Ua ʻike ʻia ʻoe me ka Primary Biliary Cholangitis ( PBC ) , a i ʻole e like me ka kapa ʻana o nā kauka? Inā pēlā, ua hoʻomaka mua paha ʻoe i ka lāʻau lapaʻau. Akā, ke manaʻo nei ʻoe i kekahi manawa ʻaʻole kōkua nā lāʻau lapaʻau āu e lawe nei e like me kou manaʻo, a ʻo ia wale nō ka maʻi? He mea maʻamau ke manaʻo pēlā, a mai hopohopo no ia mea. I kēia lā, e kamaʻilio mākou e pili ana i ka mea e hana inā ʻaʻole holo pono kāu lāʻau PBC, pehea e ʻike ai, a me ka mea e hana ai ma hope.
ʻO ka mea mua, he aha ka PBC ma nā huaʻōlelo maʻalahi?
E noʻonoʻo i ko kākou akepaʻa ma ke ʻano he kekahi o nā hale hana nui loa i loko o ko kākou kino. ʻO kahi wai koʻikoʻi i hana ʻia ma kēia hale hana ua kapa ʻia ʻo 'bile'. Kōkua kēia bile iā kākou e hoʻoheheʻe i ka meaʻai a kākou e ʻai ai. Lawe ʻia kēia bile mai ke akepaʻa ma o kahi ʻōnaehana palupalu loa o nā ʻōmole liʻiliʻi ( nā ʻāpana bile ).
Ma ke ʻano i kapa ʻia ʻo PBC, hoʻouka kahi kīnā i loko o kā mākou ʻōnaehana pale ponoʻī i kēia mau ʻauwai bile palupalu a hoʻoulu iā lākou e pehu mai loko mai. Ua like ia me kahi paipu wai e paʻa ana. A laila, ʻaʻole hiki i ka bile ke kahe pono a hoʻomaka e hōʻiliʻili i loko o ke ake.
I nā pae mua, ʻaʻohe paha he mau hōʻailona. Akā i ka wā e hōʻiliʻili ai kēia bile i ka hala ʻana o ka manawa, hōʻino ia i nā hunaola o ke akepaʻa a hoʻoulu i ka ʻeha. Ke lilo kēia ʻano i mea koʻikoʻi, ua kapa ʻia ʻo ia he cirrhosis . Inā ʻaʻole mālama pono ʻia, hiki iā ia ke alakaʻi i ka hāʻule ʻana o ke akepaʻa . ʻO ia ke kumu he mea nui loa ka hoʻomaka ʻana i ka lāʻau i ka wā hikiwawe.
ʻO ka lāʻau lapaʻau mua a ke kauka e hāʻawi ai - UDCA
Ke ʻike ʻia ʻoe me PBC, ʻo ka lāʻau lapaʻau mua a kāu kauka e hoʻomaka ai iā ʻoe ʻo ia ka Ursodeoxycholic acid . No ka mea he paʻakikī ke hoʻomanaʻo i ka inoa lōʻihi, kapa mākou āpau iā ia ʻo UDCA no ka pōkole.
ʻO ka hana a kēia lāʻau lapaʻau UDCA, ʻo ia ke kōkua i ka bile i hōʻiliʻili ʻia i loko o ke akepaʻa e kahe maʻalahi i waho. Hoʻemi kēia i ka hōʻino ʻia o ke akepaʻa. Akā, aia kekahi mea nui e pono ai kākou a pau e hoʻomaopopo.
ʻAʻole hiki i kēia lāʻau UDCA ke ho'ōla loa i ka PBC. Eia nō naʻe, hiki iā ia ke hoʻōki i ka maʻi mai ka holomua wikiwiki ʻana, kaohi i ka hōʻino ʻana i ke akepaʻa, a kōkua iā ʻoe e ola i kahi ola maʻamau.
Akā ʻo ka pilikia, ʻaʻole like ka hana o kēia lāʻau lapaʻau no nā kānaka a pau. ʻAʻole loaʻa i kekahi poʻe nā hopena a lākou e manaʻo ai mai ia mea.
Pehea ʻoe e ʻike ai inā ʻaʻole e hana ana ka lāʻau lapaʻau?
Ua ʻike ʻia nā noiʻi ma kahi o 40% o ka poʻe e lawe ana i ka UDCA, a i ʻole ma kahi o ʻehā o ka ʻumi poʻe, ʻaʻole lākou e loaʻa nā pono i manaʻo ʻia mai ka lāʻau. Loaʻa i kahi poʻe liʻiliʻi nā hopena ʻaoʻao e like me ka ʻeha o ka ʻōpū a me ka maʻi diarrhea, e paʻakikī ai ka hoʻomau ʻana i ka hoʻohana ʻana i ka lāʻau.
Inā ʻaʻole holo pono kāu lāʻau lapaʻau, hiki iā ʻoe ke hoʻomau a loaʻa paha nā hōʻailona ʻino e like me kēia.
| Hōʻailona | Pehea kona manaʻo |
|---|---|
| Manaʻo mau o ka luhi nui | Manaʻo ola ʻole ʻoiai ma hope o ka hiamoe maikaʻi ʻana a me ka hana ʻole ʻana. |
| Ke ʻōniʻoniʻo ʻana i ka ʻili | ʻO ka ʻeha nui ma ke kino holoʻokoʻa, ʻoi aku hoʻi i ka pō. |
| Melemele o ka ʻili a me nā maka | Melemele nā keʻokeʻo o nā maka a me ka ʻili, e like me ka jaundice. |
| Nā maka maloʻo a me ka waha | ʻO ka waha maloʻo mau a me ka maloʻo e like me ke one ma nā maka. |
| ʻEha ma ka ʻaoʻao ʻākau o luna o ka ʻōpū | He ʻeha palupalu e puka mai ana mai ka ʻāpana o ke akepaʻa, ʻo ia hoʻi, ma ka ʻaoʻao ʻākau o ka ʻōpū, ma lalo o nā iwi ʻaoʻao. |
| Ka pehu ʻana o nā lālā a me ka ʻōpū | ʻOi aku ka pehu ʻana ma nā wāwae, nā kuʻekuʻe wāwae, a laila ka ʻōpū. |
ʻO wai ka mea kūpono ʻole e lawe i ka UDCA?
Ua ʻike nā kauka e loaʻa paha i kekahi poʻe nā hopena i emi iho mai ka UDCA. ʻO kēia mau mea:
- ʻO ka poʻe i loaʻa mua i ka cirrhosis o ke ake.
- ʻO nā kānaka me nā pae kiʻekiʻe loa o nā enzymes ate i kapa ʻia ʻo gamma-glutamyl transferase a me ka alkaline phosphatase i loko o ko lākou koko.
- Nā kāne (ʻoiai ʻoi aku ka maʻamau o ka PBC i nā wahine, hiki ke ʻoi aku ka koʻikoʻi i nā kāne).
- Nā wahine i ʻike ʻia me PBC ma mua o 45 mau makahiki.
Pehea ʻoe e hōʻoia ai i kēia, e ke kauka?
ʻOiai inā hoʻomau kāu mau hōʻailona, ʻaʻole e hoʻoholo koke ke kauka "ʻaʻole e hana ana ka lāʻau lapaʻau." Aia kekahi ala e ʻike pono ai.
Ke hoʻomaka ʻoe i ka lāʻau lapaʻau, e nānā mau kāu kauka iā ʻoe. E kauoha pinepine lākou i nā hoʻāʻo koko i kēlā me kēia 3 a 6 mahina. Akā i kekahi manawa hiki ke hala a hiki i hoʻokahi makahiki e ʻike pono ai inā e hana maoli ana kēia lāʻau lapaʻau iā ʻoe.
Nānā nui kēia mau hoʻāʻo koko i nā pae enzyme o kou ake, ʻo ia hoʻi ʻo Alkaline Phosphatase (ALP) a me Bilirubin . Inā ʻoi aku ka kiʻekiʻe o kēia mau pae ma mua o ka maʻamau ma hope o kekahi mau mahina o ka lawe ʻana i ka UDCA, he hōʻailona paha ia ʻaʻole e hana ana ka lāʻau e like me ka mea i manaʻo ʻia.
Inā hana ia, hiki i kāu kauka ke hoʻoholo e hoʻohui i kahi lāʻau hou i kāu UDCA a kamaʻilio pū me ʻoe e pili ana i kahi koho lapaʻau ʻē aʻe.
No laila he aha kaʻu e hana ai?
ʻO kēia ka mea nui loa e pono ai ʻoe e ʻike mai kēia ʻatikala.
E kamaʻilio ākea a me ka ʻoiaʻiʻo me kāu kauka.
Inā ʻaʻole e hoʻomaikaʻi kāu mau hōʻailona a i ʻole e ʻoi aku ka ʻino, e hōʻoia e haʻi aku i kāu kauka i ka manawa aʻe e ʻike ai ʻoe iā ia. Mai hūnā i ka ʻike, me ka manaʻo, "He mea maʻamau kēia," a i ʻole e manaʻo e hoʻopilikia ia i ke kauka. ʻO nā mea liʻiliʻi āpau āu e manaʻo ai he mea nui ia i ka wā e hoʻoholo ai i ka lāʻau lapaʻau.
E hoʻomanaʻo, ʻoiai ʻaʻole i holo pono ka lāʻau lapaʻau mua, ʻaʻole ia he manaʻo ua pau nā mea a pau. Ua holomua nui ka lāʻau lapaʻau. Nui aʻe nā koho a me nā lāʻau lapaʻau hou e kōkua i ka mālama ʻana i kou kūlana. ʻO ka mea nui loa, ʻo ia ka hana pū ʻana o ʻoe a me kāu kauka.
Leka Lawe-Home
- He maʻi ka PBC e hōʻino ana i nā ʻōmole lahilahi e lawe ana i ka bile i ke akepaʻa. Inā ʻaʻole mālama pono ʻia, hiki iā ia ke alakaʻi i ka hōʻino nui ʻana o ke akepaʻa i ka hala ʻana o ka manawa.
- ʻO UDCA ka lāʻau lapaʻau nui a me ka laina mua no PBC, akā ʻaʻole ia e hana like no nā mea āpau.
- Inā hoʻomau nā hōʻailona e like me ka luhi pinepine, ka ʻili maneʻo, a me ka melemele o nā maka me ka hoʻohana ʻana i ka lāʻau lapaʻau, ʻo ia hoʻi ke ʻano ʻaʻole kūpono ka lāʻau lapaʻau iā ʻoe.
- ʻO ke kamaʻilio ʻana me kāu kauka e pili ana i kou mau hōʻailona a me kou mau manaʻo ka mea maikaʻi loa hiki iā ʻoe ke hana no kou olakino.
- Inā ʻaʻole holo pono kekahi lāʻau lapaʻau, aia kekahi mau ala a me nā lāʻau lapaʻau ʻē aʻe e mālama ai i kou kūlana. No laila, mai makaʻu a hopohopo paha.
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