He ʻeha kua hoʻoilina anei? (Ankylosing Spondylitis)

Ua loaʻa anei iā ʻoe ka ʻeha hope mai kou wā ʻōpiopio, a i ʻole ua manaʻo ʻoe i kahi kua ʻoʻoleʻa i kou ala ʻana i ke kakahiaka? Me he mea lā ua emi ka ʻeha ma hope o kahi hele wāwae pōkole a i ʻole ke hoʻomaka ʻoe i kāu hana o ka lā? Manaʻo paha ʻoe he ʻeha hope wale nō kēia. Akā i kekahi manawa hiki i kēia mau hōʻailona ke lilo i mau hōʻailona mua o kahi maʻi i kapa ʻia ʻo Ankylosing Spondylitis, a mākou e kamaʻilio nei i kēia lā. Mai hopohopo, e kamaʻilio mākou e pili ana i kēia me ka maopopo a me ka maʻalahi.

He aha maoli ka Ankylosing Spondylitis (AS)?

I ka ʻōlelo maʻalahi, ʻo Ankylosing Spondylitis (AS) kahi ʻano arthritis. Akā hoʻopilikia kūikawā ia i nā hono o ko kākou iwi kuamoʻo . Hana ʻia ko kākou iwi kuamoʻo i nā iwi liʻiliʻi he nui e hui pū ana, a lilo nā hono ma waena o kēia mau iwi i pehu, pehu, a ʻeha. I ka hala ʻana o ka manawa, hiki i kēia pehu ke hoʻopili i nā hono o ka iwi kuamoʻo, e hōʻemi ana i ka palupalu o ka iwi kuamoʻo.

ʻO nā hōʻailona maʻamau o kēia maʻi:

• ʻEha kua a me ka ʻoʻoleʻa: ʻIke nui ʻia kēia i kou ala mua ʻana i ke kakahiaka a i ʻole ma hope o ke kū ʻana no ka manawa lōʻihi.
• Ua emi ka ʻeha i ka wā hoʻoikaika kino: ʻO ka mea kupanaha, piʻi ka ʻeha i ka wā e hoʻomaha ai a emi iho i ka wā e hana ai, e like me ka hele wāwae, ka holo ʻana, a i ʻole ka lele ʻana.
• ʻEha ma nā hono ʻē aʻe: Hiki i kekahi poʻe ke ʻeha i nā hono e like me nā pūhaka, nā kuli, a me nā kuʻekuʻe wāwae.
• Manaʻo luhi loa.

Hoʻomaka pinepine kēia maʻi i nā poʻe ʻōpio ma waena o nā makahiki 15 a me 30. ʻO ia ke kumu e kuhihewa ai ka poʻe he nui he ʻeha kua wale nō.

No laila aia kahi pilina genetic i kēia?

ʻAe. ʻO kēia ke kumu nui o kēia ʻatikala. He maʻi hoʻoilina ikaika ka Ankylosing Spondylitis, ʻo ia hoʻi, he mana hoʻoilina kona . Inā loaʻa i kekahi o kou ʻohana, ʻo ia hoʻi, nā mākua, nā kaikaina, kēia maʻi, a laila ʻoi aku kou pilikia o ka loaʻa ʻana o kēia maʻi ma mua o nā poʻe ʻē aʻe.

I ka noiʻi ʻana a nā kānaka ʻepekema i kēia, ua kālele nui lākou i ka manaʻo ma luna o hoʻokahi gene: ka gene HLA-B27 .

Kōkua kēia gene HLA-B27 i ka ʻōnaehana pale o ko mākou kino. I ka ʻōlelo maʻalahi, ʻike a hakakā ia i nā mea komo hewa mai nā ʻāina ʻē e like me nā virus a me nā bacteria. Akā i kekahi manawa, ma muli o nā loli i loko o kēia gene, hele hewa ka ʻōnaehana pale a hoʻomaka e hoʻouka i nā ʻāpana olakino o ko mākou kino ponoʻī, i kēia hihia, nā hono i loko o ko mākou iwi kuamoʻo. Manaʻo nā kānaka ʻepekema ua hana ʻia kēia mumū e kēia.

ʻO HLA-B27 wale nō ke kuleana no kēia?

ʻAʻole. He nīnau koʻikoʻi loa kēlā. ʻOiai ʻo HLA-B27 ke ʻano nui o kēia moʻolelo, aia kekahi mau mea hana kākoʻo ʻē aʻe. Wahi a nā kānaka ʻepekema ma kahi o 30% o ka nui o ka pilikia genetic no ka hoʻomohala ʻana i kēia maʻi mai ka gene HLA-B27. Hoʻopili ʻia ke koena e kekahi mau genes liʻiliʻi ʻē aʻe.

Ma muli o ka liʻiliʻi o nā hopena o kēia mau genes, he paʻakikī ke ʻike iā lākou pākahi. Eia nō naʻe, ua ʻike ʻia kekahi mau genes hou aʻe ma o ka noiʻi i hana ʻia e nā kānaka ʻepekema a puni ka honua nāna i hana pū a kaʻana like i ka ʻike.

Ke ʻimi nei nā kānaka noiʻi i nā ʻano gene ʻē aʻe i ʻike ʻole ʻia e hiki ke hoʻopilikia i kēia.

Loaʻa i nā kānaka a pau ka maʻi no ka mea he gene ko lākou?

ʻAʻole. ʻAʻole loa.He mea kēia e pono ai ʻoe e hoʻomanaʻo. ʻO ka loaʻa ʻana o ka gene HLA-B27 i loko o kou kino, ʻaʻole ia he manaʻo e loaʻa iā ʻoe ka Ankylosing Spondylitis. ʻO ia hoʻi, ʻoi aku ka nui o kou pilikia o ka loaʻa ʻana o ka maʻi ma mua o nā poʻe ʻē aʻe.

ʻO ke ʻano kēia, ʻaʻole lawa nā genes wale nō e hoʻoulu ai i kēia maʻi. Ma waho aʻe o nā mana genetic , pono nō hoʻi nā mea pili i ke kaiapuni . ʻOiai ʻaʻole i ʻike maopopo ʻia ke ʻano o kēia mau mea, ua manaʻoʻiʻo ʻia he kuleana ko kekahi mau mea, e like me kekahi mau maʻi. I ka ʻōlelo maʻalahi, ua like nā genes me ka pauka pū i mākaukau e hoʻā, a pono ia i kahi huna ahi e hoʻā ai.

No laila he aha kaʻu e hana ai?

Inā loaʻa iā ʻoe nā hōʻailona e like me nā mea i ʻōlelo ʻia ma kēia ʻatikala (ʻeha hope e hoʻomaka ana i ka wā ʻōpiopio, ʻoi aku ka ʻino i ke kakahiaka, a hoʻomaha ʻia e ka hoʻoikaika kino), a inā paha he Ankylosing Spondylitis kekahi o kou ʻohana, ʻaʻole pono ʻoe e hopohopo.

ʻO ka mea maikaʻi loa hiki iā ʻoe ke hana, ʻo ia ke ʻike koke i ke kauka kūpono, kāu kauka lapaʻau . E hoʻolohe ʻo ia i kāu mau hōʻailona, ​​e nānā iā ʻoe, a inā pono, e kauoha i nā hoʻokolohua koko a me nā kukuna X. Hiki paha iā lākou ke paipai i kahi hoʻokolohua e ʻike inā loaʻa iā ʻoe ka gene HLA-B27.

E hoʻomanaʻo, ʻo ka mea nui loa, ʻo ia ka ʻike a me ka mālama ʻana i kēia mau kūlana i ka wā mua . Inā hana ʻoe, hiki iā ʻoe ke kāohi i ka ʻeha, pale i ka ʻeha kua, a ola i kahi ola maʻamau a hauʻoli.