ʻO ka mea mua a ka makuahine a makua paha e hana ai ke nānā aku lākou i kahi pēpē hānau hou, ʻo ia ka helu ʻana i nā manamana lima a me nā manamana wāwae ma ko lākou mau lima a me nā wāwae liʻiliʻi. Akā, e noʻonoʻo inā ʻike ʻoe i ʻelua a ʻoi aku paha o kēlā mau manamana lima liʻiliʻi i hoʻopaʻa ʻia, me he mea lā ua pili ʻia e kahi membrane o ka ʻili? Ma ke ʻano he makuahine, e hopohopo iki paha ʻoe. Akā, mai hopohopo, i kēia lā ke kamaʻilio nei mākou e pili ana i kēia kūlana i ʻike ʻia e nā makuahine he nui.
He aha ka syndactyly?
I ka ʻōlelo maʻalahi, ua kapa ʻia kēia ʻano maʻi ʻo syndactyly ma nā huaʻōlelo lapaʻau. ʻO kēia ka wā e pili ai ʻelua a ʻoi aku paha mau manamana lima a manamana wāwae paha o ka lima a i ʻole ka wāwae o kahi pēpē e ka ʻili, e like me ka ulana ma waena o nā manamana wāwae o kahi ʻiole. I kekahi manawa ua kaupalena ʻia kēia pilina i ka ʻili. I kekahi manawa, hiki ke pili pū nā iwi ma lalo (spinals) a me nā ʻiʻo palupalu ʻē aʻe.
He kīnā hānau kēia i hiki ke ʻike ʻia i ka wā hānau. I kekahi mau hihia, hiki ke ʻike ʻia i ka wā o nā nānā ultrasound prenatal ʻoiai ke pēpē i loko o ka ʻōpū.
No ke aha e hiki ai kēia i nā pēpē? He aha ke kumu?
I mea e maopopo ai i kēia, pono kākou e ʻike iki e pili ana i ke ʻano o ka ulu ʻana o kahi pēpē i loko o ka ʻōpū. Ke hāpai ʻia kahi pēpē a ulu i loko o ka ʻōpū, ua like kona mau lima a me kona mau wāwae me nā hoe e like me ka flipper i ka wā mua. ʻAʻole i hoʻokaʻawale ʻia nā manamana lima.
Ma kahi o 10 mau pule o ka hāpai ʻana, hoʻokaʻawale pinepine kēia mau manamana lima, hoʻolōʻihi, a nalowale ke ʻano pūnaewele ma waena o lākou. Hana ʻia ka syndactyly i ka wā, no kekahi kumu, ʻaʻole i hoʻokaʻawale pono kēia mau manamana lima i kēlā manawa.
ʻO ka hapa nui o ka manawa, hiki mai ia ma ke ʻano he kīnā hānau kaʻawale , me ka ʻole o kekahi maʻi olakino nui ʻē aʻe. Akā i kekahi manawa hiki iā ia ke loaʻa ka mana genetic. ʻO ke ʻano kēia inā loaʻa i kekahi o ka ʻohana, no ka laʻana ʻo ʻoe, kāu wahine, a i ʻole kou mau mākua, ke ʻano, aia kahi manawa e loaʻa pū ai i kāu pēpē. Ua hōʻike ʻia nā haʻawina ma waena o 10% a me 40% o ka poʻe me ka syndactyly he mōʻaukala ʻohana .
He mea kākaʻikahi loa, hiki i kēia hui ʻana o nā manamana lima ke lilo i hiʻohiʻona o nā maʻi genetic nui ʻē aʻe. No ka laʻana, ʻike ʻia kēia ʻano me nā maʻi Apert, Chotzen, a me Poland. Akā, he mea kākaʻikahi loa kēia.
Aia kekahi mau ʻano like ʻole o kēia ʻano i kapa ʻia ʻo Syndactyly?
ʻAe, ʻaʻole like ka hopena i kēlā me kēia pēpē. Hiki ke hoʻokaʻawale ʻia i kekahi mau ʻano ma muli o ke koʻikoʻi o ke kūlana a me nā ʻiʻo i hoʻopilikia ʻia. E nānā kākou i nā ʻano nui.
| ʻAno o ka syndactyly | He wehewehe maʻalahi |
|---|---|
| Syndactyly maʻalahi (ʻano maʻalahi) | Ua pili wale nā manamana lima e ka ʻili a me nā ʻiʻo palupalu ma lalo. ʻAʻohe iwi i pili. |
| ʻO ka syndactyly paʻakikī (ʻano paʻakikī) | Ua hui pū ʻia kekahi o nā iwi (spinae) ma lalo o ka ʻili a ua pili pū ʻia. |
| ʻO ka syndactyly paʻakikī (ke ʻano paʻakikī loa) | Hiki i kēia ke pili i ka iwi keu, ka iwi nalowale, a i ʻole nā iwi i ulu pono ʻole, a me nā tendon a me nā ligaments ʻē. |
| ʻO ka syndactyly piha ʻole (ʻano piha ʻole) | ʻAʻole i hui pū ʻia nā manamana lima. Hoʻokahi wale nō ʻāpana o ka ʻili ma waena o nā manamana lima i pili e like me ka membrane. |
Eia kekahi, ua māhele ʻia i kekahi mau ʻano ʻē aʻe ma muli o nā manamana lima i hoʻopili ʻia.
- ʻAno 1: ʻO kēia ke ʻano maʻamau. Hoʻopilikia pinepine ia i nā manamana lima ʻekolu a me ʻehā a i ʻole nā manamana wāwae ʻelua a me ke kolu. Hiki ke ʻike pinepine ʻia ma nā lima ʻelua a i ʻole nā wāwae ʻelua.
- ʻAno 2: Hoʻopilikia kēia i nā manamana lima ʻekolu a me ka hā a me ka manamana wāwae ʻelima. Hiki i kekahi mau keiki me kēia ʻano ke loaʻa nā manamana lima keu.
- ʻAno 3: Hoʻopilikia wale kēia i nā lima. ʻO ka maʻamau, pili nā manamana lima ʻehā a me ʻelima.
Aia kekahi mau ʻano ʻē aʻe o kēia. E nānā kino kāu kauka i kāu pēpē, e hana i nā X-ray, a inā pono, e hana i nā hoʻāʻo genetic e hoʻoholo pono i ke ʻano a me ke koʻikoʻi o ia.
He aha nā lāʻau lapaʻau no kēia?
ʻO ka nīnau mua e hiki mai ana i ka noʻonoʻo ke lohe ʻoe i kēia, "He aha kaʻu e hana ai i kēia manawa? Pono anei au e hana ʻoki kino no kēia?"
ʻO ka mea maikaʻi loa, hiki ke mālama pono ʻia kēia mau kūlana he nui.
- ʻAʻohe pono o ka lāʻau lapaʻau: Inā liʻiliʻi loa ka hono o ka manamana wāwae, ʻo ia hoʻi he maʻi palupalu ia ʻaʻole e hoʻopilikia i ka ulu ʻana o ka pēpē a i ʻole ka hoʻohana ʻana i ka lima, a laila ʻaʻole pono paha ka lāʻau lapaʻau. ʻOiai ua paʻa pinepine nā manamana wāwae a ʻaʻole hoʻopilikia i ka hele wāwae a i ʻole nā hana a ke keiki, hiki ke waiho pinepine ʻia me ka mālama ʻole ʻia.
- ʻOki kino: E like me nā ʻano ʻē aʻe a pau, ʻo ka lāʻau lapaʻau ka hoʻokaʻawale ʻana i nā manamana lima. Hana pinepine ʻia kēia ʻoki kino i ka wā e piha ai ka pēpē i 1 a me 2 mau makahiki . ʻO kēia no ka mea ua emi ka pilikia o ka anesthesia i kēlā makahiki. Eia kekahi, ʻo ka wikiwiki o ka hoʻokaʻawale ʻana o nā manamana lima, ʻo ka nui o ka hana a me ka ulu ʻana o ka lima o ka pēpē ma ke ʻano maʻamau.
Pehea e hana ʻia ai ke ʻoki kino
I ka wā o ke ʻoki ʻana, ʻoki pono ke kauka i ka ʻili ma waena o nā manamana wāwae i hoʻopili ʻia i loko o ke ʻano "zig-zag". Hana ʻia kēia e hōʻemi i ka ʻeha a pale i ka hoʻi hou ʻana o nā manamana wāwae ma hope. I kekahi manawa, inā ʻaʻole lawa ka ʻili ma hope o ka hoʻokaʻawale ʻana i nā manamana wāwae, lawe ʻia kahi ʻāpana ʻili liʻiliʻi mai kahi ʻāpana ʻē aʻe o ke kino o ka pēpē, e like me ka pulima a i ʻole ke kuʻekuʻe lima, a hoʻohana ʻia ma ke ʻano he kāpili ʻili .
Ma hope o ke ʻoki ʻana, e hoʻokomo ʻia ka lima o kāu pēpē i loko o kahi ʻōpala no kekahi mau pule. Ma hope mai, pono paha ʻoe e hoʻohana i nā mea hoʻokaʻawale laholio e pale aku i nā manamana lima mai ka hoʻi hou ʻana mai. Pono ʻoe e ʻike pinepine i kāu kauka e nānā i ka holomua o kāu pēpē a nīnau i nā nīnau. Pono paha kekahi mau keiki i ka hoʻōla kino e hoʻomaikaʻi i ka neʻe ʻana o ko lākou mau lima a me nā manamana lima.
ʻO ka mea nui loa, ʻaʻole e hopohopo no kēia, akā, e kamaʻilio me ke kauka i ka wā e hānau ai ke pēpē. E hāʻawi ʻo ia iā ʻoe i nā alakaʻi a pau āu e pono ai.
Leka Lawe-Home
- ʻO ka syndactyly kahi kūlana i hānau ʻia ai kahi pēpē me ko lākou mau manamana lima i hui pū ʻia. He kīnā hānau maʻamau kēia.
- Hana ʻia kēia ma muli o ka hoʻokaʻawale pono ʻole ʻana o nā manamana wāwae i ka wā e ulu ana ke pēpē i loko o ka ʻōpū.
- ʻO ka hapa nui o ka manawa, ʻaʻole ia e pili ana me kekahi maʻi olakino ʻē aʻe, akā aia paha he mōʻaukala ʻohana a i ʻole ka mana genetic.
- ʻAʻole paha e pono ke mālama ʻia inā he liʻiliʻi loa ka pilikia o nā manamana wāwae a i ʻole nā manamana lima.
- I ka nui o nā hihia ʻē aʻe, hiki i ke ʻoki kino ke hoʻoponopono piha a holomua i kēia kūlana.
- Inā loaʻa kēia maʻi i kāu pēpē, mai hopohopo a nīnau aku i kahi pediatrician a i ʻole ke kauka ʻoki plastik no ka ʻōlelo aʻo.
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