Aia kekahi mau kiko ʻulaʻula ma ka ʻili o kāu keiki liʻiliʻi? He hemangioma paha ia! E kamaʻilio kākou e pili ana i kēia?

Ma ke ʻano he makuahine, he mea maʻamau ka hopohopo inā ʻike koke ʻoe i kahi a ʻelua paha kiko ʻulaʻula ma ka ʻili o kāu pēpē . ʻAʻole ia he mea kupanaha ke noʻonoʻo nei ʻoe, 'He aha kēia? Aia kekahi mea hewa me kaʻu pēpē?' E like me Susan, he makuahine i hopohopo mua i kona ʻike ʻana i nā kiko ʻulaʻula ma ka ʻili o kāna pēpē. I kēia lā, e kamaʻilio mākou e pili ana i kahi maʻi i kapa ʻia ʻo hemangioma, ʻaʻohe mea e hopohopo ai, akā he mea pono ke ʻike.

He aha ka Hemangioma? He mea maoli anei ia e makaʻu ai?

I ka ʻōlelo maʻalahi, he ʻano hōʻailona hānau ka hemangioma. Hoʻokumu ʻia lākou i ka wā e hui pū ai nā kīʻaha koko liʻiliʻi i loko o ka ʻili o kahi pēpē, e hana ana i kahi puʻupuʻu liʻiliʻi. I kekahi manawa hiki ke ʻike ʻia lākou e puka ana ma luna o ka ʻili, a i kekahi manawa hiki ke ʻike ʻia lākou ma ke ʻano he wahi ʻulaʻula pālahalaha ma ka ʻili o ka ʻili.

E like me ka makuahine o Susan, makaʻu paha kekahi mau makuahine i ka wā e ʻōlelo ai ke kauka i kēia inoa, he maʻi kanesa ia (e like me `melanoma`) ma muli o ka hopena `-oma`. He mea maopopo ke hopohopo ke lohe ʻoe i kēlā huaʻōlelo. Akā, ʻaʻole he maʻi kanesa ka hemangioma i ka hapa nui o nā hihia. He mau maʻi maikaʻi kēia.

E noʻonoʻo e pili ana i ia mea, me he mea lā he mau māka hānau ko kākou ma kekahi mau wahi ma ko kākou kino. He ʻano kūikawā nō hoʻi kēia o ka māka hānau. Akā, ua hana ʻia kēia me nā kīʻaha koko.

ʻAʻole maʻamau kēia mau kiko e hōʻeha i ka pēpē. Eia nō naʻe, i kekahi manawa inā ʻeha ka ʻili ma luna o ka kiko i ka hamo ʻana a i ʻole ke kahakaha ʻana, hiki ke hōʻeha iki a me ke kahe ʻana o ke koko. Inā hana ʻia kēlā, pono ʻoe e akahele iki.

ʻO wai ka mea i loaʻa pinepine i kēia mau kiko ʻulaʻula (Hemangioma)? Pehea ka maʻamau?

ʻOi aku ka maʻamau o ka Hemangioma ma mua o kou manaʻo. Ma ke ʻano kikoʻī, ma kahi o hoʻokahi o 100 mau pēpē hānau hou e loaʻa i kēia ʻano hōʻailona hānau. No laila, inā loaʻa i kāu pēpē, e ʻike ʻoe ʻaʻole ʻoe hoʻokahi.

ʻOi aku ka nui o ka loaʻa ʻana o kēia mau mea i kekahi mau pēpē. Eia kekahi laʻana:

• Nā pēpē hānau mua ʻole: E like me Anna, ʻoi aku ka nui o ka pilikia o nā pēpē i hānau ʻia ma mua o 37 mau pule. Ua hānau ʻia ʻo Anna i 7 mau pule ma mua o kona lā hānau a hoʻi mai i ka home ma hope o ka hoʻolilo ʻana i ʻelua pule ma ka NICU (Neonatal Intensive Care Unit).
• No nā kaikamahine: ʻOi aku ka nui o ka loaʻa ʻana o nā hemangiomas i nā kaikamahine ma mua o nā keikikāne.
• Kala ʻili: Ua ʻōlelo ʻia ua ʻike pinepine ʻia kēia mau mea i nā pēpē me ka ʻili keʻokeʻo (Caucasian).
• I kekahi manawa, inā ua loaʻa i kekahi o ka ʻohana ma mua, hiki ke manaʻo ʻia he pilina hoʻoilina.

No laila, inā he ʻulaʻula ko kāu pēpē e like me kēia, ʻoi aku ka maikaʻi o ka hōʻike ʻana i ke kauka e hōʻoia inā he hemangioma ia.

He aha ka mea e hana ai inā loaʻa iaʻu kahi hemangioma? E nui aʻe anei ia? E nalo aku anei ia?

ʻO kēia ka nīnau nui loa a nā makuahine he nui. He mea maʻamau ke noʻonoʻo, "E nui aʻe anei kēia ʻeha? E mau loa anei?"

ʻO ke ʻano o nā hemangiomas, hoʻomaka lākou i kahi liʻiliʻi a laila ulu koke i ka hala ʻana o ka manawa.

• Nā mahina mua 6-12: ʻO kēia ka wā e ulu wikiwiki ai kēia mau kiko. Hiki iā lākou ke ʻulaʻula ʻeleʻele a i kekahi manawa ke nānā aku he pehu iki. Ma waena o nā kiko 9 ma ke kino o pēpē Anna, ʻo ka mea nui loa ma kona manamana wāwae nui ka mea i ʻike nui ʻia i kēia manawa.
• I ka makahiki aʻe: No hoʻokahi makahiki hoʻokahi, e nui aʻe paha kēia mau kiko i ka ulu ʻana o ka pēpē, a i ʻole e mau paha ka nui like.
• Ka Pae Hoʻokomo: ʻO kēia ka manawa kūpono loa. E hoʻomaka mālie kēia mau kiko e emi, mae, a palahalaha. Hiki i kēia kaʻina hana ke hala ma kahi o 5 a 10 mau makahiki. I ka hapanui o nā hihia, i ka manawa e hoʻomaka ai ke keiki e hele i ke kula (makahiki kindergarten), e mae nui kēia mau kiko.

Ma ka moʻolelo a ke pēpē ʻo Anna, ua hoʻomaka nā kiko e hoʻomaikaʻi i ka wā i piha ai ʻo ia i 6 mahina. I ka wā i piha ai ʻo ia i hoʻokahi makahiki, ua aneane nalowale loa ke kiko nui ma kona manamana wāwae nui. ʻOiai inā he loli iki i ke kala o ka ʻili, ʻo kona makuahine wale nō a i ʻole kekahi mea me ka maka i aʻo maikaʻi ʻia e ʻike.

No laila, mai hopohopo, nalo pinepine kēia mau mea iā lākou iho i ka hala ʻana o ka manawa.

He aha ka hana a nā kauka e pili ana i kēia? He aha ke ʻano o nā hoʻokolohua ma laila?

Inā kānalua ʻoe he hemangioma ko kāu pēpē, ʻo ka mea mua āu e hana ai, ʻo ia ke lawe iā ia i kahi kauka pediatric. Hiki iā ia ke hōʻoia. I kekahi manawa, hiki iā ia ke kuhikuhi iā ʻoe i kahi kauka dermatologist pediatric.

I ka hapanui o nā hihia, ke ʻole ka hemangioma kokoke i kahi ʻāpana koʻikoʻi e like me nā maka, ka ihu, a i ʻole ka waha o ka pēpē, a i ʻole ke hoʻopilikia nei i ka hanu ʻana a i ʻole ka ʻai ʻana, ʻaʻohe pono o kahi lāʻau kūikawā. E nānā wale nā ​​​​kauka iā ia.

Eia nō naʻe, i kekahi manawa ke kānalua nei nā kauka aia kēia mau kiko i loko o ke kino, ʻo ia hoʻi, ma nā ʻōpū o loko. Inā pēlā, he mea hopohopo ia. Eia kekahi, aia kahi manawa liʻiliʻi e pili ana kekahi mau hemangiomas nui me nā pilikia olakino ʻē aʻe.

Hiki i nā kauka ke hana i kekahi mau hoʻokolohua e hōʻoia i kēia mau mea:

Hoʻokolokolo Ultrasound

Hana ʻia kēia e nānā i nā hemangiomas i loko o ke poʻo a me ka ʻōpū o ka pēpē. Ua like kēia me ke kiʻi ʻana o ka `(Ultrasound)` i loaʻa iā ʻoe i ka wā hāpai. Eia naʻe, hiki i kēia ke lilo i mea paʻakikī iki no nā pēpē liʻiliʻi. ʻO ka lumi pouli, ka gel anu ma ko lākou kino, a i ka wā e hoʻopā ai nā malihini iā ​​lākou, hiki iā lākou ke makaʻu a uē. Ua paʻakikī hoʻi kēlā pēpē ʻo Anna i ka wā o kēlā hoʻāʻo no kahi o 20 mau minuke, a hiki i kahi i hiki ʻole ai i kona makuahine ke hōʻoluʻolu iā ia. Akā inā loaʻa iā ia ka lono mai kēia hoʻāʻo "ʻaʻohe mea i loko," he mea hōʻoluʻolu nui ia.

Nā hoʻāʻo koko

I kekahi manawa, e kauoha paha ke kauka i nā hoʻāʻo koko e nānā i nā kūlana ʻē aʻe, e like me nā pilikia thyroid. He mea paʻakikī iki ke kiʻi ʻana i ke koko mai kahi pēpē liʻiliʻi, a ʻeha ia, no laila ua kaumaha ka makuahine, ʻeā? I kekahi manawa, no ka mea he paʻakikī ke loaʻa kahi aa koko, pono lākou e lawe i ke koko mai ke kuʻekuʻe wāwae (heel stick), kahi mea ʻeha iki aʻe. Akā, hana ʻia kēia mau mea e hōʻoia ʻaʻohe pilikia ʻē aʻe, a no ka pono o ka pēpē.

ʻOiai paha he mea ʻoluʻolu ʻole kēia mau hoʻokolohua no ka pēpē, e hoʻomanaʻo ua hana ʻia lākou no ka palekana o ka pēpē a no ka hoʻoholo ʻana i ke kūlana pololei loa .

Pehea e mālama ai i kahi pēpē me ka hemangioma ma ka home? He aha kā mākou e makaʻala ai?

ʻOiai ʻaʻohe lāʻau lapaʻau kikoʻī pinepine, ʻo ka mea wale nō a mākou e hana ai ma ka home, ʻo ia ka mālama ʻana i nā mea liʻiliʻi.

• Ke pale ʻana i ka ʻili: ʻO ka pilikia nui loa, ʻo ia ka ʻili ma luna o ka hemangioma e ʻānai ʻia, e ʻeha, a hoʻomaka ke kahe ʻana o ke koko. Hiki i kēia ke alakaʻi i nā maʻi.
• I mea e pale aku ai i kēia, hiki iā ʻoe ke hoʻopili i kahi kirīmi hoʻomaʻū maikaʻi (e like me "Aquaphor") i kuhikuhi ʻia e kāu kauka i nā manawa he nui i ka lā. E hōʻemi kēia i ka maloʻo a me ka māwae o ka ʻili.
• E ʻoki pōkole i nā kui o kāu pēpē. E kōkua kēia iā lākou e nahu maʻalahi a emi iho ka hōʻino.
• I ka hoʻololi ʻana i nā diapers a me nā ʻaʻahu, e hana mālie a akahele hoʻi i ʻole e hōʻino i ka ʻili.
• Maʻemaʻe: E mālama i kahi i kau ʻia ai ka pāpili maʻemaʻe. Inā he ʻeha, e hoʻomaʻemaʻe e like me ke kuhikuhi a ke kauka a kau i ka lāʻau lapaʻau inā pono.
• Ka hoihoi o haʻi: I kekahi manawa ke hele ʻoe i waho, e nīnau paha nā hoaaloha a me nā ʻohana e pili ana i kēia mau wahi. E nānā paha kekahi iā ʻoe me ka hoihoi. I kēlā manawa, me ka ʻole o ka huhū a me ka ʻeha, hiki iā ʻoe ke wehewehe wale i ke ʻano o kēia mau mea. E like me ka hana a ka makuahine ʻo Susan, hiki iā ʻoe ke ʻōlelo i kekahi mea e like me, "He hōʻailona hānau kēia i kapa ʻia he hemangioma, ʻaʻohe mea e hopohopo ai, e nalowale ia ma kona iho i kekahi manawa." Ke ʻike ʻoe iā ia iho, ʻoi aku ka maʻalahi o ka wehewehe ʻana i nā poʻe ʻē aʻe.
• Maluhia: Inā ʻoluʻolu ʻole ʻoe i nā freckles o kāu pēpē, e like me ka hana a ka makuahine o Anna, hiki iā ʻoe ke uhi iā lākou me nā kāmaʻa wāwae a i ʻole kahi lole. Akā he paʻakikī kēlā e hana ma kahi e like me ka maka. I kēlā manawa, pono ʻoe e hoʻoholo ʻaʻohe mea hiki iā ʻoe ke hana koe wale nō ke kiʻi i ke kiʻi mai "ka ʻaoʻao maikaʻi loa o ka pēpē."

ʻO ka mea nui loa, mai ʻae i kēia mau kiko e pale iā ʻoe mai ke aloha a me ka mālama ʻana i kāu pēpē. Inā manaʻo ʻoe ʻo kāu pēpē ka pēpē nani loa ma ka honua, he ʻoiaʻiʻo kēlā.

Āhea e nalo aku ai kēia mau kiko ʻulaʻula? Pono anei nā kānaka a pau e hana i ke ʻoki kino?

ʻO kēia ka nūhou maikaʻi a nā mea a pau e kali nei. ʻO ka hapa nui o nā hemangioma e nalowale ana iā lākou iho i ka hala ʻana o ka manawa, me ka ʻole o ka lāʻau lapaʻau. E like me ka nalowale ʻana o ka mole nui loa o pēpē Anna i kona wā he hoʻokahi makahiki, ua mae mālie nā mole ʻē aʻe, ua palahalaha, a i kekahi manawa ua nalowale loa. I kekahi manawa, hiki ke waiho ʻia kahi loli iki i ke kala o ka ʻili a i ʻole ke ʻano. Akā, ʻaʻole ia he mea nui.

ʻAʻole pono pinepine ke ʻoki kino. A hana akahele loa nā kauka i kēlā mau hoʻoholo. Eia nā kūlana kahi e hiki ai ke noʻonoʻo ʻia ke ʻoki kino:

• Inā kokoke loa ka hemangioma i hoʻokahi maka, ihu, a waha paha, ke hoʻopilikia nei ia i ka ʻike, ka hanu ʻana, a i ʻole ka ʻai ʻana.
• Inā ʻoe e ʻeha mau ana, e kahe ana ke koko, a i ʻole e loaʻa ana nā maʻi.
• Inā hoʻopilikia ia i kahi ʻōkana koʻikoʻi (e.g., ate) i loko o ke kino.
• He wahi nui e hoʻopilikia nui ana i ke ʻano o ka pēpē a hiki ke hoʻopilikia iā lākou ma ke ʻano noʻonoʻo i ko lākou ulu ʻana (akā hana ʻia kēia me ka noʻonoʻo nui).

Koe wale nō i nā hihia kūikawā e like me kēia, ʻo ka ʻōlelo "ʻo ke ahonui ka lāʻau lapaʻau maikaʻi loa" i ka hapa nui o ka manawa e pili ana i nā hemangiomas.

Ua laki loa ʻo Pēpē Anna ʻaʻole pono ʻo ia e hana i kekahi ʻoki kino. ʻAʻohe ona ʻeha i loko, a ʻaʻole kokoke i kona mau maka, ihu, a waha paha. ʻAʻole ʻike ʻia nā ʻeha i koe i kona wā e ʻaʻahu ai, no laila, ʻaʻole pono ʻo ia e hopohopo no lākou i kona wā e ulu ai. I kēia manawa, he kaikamahine pāʻani ʻo ia e holo ana a puni, pāʻani, a holo i ka ʻūlū!

No laila, eia nā mea hope loa e hoʻomanaʻo ai (Leka Lawe-Home)

ʻAe, eia nā mea nui e noʻonoʻo ai mai nā mea a mākou i kamaʻilio ai:

• He ʻano maʻamau ka Hemangioma o ka maʻi hānau. ʻAʻole kēia he maʻi kanesa a ʻaʻole ia he mea ʻino.
• E mae wale ana kēia mau kiko i ko lākou iho i ka hala ʻana o ka manawa. E lōʻihi ana kekahi manawa, no laila pono ʻoe e hoʻomanawanui.
• Inā ʻike ʻoe i kahi kiko ʻulaʻula ma ke kino o kāu pēpē , mai hopohopo, e hōʻike iā ia i ke kauka a e kiʻi i ka ʻōlelo aʻo.
• E makaʻala ʻaʻole e ʻānai a hōʻeha paha i ka ʻili ma kahi o ka ʻulaʻula. E hoʻohana i kahi kirīmi hoʻomaʻū i ʻōlelo ʻia e kāu kauka.
• I ka hapanui o nā hihia, ʻaʻohe pono o kahi lāʻau lapaʻau kūikawā a ʻoki kino paha.
• Mai hoʻokuʻu i kēia mau kiko e hōʻemi i ka waiwai o kāu pēpē a i kou aloha paha. E hoʻoikaika i kona hauʻoli a me kona olakino.

Inā he mau nīnau hou aku kāu, hopohopo, a hopohopo paha, e kamaʻilio me kāu kauka keiki. Hiki iā lākou ke kōkua iā ʻoe me nā mea āu e pono ai.

Hemangioma, Hemangioma, Nā kiko ʻulaʻula o ka pēpē, Nā maʻi ʻili, Nā maʻi pediatric, Nā māka hānau, Nā kīʻaha koko