Koj puas muaj mob qog nqaij hlav ntawm daim tawv nqaij? Cia peb kawm txog Cutaneous T-Cell Lymphoma (CTCL)!

Koj puas muaj tej daim tawv nqaij uas khaus khaus, ua pob khaus, lossis muaj tej qhov chaw uas tsis zoo nkauj? Tej zaum peb xav tias tej no tsuas yog tej yam mob ntawm daim tawv nqaij xwb, xws li mob psoriasis lossis mob eczema. Tiam sis, txawm hais tias tsis tshua muaj los, tej zaum yuav muaj tej yam loj dua tom qab tej tsos mob no. Yog lawm, ib hom mob qog nqaij hlav uas cuam tshuam rau daim tawv nqaij hu ua Cutaneous T-Cell Lymphoma, lossis CTCL. Cia peb tham txog nws kom meej thiab yooj yim hnub no.

Cutaneous T-Cell Lymphoma (CTCL) yog dab tsi?

Hais yooj yim xwb, CTCL yog ib hom mob qog ntshav uas tsis tshua muaj neeg paub uas cuam tshuam rau daim tawv nqaij, lub cev loj tshaj plaws hauv peb lub cev. Nws yog ib feem ntawm ib pawg mob qog ntshav loj dua hu ua Non-Hodgkin Lymphoma. Nws pib hauv ib hom qe ntshav dawb hu ua Lymphocytes, tshwj xeeb yog T lymphocytes.

Muaj coob tus neeg xav tias mob qog noj ntshav yog ib yam uas yuav tsum ntshai. Txawm li cas los xij, muaj coob tus neeg uas muaj CTCL zoo rov zoo tom qab kho mob thiab rov qab mus rau lawv lub neej ib txwm. Txawm li cas los xij, nws yog ib qho ib txwm muaj uas yuav xav tias ntxhov siab me ntsis thaum koj pom tias koj muaj mob qog noj ntshav. Koj pab neeg kho mob npaj txhij los pab koj thaum lub sijhawm no.

Cov hom CTCL tseem ceeb yog dab tsi?

Txawm hais tias muaj ntau hom '(CTCL)', muaj ob hom tseem ceeb uas peb pom:

1. Kab mob Mycosis Fungoides (Mycosis Fungoides):

• Qhov no yog hom mob qog nqaij hlav CTCL uas feem ntau pom, thiab nws yog ib hom mob qog nqaij hlav uas mob hnyav heev . Kwv yees li ib nrab ntawm cov neeg mob CTCL yog hom mob no.
• Qhov no tshwm sim thaum cov hlwb hu ua "T cells" lossis "T lymphocytes" dhau los ua cov hlwb mob qog noj ntshav.
• Zoo hmoo, cov qe ntshav qog no feem ntau kis mus rau sab nraud ntawm daim tawv nqaij me ntsis xwb. Txawm li cas los xij, qee zaum qee cov qe ntshav no tuaj yeem mus rau koj cov qog ntshav thiab cov ntshav.
• Thaum cov "T-cell" mob qog noj ntshav no ncig hauv cov ntshav, cov kws kho mob hu lawv ua "Sézary cells".

2. Kab mob Sézary Syndrome:

• Qhov no yog ib hom CTCL uas loj hlob sai dua . Hauv qhov no, koj tuaj yeem pom ntau tus Sézary cell hauv koj daim tawv nqaij thiab cov ntshav .
• Qee zaum, tus mob "Mycosis Fungoides" tuaj yeem hnyav zuj zus thiab hloov mus ua "Sézary Syndrome".
• Cov neeg uas muaj tus mob no yuav muaj kev hloov pauv ntawm daim tawv nqaij thoob plaws lawv daim tawv nqaij.

Kab mob no feem ntau tshwm sim li cas?

Cov kab mob Cutaneous T-cell Lymphomas yeej tsis tshua muaj . Piv txwv li, hauv Tebchaws Meskas, hom CTCL feem ntau, Mycosis Fungoides, kwv yees tias yuav cuam tshuam txog li ib ntawm ib lab tus tib neeg. Tus mob no kuj tsis tshua muaj hauv Sri Lanka.

Cov tsos mob ntawm (CTCL) yog dab tsi?

Cov tsos mob ntawm CTCL yuav txawv ntawm ib tus neeg mus rau ib tus neeg. Txawm li cas los xij, ntawm no yog qee cov tsos mob uas pom ntau tshaj plaws:

• Cov pob lossis cov hlwv uas tshwm sim rau ntawm daim tawv nqaij, qee zaum tawg.
• Plaub hau poob.
• Cov tawv nqaij tsis zoo uas kis thoob plaws lub cev, khaus , zoo li pob khaus.
• Zoo li muaj xim av ntawm daim tawv nqaij.
• Mob pob khaus uas tshwm sim, qee zaum ua pob khaus, rau ntawm daim tawv nqaij.
• Cov qog ntshav o.
• Tawv nqaij ntawm xib teg thiab hauv qab taw tuab zuj zus.

Xav txog seb, ua cas ho muaj ib qho me me liab tshwm sim rau ntawm koj txhais caj npab lossis ceg, uas maj mam loj zuj zus, khaus, thiab tej zaum txawm tawg ua cov pob me me. Los yog koj cov plaub hau pib poob rau qee qhov chaw yam tsis muaj laj thawj. Yog tias koj pom ib yam dab tsi zoo li no, tsis txhob tsuas yog tsis quav ntsej nws xwb.

Cov ua rau muaj (CTCL) yog dab tsi?

Qhov tseeb, qhov tshwm sim hauv '(Cutaneous T-cell Lymphoma)' yog tias peb cov '(T lymphocytes)' cov hlwb hloov pauv ('mutate') thiab dhau los ua cov hlwb mob qog noj ntshav uas faib tsis tuaj yeem tswj tau. Cov kws kho mob tseem tsis tau paub meej tias vim li cas '(CTCL)' thiaj li tshwm sim , lossis vim li cas qee tus neeg thiaj li yuav tshwm sim nws. Txawm li cas los xij, muaj ob yam uas xav tias yuav ua lub luag haujlwm:

1. Cov kev hloov pauv ntawm cov noob caj noob ces / kev hloov pauv: Cov kws tshawb fawb tau pom tias kev hloov pauv ntawm qee cov noob caj noob ces tuaj yeem ua rau muaj qhov mob no. Uas yog, kev hloov pauv me me ntawm qee cov noob caj noob ces hauv peb lub cev tuaj yeem ua rau cov hlwb no hloov mus ua cov hlwb mob qog noj ntshav .

2. Kev kis kab mob: Thaum koj muaj kev kis kab mob, koj lub cev tiv thaiv kab mob yuav ua haujlwm heev. Ua teb, koj cov pob txha pib tsim ntau cov lymphocytes. Nws zoo li lub Hoobkas nce kev tsim khoom. Thaum koj ua haujlwm sai heev, qee zaum qhov yuam kev tuaj yeem tshwm sim. Cov kev ua yuam kev no hu ua DNA mutations uas cuam tshuam rau cov noob tseem ceeb hauv lymphocytes. Thaum kawg, qhov no tuaj yeem ua rau lymphoma.

Cov yam ua rau muaj kev pheej hmoo (CTCL) yog dab tsi?

Muaj ib txhia neeg yuav muaj feem mob "(Cutaneous T-cell Lymphoma)" ntau dua. Lawv yog:

• Ua neeg dub. (Txawm hais tias qhov no yog kev tshawb pom los ntawm kev tshawb fawb, tab sis yuav tsum tau kawm ntxiv kom pom tias nws cuam tshuam li cas rau lub teb chaws zoo li peb li.)
• Muaj hnub nyoog tshaj 50 xyoo.
• Lub cev tiv thaiv kab mob tsis muaj zog.
• Ua txiv neej.

Tsis yog txhua tus paub tias cov lus tseeb no muaj tseeb, tab sis qhov tseem ceeb yog tias qhov kev pheej hmoo siab dua me ntsis.

Yuav kuaj mob CTCL li cas?

Yog koj xav tias koj muaj CTCL, koj tus kws kho mob yuav xub sau koj cov keeb kwm kho mob thiab kuaj lub cev. Lawv yuav ua tib zoo saib xyuas cov pob thiab cov quav hniav ntawm koj daim tawv nqaij. Lawv yuav nug txog koj cov tsos mob thiab nug txog tej yam mob uas koj muaj yav dhau los.

Kev kuaj mob

Yuav kom paub tseeb tias tus kab mob "(Cutaneous T-cell Lymphoma)" raug kuaj, tus kws kho mob yuav tsum ua ntau yam kev kuaj. Cov kev kuaj tseem ceeb yog:

• Kev kuaj ntshav: Xyuas seb puas muaj cov qe ntshav Sézary thiab lwm yam teeb meem hauv cov ntshav.
• Kev kuaj duab: Cov kev kuaj xws li CT scans lossis PET scans yog siv los saib seb tus mob qog noj ntshav puas tau kis mus rau lwm qhov ntawm lub cev.
• Kev kuaj mob qog ntshav: Muab ib qho qauv me me los ntawm cov qog ntshav uas o thiab kuaj.
• Kev kuaj daim tawv nqaij: Yuav muab ib daim tawv nqaij me me ntawm qhov chaw uas raug mob coj mus kuaj hauv lub tshuab tsom iav kom pom tias puas muaj cov qog nqaij hlav. Qhov no yog qhov kev kuaj tseem ceeb los kuaj mob CTCL.

Cov Theem ntawm CTCL

Cov kws kho mob siv ntau txoj kev sib txawv los faib, kuaj mob, thiab npaj kev kho mob qog noj ntshav. Txoj kev siv ntau tshaj plaws los txiav txim siab txog theem ntawm CTCL yog TNM classification system . Lub system no piav qhia txog:

• T (Tumor Thawj Zaug): Qhov chaw uas tus mob qog noj ntshav pib thawj zaug thiab nws tau kis mus deb npaum li cas hauv daim tawv nqaij.
• N (Cov qog ntshav nyob ze): Seb tus mob qog noj ntshav puas tau kis mus rau cov qog ntshav nyob ze.
• M (Metastasis): Seb tus mob qog noj ntshav puas tau kis mus rau qhov chaw deb ntawm lub cev (metastasized).

Lub tshuab (TNM) no siv cov lej thiab cov ntawv los qhia qhov tseeb ntawm koj tus mob (Cutaneous T-cell Lymphoma). Qhov no yuav nyuaj me ntsis, yog li koj tus kws kho mob yuav piav qhia qhov no rau koj.

Yuav kho CTCL li cas?

Zoo hmoo, muaj ntau txoj hauv kev los kho CTCL. Kev kho mob zoo tshaj plaws nyob ntawm koj tus mob.

• Cov tshuaj pleev lossis tshuaj pleev steroid: Cov no pab tswj cov tsos mob ntawm daim tawv nqaij.
• Kev kho mob siv lub teeb (Phototherapy): Cov teeb ci tshwj xeeb raug taw rau ntawm daim tawv nqaij kom rhuav tshem cov hlwb qog noj ntshav.
• Kev siv tshuab thaij duab sab nraud (Extracorporeal Photopheresis - ECP): Qhov no yog kev kho mob uas nyuaj me ntsis. Hais yooj yim xwb, lawv muab ib feem ntawm koj cov ntshav, sib tov nrog ib yam tshuaj tshwj xeeb, muab tso rau hauv lub teeb ultraviolet, thiab tom qab ntawd txhaj rov qab rau hauv koj lub cev. Qhov no pab tswj cov hlwb qog noj ntshav.
• Kev Kho Mob Hluav Taws Xob: Siv cov hluav taws xob muaj zog heev los tua cov hlwb qog noj ntshav.
• Kev Kho Mob Tiv Thaiv Kab Mob: Ua kom koj lub cev tiv thaiv kab mob ua haujlwm zoo los tawm tsam cov hlwb qog noj ntshav.
• Kev Kho Mob Siv Tshuaj:Cov tshuaj uas tua cov hlwb qog noj ntshav raug muab rau. Qhov no yuav muab tau ua tshuaj pleev, tshuaj ntsiav, lossis tshuaj txhaj.

Nco ntsoov tias, tsis muaj ib txoj kev kho mob uas haum rau txhua tus. Koj tus kws kho mob yuav qhia rau koj paub tias cov kev kho mob twg zoo tshaj plaws rau koj tus mob.

Puas tiv thaiv tau CTCL?

Vim tias feem ntau cov neeg uas muaj CTCL tsis muaj cov yam ntxwv uas hloov tau, yeej tsis muaj dab tsi uas koj ua tau los tiv thaiv nws . Tab sis cov kws tshawb fawb tseem tab tom kawm txog vim li cas cov mob no tshwm sim.

Kuv yuav ua li cas thiaj txo tau kuv qhov kev pheej hmoo?

Txawm hais tias koj tsis tuaj yeem tiv thaiv Cutaneous T-cell Lymphoma los xij, kev muaj lub cev tiv thaiv kab mob tsis muaj zog tuaj yeem ua rau koj yooj yim rau txhua hom mob qog noj ntshav, tsis yog CTCL xwb. Yog li ntawd, ntawm no yog qee yam koj tuaj yeem ua kom koj lub cev tiv thaiv kab mob muaj zog:

• Noj ntau yam txiv hmab txiv ntoo thiab zaub.
• Ua si nawv tsis tu ncua .
• Pw tsaug zog zoo thiab txaus.
• Txwv kev haus cawv.
• Tswj koj qhov hnyav kom noj qab nyob zoo.
• Tswj kev ntxhov siab los ntawm kev siv cov txheej txheem xws li kev xav.
• Tau txais cov tshuaj tiv thaiv kab mob uas xav tau.
• Yog koj haus luam yeeb, sim tso tseg.
• Ntxuav koj txhais tes ntau zaus.

Yuav ua li cas thiaj paub tias cov neeg uas muaj CTCL yuav muaj tus kab mob no?

Feem ntau hom CTCL tsis hnyav heev thiab tsis tshua muaj kev phom sij rau lub neej . Txawm li cas los xij, qee tus neeg tuaj yeem mob hnyav heev. Txawm hais tias cov kws kho mob tsis tuaj yeem kho CTCL tag nrho, kev kho mob tuaj yeem pab tswj cov tsos mob.

Txawm li cas los xij, zoo li txhua yam mob qog noj ntshav, CTCL tuaj yeem ua rau tuag taus rau cov mob hnyav. Thaum koj pib kho mob sai npaum li cas, koj yuav muaj feem rov zoo dua . Yog vim li cas nws thiaj li tseem ceeb heev uas yuav tsum qhia rau kws kho mob sai li sai tau thaum koj pom muaj kev hloov pauv hauv koj daim tawv nqaij.

Tus nqi ntawm kev ciaj sia nyob (CTCL) yog dab tsi?

90% ntawm cov neeg uas muaj theem pib (theem I lossis II) CTCL muaj sia nyob tau 10 xyoo. Qhov no txhais tau tias cuaj ntawm kaum tus neeg uas muaj tus mob no tseem muaj sia nyob tom qab 10 xyoo. Tus nqi muaj sia nyob tau 10 xyoo rau cov neeg uas muaj theem siab heev (theem III lossis IV) CTCL yog li ntawm 53%.

Tseem Ceeb: Cov feem pua ​​​​​​ntawm kev ciaj sia tsuas yog kwv yees xwb. Lawv tsis qhia koj meej tias koj yuav muaj sia nyob ntev npaum li cas lossis koj yuav teb li cas rau kev kho mob. Nug koj tus kws kho mob kom paub ntau ntxiv txog qhov no.

Kuv yuav saib xyuas kuv tus kheej li cas?

Vim tias Cutaneous T-cell Lymphoma cuam tshuam rau koj daim tawv nqaij, nws tuaj yeem ua rau khaus, qhuav, thiab tawv nqaij tawg. Txawm hais tias kev kho mob tuaj yeem tswj kev loj hlob ntawm tus mob qog noj ntshav thiab txo cov tsos mob, qee qhov kev kho mob tuaj yeem ua rau koj daim tawv nqaij rhiab heev tsis xis nyob. Cov lus qhia no yuav pab tau:

• Ua kom koj daim tawv nqaij noo: Siv tshuaj pleev lossis tshuaj pleev rau koj daim tawv nqaij tom qab da dej lossis ntub dej kom nws noo. Nws tsis ua li cas los rov siv cov tshuaj pleev thoob plaws hnub thiab ua ntej yuav mus pw. Qhov no tsis yog tsuas yog tiv thaiv koj daim tawv nqaij xwb, tab sis nws kuj txo qhov qhuav thiab tawv nqaij, tswj kev khaus, thiab pab tiv thaiv koj daim tawv nqaij ntawm kev kis kab mob.
• Tiv thaiv koj daim tawv nqaij kom tsis txhob khaus: Thaum koj muaj CTCL, koj daim tawv nqaij yuav rhiab heev. Txawm tias tej yam xws li tawm mus rau hauv lub hnub, siv qee yam tshuaj ntxuav tes thiab xab npum, thiab hnav qee hom khaub ncaws kuj tuaj yeem ua rau koj daim tawv nqaij khaus. Xaiv cov tshuaj ntxuav tes thiab cov tshuaj ntxuav lub cev uas tsis muaj ntxhiab tsw ntxiv. Hnav cov khaub ncaws uas tiv thaiv koj daim tawv nqaij ntawm lub hnub, thiab pleev tshuaj pleev thaiv hnub thaum koj tawm mus sab nraud. Hnav cov khaub ncaws xoob uas cia koj daim tawv nqaij ua pa tau.
• Tsis txhob khawb qhov khaus: Rau ntau tus neeg, qhov khaus tas li yog ib qho teeb meem loj uas tuaj yeem cuam tshuam rau lawv lub neej zoo. Kev khawb tuaj yeem ua rau daim tawv nqaij khaus, uas tuaj yeem ua rau muaj kev kis kab mob thiab cov kab mob nkag mus rau hauv daim tawv nqaij. Cov ntaub qhwv txias (xws li cov dej khov nab kuab, cov hnab zaub khov), cov dej da dej oatmeal, thiab cov tshuaj antihistamines tuaj yeem pab txo qhov khaus.

Kuv yuav tsum mus ntsib kuv tus kws kho mob thaum twg?

Koj tus kws kho mob yuav xav kuaj koj tsis tu ncua. Nug nws seb koj yuav tsum tuaj kuaj ntshav lossis kuaj daim tawv nqaij ntau npaum li cas.

Hauv qhov no, nco ntsoov mus ntsib koj tus kws kho mob:

• Yog koj pom muaj kev hloov pauv tshiab hauv koj daim tawv nqaij.
• Yog koj xav tias koj muaj kab mob ntawm daim tawv nqaij.
• Yog tias qhov kub taub hau nce siab tshaj 100.4 degrees Fahrenheit (38 degrees Celsius).

Nws yog ib qho uas feem ntau xav tias pob khaus lossis xim tsis zoo li qub yog ib qho mob ntawm daim tawv nqaij. Nws kuj nyuaj rau ntseeg tias ib hom mob qog noj ntshav tsawg tsawg tuaj yeem yog qhov ua rau. Txawm li cas los xij, nws yog ib qho tseem ceeb uas yuav tsum qhia rau koj tus kws kho mob yog tias koj pom muaj kev hloov pauv hauv koj daim tawv nqaij . Lawv tuaj yeem nrhiav tau qhov ua rau nws. Tej zaum nws yuav tsis yog mob qog noj ntshav. Tab sis yog tias nws yog, kev kho mob yog qhov tseem ceeb. Thaum koj pib kho mob sai dua, koj yuav muaj feem rov zoo dua.

Thaum kawg, cov lus coj mus tsev:

Txawm hais tias Cutaneous T-Cell Lymphoma yog ib hom mob qog nqaij hlav uas tsis tshua muaj, nws yog ib qho tseem ceeb uas yuav tsum paub txog nws. Yog tias koj pom muaj kev hloov pauv txawv txawv hauv koj daim tawv nqaij, khaus tas li, lossis muaj ib qho chaw uas tsis kho, tsis txhob tsis quav ntsej nws. Nrhiav kev pab kho mob tam sim ntawd. Yog tias kuaj pom thiab kho thaum ntxov, koj tuaj yeem tswj hwm qhov mob no zoo thiab ua neej nyob li qub. Tsis txhob txhawj, koj tsis nyob ib leeg. Muaj cov kws kho mob thiab cov pab pawg neeg saib xyuas kev noj qab haus huv los pab koj.

CTCL , Mob Cancer Ntawm Tawv Nqaij, Mycosis Fungoides, Sézary Syndrome, Lymphoma, Cov tsos mob ntawm daim tawv nqaij, Kev Kho Mob Cancer