He puʻupuʻu kou i loko o kou lolo a i ʻole kou iwi kuamoʻo? E kamaʻilio kākou e pili ana iā Ependymoma!

Ua lohe paha ʻoe i ka huaʻōlelo "Ependymoma"? Malia paha he mea hou iki kēia inoa. I ka ʻōlelo maʻalahi, he puʻupuʻu ia e ulu ana i loko o ko kākou lolo a i ʻole ke kaula kuamoʻo . He mea maʻamau ke manaʻo iki i ka makaʻu ke lohe ʻoe i kahi mea e like me kēia, akā mai hopohopo. I kēia lā e kamaʻilio mākou e pili ana i kēia me ka maopopo loa, me he mea lā e kamaʻilio ana mākou me kahi hoaaloha maikaʻi.

He aha maoli ka Ependymoma?

ʻĀ, e hoʻomaka kākou ma ka hoʻomaka. He puʻupuʻu mua ʻo Ependymoma. ʻO ke ʻano o "Muamua" ʻo ia hoʻi ke kūkulu mua ʻia ʻana o ka puʻupuʻu i loko o kou lolo a i ʻole ke kaula kuamoʻo. ʻO ia hoʻi, ʻaʻole ia i laha (metastasized) mai kahi ʻē aʻe o ke kino.

He ʻano glioma kēia. ʻO Glioma kahi ʻano puʻupuʻu e hoʻomaka ana i loko o nā pūnaewele kākoʻo o ka lolo a me ke kaula kuamoʻo. Ua ʻike anei ʻoe ʻo ependymoma ke ono o ke ʻano puʻupuʻu lolo maʻamau i nā keiki ? Akā hiki nō hoʻi ke ulu i nā pākeke. No laila, hiki iā ia ke hoʻopilikia i kekahi, me ka nānā ʻole i ka makahiki.

He mea weliweli anei nā puʻupuʻu Ependymoma? He mea ʻino anei lākou?

Ua ʻike au aia kēia nīnau ma kou manaʻo. Hoʻokaʻawale nā ​​kauka i nā ependymomas ma muli o ka wikiwiki o ko lākou ulu ʻana . E like me nā māka ma ke kula, ua helu ʻia kēia mau puʻupuʻu mai ka 1 a i ka 3.

• Nā puʻupuʻu Papa 1: ʻO kēia nā mea maʻamau a ʻaʻole pinepine i ka maʻi kanesa, ʻo ia hoʻi he "benign."
• Nā puʻupuʻu papa 2: He ʻano maikaʻi kēia mau mea, ʻaʻole maʻi kanesa, a emi iki ka hiki ke metastasize.
• Nā puʻupuʻu papa 3: He mau puʻupuʻu ʻino a "cancerous" paha kēia. Ulu wikiwiki lākou ma mua o nā puʻupuʻu ma nā papa ʻē aʻe.

No laila, ʻo ka pane i ka nīnau "He mea weliweli anei?" pili ia i ke ʻano o ka nati a me kekahi mau kumu ʻē aʻe.

He aha nā ʻano nui o Ependymoma?

Ma waho aʻe o nā ʻano, aia nā ʻano like ʻole o Ependymoma. E nānā kākou i kēlā:

• ʻO Subependymoma (Papa 1): Hoʻomohala pinepine kēia i loko o nā ventricles, nā keʻena i loko o kou lolo e loaʻa ana ka wai cerebrospinal (CSF) . ʻOi aku ka maʻamau o lākou i nā pākeke ma mua o nā keiki.

• ʻO Ependymoma Kuʻuna (Papa 2): ʻO "Kuʻuna" ke ʻano maʻamau . Hiki ke loaʻa i nā keiki a me nā pākeke.

• ʻO Myxopapillary Ependymoma (Papa 2): Hoʻomohala nui kēia ʻano ma ka ʻaoʻao haʻahaʻa o kou kaula iwi kuamoʻo.ʻIke pinepine ʻia kēia ʻano ma nā kāne ʻelemakule.

• ʻO Anaplastic Ependymoma (Papa 3): Hoʻomohala pinepine kēia mau mea ma ke kumu o ka lolo. Ulu koke lākou a hiki ke laha i nā ʻāpana ʻē aʻe o ka lolo. ʻOi aku ka nui o kēia mau ʻano puʻupuʻu e hoʻi hou ma hope o ka mālama ʻana.

He aha nā hōʻailona o Ependymoma?

Hiki ke ʻokoʻa loa nā hōʻailona o kahi puʻupuʻu ependymoma ma muli o kahi o ka puʻupuʻu , no ka mea, ʻo nā ʻāpana like ʻole o ka lolo a me ke kaula kuamoʻo e kaohi i nā hana kino like ʻole.

Eia kekahi o nā hōʻailona maʻamau:

• ʻEha hope
• Nā pilikia kaulike
• ʻIke pōwehiwehi a i ʻole nā ​​loli ʻike ʻē aʻe
• Pōʻino
• ʻEha poʻo - Hiki ke ʻoi aku ka ʻino o kēia i ke kakahiaka a i ʻole e hele pū me ka luaʻi ʻana.
• Nā loli o ka naʻau - Ke huhū a kaumaha paha ma mua o ka wā ma mua.
• Nāwaliwali o nā ʻiʻo - He manaʻo o ka mae ʻole ma ka lima a i ʻole ka wāwae.
• Ka luaʻi a me ka luaʻi
• ʻEha ʻāʻī
• ʻO ka numbness i kou mau lima a i ʻole kou mau wāwae
• Nā hopu ʻana
• ʻO ke kahe ʻana o ka mimi me ka makemake ʻole ʻia - ke kahe ʻana o ka mimi me ka ʻole o ka makemake.

He mea nui: Inā loaʻa iā ʻoe kekahi a ʻoi aku paha o kēia mau hōʻailona, ​​​​mai manaʻo he ependymoma ia. Hiki ke hana ʻia e nā pilikia olakino ʻē aʻe. Eia nō naʻe, he mea naʻauao mau ke ʻimi i ka ʻōlelo aʻoaʻo lapaʻau inā loaʻa iā ʻoe kekahi o kēia mau hōʻailona.

Nā hōʻailona i nā pēpē a me nā keiki liʻiliʻi:

ʻAʻole hiki i nā pēpē a me nā kamaliʻi liʻiliʻi ke ʻōlelo ke hōʻike i ko lākou mau pilikia e like me kā mākou. No laila, ma ke ʻano he mau mākua, pono ʻoe e makaʻala i nā mea e like me:

• He poʻo nui aʻe ma mua o ka maʻamau
• ʻAʻole hiamoe, e ala mau ana
• Ka huhū a i ʻole ka hoʻoluhi ʻana ma ke ʻano ʻē
• Ka luaʻi ʻana a i ʻole ka kuha ʻana ma mua o ka maʻamau

Inā ʻike ʻoe i nā hōʻailona e like me kēia, he mea nui loa e lawe koke i kāu keiki i ke kauka.

He aha ke kumu o Ependymoma?

He nīnau kēia a ka poʻe he nui. ʻO kaʻoiaʻiʻo, ʻaʻole i loaʻa i nā loea kahi kumu kikoʻī no Ependymoma.

Eia nō naʻe, aia kekahi mau kuhi. Ua manaʻo ʻia ua hana ʻia kēia mau mea e kekahi hewa i ka wā e māhelehele ai nā "ependymal cells" i loko o ko kākou lolo a hana i nā mea hou. Eia kekahi, kekahiAia kekahi manaʻo e hiki i nā loli genetic ke hoʻololi i kēia.

Ua ʻike ʻia kekahi mau noiʻi he nui aku ka poʻe me kahi maʻi genetic i kapa ʻia ʻo "Neurofibromatosis type 2" e loaʻa i ka ependymoma. Eia nō naʻe, ʻaʻole maopopo i nā loea inā he pilina paʻa ma waena o nā mea ʻelua. Ke hoʻomau nei ka noiʻi ʻana i kēia.

Pehea e ʻike ai nā kauka iā Ependymoma?

Inā loaʻa iā ʻoe nā hōʻailona o ependymoma, e hana kekahi kauka i kekahi mau hoʻokolohua e ʻike ai i ke kūlana.

ʻO ka mea mua, e nīnau ke kauka iā ʻoe e pili ana i kāu mau hōʻailona , ​​​​e like me ka wā i hoʻomaka ai a pehea lākou e manaʻo ai. A laila e hana lākou i kahi hoʻokolohua kino a me kahi hoʻokolohua neurological.

Eia kekahi, hiki ke hana ʻia nā hoʻokolohua penei:

• ʻO ke kiʻi MRI (Magnetic Resonance Imaging): ʻO kēia ka hoʻāʻo nui mua i hana ʻia. Hiki iā ia ke hana i nā kiʻi kikoʻī o ka lolo a me ke kaula iwi kuamoʻo.
• ʻO ke kiʻi CT (Computed Tomography): Hiki i kēia ke kiʻi i nā kiʻi o ka lolo a me ke kaula iwi kuamoʻo. I kekahi manawa pono paha kēia ma waho aʻe o ka MRI.
• Biopsy: Pili kēia i ka lawe ʻana i kahi ʻāpana liʻiliʻi o ka ʻiʻo mai ka puʻupuʻu a nānā iā ia ma lalo o kahi microscope . He mea nui kēia hoʻāʻo e ʻike pono i ke ʻano a me ke ʻano o ka puʻupuʻu. I kekahi manawa lawe ʻia kēia biopsy i ka wā o ke ʻoki ʻana e wehe loa i ka puʻupuʻu.
• Lumbar Puncture: Ma kēia hoʻokolohua, lawe ʻia kahi liʻiliʻi o ka wai cerebrospinal (CSF) mai kou kua i lalo. Kōkua kēia i ka ʻike ʻana inā ua laha nā hunaola kanesa i ka wai o ka iwi kuamoʻo. ʻAʻole pono nā kānaka a pau i kēia.

E hoʻoholo nā hopena o kēia mau hoʻokolohua inā he ependymoma kāu a ʻaʻole paha.

He aha nā lāʻau lapaʻau no Ependymoma?

Hoʻohana nā kauka i kekahi mau ʻano hana nui e mālama ai i ka ependymoma. ʻO ka hoʻolālā lapaʻau maikaʻi loa nāu e hilinaʻi ʻia i nā kumu he nui, me kou kūlana, ke ʻano a me ke ʻano o ka puʻupuʻu, kona wahi, kou makahiki, a me kou olakino holoʻokoʻa.

• ʻO ke ʻoki kino: ʻO kēia ka lāʻau lapaʻau maʻamau no ka ependymoma. E hoʻāʻo ke kauka ʻoki kino e wehe i ka nui o ka puʻupuʻu e like me ka hiki. I kekahi manawa, ma muli o ka wahi o ka puʻupuʻu, he mea paʻakikī paha ke wehe loa.
• Lapaʻau radiation: Hoʻohana kēia i nā kukuna X-ikehu kiʻekiʻe a i ʻole nā ​​ʻano radiation ʻē aʻe e luku i nā hunaola tumor. Hiki ke hāʻawi ʻia ka lāʻau radiation ma hope o ke ʻoki ʻana e luku i nā hunaola i koe a i ʻole e hoʻēmi i ka tumor ma mua o ke ʻoki ʻana.
• Kemoterapia (kemoterapia): Ma kēia,Hāʻawi ʻia ka chemotherapy e pepehi i nā hunaola kanesa. Hoʻohana pinepine ʻia ka chemotherapy no ka ependymoma inā ua pālahalaha ka puʻupuʻu i nā ʻāpana ʻē aʻe o ke kino. ʻAʻole kēia i maʻamau i ka ependymoma.
• Immunotherapy: ʻO kēia ka hāʻawi ʻana i kou kino i nā lāʻau lapaʻau e hoʻoulu ai i ka ʻōnaehana pale kūlohelohe o kou kino e kōkua i ke kaua ʻana i ka maʻi kanesa. ʻAʻole hoʻohana pinepine ʻia kēia lāʻau lapaʻau no ka ependymoma.

E kūkākūkā kāu hui lapaʻau me ʻoe i ke ʻano o ka lāʻau lapaʻau kūpono loa iā ʻoe.

He aha ka nui o ke ola no kekahi me Ependymoma?

He pilikia koʻikoʻi loa kēia. ʻO ka nui o ke ola ʻana o ʻelima makahiki no ka ependymoma ma kahi o 85% . ʻO ia hoʻi, i loko o ʻelima mau makahiki o ka ʻike ʻana, aia ma kahi o 85 o 100 mau kānaka e ola nei.

Akā, e hoʻomanaʻo i kēia: ʻAʻole pili kēia mau helu i nā kānaka a pau. He kuhi maʻamau wale nō kēia. Hiki ke loli ma muli o kou kūlana pilikino, ke ʻano o ka puʻupuʻu, a me nā mea hou aku. E haʻi aku kāu mau kauka iā ʻoe i nā mea hou aʻe e pili ana i kēia.

Aia kekahi mau kumu e hoʻopilikia ai i nā helu ola:

• Ke ʻano o ka puʻupuʻu - ʻOi aku ka maikaʻi o nā hopena o nā puʻupuʻu haʻahaʻa.
• Kahi o ka puʻupuʻu - He maʻalahi ke wehe ʻana i kekahi mau puʻupuʻu.
• Kou mau makahiki - Hiki i nā poʻe ʻōpio ke pane maikaʻi aku i ka lāʻau lapaʻau.
• Kou olakino holoʻokoʻa

Hiki ke ho'ōla loa ʻia ke kanesa ʻo Ependymoma?

He mea paʻakikī iki ka "ho'ōla ʻana i ka maʻi kanesa". ʻAʻohe mea e like me ka "ho'ōla piha" no ke kanesa i kēia manawa. Eia nō naʻe, hiki ke hoʻopau loa ʻia a luku ʻia paha kahi Ependymoma Papa 3 me ka lāʻau lapaʻau.

Eia nō naʻe, he mea nui e hoʻomanaʻo ʻoiai ma hope o ka haʻi ʻia ʻana he ʻaʻohe maʻi kanesa, hiki nō i ka ependymoma ke hoʻi hou mai. He kiʻekiʻe loa kēia pilikia no nā puʻupuʻu papa 3. E wehewehe kāu kauka i kēia iā ʻoe ma muli o kou makahiki, olakino, a me ke ʻano o ka puʻupuʻu.

Āhea wau e ʻike ai i ke kauka?

Ma hope o kou mālama ʻia ʻana no ka ependymoma, e haʻi aku kāu kauka iā ʻoe i ka pinepine o kou ʻike ʻana iā ia (nā kipa hahai). He mea nui loa kēia mau kipa no ka mea kōkua lākou i ka nānā ʻana i kou kino no nā loli a e ʻike inā ua hoʻi mai ka puʻupuʻu.

Paipai ʻia nā hoʻokolohua kiʻi maʻamau, e like me MRI, i ka wā a ma hope o ka mālama ʻana.

He aha nā nīnau e pono iaʻu e nīnau aku i kaʻu kauka?

Ke ʻike ʻoe he ependymoma kou, he mea maʻamau ka loaʻa ʻana o nā nīnau he nui. Mai makaʻu e nīnau i kāu kauka i nā nīnau āu e loaʻa ai. Mai noʻonoʻo, "He nīnau naʻaupō anei kēia?" ʻO kou kuleana ia e ʻike e pili ana i kou olakino.

Eia kekahi mau nīnau hiki iā ʻoe ke nīnau:

• He aha ka papa o koʻu ependymoma?
• He aha ke ʻano o kēia puʻupuʻu? (He aha ke ʻano o kēia puʻupuʻu?)
• He aha ke ʻano o ka lāʻau lapaʻau e pono ai iaʻu?
• He aha nā manawa kūpono e hoʻi mai ai ka ependymoma ma hope o ka wehe ʻia ʻana?

ʻO ka mea hope loa, nā mea e hoʻomanaʻo ai

He puʻupuʻu ʻo Ependymoma e ulu ana i loko o ka lolo a i ʻole ke kaula kuamoʻo. ʻOiai he ʻokoʻa nā ʻano a me nā ʻano like ʻole, ʻo ka nūhou maikaʻi, hiki ke mālama ʻia lākou āpau. He nui ka poʻe i wehe pono ʻia kēia mau puʻupuʻu ma o ke ʻoki ʻana a ola me ka ʻole o nā hopena lōʻihi.

E wehewehe kāu kauka i nā mea āpau e pono ai ʻoe e ʻike e pili ana iā Ependymoma a me ke ʻano o ka lāʻau lapaʻau āu e pono ai. Mai makaʻu e nīnau i nā nīnau i kēlā me kēia manawa. E kamaʻilio me kāu kauka e pili ana i nā mea āu e noʻonoʻo nei, nā hopohopo āu e loaʻa ai. Aia lākou ma laila e kōkua iā ʻoe.

E kū i kēia kūlana me ka wiwo ʻole, ʻaʻole ʻoe hoʻokahi.

ʻEpendymoma , nā puʻupuʻu lolo, nā puʻupuʻu kaula kuamoʻo, glioma, maʻi ʻaʻai, maʻi ʻaʻai kamaliʻi, lāʻau lapaʻau