Ke ʻike ʻia ʻoe he maʻi ʻaʻai umauma, he mea maʻamau ka manaʻo e like me ka hiolo ʻana o ke ao holoʻokoʻa ma luna ou. He mea paʻakikī ke hoʻopuka i ka makaʻu a me ka hopohopo e hiki mai ana i ka noʻonoʻo. Akā, ʻaʻole pono ʻoe e hele wale ma kēia huakaʻi. ʻO ka mea mua a me ka mea nui loa, ʻo ia ke kūkulu ʻana i kahi hui mālama ola maikaʻi e kōkua iā ʻoe, e mālama iā ʻoe, a e hāʻawi iā ʻoe i ka lāʻau maikaʻi loa. Akā me ka nui o nā kauka a me nā haukapila, pehea ʻoe e koho ai i nā mea maikaʻi loa? ʻAe, e kamaʻilio maʻalahi kākou e pili ana.
ʻO wai ka mea e hui pū me kāu hui lapaʻau?
Ma kēia huakaʻi, pono ʻoe i ke kōkua o nā loea like ʻole. E hana pū lākou a pau e hana i kāu hoʻolālā lapaʻau. I ka pololei, ua like kēia me kahi 'hana hui'. E ʻike kākou i ka mea e pono ai ke lilo i loko o kēia hui.
| Kauka lapaʻau (Loea) | Pehea e hiki ai i kēia kauka ke kōkua iā ʻoe? |
|---|---|
| Kauka Lapaʻau Kanesa Umauma | ʻO kēia ke kauka nāna e wehe i ka puʻupuʻu kanesa. He mea nui ke koho ʻana i kahi kauka lapaʻau loea i ka maʻi kanesa umauma ma mua o kahi mea hana ʻoki no nā ʻano maʻi kanesa ʻē aʻe. Hiki iā ʻoe ke nīnau iā ia i nā nīnau e like me: - Ua loaʻa anei iā ʻoe ke aʻo kūikawā (fellowship) ma ke kanesa o ka umauma? - Ma kahi o ʻehia mau ʻoki ʻana i ka maʻi ʻaʻai umauma e hana ʻia i kēlā me kēia pule/makahiki? - Ke komo nei ʻoe i ka noiʻi ʻana i kēia? - Aia kekahi mau hoʻokolohua lapaʻau e hiki iaʻu ke komo? |
| Kauka Lapaʻau ʻOnkolo | E hāʻawi kēia kauka iā ʻoe i ka radiation therapy e pepehi i nā hunaola kanesa. Pono pinepine ka radiation therapy, ʻoiai inā ua loaʻa iā ʻoe kahi lumpectomy. E wehewehe ʻo ia i nā mea āpau iā ʻoe, me ke kumu e pono ai kēia lāʻau lapaʻau, pehea ka lōʻihi o ka manawa e lawe ai, a me nā hopena ʻaoʻao. |
| Kauka Lapaʻau Oncology | ʻO kēia kauka ka mea nāna e mālama i kāu maʻi kanesa me nā lāʻau lapaʻau e like me ka chemotherapy, ka lāʻau lapaʻau i kuhikuhi ʻia, a i ʻole ka immunotherapy. E haʻi aku ʻo ia iā ʻoe i nā mea nui he nui, e like me: - Loaʻa i kāu mau hunaola kanesa nā mea loaʻa hormone? - Loaʻa i nā hunaola kanesa ka nui o ka protein HER2? - Pehea ka wikiwiki o ka laha ʻana o ke kanesa? - He aha nā hoʻokolohua ʻē aʻe e pono ai e ʻike inā ua pālahalaha ke kanesa? - He aha nā lāʻau lapaʻau kūpono iā ʻoe a he aha ko lākou mau pono a me nā hemahema? |
| Kauka Lapaʻau Palaki | Inā ua hana ʻia ʻoe i ka mastectomy, pono paha ʻoe e hana i ke ʻoki hana hou ʻana o ka umauma. Hana ʻia kēia e ke kauka ʻoki plastik. ʻOi aku ka maikaʻi o ke koho ʻana i kahi mea loea i ke kūkulu hou ʻana o ka umauma. |
| Luna Hoʻoulu Manawa | Inā ʻoe e hoʻolālā ana e loaʻa nā keiki i ka wā e hiki mai ana, he mea nui e ʻike i kēia loea ma mua o ka hoʻomaka ʻana i ka lāʻau lapaʻau . No ka mea hiki i kekahi mau lāʻau lapaʻau maʻi kanesa ke hoʻopilikia i kou hiki ke loaʻa nā keiki no kekahi manawa a mau loa paha, hiki iā ia ke kamaʻilio me ʻoe e pili ana i nā koho e like me ka hoʻopaʻahau ʻana i kāu mau hua manu a i ʻole nā embryos. |
| Kahu Mālama Kanesa (Nurse Navigator) | Ua hoʻomaʻamaʻa ʻia kēia mau kahu maʻi e kōkua i nā mea maʻi e loaʻa ka lāʻau lapaʻau. ʻAʻole hiki iā lākou ke kōkua wale iā ʻoe me nā mea e like me ka hele ʻana i ka haukapila a mai laila mai, a i ʻole nā pilikia mālama keiki, akā hiki iā lākou ke hāʻawi iā ʻoe i ke kākoʻo naʻau a kōkua iā ʻoe e hoʻokele i nā hopena ʻaoʻao. |
Pehea ʻoe e koho ai i kahi haukapila maikaʻi a kikowaena lapaʻau paha?
Inā ʻaʻole ʻoe maopopo i kahi e hoʻomaka ai, e nīnau i ke kauka nāna i ʻike mua iā ʻoe me ka maʻi kanesa. ʻO kahi nīnau maikaʻi e nīnau ai, "E ke kauka, inā loaʻa i kekahi o kou ʻohana kēia ʻano maʻi kanesa, ma hea ʻoe e hele ai no ka mālama ʻana?" Eia kekahi, e noʻonoʻo e pili ana i kēia mau mea:
- Loaʻa iā ʻoe ka ʻike? Loaʻa i ka haukapila āu i koho ai ka nui o ka ʻike i ka mālama ʻana i ke ʻano o ka maʻi kanesa āu i loaʻa ai? ʻO ka mea maʻamau, ʻoi aku ka ʻike o nā haukapila nui aAia nā keʻena hou aʻe no nā poʻe maʻi kanesa .
- Ke hoʻolohe nei nā kauka iā ʻoe? He mea nui loa kēia.
Ke wehewehe pono nei kāu kauka i nā mea āpau iā ʻoe? Ke hoʻolohe pono nei ʻo ia i kāu mau nīnau? E noʻonoʻo i nā mea e like me kēia. No ka mea he huakaʻi lōʻihi kēia, he mea nui loa ka hele ʻana ma kēia huakaʻi me kahi mea hiki iā ʻoe ke hilinaʻi.
- E kūkākūkā ʻia kāu hihia e kahi 'papa tumor '? ʻO ke ʻano kēia e hui pū nā loea a pau a mākou i kamaʻilio ai ma luna, e kūkākūkā i kou kūlana, a hoʻoholo i ka hoʻolālā lapaʻau maikaʻi loa nāu. Inā hiki iā ʻoe ke loaʻa ka lāʻau lapaʻau mai kahi i loaʻa kēia ʻōnaehana, he mea waiwai nui ia.
I ka manawa hea e pono ai ʻoe e kiʻi i ka manaʻo ʻelua?
ʻOiai ke ʻano o kou hilinaʻi i kāu hui lapaʻau i koho ʻia, he manaʻo maikaʻi mau ka loaʻa ʻana o ka manaʻo ʻelua . E kōkua ia iā ʻoe e hoʻomaʻemaʻe i nā kānalua āu e loaʻa ai a hāʻawi iā ʻoe i ka hilinaʻi hou aʻe e hoʻomau i kāu lāʻau lapaʻau.
He manaʻo maikaʻi ke kiʻi i kahi manaʻo ʻelua, ʻoiai inā ʻoe e noho ana ma kahi me nā pono lapaʻau palena ʻole, a inā he ʻano maʻi ʻaʻai umauma kou. I kēlā mau hihia, e hoʻāʻo e ʻike i kahi loea ma kahi haukapila me ka inoa no ka maʻi ʻaʻai ma ke kūlanakauhale nui e like me Colombo a i ʻole Kandy.
E hoʻomanaʻo i kēia mau mea i ka wā e loaʻa ai kahi manaʻo ʻelua:
- E hele i kahi haukapila ʻē aʻe: Manaʻo pinepine nā kauka ma ka haukapila hoʻokahi e pili ana i nā ʻano lapaʻau like. No laila, ke ʻike ʻoe i ke kauka ma kahi haukapila ʻokoʻa loa, hiki iā lākou ke nānā i kou kūlana me nā maka hou a hāʻawi paha iā ʻoe i kahi manaʻo ʻē aʻe.
- Kūkākūkā Pūnaewele: I kēia mau lā, ke hāʻawi nei kekahi mau haukapila nui i nā manaʻo lua ma ka pūnaewele. ʻO ke ʻano kēia e hoʻouna ʻoe i kāu mau moʻolelo lapaʻau āpau i ke kauka loea, nāna e nānā iā lākou a hoʻouna i nā ʻōlelo aʻoaʻo lapaʻau i kāu hui lapaʻau e kū nei. He koho maikaʻi loa nō hoʻi kēia.
ʻAʻole he huakaʻi maʻalahi ke kaua ʻana i ka maʻi kanesa. Akā me ka ʻike kūpono, ke kākoʻo o ka hui lapaʻau maikaʻi loa, a me ka ikaika o kou noʻonoʻo ponoʻī, hiki iā ʻoe ke lanakila i kēia kaua.
Leka Lawe-Home
- ʻŪhāHe mea maʻamau ke makaʻu i ka wā e ʻike ai ʻoe he maʻi kanesa kou. Akā, ʻaʻole ʻoe hoʻokahi. ʻO ka hana mua, ʻo ia ka loaʻa ʻana o ka hui lapaʻau maikaʻi loa e kōkua iā ʻoe.
- E komo pū ana kāu hui i kekahi mau kānaka, me ke kauka hana ʻoki, nā kauka maʻi radiation, a me nā kauka maʻi oncologists.
- Mai makaʻu e nīnau i kāu mau kauka. Pono ʻoe e maopopo pono i kou kūlana a me kou lāʻau lapaʻau.
- I ke koho ʻana i kahi haukapila, e noʻonoʻo pono e pili ana i ko lākou ʻike, nā pono hana, a inā paha e hoʻolohe nā kauka iā ʻoe.
- Inā he kānalua kāu a i ʻole pono ʻoe i ka hōʻoia, he manaʻo maikaʻi mau ka loaʻa ʻana o ka manaʻo ʻelua . Mai noʻonoʻo hou e pili ana i ia mea.
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