Thaum koj tus kws kho mob qhia rau koj tias koj tus menyuam muaj ib yam mob hu ua 'PIK3CA-Related Overgrowth Spectrum', lossis luv luv '(PROS)', koj yuav xav tsis thoob thiab ntshai heev. Txawm tias hnov lub npe no los kuj nyuaj, puas yog? Tab sis tsis txhob txhawj. Koj tsis nyob ib leeg. Muaj ib pab neeg kws kho mob uas muaj kev txawj ntse thiab tshwj xeeb uas tuaj yeem pab koj thiab koj tus menyuam hauv qhov xwm txheej nyuaj no. Hnub no, cia peb tham txog leej twg nyob hauv pab neeg no thiab lawv yuav pab koj tus menyuam li cas.
PROS yog dab tsi tiag? Vim li cas qhov no thiaj xav tau ntau tus kws kho mob tshwj xeeb?
Hais yooj yim xwb, PROS yog ib yam mob caj ces uas ua rau cov hlwb hauv peb lub cev loj hlob sai dua li qub thiab tsis tuaj yeem tswj tau. Nws yog los ntawm kev hloov pauv hauv ib hom noob hu ua PIK3CA. Qhov no tuaj yeem ua rau ntau qhov ntawm lub cev, xws li daim tawv nqaij, pob txha, cov rog, cov hlab ntsha lossis cov kabmob xws li lub hlwb, loj hlob loj dua li qub. Tus mob no txawv ntawm ib tus neeg mus rau ib tus neeg. Ib txhia menyuam yaus muaj cov tsos mob no thaum yug los. Rau lwm tus, lawv tsuas yog tshwm sim thaum lawv loj me ntsis xwb. Rau qee tus menyuam yaus, tus mob yuav hnyav zuj zus thaum lawv loj hlob tuaj, tab sis rau lwm tus, nws tsis hloov pauv ntau.
PROS tsis yog ib yam kab mob xwb, tab sis yog kev sib sau ua ke ntawm cov tsos mob. Yog vim li cas nws thiaj nyuaj rau ib tus kws kho mob los kho nws. Cov kws kho mob uas muaj kev paub tshwj xeeb txog txhua qhov chaw ntawm lub cev yuav tsum ua haujlwm ua ke ua ib pab pawg.
Lawv yuav tham nrog ib leeg thiab tsim txoj kev npaj kho mob zoo tshaj plaws rau koj tus menyuam. Ua li no, lawv tuaj yeem saib qhov teeb meem los ntawm ntau lub kaum sib txawv, kom ntseeg tau tias koj tus menyuam tau txais qhov tshwm sim zoo tshaj plaws.
Cov kws tshwj xeeb uas yuav nyob hauv pab pawg kho mob ntawm koj tus menyuam
Nyob ntawm seb koj tus menyuam lub cev puas raug mob los ntawm tus mob 'PROS', tej zaum koj yuav tau mus ntsib kws kho mob tshwj xeeb sib txawv. Cia peb saib seb lawv yog leej twg thiab lawv tuaj yeem pab li cas hauv daim ntawv teev lus hauv qab no.
| kws kho mob tshwj xeeb | Kuv yuav pab tau li cas? |
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| Kws kho mob hlwb | Lawv tseem ceeb heev yog tias muaj kev cuam tshuam rau tus menyuam lub hlwb, tus txha caj qaum, lossis lub paj hlwb. Lawv kho cov teeb meem xws li qaug dab peg, teeb meem kev hnov, thiab teeb meem txav mus los. |
| Kws Kho Mob Plawv | Yog tias PROS cuam tshuam rau cov hlab ntsha ntawm tus menyuam, yuav tsum tau kev pab los ntawm kws kho mob plawv. Lawv tuaj yeem tswj cov mob no nrog cov tshuaj, phais, lossis lwm yam kev kho mob. |
| Kws Kho Mob Ntsws | Cov teeb meem raum feem ntau tshwm sim hauv PROS. Lawv yuav ua haujlwm los tswj cov ntshav siab, saib xyuas kev ua haujlwm ntawm lub raum, thiab xa mus rau kev ntxuav ntshav lossis hloov lub raum yog tias tsim nyog. |
| Kws Kho Mob Pob Qij Txha | Lawv kho cov mob xws li scoliosis, ceg ntev tsis zoo, thiab cov ntiv tes ntev tsis zoo yog tias tus menyuam muaj kev loj hlob ntau dhau hauv lawv cov pob txha. |
| kws kho qhov muag | Kev pom kev tsis meej tuaj yeem tshwm sim vim muaj cov nqaij loj hlob ntau dhau hauv lub hlwb lossis ib puag ncig lub qhov muag. Tus kws kho qhov muag yuav kuaj mob thiab muab kev kho mob tsim nyog. |
| Kws Kho Mob Pob Ntseg, Qhov Ntswg thiab Caj Pas (ENT Doctor) | Yog tias muaj cov nqaij loj hlob ntau dhau ntawm lub ntsej muag lossis caj dab, lossis yog tias muaj teeb meem nqos, kev pab los ntawm tus kws kho mob ENT yog qhov tseem ceeb. |
| Kws Kho Mob Tawv Nqaij | Hauv qee yam mob PROS, xws li CLOVES syndrome, cov tawv nqaij yuav loj hlob ntau dhau. Cov no yuav daj, liab, ntxhib, lossis du. Cov teeb meem tawv nqaij no yog tus kws kho mob tawv nqaij tswj hwm. |
| Kws phais mob tshwj xeeb | Qee zaum kev phais yog qhov kev daws teeb meem zoo tshaj plaws. Nws tuaj yeem yog tus kws phais hlwb uas kho cov qaug dab peg, lossis tus kws phais hauv siab uas tshem cov nqaij rog ntawm lub hauv siab. |
| Lwm Cov Kws Kho Mob | Yog tias lub hlwb raug cuam tshuam, tus menyuam yuav muaj teeb meem nrog kev kawm, kev coj cwj pwm, kev hais lus, lossis kev txav mus los. Cov kws kho mob hlwb , cov kws kho kev hais lus , thiab cov kws kho lub cev tuaj yeem pab tus menyuam kov yeej cov teeb meem no. |
| Cov kws tshwj xeeb txog noob caj noob ces thiab mob qog noj ntshav | Qee zaum PROS tuaj yeem ua rau muaj kev pheej hmoo ntawm mob qog noj ntshav ntxiv me ntsis vim tias cov hlwb faib sai sai. Cov kws tshwj xeeb txog caj ces pab pawg kho mob nkag siab txog qhov kev pheej hmoo no. Lawv ib txwm ua tib zoo saib xyuas tus menyuam txoj kev noj qab haus huv. |
Puas yog cov neeg no yuav tsum tau ntsib tas li?
Nws nyob ntawm seb koj tus menyuam mob li cas. Nws yog ib qho tseem ceeb uas yuav tsum sib cuag nrog pab pawg kws tshwj xeeb no kom txog thaum koj tus menyuam loj hlob mus txog hnub nyoog laus.
Kev kuaj mob tsis tu ncua tuaj yeem pab nrhiav pom cov teeb meem uas yuav tshwm sim los ntawm kev loj hlob ntawm cov ntaub so ntswg. Nug koj tus kws kho mob kom meej meej txog tus kws kho mob twg koj yuav tsum mus ntsib, ntau zaus npaum li cas, thiab lub hom phiaj ntawm cov kev mus ntsib ntawd yog dab tsi.
Koj nrhiav tau cov kws kho mob tshwj xeeb no li cas?
Txoj kev zoo tshaj plaws los ua qhov no yog
tham nrog koj tus menyuam tus kws kho mob ib txwm . Nws tuaj yeem xa koj mus rau cov kws tshwj xeeb zoo. Tsis tas li ntawd, muaj cov kws tshwj xeeb zoo li no hauv cov tsev kho mob loj hauv Sri Lanka, tshwj xeeb tshaj yog cov tsev kho mob menyuam yaus.
Nco ntsoov, qhov koj tiv tauj pab pawg kws tshwj xeeb no sai npaum li cas, nws yuav zoo dua rau yav tom ntej ntawm tus menyuam.
Txoj kev taug kev no yuav nyuaj heev, tab sis nrog kev txhawb nqa ntawm pab pawg kws kho mob zoo, koj tuaj yeem muab kev kho mob thiab kev saib xyuas zoo tshaj plaws rau koj tus menyuam, pab lawv ua neej nyob li qub li sai tau.
Cov Lus Qhia Txog Kev Coj Mus Tsev
- `PROS` yog ib qho mob caj ces nyuaj uas ua rau qee qhov ntawm lub cev loj hlob ntau dhau. Yog li ntawd, tsis txhob ntshai, nrhiav cov ntaub ntawv kom raug.
- Qhov no yog kho los ntawm ib pab kws kho mob tshwj xeeb . Koj tsis tas yuav ntsib qhov no ib leeg xwb.
- Cov hlab ntsha , lub plawv,Tus me nyuam yuav xav tau kev pab los ntawm cov kws tshwj xeeb hauv ntau yam xws li kab mob raum , pob txha , thiab daim tawv nqaij .
- Nrog koj tus kws kho mob hauv tsev neeg tham thiab nrhiav kev xa mus rau cov kws tshwj xeeb tsim nyog sai li sai tau. Kev kho mob pib sai npaum li cas, qhov tshwm sim zoo dua.
- Sib txuas lus nrog pab neeg kho mob tas li thiab saib xyuas koj tus menyuam tus mob. Tsis txhob ntshai nug yog tias koj muaj lus nug.
Kab mob PROS, PIK3CA, kev loj hlob ntawm menyuam yaus, cov kws kho mob tshwj xeeb, cov kws kho mob menyuam yaus, kev loj hlob ntawm lub cev ntau dhau, cov kab mob caj ces
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Tsis muaj lus teb tau muab tso tawm. Ntxiv koj cov lus tawm ntawm no thawj zaug.
Ntxiv koj cov lus