Loaʻa pinepine iā ʻoe nā pōhaku puʻupaʻa? A i ʻole loaʻa i kāu keiki liʻiliʻi? Malia paha ke kumu o kēia, he nui loa kāu kemika i kapa ʻia ʻo oxalate i loko o kou mimi. ʻO kēia kūlana ka mea a mākou e kapa nei he hyperoxaluria i ka ʻepekema lapaʻau. Mai makaʻu i kou lohe ʻana i kēia inoa, he maʻalahi loa ia. E kamaʻilio kākou e pili ana i kēia me ka maopopo a ma ke ʻano e hiki ai iā ʻoe ke hoʻomaopopo.
I ka ʻōlelo maʻalahi, he aha ka Hyperoxaluria?
He kemika ka Oxalate i hana kūlohelohe ʻia e ko mākou kino a loaʻa pū kekahi i kekahi o nā meaʻai a mākou e ʻai ai. ʻO ka maʻamau, kānana ko mākou mau puʻupaʻa i kēia mau oxalate mai ke kino i loko o ka mimi.
Eia nō naʻe, i loko o ke kanaka me ka hyperoxaluria, piʻi nui ka nui o ka oxalate i loko o kā lākou mimi. Hiki i kēia ke lilo i mea weliweli. Hoʻohui kēia oxalate keu me ka calcium i loko o ka mimi e hana i nā pōhaku puʻupaʻa a me nā kristal calcium oxalate .
Hiki i kēia mau pōhaku a me nā kristal ke hōʻino i kou mau puʻupaʻa a hōʻemi i kā lākou hana. I ka hala ʻana o ka manawa, hiki i kēia ke alakaʻi i ka hāʻule ʻana o nā puʻupaʻa . ʻAʻole wale ia, akā hiki i kēia oxalate ke hoʻomaka e waiho i loko o nā ʻiʻo a me nā ʻōpū ʻē aʻe o ke kino.
He aha nā ʻano nui o Hyperoxaluria?
ʻEkolu mau ʻano nui ma muli o ke kumu o kēia ʻano. Ke maopopo iā ʻoe kēia mau ʻokoʻa, he mea maʻalahi loa ke hoʻomaopopo.
| ʻAno o ka hyperoxaluria | He wehewehe maʻalahi |
|---|---|
| ʻO ka Hyperoxaluria mua (PH) | He maʻi hoʻoilina kēia, ʻo ia hoʻi, ua hoʻoilina ʻia. ʻO ka mea e hana ʻia ma ʻaneʻi, aia kahi kīnā i loko o nā enzymes i loko o ke akepaʻa e hoʻoulu ai i ke kino e hana i ka oxalate me ke kaohi ʻole. ʻO kēia ka mea koʻikoʻi loa o nā ʻano ʻekolu. |
| ʻO ka Hyperoxaluria o ka ʻōpū | Hoʻokumu ʻia kēia e nā maʻi o ka ʻōnaehana digestive (ʻōpū).Eia kekahi laʻana, ʻo ka poʻe me nā maʻi e like me ka maʻi Crohn a i ʻole ka maʻi ʻōpū mumū e omo i ka oxalate hou aku mai ko lākou mau ʻōpū. Hiki ke hana ʻia kēia maʻi ma hope o kekahi mau ʻoki pohō kaumaha (ʻoki bypass gastric). |
| ʻO ka Hyperoxaluria Meaʻai | He mea maʻalahi loa ia. Hoʻokumu ʻia ia e ka ʻai ʻana i nā meaʻai he nui i nā oxalates . ʻO nā mea e like me ka spinach, beets, soy, almonds, a me nā ʻuala he nui i nā oxalates. |
ʻO wai ka mea e loaʻa ana i kēia? I ka makahiki hea?
Hiki ke ʻike ʻia nā hōʻailona o ka hyperoxaluria i kēlā me kēia makahiki, mai nā pēpē a hiki i nā pākeke, akā ʻike pinepine ʻia nā hōʻailona ma kahi o 5 mau makahiki.
- Hoʻomohala pinepine ka poʻe me ka Primary Hyperoxaluria (PH) i nā pōhaku puʻupaʻa i ka wā kamaliʻi a i ʻole ka wā ʻōpio (ma mua o 20 mau makahiki). Inā ulu kēia ʻano i loko o kahi keiki ʻōpio, hiki ke lilo i mea koʻikoʻi loa.
- Ma nā ʻano enteric a me nā ʻano meaʻai , ʻike pinepine ʻia nā pōhaku puʻupaʻa a me nā hōʻailona ʻē aʻe i ka wā makua.
He aha nā hōʻailona o kēia maʻi?
ʻO ka pinepine ka hōʻailona mua he mau pōhaku puʻupaʻa. Akā, ʻaʻole i loaʻa i nā kānaka a pau nā pōhaku puʻupaʻa. E nānā kākou i nā hōʻailona nui.
| Nā hōʻailona maʻamau | |
|---|---|
| Koko i loko o ka mimi | Nā maʻi ʻōpū mimi hou (UTIs) |
| ʻO ka ulu ʻole ʻana i nā keiki liʻiliʻi | |
| Nā hōʻailona i hoʻokumu ʻia e nā pōhaku puʻupaʻa | |
| |
He mea nui: ʻO nā pōhaku puʻupaʻa i loko o kahi keiki ʻōpiopio he hōʻailona pinepine ia o kēia ʻano, ʻo Hyperoxaluria. No laila, inā ʻike ʻoe i kahi mea e like me kēia , e lawe koke i kāu keiki i ke kauka.
No ke aha e hana ʻia ai kēia? ʻO wai ka mea i ʻoi aku ka pilikia?
E like me kā mākou i kūkākūkā ai ma mua, ʻekolu mau kumu:
- Kīnā hoʻoilina (Primary hyperoxaluria): He mea i hoʻoilina ʻia mai nā mākua a i nā keiki.
- Nā maʻi ʻōpū: Ka nui o ka omo ʻana o ka oxalate ma muli o nā maʻi o ka ʻōnaehana hoʻoheheʻe.
- ʻAi: ʻO ka ʻai nui ʻana i nā meaʻai kiʻekiʻe i ka oxalate.
Aia kekahi mau kūlana e hoʻonui ai i ka pilikia o kēia ʻano:
- Inā loaʻa i kekahi o kou ʻohana ka Hyperoxaluria mua.
- Inā ʻoe e hoʻomohala pinepine i nā pōhaku puʻupaʻa.
- Inā ua loaʻa iā ʻoe nā pōhaku puʻupaʻa i kou wā kamaliʻi (ʻoiai hoʻokahi manawa).
- Inā ua haʻi aku ke kauka iā ʻoe ua waiho ʻia ka calcium i loko o kou mau puʻupaʻa.
He aha nā pilikia e hiki ai i kēia ke hana?
ʻO ka pilikia nui a me ka weliweli loa o ka hyperoxaluria ka hōʻino ʻana o nā puʻupaʻa a me ka hāʻule ʻana o nā puʻupaʻa.
Ke hāʻule nā puʻupaʻa, ʻaʻole hiki iā lākou ke hoʻokuʻu i ka oxalate keu e hōʻiliʻili ana i loko o ke kino. A laila, hoʻomaka kēia mau kristal oxalate e waiho ma nā wahi ʻē aʻe o ke kino, e like me nā iwi, ke koko, nā ʻiʻo, ka puʻuwai, a me nā maka. Kāhea mākou i kēia maʻi ʻo Oxalosis .
Hiki i ka Oxalosis ke hana i nā pilikia olakino ʻē aʻe:
- Maʻi iwi
- Anemia
- Nā pilikia o ka puʻuwai a me nā maka
- Nā pilikia e pili ana i ka ulu ʻana a me ka ulu ʻana o nā keiki
Pehea e ʻike ai inā loaʻa kēia?
E nīnau aku kāu kauka iā ʻoe e pili ana i kou mau hōʻailona, ka mōʻaukala olakino ʻohana, a me kāu meaʻai. A laila e kauoha ʻo ia i kekahi mau hoʻokolohua e hōʻoia i ka hōʻailona.
- Nā hoʻāʻo mimi: E ana i nā pae oxalate a me ka enzyme i loko o ka mimi.
- Nā hoʻāʻo koko: E nānā i ka hana o nā puʻupaʻa a me ka nui o ka oxalate i loko o ke koko.
- Nā hoʻāʻo kiʻi: Hiki ke hoʻohana ʻia nā kukuna X, ultrasound, a i ʻole CT scan e nānā i nā pōhaku puʻupaʻa a i ʻole nā kristal calcium oxalate.
- Hoʻāʻo hoʻoilina: Inā he kānalua no ka Hyperoxaluria mua, hana ʻia kēia hoʻāʻo e hōʻoia inā aia ka hoʻololi ʻana o ka hoʻoilina e kumu ai.
I kekahi manawa, pono ʻoe e loaʻa nā hoʻokolohua kūikawā, e like me ka echocardiogram , nā hoʻokolohua maka, a i ʻole nā biopsies iwi iwi, e ʻike ai inā ua waiho ʻia ka oxalate ma kahi ʻē aʻe o kou kino.
Pehea e mālama ʻia ai?
ʻO ka pahuhopu nui o ka mālama ʻana, ʻo ia ka hoʻemi ʻana i nā pae oxalate i loko o ke kino a pale a pale i nā puʻupaʻa a me nā ʻōpū ʻē aʻe mai ka hoʻokumu ʻia ʻana o ke kristal. Aia ka mālama ʻana i ke ʻano o ka hyperoxaluria āu e loaʻa ai a me ke koʻikoʻi o ke kūlana.
Lāʻau lapaʻau
- Hāʻawi ʻia nā poʻe me ka hyperoxaluria mua i nā dosis kiʻekiʻe o ka huaora B6 (pyridoxine) e hōʻemi i nā pae oxalate.
- Hāʻawi ʻia nā lāʻau lapaʻau e like me ka potassium citrate e pale aku i ke kūkulu ʻia ʻana o nā kristal calcium oxalate.
- Ua ʻōlelo ʻia nā kānaka me Enteric Hyperoxaluria e lawe i nā mea hoʻopihapiha calcium me nā meaʻai no ka mea e hoʻopaʻa ka calcium i ka oxalate a kōkua iā ia e maʻalahi ke hoʻokuʻu ʻia mai ke kino.
Nā loli i ke ʻano o ka nohona a me ka ʻai
- E inu i ka nui o ka wai: He mea nui e inu ma kahi o 3 lita o ka wai i ka lā. E kōkua kēia i ka hoʻokahe ʻana i ka oxalate keu me ka mimi a pale i ka hoʻokumu ʻia ʻana o nā pōhaku. He mea nui loa kēia no nā ʻano āpau.
- ʻAi: E hōʻemi i ka paʻakai a me ke kō. E kaupalena i nā protein holoholona e like me ka ʻiʻo, nā mea hana waiū, a me nā hua manu. E pale i nā meaʻai kiʻekiʻe i nā oxalates (spinach, rhubarb, beets, kokoleka, kī, nati).
- Nā meaʻai waiwai i ka calcium: ʻO ka hoʻohui ʻana i nā meaʻai waiwai i ka calcium i kāu mau meaʻai e hiki ke kōkua i ka hoʻemi ʻana i nā pae oxalate.
Akā e hoʻomanaʻo, ʻaʻole hiki i kēia meaʻai ke loaʻa ka hopena nui i ke kūlana genetic i kapa ʻia ʻo Primary Hyperoxaluria. Pono maoli ia i ka mālama ʻana i ka lāʻau lapaʻau.
Ka mālama ʻana i nā pōhaku puʻupaʻa
E hele wale kekahi mau pōhaku puʻupaʻa iā lākou iho ke inu ʻoe i ka wai he nui. Inā ʻaʻole, pono paha i kāu kauka ke wehe iā lākou.
Dialysis a i ʻole nā hoʻoili lāʻau
Inā lilo ka maʻi i mea koʻikoʻi a hāʻule nā puʻupaʻa, pono paha ka dialysis puʻupaʻa e hoʻomaʻemaʻe i ke koko. Inā koʻikoʻi ke kūlana o Primary Hyperoxaluria, pono paha kahi hoʻoili puʻupaʻa a i ʻole ke akepaʻa.
Āhea ʻoe e ʻike ai i ke kauka?
ʻOiai ʻo kēia ka hōʻailona mua o nā pōhaku puʻupaʻa, e ʻike koke i ke kauka inā manaʻo ʻoe he mau pōhaku puʻupaʻa kou, ʻoiai inā loaʻa iā ʻoe kēia mau hōʻailona:
- ʻEha ma ke kua, ka ʻaoʻao, a i ʻole ka ʻōpū lalo.
- Mimi ʻulaʻula, poni, a ʻeleʻele paha.
- Ka loli ʻana i ke alapine (frequency) a i ʻole ka nui o ka mimi ʻana.
- ʻEha i ka wā e mimi ai.
He mea maʻamau ka makaʻu a me ka hopohopo ke ʻike ʻoe he maʻi kou e like me kēia. E kamaʻilio me kāu kauka, ʻohana, a me nā hoaaloha e pili ana i kou mau hopohopo. E hoʻomanaʻo, me ka mālama kūpono, hiki iā ʻoe ke hoʻokele maikaʻi i kēia kūlana a noho olakino.
Leka Lawe-Home
- ʻO ka Hyperoxaluria kahi kūlana e hiki ai i ka hoʻonui ʻia o ka nui o ka oxalate i loko o ka mimi ke alakaʻi i nā pōhaku puʻupaʻa a me ka hōʻino ʻana i nā puʻupaʻa.
- ʻEkolu mau ʻano nui o kēia: mua, enteric, a me ka meaʻai.
- Inā loaʻa pinepine iā ʻoe nā pōhaku puʻupaʻa, ʻoiai hoʻi i loko o kahi keiki ʻōpiopio, he hōʻailona paha ia o kēia maʻi. E ʻike koke i ke kauka.
- Hoʻokomo ʻia ka lāʻau lapaʻau, ka inu ʻana i ka nui o ka wai, a me ka kaupalena ʻana i kekahi mau meaʻai.
- Hiki iā ʻoe ke pale i ka hōʻino ʻana o nā puʻupaʻa ma ka hahai pono ʻana i nā ʻōlelo a kāu kauka.
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