Koj tus menyuam puas zoo li nkees tas li? Nws puas yws tias nws qaug zog, kub taub hau tas li, thiab mob pob qij txha? Koj puas tau pom ib qho pob liab liab zoo li npauj npaim ntawm sab plhu thiab lub qhov ntswg? Ua ib tug niam txiv, nws yog ib qho ib txwm muaj uas yuav ntshai thiab txhawj xeeb heev thaum koj pom ib yam dab tsi zoo li no. Hnub no peb yuav tham txog ib qho mob uas ntau tus niam txiv ntshai, tab sis yog tias nkag siab thiab tswj tau zoo, nws tuaj yeem pab koj tus menyuam ua neej nyob ib txwm. Ntawd yog lupus hauv menyuam yaus.
Hauv lwm lo lus, Lupus yog dab tsi?
Xav txog tias muaj ib pab tub rog nyob hauv peb lub cev uas tiv thaiv peb ntawm kab mob. Peb hu pab tub rog no ua lub cev tiv thaiv kab mob. Thaum cov yeeb ncuab sab nraud, xws li cov kab mob thiab cov kab mob me me, nkag mus rau hauv lub cev, pab tub rog no tawm tsam thiab tiv thaiv peb.
Lupus yog ib yam kab mob autoimmune . Qhov uas tshwm sim ntawm no yog ib yam dab tsi txawv heev. Peb tus kheej lub zog tiv thaiv kab mob, lub cev tiv thaiv kab mob, xav yuam kev tias peb cov hlwb thiab cov nqaij noj qab haus huv yog "yeeb ncuab" thiab pib tawm tsam lawv. Nws zoo li peb cov tub rog tawm tsam peb lub tebchaws. Qhov kev tawm tsam no ua rau o , uas yog o thiab o, nyob rau ntau qhov ntawm lub cev, thiab ua rau muaj ntau yam tsos mob.
Thaum cov menyuam yaus muaj tus mob lupus, nws tuaj yeem hnyav dua li cov neeg laus. Qhov no txhais tau tias:
- Tus kab mob yuav ua rau mob hnyav dua thiab mob hnyav dua.
- Muaj kev pheej hmoo siab ntawm kev puas tsuaj rau cov kabmob tseem ceeb xws li lub raum, lub plawv, thiab lub hlwb.
- Kev kho mob yuav xav tau cov tshuaj muaj zog dua.
- Qee cov kev kho mob (piv txwv li, corticosteroids) tuaj yeem ua rau muaj kev phiv thaum siv mus sij hawm ntev.
Hom kab mob lupus uas feem ntau tshwm sim rau menyuam yaus yog Systemic Lupus Erythematosus (SLE) . Feem ntau peb hu hom kab mob no ua "lupus." Qee zaum cov kws kho mob kuj hu nws tias "Childhood-onset SLE" lossis "Juvenile-onset SLE." Cov tsos mob feem ntau pib thaum muaj hnub nyoog 12 xyoos, tab sis lawv tuaj yeem pib ua ntej lossis tom qab. Txawm li cas los xij, nws tsis tshua muaj menyuam yaus hnub nyoog qis dua 5 xyoos uas muaj tus kab mob no.
Cov tsos mob ntawm lupus hauv ib tug menyuam yog dab tsi?
Kab mob Lupus tsis cuam tshuam rau txhua tus menyuam ib yam. Cov tsos mob ntawm txhua tus menyuam txawv me ntsis. Yog vim li ntawd cov kws kho mob thiaj hu qhov no ua "lupus fingerprint," vim nws yog ib qho tshwj xeeb rau txhua tus neeg.
Yuav kom yooj yim to taub, cia peb faib cov yam ntxwv no ua ob ntu.
| Cov tsos mob (tej yam uas koj thiab koj tus menyuam hnov) | Cov cim qhia tau los ntawm kev kuaj mob |
|---|---|
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Nco ntsoov tias, tsuas yog muaj ib lossis ob qho ntawm cov tsos mob no xwb tsis tau txhais hais tias koj muaj mob lupus. Piv txwv li, muaj ntau pua lwm yam ua rau kub taub hau. Cov kws kho mob tsuas xav tias mob lupus thaum ntau cov tsos mob no tshwm sim ua ke.
Lwm yam teeb meem dab tsi tuaj yeem tshwm sim vim yog lupus?
Kev kho mob kom zoo yuav txo tau qhov kev pheej hmoo ntawm cov mob no, tab sis qee tus menyuam tseem muaj feem yuav muaj cov mob no.
- Kev puas tsuaj rau lub raum: Qhov no hu ua lupus nephritis . Qhov no yog ib qho ntawm cov teeb meem loj tshaj plaws ntawm lupus.
- Kev o ntawm lub ntsws thiab lub plawv: Kev o ntawm lub ntsws (pleurisy) lossis kev o ntawm lub hnab nyob ib puag ncig lub plawv (pericarditis) tuaj yeem tshwm sim. Ob qho tib si no tuaj yeem ua rau mob hauv siab .
- Cov teebmeem ntawm lub paj hlwb hauv nruab nrab: Lub hlwb thiab tus txha caj qaum tuaj yeem raug cuam tshuam. Qhov no tuaj yeem ua rau mob taub hau, hloov pauv tus cwj pwm, thiab qaug dab peg .
- Ntshav txhaws: Muaj kev pheej hmoo ntawm cov ntshav txhaws, tshwj xeeb tshaj yog nyob rau hauv ob txhais ceg. Qhov no tuaj yeem ua rau muaj cov tsos mob xws li mob, o, thiab liab ntawm ob txhais ceg.
Vim li cas cov menyuam yaus thiaj muaj tus mob lupus? Dab tsi yog qhov ua rau?
Qhov tseeb, cov kws tshawb fawb tseem tsis tau pom ib qho ua rau mob lupus. Txawm li cas los xij, lawv muaj ib txoj kev xav uas lawv ntseeg. Nws hu ua "ob txoj kev xav." Uas yog, lupus tshwm sim thaum ob yam ua ke.
1. Thawj yam tseem ceeb - Genetics: Yuav tsum muaj ib qho kev mob caj ces uas tau kis mus los ntawm ib tiam dhau ib tiam. Ntawd yog, tus menyuam yug los nrog ib qho kev mob caj ces uas yuav ua rau mob lupus.
2. Yam thib ob - Qhov ua rau muaj tus kab mob no: Txawm tias yog muaj kev xeeb tub los xij, yuav tsum muaj ib yam dab tsi ua rau tus kab mob no tshwm sim. Qhov ua rau muaj tus kab mob no yuav yog:
- Kev kis kab mob viral
- Kev hloov pauv ntawm cov tshuaj hormones (tshwj xeeb tshaj yog thaum lub sijhawm puberty)
- Kev raug tshav ntuj hnyav (UVA / UVB rays)
Txawm li cas los xij, tsis yog txhua tus neeg uas muaj tus kab mob no yuav muaj tus kab mob lupus. Qee zaum, txawm tias koj muaj cov noob caj ces uas ua rau koj yooj yim raug tus kab mob no los xij, koj tuaj yeem tsis muaj tus kab mob mus tas koj lub neej.
Tus kws kho mob yuav kuaj mob lupus li cas kom raug?
Yog koj xav tias koj tus menyuam muaj cov tsos mob ntawm lupus, koj yuav tsum mus ntsib kws kho mob. Tus kws kho mob yuav kuaj mob los ntawm kev ua raws li cov kauj ruam no:
- Nug koj thiab koj tus menyuam txog cov tsos mob: Nug lawv txog cov tsos mob uas koj tus menyuam muaj, lawv tau muaj cov tsos mob ntawd ntev npaum li cas lawm, thiab seb puas muaj leej twg hauv tsev neeg tau muaj cov kab mob zoo sib xws.
- Kev kuaj xyuas lub cev tag nrho: Tus menyuam raug kuaj xyuas txij ntawm lub taub hau mus txog ntiv taw, ua tib zoo saib xyuas cov pob khaus ntawm daim tawv nqaij thiab cov pob qij txha o.
- Kev kuaj ntshav thiab zis: Muaj ntau yam kev kuaj uas ua los xyuas seb puas muaj cov cim qhia txog tus mob lupus. Cov no suav nrog kev kuaj '(ANA)' thiab suav cov qe ntshav.
Cov kev kho mob rau lupus yog dab tsi?
Thawj qhov uas yuav tsum hais yog tias tseem tsis tau muaj tshuaj kho tau tus mob lupus. Tab sis tsis txhob txhawj. Niaj hnub no muaj cov kev kho mob zoo heev uas tuaj yeem pab tswj tus kab mob, txo cov tsos mob, thiab pab koj tus menyuam ua neej nyob li qub.
Lub hom phiaj tseem ceeb ntawm kev kho mob yog:
- Txo cov tsos mob ntawm tus menyuam (xws li mob, qaug zog).
- Tiv thaiv kom lub cev tiv thaiv kab mob tsis txhob ua puas rau lub cev cov kab mob.
- Tswj xyuas kom tus menyuam lub cev thiab lub hlwb noj qab haus huv zoo.
Rau qhov no, ib pab kws kho mob, uas coj los ntawm tus kws kho mob rheumatologist rau menyuam yaus, tuaj ua ke los tsim ib txoj kev npaj kho mob uas tsim rau tus menyuam.
Hauv qab no yog qee cov tshuaj siv feem ntau rau lupus.
| Hom tshuaj | Vim li cas ho siv? | Piv txwv |
|---|---|---|
| Cov tshuaj Corticosteroids | Txhawm rau tswj kev o ntawm lub cev sai sai. | Prednisone |
| Cov tshuaj tiv thaiv kab mob malaria | Txhawm rau tswj cov qhov txhab thiab rau cov pob khaus ntawm daim tawv nqaij thiab mob pob qij txha. | Hydroxychloroquine tshuaj |
| Cov tshuaj tiv thaiv kab mob | Txhawm rau tswj kev ua haujlwm ntawm lub cev tiv thaiv kab mob uas ua haujlwm ntau dhau. | Azathioprine, Mycophenolate Mofetil, Methotrexate |
| Cov tshuaj tua kab mob | Txhawm rau txo qhov mob xws li mob pob qij txha. | Ibuprofen, Naproxen |
| Cov vitamins thiab cov minerals | Txhawm rau tiv thaiv kab mob osteoporosis uas tshwm sim los ntawm cov tshuaj steroid. | Calcium thiab Vitamin D |
Cia peb kuj paub txog cov kev mob tshwm sim ntawm kev kho mob.
Txawm hais tias cov tshuaj no tuaj yeem pab cawm tus menyuam txoj sia, lawv kuj tuaj yeem ua rau muaj qee qhov kev phiv. Nws yog ib qho tseem ceeb uas yuav tsum paub txog qhov no.
Kev noj cov tshuaj steroid xws li 'Prednisone' ntev tuaj yeem ua rau muaj tej yam xws li:
- Qhov hnyav nce
- Cov cim ncab ntawm daim tawv nqaij
- Ntshav siab
- Kev ua kom cov pob txha nyias (osteoporosis)
- Kev nyuaj siab lossis kev nyuaj siab ntawm lub hlwb
- Cov ntshav qab zib ntau ntxiv (ntshav qab zib)
- Qhov tshwm sim ntawm cataracts lossis glaucoma
Cov kev mob tshwm sim no tuaj yeem cuam tshuam rau tus menyuam lub ntsej muag, kev noj qab haus huv ntawm lub hlwb, thiab kev loj hlob. Yog li ntawd, nws yog ib qho tseem ceeb heev uas yuav tsum mus ntsib kws kho mob raws sijhawm raws li tus kws kho mob cov lus qhia.
Cov tshuaj 'Hydroxychloroquine' tsis tshua muaj peev xwm ua rau lub retina ntawm lub qhov muag puas tsuaj. Yog li ntawd, txhua tus menyuam yaus uas noj cov tshuaj no yuav tsum tau mus ntsib kws kho qhov muag kuaj xyuas lawv lub qhov muag tsis tu ncua.
Ua ib tug niam txiv, kuv yuav pab tau kuv tus menyuam li cas?
Thaum koj paub tias koj tus menyuam muaj mob lupus, koj yuav xav tias koj tsis muaj peev xwm pab tau lawv. Txawm li cas los xij, muaj ntau yam uas koj ua tau los pab koj tus menyuam hla txoj kev no.
- Tiv thaiv kom tsis txhob raug tshav ntuj: Tshav ntuj yog ib qho tseem ceeb uas ua rau mob lupus hnyav zuj zus. Yog li ntawd, thaum twg koj tus menyuam mus sab nraud , nco ntsoov hnav tsom iav dub, lub kaus mom, thiab khaub ncaws tes ntev. Tsis tas li ntawd, siv tshuaj pleev thaiv hnub uas muaj SPF 30 lossis siab dua. Qhov no yuav tsum tau ua txawm tias hnub uas muaj huab cua tsaus ntuj. Khaws koj tus menyuam kom deb ntawm tshav ntuj ntau li ntau tau ntawm 10 teev sawv ntxov thiab 4 teev tsaus ntuj.
- So thiab ua si nawv: Cia koj tus menyuam so yog tias nws nkees. Txawm li cas los xij, thaum nws xav tias zoo, txhawb kom nws ua cov kev tawm dag zog maj mam xws li taug kev thiab ua luam dej. Qhov no yuav pab txhawb nws cov leeg.
- Tiv thaiv kev kis kab mob: Kab mob Lupus thiab qee cov tshuaj uas nws noj tuaj yeem ua rau koj tus menyuam lub cev tiv thaiv kab mob tsis muaj zog. Qhov no ua rau lawv muaj feem mob ntau dua. Qhia lawv kom ntxuav lawv txhais tes ntau zaus nrog xab npum thiab dej. Khaws lawv kom deb ntawm cov neeg mob.
- Khaws cov tsos mob: Khaws cov ntaub ntawv ntawm koj tus menyuam cov tsos mob, hnub uas lawv mob hnyav zuj zus, thiab txhua yam tsos mob tshiab uas tshwm sim. Qhov no yuav pab tau heev thaum koj mus ntsib kws kho mob.
- Qhia rau tsev kawm ntawv: Qhia rau cov xib fwb thiab tus thawj xib fwb txog tus menyuam tus mob. Qhov no yuav pab lawv muab cov chaw tsim nyog rau tus menyuam.
- Xav txog kev noj qab haus huv ntawm lub hlwb: Kev nyob nrog tus kab mob ntev ntev tuaj yeem ua rau tus menyuam nyuaj siab. Cia koj tus menyuam tham nrog koj yam tsis muaj kev ntshai. Yog tias tsim nyog, nrhiav kev pab los ntawm tus kws pab tswv yim.
- Saib xyuas koj tus kheej: Nrog rau txhua yam no, nws yog ib qho tseem ceeb heev uas yuav tsum saib xyuas koj tus kheej ua niam thiab txiv. Siv sijhawm so thiab xav txog koj txoj kev noj qab haus huv. Tsuas yog tias koj noj qab nyob zoo koj thiaj li saib xyuas koj tus menyuam tau zoo.
Cov Lus Qhia Txog Kev Coj Mus Tsev
- Lupus yog ib yam kab mob autoimmune uas peb lub cev tiv thaiv kab mob tawm tsam peb lub cev.
- Nws tuaj yeem hnyav dua thaum nws cuam tshuam rau cov menyuam yaus, tab sis tuaj yeem tswj tau zoo heev nrog kev kho mob kom zoo.
- Saib xyuas cov tsos mob xws li pob khaus zoo li npauj npaim, qaug zog heev, mob pob qij txha, thiab kub taub hau ntau zaus.
- Kev tiv thaiv hnub yog qhov tseem ceeb heev. Yuav tsum tau siv tshuaj pleev thaiv hnub thiab khaub ncaws tiv thaiv.
- Tsis txhob hnov qab noj cov tshuaj uas koj tus kws kho mob tau sau thiab mus rau cov chaw kho mob.
- Koj lossis koj tus menyuam tsis nyob ib leeg hauv txoj kev no. Cov kws kho mob, cov kws tu mob, thiab cov kws pab tswv yim yeej ib txwm npaj txhij los txhawb koj.
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Tsis muaj lus teb tau muab tso tawm. Ntxiv koj cov lus tawm ntawm no thawj zaug.
Ntxiv koj cov lus