He mea weliweli ke ʻike i nā palapū a me nā kiko ʻulaʻula liʻiliʻi ma ke kino o kāu keiki, ʻeā? I kekahi manawa hiki iā ʻoe ke ʻike i nā mea e like me kēia ma hope o ka hala ʻana o kahi anu liʻiliʻi. No laila i kēia lā e kamaʻilio mākou e pili ana i kahi maʻi i kapa ʻia ʻo Immune Thrombocytopenia (ITP), hiki ke hana i nā hōʻailona e like me kēia, akā ʻaʻohe mea e hopohopo ai inā maopopo pono ʻoe. E nānā kākou i ke ʻano o ia mea, no ke aha e hana ai, pehea e ʻike ai, a me nā mea ʻē aʻe e hiki ke hana ʻia.
He aha ka Immune Thrombocytopenia (ITP)? E hoʻomaopopo maʻalahi kākou!
I ka ʻōlelo maʻalahi, ʻo ka Immune Thrombocytopenia (ITP) ka wā e hele hewa ai kā mākou ʻōnaehana pale (ka ʻōnaehana e pale ai iā mākou mai ka maʻi ) a hoʻouka i kahi ʻano cell i loko o ko mākou kino ponoʻī i kapa ʻia ʻo platelets . I kēia manawa ke noʻonoʻo nei paha ʻoe i ke ʻano o nā platelets. ʻO lākou nā cell liʻiliʻi e kōkua i ka hoʻōki ʻana i ke kahe ʻana ke loaʻa iā mākou kahi ʻeha ma kekahi wahi o ko mākou kino. E like me nā mea kōkua e kōkua ana i kahi koa i ʻeha i ke kaua. Hana pū kēia mau platelets e hana i nā clots koko a hoʻōki i ke kahe ʻana.
No laila, ʻo ka mea e hana ʻia ana i loko o kahi keiki me ITP, ʻo ia ka luku hewa ʻana o ka ʻōnaehana pale i kēia mau platelets maikaʻi. He aha ka mea e hana ʻia a laila? E emi ana ka helu o nā platelets i loko o ke kino. Ke hana ʻia kēlā, lilo ia i mea paʻakikī ke hoʻōki i ke kahe ʻana o ke koko mai kahi ʻeha liʻiliʻi, a i kekahi manawa hiki iā ia ke hoʻoulu i ke kahe ʻana o ke koko.
Akā, aia ka nūhou maikaʻi! ʻO ka hapa nui o ka manawa, ke loaʻa i nā keiki liʻiliʻi ka ITP, e hoʻomaikaʻi ia iā ia iho i loko o 6 mau mahina . Akā i kekahi manawa hiki ke lōʻihi, a i ʻole e hoʻomaikaʻi a laila hoʻi mai. ʻO ia ke kumu he mea nui e makaʻala i kēia.
He aha nā hōʻailona e hiki ke loaʻa i kahi keiki me ITP?
I kēia manawa, e nānā kākou i nā hōʻailona e hōʻike ai ke keiki me ITP. Mai hopohopo inā ʻike ʻoe i kēia mau mea, akā he mea nui loa ia e ʻimi i ke aʻo lapaʻau.
- Ka maʻalahi o ke kahe koko:
- He kahe wale nō ke koko o ka ihu .
- Ke kahe koko ʻana o nā ʻāʻī i ka wā e palaki ai i kou mau niho.
- I kekahi manawa, puka mai ke koko liʻiliʻi me ka ʻōpala a i ʻole ka mimi . (He mea hopohopo iki kēia, akā pono ʻoe e haʻi i ke kauka).
- I ke ʻano o ke kaikamahine i hiki i ka wā ʻōpio, he nui ke kahe ʻana o ke koko i ka wā o kona wā mahina a mau no nā lā he nui.
- Nā hōʻailona i hoʻokumu ʻia e ke kahe ʻana o ke koko ma lalo o ka ʻili:
- ʻO ka palapū maʻalahi . ʻOiai kahi puʻupuʻu liʻiliʻi hiki ke hoʻolilo i ka ʻili i polū/poni.
- ʻO ke ʻano o nā kiko liʻiliʻi ʻulaʻula-poni ma ka ʻili. Kapa mākou i kēia ma ke ʻano lapaʻau he (Petechiae) . He mau kiko liʻiliʻi kēia e like me ka mea i kaha ʻia me ka wēlau peni.
- He poni, nui iki aʻe, nā kiko e like me ka palapū ma ka ʻili. Ua kapa ʻia kēia ʻo (Purpura) . ʻOi aku ka nui o kēia ma mua o (Petechiae).
E noʻonoʻo, inā hāʻule kāu keiki i ka wā e pāʻani ana a loaʻa iā ia kahi palapū nui aʻe ma mua o ka maʻamau, a inā ʻike ʻoe i nā mea e like me nā kiko ʻulaʻula āu i ʻōlelo ai, pono ʻoe e hopohopo no ia mea.
He mea kākaʻikahi loa, ʻoiai inā he ʻeha nui ke poʻo , hiki i ka ITP ke hoʻoulu i ke kahe koko i loko o ka lolo (e like me ka hahau ʻana). He mea kākaʻikahi loa kēia, akā e hoʻomanaʻo e ʻike koke i ke kauka inā loaʻa iā ʻoe kahi ʻeha poʻo.
No ke aha e ulu ai ka ITP? He aha nā kumu?
ʻO ke kumu nui o ITP, e like me ka mea i ʻōlelo ʻia ma mua, ʻo ia ka hoʻouka hewa ʻana o kā mākou ʻōnaehana pale i nā platelets , me he mea lā e hoʻouka ana ko mākou pūʻali koa ponoʻī i ko mākou poʻe ponoʻī.
ʻO ke kumu nui i hoʻopilikia ʻia ai nā ʻōnaehana pale o nā keiki ma kēia ʻano, ʻo ia nā maʻi viral . No ka laʻana, hiki i kekahi mau keiki ke loaʻa i ka ITP ma hope o ka ho'ōla ʻana mai ke anu a i ʻole ka maʻi flu. Ke komo ka maʻi i loko o ke kino, ʻo ka ʻōnaehana pale, i ka wā e hakakā ai me ia, i kekahi manawa "pane nui" a hoʻomaka e hoʻouka i nā platelets.
Eia kekahi, he mea kākaʻikahi loa, hiki ke hoʻoulu ʻia ka ITP e kekahi maʻi ʻē aʻe, kahi maʻi autoimmune (kahi maʻi e hoʻouka ai ka ʻōnaehana pale i nā ʻāpana olakino o ko mākou kino ponoʻī), a i ʻole kekahi mau lāʻau lapaʻau . Akā i ka hapa nui o ka manawa, he paʻakikī ke loaʻa kahi kumu kikoʻī e hoʻouka ai ka ʻōnaehana pale i nā platelets.
ʻO wai ka mea e kūpono loa e hoʻomohala i ka ITP?
ʻO ITP, ka mea i ʻike pinepine ʻia i ka wā kamaliʻi, loaʻa pinepine ia i nā keiki ma waena o nā makahiki 1 a me 7. Eia nō naʻe, hiki ke loaʻa pū i nā keiki makua a me nā keiki ʻōpio.
ʻO ka mea nui, ʻo ke ʻano maʻamau o ke keiki me ITP e ʻike ʻia he olakino maikaʻi a maikaʻi . ʻO ia hoʻi, ma waho aʻe o ke kahe ʻana o ke koko a me ka palapū, e pāʻani ana paha ke keiki, e ʻai ana, e inu ana, a e hana ana i kā lākou hana o kēlā me kēia lā ma ke ʻano maʻamau.
Pehea e ʻike ai nā kauka i ka ITP?
Ke lawe ʻoe i kāu keiki i ke kauka, e hana lākou i kēia mau mea e ʻike ai inā he ITP ko lākou:
1. Ke nīnau nei i nā nīnau:E nīnau ʻia ʻoe i nā nīnau he nui e pili ana i nā hōʻailona o kāu keiki, pehea lākou i hoʻomaka ai, a inā paha he mau maʻi i loaʻa iā lākou i kēia manawa.
2. Hoʻokolokolo kino: E nānā pono ke kauka i ke keiki. E nānā lākou no nā palapū, (Petechiae), (Purpura), a me nā mea ʻē aʻe ʻē aʻe.
3. Nā Hoʻāʻo Koko: ʻO kēia ka hana koʻikoʻi loa. Lawe ʻia kahi hāpana koko a hana ʻia nā hoʻāʻo aʻe:
- Nānā ʻia ka helu platelet. I ka ITP, pono e haʻahaʻa kēia.
- Nānā ʻia nā ʻano hunaola koko ʻē aʻe (nā hunaola koko ʻulaʻula, nā hunaola koko keʻokeʻo) e ʻike inā he maʻamau lākou . ʻAʻole loli pinepine kēia mau mea i ka ITP.
- E nānā i nā hōʻailona o kahi maʻi (e laʻa me kahi maʻi viral).
- Ke noiʻi nei mākou inā he mau kumu ʻē aʻe o nā platelets haʻahaʻa.
ʻO kēia mau hoʻokolohua wale nō ke ala e hoʻoholo ai inā he ITP kāu a i ʻole he kumu ʻē aʻe no kēia mau hōʻailona.
He aha nā lāʻau lapaʻau no ITP?
ʻOkoʻa ka lāʻau no ka ITP ma muli o ke koʻikoʻi o nā hōʻailona . ʻAʻole pono paha kekahi mau keiki i kekahi lāʻau inā he ʻeha wale nō a me nā kiko ʻulaʻula liʻiliʻi (petechiae). E nānā nā kauka i ke keiki.
Eia nō naʻe, inā pono ka lāʻau lapaʻau, eia kekahi mau mea hiki iā ʻoe ke hana:
- Nā lāʻau lapaʻau e pale ai i ka ʻōnaehana pale mai ka hoʻouka ʻana i nā platelets:
- Nā Steroid: Hiki ke hāʻawi ʻia kēia mau mea ma ke ʻano he pila a i ʻole he inikini i loko o kahi aa. Kōkua kēia i ka hoʻonui koke ʻana i ka helu o nā platelets.
- Nā inikini antibody IV (intravenous): Ua kapa ʻia kēia mau mea he immunoglobulins a i ʻole rituximab . Hana kēia ma ka hoʻopau iki ʻana i ka ʻōnaehana pale.
- Nā lāʻau lapaʻau e kōkua ai i ke kino e hana i nā platelets hou aʻe: I kekahi manawa hiki ke hāʻawi ʻia kēia mau lāʻau lapaʻau.
- ʻO ke ʻoki ʻana i ka spleen: He ʻōkana ka spleen i loko o ko kākou kino. Hoʻopau nui ʻia nā platelets i loko o kēia spleen. No laila, hana ʻia kēia ʻoki ʻana ma ke ʻano he hopena hope loa no nā keiki me nā hōʻailona koʻikoʻi loa i pane ʻole i nā lāʻau ʻē aʻe. Manaʻo pinepine ʻia kēia no nā keiki makua a i ʻole nā mākua ʻōpio.
He mea nui: ʻO ke kauka wale nō ke hoʻoholo i ka lāʻau kūpono no kāu keiki. No laila, he mea nui loa e hahai i nā ʻōlelo a kāu kauka.
Pehea ʻoe e kōkua ai ma ke ʻano he mau mākua?
Nui nā mea hiki iā ʻoe ke hana ma ke ʻano he makua i ka mālama ʻana i kāu keiki i ka wā o ITP.
- E mālama i kāu keiki mai nā haʻuki a me nā hana e hiki ai ke hōʻeha a kahe ke koko no kekahi manawa. Eia kekahi laʻana, pono paha ʻoe e hoʻōki i ke kaʻa paikikala a hoʻopili i nā haʻuki.
- Mai hāʻawi i kāu keiki i kekahi lāʻau lapaʻau i loaʻa ka ibuprofen (e.g., Motrin, Advil ) a i ʻole aspirin me ka ʻae ʻole o kāu kauka. Hiki i kēia mau lāʻau lapaʻau ke hoʻonui i ka pilikia o ke kahe ʻana o ke koko. ʻO ka Paracetamol, ka mea i hāʻawi ʻia no ke kuni maʻamau a me nā ʻeha, he palekana ia, akā e nānā me kāu kauka ma mua o ka hāʻawi ʻana i kāu keiki.
Hoʻōla piha ka hapa nui o nā keiki me ITP i loko o kekahi mau mahina. Eia kekahi mau mea hiki iā ʻoe ke hana e kōkua i kāu keiki:
- E hōʻoia e lawe i kāu keiki i nā manawa a pau a ke kauka.
- E hahai pono i nā kuhikuhi a kāu kauka. E makaʻala pono i nā hana kūpono a me nā mea pono ʻole ʻoe e hana.
- Inā kuʻi ke poʻo o kāu keiki i kekahi wahi a i ʻole he ʻeha nui kona, e ʻike koke i ke kauka a i ʻole e hele i ka haukapila. He mea nui loa kēia.
- E makaʻala ʻaʻole e hāʻawi i kāu keiki i nā lāʻau lapaʻau a ke kauka i ʻōlelo ai he kūpono ʻole.
- Inā hōʻike kāu keiki i nā hōʻailona o ke kahe koko hou, ka ʻeha, a i ʻole nā kiko ʻulaʻula/poni ma ka ʻili, e kāhea koke aku i kāu kauka.
Nā mea nui e hoʻomanaʻo (Leka Lawe-Home)
Hiki ke hopohopo iki ka lohe ʻana e pili ana i ka ITP. Akā e hoʻomanaʻo, i ka hapa nui o ka manawa, nalowale ia ma kona iho ke loaʻa i nā keiki . ʻO ka mea nui, ʻaʻole e hopohopo, akā e ʻimi i ka ʻōlelo aʻoaʻo lapaʻau kūpono a hana e like me ia .
Inā loaʻa i kāu keiki kēia mau hōʻailona, e ʻike pono i kahi pediatrician a i ʻole he hematologist. E hāʻawi lākou iā ʻoe i nā ʻōlelo aʻoaʻo a pau āu e pono ai. Ke makemake nei iā ʻoe e ola koke!
👩🏽⚕️ Nā nīnau i nīnau pinepine ʻia (FAQ) mai ke Kauka
💬 He aha ka ITP, e ke Kauka? Hiki iā ʻoe ke wehewehe mai iaʻu ma nā ʻōlelo maʻalahi?
I ka ʻōlelo maʻalahi, ʻo ITP ka wā e hele iki ai ka ʻōnaehana pale, ka mea e pale ai iā mākou mai nā maʻi i loko o ko mākou kino, a hoʻouka i nā hunaola liʻiliʻi i kapa ʻia ʻo 'platelets' e kōkua ana i ka hoʻōki ʻana i ke kahe koko. A laila, emi ka helu o kēia mau platelets, hiki ke hoʻoulu i ke kahe koko i loko o ke keiki. Akā, ʻaʻohe mea e hopohopo ai, inā maopopo pono mākou i kēia, hiki iā mākou ke hoʻokele maikaʻi.
💬 He aha nā hōʻailona e hiki ai ke haʻi inā loaʻa i kahi keiki ka ITP? Pono anei mākou e hopohopo inā ʻike mākou i kēia mau mea?
ʻAe, hiki i kahi keiki me ITP ke loaʻa i nā ʻeha liʻiliʻi, nā kiko ʻulaʻula liʻiliʻi, ke kahe ʻana o ka ihu, a me ke kahe ʻana o nā ʻāʻī i ka wā e palaki ai i ko lākou mau niho. I kekahi manawa, aia paha he koko liʻiliʻi i loko o ko lākou ʻōpala a i ʻole ka mimi . Mai hopohopo inā ʻike ʻoe i kēia mau mea, akā he mea nui e ʻike i ke kauka no ka ʻōlelo aʻo. ʻO ka nūhou maikaʻi, ʻo ka hapa nui o nā keiki e hoʻomaikaʻi iā lākou iho i loko o 6 mau mahina.
ʻO ka Thrombocytopenia pale kino, ITP, nā platelets, ke kahe ʻana o ke koko, nā maʻi o nā keiki, ka ʻōnaehana pale kino, ka palapū
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