, ʻoiai ma muli o ka paʻakikī o ka hanu ʻana i ka wā e hānai ai i ka waiū.

Ma muli o kēia mau pilikia, e ʻōlelo ke kauka i ka lāʻau lapaʻau i ka manawa kūpono loa.

Pehea e ʻike ai i kēia maʻi?

ʻO ka maʻamau, ʻike ʻia kahi pēpē me ka ihu paʻa ma nā ʻaoʻao ʻelua i ka wā hānau ma ka haukapila. Eia nō naʻe, inā he paʻa ma kekahi ʻaoʻao, pono nā hoʻokolohua e ʻike ai.

1. Hoʻāʻo hanu: E paʻa ke kauka i kahi ʻāpana aniani liʻiliʻi kokoke i ka puka ihu o ka pēpē a nānā e ʻike inā e puka mai ana ka mahu mai loko mai. Inā ʻaʻole e puka mai ana ka mahu mai kekahi ʻaoʻao, hiki ke hōʻike i kahi paʻa ma kēlā ʻaoʻao.

2. Nānā CT:ʻO kēia ka mea e ʻokoʻa ai. Ua like ia me ke kiʻi ʻana i kiʻi 3D o loko o kou ihu. Hiki iā ia ke ʻike maopopo i kahi o ka mea i paʻa ai, inā he iwi a he membrane paha, a pehea kona mānoanoa.

3. Nasal endoscopy: Hoʻohana kēia ʻano hana i kahi ʻōmole me kahi kāmela maikaʻi loa i hoʻokomo ʻia i loko o ka ihu a hiki i ke kauka ke nānā pololei i loko o ka ihu ma kahi pale.

Hoʻomaopopo ka hui lapaʻau e hanu pono ana ka pēpē i ka wā o kēia mau hoʻokolohua, no laila ʻaʻohe pilikia i ka pēpē.

Pehea e mālama ʻia ai?

ʻO ke ʻoki ʻana wale nō ke ʻano mau loa no Choanal Atresia .

• Inā paʻa nā ʻaoʻao ʻelua o ka ihu: Pono ke pēpē i ke ʻoki ʻana i ka hikiwawe loa.
• Inā paʻa kekahi ʻaoʻao o ka ihu: Inā ʻaʻole pilikia nui ka pēpē i ka hanu ʻana a i ʻole ka ʻai ʻana, hiki i ke kauka ke hoʻoholo e hoʻopanee i ke ʻoki ʻana a hiki i ka wā e ʻelemakule iki ai ka pēpē.

ʻoki kino

ʻO ke ʻoki kino e pili ana i ka wehe ʻana i ka iwi a i ʻole ka membrane i paʻa a hoʻoponopono hou i ke ala ea i hiki ai ke hoʻomau i ka hanu ʻana. Hiki ke hana ʻia kēia ma o ka ihu (transnasal) a i ʻole ma o ka palate (transpalatal).

I kekahi mau hihia, hoʻokomo ʻia kahi ʻōmole liʻiliʻi (he `stent`) ma o ke ala i hana hou ʻia ma hope o ke ʻoki ʻana e pale aku iā ia mai ka pani hou ʻana. Hoʻoneʻe hou ʻia kēia ʻōmole ma hope o kekahi mau mahina ma o kahi ʻoki liʻiliʻi. Hana ʻia kēia ʻoki ma lalo o ka anesthesia piha, no laila ʻaʻole ʻeha ka pēpē.

Hoʻokele ma ka home

Inā loaʻa i kāu pēpē kahi ālai ʻaoʻao ʻelua a hoʻoholo ke kauka e hoʻopanee i ke ʻoki ʻana, e hāʻawi ʻo ia iā ʻoe i nā kuhikuhi no ka mālama ʻana i nā hōʻailona ma ka home. No ka laʻana, e ʻōlelo ʻia paha ʻoe e hoʻohana i nā kulu saline e mālama i ka ihu i maʻemaʻe.

Nā nīnau e nīnau aku ai i kāu kauka

Ke ʻike ʻoe ua loaʻa i kāu pēpē kēia maʻi, he mea maʻamau ka loaʻa ʻana o nā nīnau he nui i loko o kou manaʻo. Mai makaʻu e nīnau i kāu kauka i kēia mau nīnau.

• "E ke kauka, ua paʻa anei ka ihu o kaʻu pēpē ma kekahi ʻaoʻao a i ʻole nā ​​ʻaoʻao ʻelua?"
• "Pili anei kēia maʻi i kekahi maʻi ʻē aʻe e like me ke `CHARGE syndrome`?"
• "Āhea e pono ai ke ʻoki kino no ka pēpē?"
• "He aha ke ʻano o ke ʻoki kino a ke kauka e ʻōlelo nei?"
• "Pehea lā mākou e ʻike pono ai ua holomua ke ʻoki kino?"

ʻO ka ʻike ʻana ua loaʻa i kāu pēpē ʻo Choanal Atresia, ʻoiai inā he paʻakikī ko lākou hanu ʻana i ka wā hānau, hiki ke hopohopo nui i nā mākua. Akā e hoʻomanaʻo, hiki ke mālama pono ʻia kēia ʻano me ke ʻoki ʻana. Ma hope o ke ʻoki ʻana, hoʻōla piha ka hapa nui o nā pēpē a hanu me ka ʻole o ka pilikia i ko lākou ola ʻana. No laila, inā he kānalua iki kou ua loaʻa i kāu pēpē kēia mau hōʻailona, ​​e ʻike koke i ke kauka no ka hoʻokolokolo ʻana.