He puʻupuʻu kou ma kou kino? He Myxofibrosarcoma paha ia? E kamaʻilio kākou e pili ana!

I kekahi manawa e ʻike paha ʻoe i kahi mea e like me kahi puʻupuʻu liʻiliʻi ma kou kino, malia paha ma ka lima a i ʻole ka wāwae. ʻAʻole paha e ʻeha i ka wā mua. Akā he mea maʻamau ke manaʻo iki i ka makaʻu ke ʻike ʻoe i kahi mea e like me ia, ʻeā? I kēia lā e kamaʻilio mākou e pili ana i kahi ʻano maʻi ʻaʻai e like paha me ia, he mea kakaikahi iki akā he mea nui e ʻike.

He aha ka Myxofibrosarcoma?

I ka ʻōlelo maʻalahi, ʻo Myxofibrosarcoma kahi ʻano maʻi kanesa . Hoʻomohala ia i loko o nā ʻiʻo pili o ko mākou kino. I kēia manawa ke noʻonoʻo nei paha ʻoe i ke ʻano o kēia ʻiʻo pili. ʻO ia hoʻi, ʻo nā mea e like me ko mākou mau iwi, cartilage, a me nā ʻiʻo momona e hoʻopuni ana a pale i ko mākou mau kino e hāʻule i loko o kēia māhele. ʻO kēia maʻi kanesa i kapa ʻia ʻo MFS ka mea hiki ke ulu i loko o kekahi o kou mau lima a i ʻole kou mau wāwae. I ka wā mua, ua like ia me kahi puʻupuʻu liʻiliʻi (tumor).

Hiki i kēia mau puʻupuʻu ke ulu i kekahi manawa ma loko o nā ʻiʻo pili ma lalo pono o kou ʻili. A i ʻole, hiki iā lākou ke ulu hohonu iki aʻe, ma loko o nā ʻiʻo pili hohonu a puni kou mau ʻiʻo.

He maʻi kanesa ʻino loa ʻo MFS. ʻO ia hoʻi, hiki iā ia ke laha (metastasize) i nā ʻāpana ʻē aʻe o ke kino me ka wikiwiki loa. Loaʻa iā ia kahi manawa kiʻekiʻe e hoʻi hou ma hope o ka mālama ʻana ma mua o kekahi mau ʻano maʻi kanesa ʻē aʻe.

He aha ka myxofibrosarcoma "kiʻekiʻe"?

Ke hoʻokaʻawale nā ​​kauka i nā maʻi kanesa, hoʻohana lākou i kahi 'grade', a i ʻole kūlana. I nā maʻi kanesa 'haʻahaʻa' , māhele mālie nā ʻāpana, no laila ulu mālie lākou a laha. I nā maʻi kanesa 'kiʻekiʻe' , māhele wikiwiki nā ʻāpana, no laila ulu koke lākou a laha.

ʻO wai ka mea hiki ke loaʻa i ka Myxofibrosarcoma?

ʻO kēia ʻano, i kapa ʻia ʻo MFS, ʻike pinepine ʻia i nā poʻe ma luna o 50 mau makahiki. Ua ʻōlelo ʻia hoʻi he ʻoi aku ka maʻamau o ia i nā kāne ma mua o nā wahine.

Eia kekahi, aia kekahi mau kumu ʻē aʻe e kōkua i ka hoʻomohala ʻana o nā sarcomas palupalu , me MFS:

• Genetics: Hiki i kekahi mau kūlana genetic hoʻoilina ke hoʻonui i ka pilikia o ka hoʻomohala ʻana i ka sarcoma palupalu.
• Nā kumu o ke kaiapuni: ʻO ka ʻike ʻana i kekahi mau kemika, e like me ka arsenic a me nā herbicides, e hoʻonui paha i ka pilikia.
• Lapaʻau radiation: Inā ua loaʻa iā ʻoe ka radiation therapy ma mua no kekahi kumu ʻē aʻe, hiki iā ia ke hoʻonui i kou pilikia o ka hoʻomohala ʻana i nā maʻi kanesa e like me MFS.

Pehea ka maʻamau o kēia kūlana?

He mea laha ʻole loa ka Myxofibrosarcoma.Kūlana. Eia nō naʻe, i ka wā e pili ana i ka māhele o nā sarcomas palupalu, he ʻano maʻamau lākou. Akā, ʻike ʻoe, ʻoiai kēia mau sarcomas palupalu he hapa liʻiliʻi loa ia, ma kahi o 2% o nā maʻi kanesa āpau.

He aha ke kumu o ka Myxofibrosarcoma?

ʻAʻole i loaʻa i nā loea ke kumu pololei o kēia. E like me nā maʻi kanesa āpau, ua hoʻokumu ʻia kēia e kahi loli o ka DNA i loko o kā mākou mau cell. Ua like kēia DNA me kahi hoʻonohonoho o nā kuhikuhi e hoʻoholo ai pehea e hana ai kā mākou mau cell. Ma muli o kēia loli, loaʻa i nā cell ka leka hewa: 'E māhele koke, e māhele nui'. Ke māhele ʻole nā ​​​​cells, hana lākou i kahi puʻupuʻu .

He aha nā hōʻailona o ka myxofibrosarcoma?

I ka wā e ulu mua ai, ʻaʻole paha ʻoe e ʻike i kekahi mau hōʻailona . I ka ulu ʻana o ka puʻupuʻu, e hoʻomaka paha ʻoe e manaʻo he puʻupuʻu ma lalo o kou ʻili. ʻO ka hapa nui o ka manawa, ʻaʻohe ʻeha o kēia puʻupuʻu. Eia nō naʻe, i kekahi manawa e manaʻo paha ʻoe i kahi ʻoluʻolu ʻole a pehu paha.

E noʻonoʻo, aia kekahi kanaka i kapa ʻia ʻo Kamal. Ua ʻike ʻo ia i kahi puʻupuʻu liʻiliʻi ma ka ʻūhā o kona wāwae. I ka wā mua, he liʻiliʻi a ʻeha ʻole, no laila ʻaʻole ʻo ia i nānā nui iā ia. Ma hope o kekahi mau mahina, ua ulu iki ka puʻupuʻu, a i kekahi manawa ua manaʻo iki ʻia he ʻoluʻolu ʻole i kona wā e komo ai i kona mau lole wāwae. ʻO ia ka manawa e nānā ai ka hapa nui o ka poʻe iā ia. No laila, inā ʻike ʻoe i kahi puʻupuʻu ʻē ma kou kino, ʻoiai inā ʻaʻole ia e ʻeha, he mea naʻauao ke hōʻike iā ia i ke kauka.

Pehea e ʻike ai nā kauka i kēia he Myxofibrosarcoma?

Hiki i ka Myxofibrosarcoma ke paʻakikī iki ke ʻike ʻia i kekahi manawa no ka mea hiki ke like me nā ʻano puʻupuʻu ʻē aʻe. E nīnau kāu kauka iā ʻoe inā ua nui a ua loli paha ka puʻupuʻu mai kou ʻike mua ʻana.

No ka ʻike pono inā he MFS kou a i ʻole kekahi maʻi ʻē aʻe, hiki i kāu kauka ke hana i nā hoʻokolohua e like me kēia:

• Nā scan kiʻi: E hana ʻia kahi scan CT a i ʻole MRI scan e ʻike inā ua pālahalaha ka ʻōpū i kou mau ʻiʻo hohonu.
• Biopsy: Lawe ʻia kahi hāpana liʻiliʻi o ka puʻupuʻu me ka hoʻohana ʻana i kahi nila liʻiliʻi a i ʻole kahi hana ʻoki liʻiliʻi a hoʻāʻo ʻia i loko o kahi keʻena hoʻokolohua. A laila hiki iā mākou ke ʻike pololei i ke ʻano o nā cell a inā he maʻi kanesa a ʻaʻole paha. ʻElua mau ʻano hana no kēia: Biopsy nila (hana ʻia me kahi nila) a i ʻole ka biopsy hāmama (hana ʻia me ke ʻoki ʻana).
• X-ray umauma: Hana ʻia kahi X-ray umauma e ʻike ai inā ua pālahalaha ke kanesa i nā māmā. ʻO kēia no ka mea inā pālahalaha ʻo MFS, ʻo nā māmā kahi i pālahalaha nui ʻia .

Pehea e mālama ʻia ai ka myxofibrosarcoma?

ʻO ka hapa nui o ka manawa, e hana ke kauka i ke ʻoki kino e wehe i ka puʻupuʻu kanesa. ʻAʻole wale ka puʻupuʻu, akā, he wahi liʻiliʻi hoʻi o nā ʻiʻo olakino a puni. Hana ʻia kēia e pale aku i nā hunaola kanesa mai ke koe ʻana.

I kekahi manawa hiki ke hāʻawi ʻia iā ʻoe ka radiation therapy ma mua a ma hope paha o ke ʻoki ʻana. Hana ʻia kēia e hoʻēmi i ka puʻupuʻu a i ʻole e hōʻemi i ka pilikia o ka hoʻi hou ʻana mai o ke kanesa ma hope o ke ʻoki ʻana.

ʻAʻole hāʻawi pinepine ʻia ka chemotherapy, e like me nā ʻano maʻi kanesa ʻē aʻe, i ka MFS.

ʻO ka mālama ʻana no MFS e pili ana i kekahi mau kumu:

• Papa: Inā he MFS 'haʻahaʻa', ʻo ke ʻoki kino wale nō ka lāʻau lapaʻau. Eia nō naʻe, inā he MFS 'kiʻekiʻe', hiki ke hāʻawi ʻia nā lāʻau lapaʻau hou e like me ka radiation therapy me ke ʻoki kino.
• Kahua: Hoʻohana nā kauka i kahi 'kahua' e ʻike ai i ka mamao o ka laha ʻana o ke kanesa. ʻO ke kiʻekiʻe o ke kahua, ʻo ka nui o ka laha ʻana o ke kanesa ma ke kino holoʻokoʻa. Ma ke ʻano laulā, pono ke ʻoki kino a me nā lāʻau lapaʻau ʻē aʻe no ka MFS ma ke kahua holomua.
• Nui: Inā ʻoi aku ka liʻiliʻi o ka puʻupuʻu ma mua o 2 ʻīniha (ma kahi o 5 kenimika), ua lawa paha ke ʻoki ʻana wale nō. Pono paha kahi puʻupuʻu nui aʻe i kahi lāʻau lapaʻau hou aʻe, e like me ka radiation therapy.
• Hohonu: Inā ua pālahalaha ka puʻupuʻu i nā ʻiʻo hohonu, e like me ma waena o kou mau ʻiʻo, pono paha ke ʻoki ʻana a me ka radiation therapy.

Pono anei e hana ʻia ke ʻoki ʻana o ka lima a i ʻole ka wāwae e mālama ai i ka myxofibrosarcoma?

ʻAʻole. I ka wā ma mua, he lāʻau maʻamau ka ʻoki ʻana i ka ʻiʻo no ka myxofibrosarcoma. Akā i kēia manawa, ke hoʻāʻo nei nā kauka e pale i nā ʻoki ʻana i ka hiki . Me nā lāʻau lapaʻau holomua i loaʻa i kēia lā, i ka hapa nui o nā hihia, hiki ke ho'ōla ʻia ka puʻupuʻu wale nō. ʻAʻole anei he mea hōʻoluʻolu kēlā?

Aia kekahi mea e hiki ai iā mākou ke hana e hōʻemi i ka pilikia o ka myxofibrosarcoma?

ʻAʻohe ala e pale aku ai i ka myxofibrosarcoma me ka 100% . E like me nā maʻi kanesa āpau, hiki iā ʻoe ke hōʻemi i kou pilikia ma ka hahai ʻana i kahi nohona olakino . Hoʻokomo pū kēia i ka ʻai ʻana i kahi meaʻai kaulike a me ka hoʻoikaika kino. ʻOi aku ka maikaʻi o ka pale ʻana i nā mea pilikia e like me ka hōʻike ʻana i ka radiation a me ka hōʻike ʻana i nā kemika ʻino.

He aha ka wānana no ka myxofibrosarcoma?

Ke hoʻohālikelike ʻia me nā ʻano sarcomas palupalu ʻē aʻe, ʻoi aku ka nui o ka myxofibrosarcoma e hoʻi hou ma hope o ka mālama ʻana . I loko o ʻelima mau makahiki o ka mālama ʻana, e loaʻa hou ana ma kahi o hoʻokahi i loko o ʻelua mau kānaka iā MFS.

ʻOi aku ka liʻiliʻi o ka hiki ke loaʻa hou kahi MFS 'haʻahaʻa' ma mua o kahi MFS 'kiʻekiʻe'.

ʻO ka mea nui loa, ʻo ia ka hana ʻana i nā kiʻi nānā mau me kāu kauka ma hope o ka mālama ʻana no MFS. E kōkua kēia i ka ʻike a me ka mālama ʻana i ke kanesa i ka wā mua inā hoʻi hou mai.

Pehea ka hopena o ka myxofibrosarcoma i ke ola? (Ka helu ola)

ʻOi aku ka maikaʻi o ke ola ʻana o ka Myxofibrosarcoma ma mua o kekahi mau ʻano sarcoma palupalu. Ua ʻike ʻia kekahi noiʻi he nui ka poʻe me MFS i mālama ʻia e ola ana no ʻelima mau makahiki a ʻoi aku paha. No laila, inā ua ʻike ʻia ʻoe me ia, he mea nui e noho lana ka manaʻolana a loaʻa ka lāʻau kūpono. Mai haʻalele!

He aha hou aʻe kaʻu e nīnau aku ai i kaʻu kauka?

Inā loaʻa iā ʻoe nā hōʻailona o ka myxofibrosarcoma, a inā ua ʻike ʻia ʻoe me ia, makemake paha ʻoe e nīnau i kāu kauka i nā nīnau e like me kēia:

• He aha nā hōʻailona mua o ka myxofibrosarcoma?
• He aha nā hoʻokolohua e pono iaʻu e hana e ʻike ai inā loaʻa iaʻu ka Myxofibrosarcoma?
• He aha nā koho lapaʻau e loaʻa iaʻu?
• Loaʻa iaʻu ka Myxofibrosarcoma 'haʻahaʻa' a i ʻole 'kiʻekiʻe' ?
• Aia kekahi mea e hiki iaʻu ke hana e hōʻemi i ka pilikia o ka hoʻi hou ʻana mai o ka myxofibrosarcoma ?

Nā mea nui a mākou e hoʻomanaʻo ai (Leka Lawe-Home)

ʻO ka Myxofibrosarcoma kahi ʻano maʻi kanesa i kapa ʻia ʻo ka sarcoma ʻiʻo palupalu. Hoʻomaka pinepine ia me he puʻupuʻu liʻiliʻi ʻole me ka ʻeha ʻole . I ka ulu ʻana o ka puʻupuʻu, hiki iā ia ke hoʻoulu i ka ʻoluʻolu ʻole a i ʻole ka pehu ʻana.

ʻO ka mea nui loa, inā ʻike ʻoe i kahi puʻupuʻu hou a i ʻole ka pehu ʻana ma kou kino, mai hoʻowahāwahā iā ia . E ʻike koke i ke kauka a hōʻike iā ia iā lākou. No ka mea, ʻoiai he aha ka maʻi, inā ʻike ʻia i ka wā mua, ʻoi aku ka maʻalahi o ka mālama ʻana a ʻoi aku ka kiʻekiʻe o ka manawa e hoʻōla ai.

Hoʻopau pinepine nā kauka i ka puʻupuʻu me ke ʻoki ʻana. I kekahi manawa pono paha ka radiation therapy. ʻOi aku ka nui o ka hoʻi ʻana mai o MFS ma mua o nā sarcomas palupalu ʻē aʻe. Eia nō naʻe, ma ka ʻike pinepine ʻana i kāu kauka a me ka hoʻāʻo ʻia ʻana , inā hoʻi mai ia, hiki ke loaʻa a mālama koke ʻia. No laila, mai makaʻu, a e hahai i nā ʻōlelo a kāu kauka. He waiwai kou olakino.

ʻO Myxofibrosarcoma, myxofibrosarcoma, maʻi ʻaʻai, sarcoma ʻiʻo palupalu, nodule, nā hōʻailona maʻi ʻaʻai, lāʻau lapaʻau maʻi ʻaʻai