Loaʻa pinepine anei i kāu keiki ka ʻeha iwi? Hiki paha kēia ke CRMO? (Chronic Recurrent Multifocal Osteomyelitis)

Ke hoʻopiʻi pinepine nei kāu keiki ua ʻeha ko lākou wāwae, lima, a i ʻole ke kua? I kekahi manawa manaʻo mākou he hihia maʻalahi wale nō ia o ka holo ʻana a i ʻole "nā ʻeha ulu." Akā inā mau kēia ʻeha no nā lā a i ʻole nā ​​pule, e emi ana ma hope o kekahi mau lā, a laila hoʻi mai, pono mākou e hopohopo iki. I kēia lā e kamaʻilio mākou e pili ana i kahi maʻi kakaʻikahi akā koʻikoʻi e hiki ai ke hoʻoulu i ka ʻeha iwi hou.

I ka ʻōlelo maʻalahi, he aha ka CRMO?

ʻO ka Chronic Recurrent Multifocal Osteomyelitis, i ʻike ʻia hoʻi ʻo CRMO, he maʻi autoimmune . I kēia manawa ke noʻonoʻo nei paha ʻoe i ke ʻano o ia mea. E noʻonoʻo i ka ʻōnaehana pale o ko mākou kino e like me ka pūʻali koa e pale ana i kahi ʻāina. ʻO ka hana a kēia pūʻali koa, ʻo ia ke pale iā mākou mai nā maʻi ma ke kaua ʻana i nā ʻenemi haole, e like me nā virus a me nā bacteria.

Akā i loko o kahi maʻi autoimmune, hana hewa ko mākou ʻōnaehana pale ponoʻī a hoʻouka i nā ʻāpana olakino o ko mākou kino ponoʻī ma kahi o nā mea komo hewa ʻē. Ma CRMO, kuhikuhi ʻia kēia "hoʻouka kuhihewa" i ko mākou mau iwi ponoʻī. ʻO ka ʻōnaehana pale, me ke kumu ʻole, hoʻouka i hoʻokahi a ʻoi aku paha nā iwi i loko o ke kino, e hoʻoulu ai i ka mumū, ʻo ia hoʻi ka pehu a me ka ʻeha.

Aia kekahi kumu kikoʻī no ka hoʻokumu ʻia ʻana o CRMO?

ʻO kaʻoiaʻiʻo, ʻaʻole maopopo loa i nā kauka ke kumu o CRMO. ʻAʻole ia i hana ʻia e kahi maʻi bacteria a viral paha. ʻO ka ʻōnaehana pale wale nō ia e hana nei me ke kumu ʻole.

Eia nō naʻe, aia kekahi kānalua he pilina hoʻoilina paha kēia. I kekahi manawa, ua hōʻike ʻia kekahi mau lālā o ka ʻohana hoʻokahi i loaʻa i kēia maʻi. Eia nō naʻe, pono ka noiʻi hou aku ma kēia.

ʻO wai ka mea i loaʻa pinepine i kēia maʻi?

ʻIke pinepine ʻia ʻo CRMO i nā keiki a me nā ʻōpio.ʻIke pinepine ʻia ka maʻi ma kahi o 9-10 mau makahiki. ʻOi aku ka maʻamau o ke ʻano i nā kaikamahine ma mua o nā keikikāne.

ʻAʻole kēia he maʻi maʻamau loa, akā i ka ʻike ʻana o nā kauka a me ka lehulehu i kēia maʻi, ua piʻi iki ka nui o ka poʻe i ʻike ʻia me ka maʻi.

He aha nā hōʻailona nui o CRMO?

Hiki i ka CRMO ke hoʻopilikia i kekahi iwi o ke kino. Akā ʻo ka mea maʻamau ka hoʻopilikia ʻana i nā iwi lōʻihi ma nā wāwae o nā keiki, nā pūhaka, a me ka iwi kuamoʻo . Hiki ke hōʻike koke ʻia nā hōʻailona, ​​​​e emi iho ma hope o kekahi mau lā, a laila hoʻi hou mai. Ua kapa ʻia kēia he flare-up a me ka remission.

E nānā kākou i nā hōʻailona nui e like me kēia.

Pehea e ʻike pololei ai i ka maʻi CRMO?

No ka mea he maʻi laha ʻole kēia, hiki ke paʻakikī i kekahi manawa ke ʻike ʻana i ia mea. E nānā pono ke kauka i kāu keiki a nīnau iā ʻoe e pili ana i kāu mau hōʻailona. Hiki ke hala kekahi mau mahina a ʻoi aku paha ma mua o hoʻokahi makahiki e ʻike ai i ka maʻi.

Hana ʻia kekahi mau hoʻokolohua e hōʻoia i ka maʻi.

• Nā hoʻokolohua kiʻi: Hiki i nā hoʻokolohua e like me nā X-ray a me nā MRI scan ke hōʻike maopopo i ka mumū a me nā loli ʻē aʻe i nā iwi.
• Nā hoʻāʻo koko: Kōkua kēia i ka nānā ʻana i ke kiʻekiʻe o ka mumū i loko o ke kino (e like me ESR, CRP) a kāpae i nā maʻi a i ʻole nā ​​​​maʻi ʻē aʻe.
• Nā hoʻokolohua genetic: I kekahi mau hihia, pono paha kēia mau hoʻokolohua e kāpae i nā maʻi genetic ʻē aʻe.

He aha nā lāʻau lapaʻau no CRMO?

I kēia manawa, ʻaʻohe lāʻau lapaʻau no CRMO. Akā, mai hopohopo. Hiki i nā lāʻau lapaʻau i loaʻa ke kāohi i nā hōʻailona, ​​​​hōʻemi i ka mumū, a kōkua i kāu keiki e ola i kahi ola maʻamau .

Hiki i ke kauka ke ʻōlelo i kēia mau lāʻau lapaʻau:

• Nā lāʻau anti-inflammatory nonsteroidal (NSAIDs): ʻO kēia nā lāʻau ʻeha a me nā lāʻau anti-inflammatory a mākou e ʻike ai, e like me Ibuprofen. ʻO kēia ka lāʻau lapaʻau mua e hoʻāʻo ai. Ma kahi o 50% o nā keiki e pane maikaʻi i kēia mau mea. Eia nō naʻe, inā ʻoe e lawe i kēia mau lāʻau no ka manawa lōʻihi, e nānā mau kāu kauka i kāu hana puʻupaʻa a me ke akepaʻa.
• Nā lāʻau lapaʻau antirheumatic hoʻololi maʻi (DMARDs): Inā ʻaʻole nā ​​NSAID wale nō e kāohi i ka maʻi, ʻo kēia papa o nā lāʻau lapaʻau ka hui aʻe o nā lāʻau lapaʻau i hoʻohana ʻia. Hana kēia mau lāʻau lapaʻau ma ke kāohi ʻana i ka ʻōnaehana pale i kekahi ʻano, e kōkua ana i ka hoʻōki ʻana i nā hoʻouka hewa e hoʻoulu ai i ka maʻi. Ma mua o ka hoʻomaka ʻana i kēia mau lāʻau lapaʻau, e wehewehe kāu kauka i nā pono a me nā pōʻino āpau iā ʻoe.
• Nā loli o ke ʻano o ka nohona:I ka wā o ka ʻeha, pono paha kāu keiki e kaupalena i kā lākou holo ʻana a me ka lele ʻana. Hiki i kahi mea hoʻoponopono kino a mea hoʻoponopono hana paha ke kōkua iā ʻoe e aʻo pehea e hana ai i nā hana o kēlā me kēia lā me ka ʻeha, me nā hoʻoikaika kino.

Aia kekahi mau maʻi ʻē aʻe e hiki ke hana pū me CRMO?

ʻAe, aia kekahi mau pilikia o nā keiki me CRMO i ka hoʻomohala ʻana i kekahi mau maʻi autoimmune ʻē aʻe.

• ʻO ka maʻi mumū o ka ʻōpū (IBD): He ʻano kēia i hoʻokumu ʻia e ka ʻōnaehana pale e hoʻouka ana i ka ʻōnaehana hoʻoheheʻe.
• Psoriasis: He maʻi autoimmune kēia e hoʻopilikia ai i ka ʻili.
• ʻEha nui o ke kino: He ʻano paʻakikī iki kēia. ʻOiai ke hoʻomaha ʻia nei ʻo CRMO, aia paha ka ʻeha mau o ke kino no ke kumu i wehewehe ʻole ʻia. ʻAʻole hoʻomaha ʻia kēia ʻeha e nā mea hoʻomaha ʻeha maʻamau.

He aha ka wānana o kēia maʻi?

ʻO ka nūhou maikaʻi, ma kahi o 40% o nā maʻi e loaʻa i ke kala piha ʻana i loko o nā makahiki 1-5 mua o ka lāʻau lapaʻau. ʻO ke ʻano kēia, ua nalowale loa ka ʻeha a me nā hōʻailona ʻē aʻe, me ka ʻole o ka mumū a i ʻole ka hana ʻino o ka ʻōnaehana pale. A laila hiki i ke keiki ke ola i kahi ola maʻamau a hana.

Eia nō naʻe, ʻoiai inā ua ho'ōla loa ʻia ka maʻi, he mea nui loa ka nānā mau ʻana i ke kauka . Pono ʻoe e hoʻomau i ka hele ʻana i ke keʻena lapaʻau ma lalo o ka nānā ʻana a ke kauka rheumatologist. Pono paha ʻoe e hana i nā hoʻokolohua e like me nā scan MRI e ʻike ai inā ua hoʻi hou mai ka maʻi. ʻO kēia no ka mea ma kahi o 50% o ka poʻe e loaʻa hou ana i loko o nā makahiki ʻelua mua ma hope o ka hoʻōki ʻana i ka lāʻau. Inā hana ʻia kēlā, pono ʻoe e hoʻomaka hou i ka lāʻau.