If yu gɛt pɔrsin wae yu lɛk wae gɛt Down Syndrome na yu famili, e nɔrmal fɔ gɛt difrɛn kwɛstyɔn, ɛn sɔmtɛm yu kin ivin frayd smɔl, bɔt dɛn wɛl bɔdi as dɛn de ol. Na mɔtalman, yu go dɔn yɛri di nem "Alzheimer's Disease" bɔku bɔku wan. Yu go dɔn de wɔnda bɔku tin bɔt if rili kɔnekshɔn de bitwin dɛn tu sik ya. Na tru se, i de. Bɔt bifo yu fred, lɛ wi tɔk bɔt am klia wan, simpul wan, ɛn simpul wan.
Wetin mek dɛn se pipul dɛm wae gɛt Daun sindrom kin gɛt bɔrku risk fɔ gɛt Alzaima?
Fɔ ɔndastand dis, wi nid fɔ go bak to di men pat pan wi bɔdi. Na dɛn kromozom dɛn de . Fɔ tɔk am simpul wan, dɛn kromozom ya tan lɛk di ‘instrɔkshɔn’ we de insay ɛvri sɛl na wi bɔdi. Ɔltin frɔm wi ia kɔlɔ to wi ayt, na di jin dɛn we dɛn kromozom ya gɛt de sho. Nɔmal wan, pɔsin kin gɛt tu kɔpi fɔ ɛni kayn kromozom.
Bɔt pɔsin we gɛt Daun sindrom gɛt ɛkstra kɔpi fɔ di kromozom 21, dat na tri kɔpi . Dis na aw i gɛt fɔ du wit Alzaima sik: di jin we de sho aw fɔ mek wan bad bad protin (beta-amyloid) we de na di bren we di Alzaima sik de kam, de na dis sem kromozom 21.
So, bikɔs ɛkstra kɔpi de fɔ di kromozom 21, pɔsin we gɛt Daun sindrom kin mek mɔ pan dis bad bad prɔtin na in bren. As tɛm de go, dɛn prɔtin ya kin gɛda ɛn put rawnd di bren sɛl dɛn, ɛn dis kin pwɛl dɛn sɛl dɛn de ɛn bigin fɔ pwɛl dɛn. Dis na wae kin apun pan Alzaima sik.
Apat frɔm dat, di bɔdi ɛn bren fɔ pipul dɛn we gɛt Daun sindrom kin ol kwik pas di avɛrej pɔsin (we kin ol bifo tɛm) . Dat min se, di bɔdi fɔ pɔsin we ol 45 ia we gɛt Daun sindrom kin tan lɛk di bɔdi fɔ pɔsin we ol 65 ɔ 70 ia na di jenɛral pipul dɛn. Dis we aw pɔsin kin ol kwik kwik wan na wan men tin bak we kin mek pɔsin gɛt Alzaima sik kwik kwik wan.
Aw di sayn dɛm kin sho? Dɛn difrɛn frɔm di kayn sik wae dɛn kin gɛt wit Alzaima?
Yɛs, dis na pɔynt we rili impɔtant. De sayn dɛm fɔ Alzaima sik pan pɔrsin wae gɛt Daun sindrom kin difrɛn smɔl frɔm de sayn dɛm wae nɔrmal pɔrsin kin gɛt. Na dat mek sɔmtɛm i kin tranga fɔ no dis sik.
We wi tink bɔt Alzaima, wi kin tink bɔt aw wi kin mɛmba tin. Bɔt fɔ pɔsin we gɛt Daun sindrom, i nɔ kin bi di fɔs sayn we i nɔ de mɛmba . Wi kin notis ɔda chenj dɛn fɔs.
Lɛ wi si wetin na dɛn chenj dɛn de na di tebul we de dɔŋ ya.
| Di sayn we de sho se di sik de | Aw e kin tan lɛk pan pɔrsin wae gɛt Down syndrome |
|---|---|
| Wok ɛvride | Tin dɛn we yu bin de ebul fɔ du fɔ yusɛf, lɛk fɔ drɛs, it, was, ɛn mek ti, nid ɛp. Di intres ɛn ebul fɔ du dɛn tin dɛn de kin stɔp smɔl smɔl. |
| Di we aw pipul dɛn de biev kin chenj | Wantɛm wantɛm, dɛn kin trangayes, dɛn kin biev di we we nɔ mek sɛns, dɛn kin vɛks, ɔ dɛn kin bigin fɔ tinap na sayd kwayɛt wan, dɛn nɔ kin intres pan di ɔda say, dɛn nɔ kin tɔk. |
| Nyu Onset Seizures | Dis na wan sayn we rili impɔtant. If pɔrsin wae nɔr dɔn ɛva gɛt sik na in layf bigin fɔ gɛt nyu sik afta i dɔn ol 40 ia, dat kin bi sayn fɔ Alzaima sik. |
| Memori ɛn ebul fɔ tink | Pan ɔl we yu nɔ go notis fɔs fɔ mɛmba we yu de mɛmba tin, i kin apin as tɛm de go. I kin at fɔ mɛmba nyu tin dɛn. Di ebul fɔ pik wetin rayt frɔm wetin rɔŋ ɛn disayd fɔ du sɔntin kin stɔp. |
| I nɔ izi fɔ tɔk | Yu kin bigin fɔ tɔk smɔl, i nɔ kin izi fɔ yu fɔ fɛn wɔd dɛn, ɔ yu kin swɛ yu wɔd dɛn. |
Di tin we impɔtant pas ɔl na fɔ si chenj frɔm yu pikin ɔ yu fambul in nɔmal bihayvya (baseline) . Bikɔs dɛn gɛt sɔm prɔblɛm dɛn we dɛn kin lan frɔm we dɛn bɔn dɛn, i kin at fɔ no di chenj dɛn we de apin na dɛn maynd. Bɔt if yu fil se, "Dis pɔsin nɔ bin tan lɛk dis bifo, ɛn naw dɛn difrɛn," na dat na di tin we impɔtant pas ɔl.
Na us ej di risk kin go ɔp?
Alzaima sik kin kam pan di jenɛral pipul dɛm afta dɛn dɔn ol 65. Bɔt fɔ pɔrsin wae gɛt Daun sindrom, dis risk kin kam kwik kwik wan.
- 35 ia olDis biɛn tɛm, stɔdi dɔn sho se lɛk 25% (wan pan ɔl 4) pipul dɛm wae gɛt Daun sindrom kin sho sɔm sayn dɛm fɔ Alzaima.
- Fɔ bɔrku pipul dɛm, de sik kin bigin fɔ sho wae dɛn dɔn pas 40 ia ɔr 50 ia.
- Ɔl togɛda, di chans fɔ mek pɔsin we gɛt Daun sindrom gɛt Alzaima sik tri to fayv tɛm pas di jenɛral pipul dɛn.
Wetin a fɔ du as pɔsin we de gayd mi?
Dis infɔmeshɔn kin mek yu fred. Bɔt nɔ panik. Aw fɔ no na di bɛst wɛpɔn. Sɔm rili impɔtant tin dɛn de we yu kin du.
1. Fɔ chɛk yu pikin ɔ yu fambul ɔltɛm to dɔktɔ ɔltɛm . Ɛspɛshali afta yu dɔn ol 30 ia, tɔk to yu dɔktɔ opin wan bɔt di risk fɔ gɛt Alzaima.
2. Beslayn Asɛsmɛnt: We yu dɔn pas 30 ia, wok wit yu dɔktɔ fɔ asɛs yu pikin in mɛmori, aw i de wok ɛvride, ɛn aw i de biev. Dis go ɛp yu fɔ no ɛni chenj we go apin tumara bambay.
3. Yu fɔ de wach fɔ chenj: Na yu sabi am pas ɔlman. So, ivin di smɔl chenj dɛn we yu notis, rayt dɛn na buk wit di de ɛn di tɛm. Mek not laik, "I no fit put im shuz on imsef tide," "I don rili veks sins las wik." Dis go rili ɛp di dɔktɔ.
4. Go to dɔktɔ wantɛm wantɛm: If yu gɛt wan ɔ mɔ pan di sayn dɛn we wi dɔn tɔk bɔt, nɔ wet te leta fɔ go to yu dɔktɔ . Pan ɔl we dɛn nɔ kin ebul fɔ mɛn Alzaima sik ɔltogɛda, difrɛn tritmɛnt ɛn strateji dɛn de we kin ɛp fɔ kɔntrol di sayn dɛm, fɔ mek yu liv bɛtɛ layf, ɛn gi yu ɛn di pɔsin we sik.
Mɛsej we dɛn kin kɛr go na os
- Pipul wae gɛt Daun sindrom gɛt bɔrku bɔrku jɛnɛtik risk fɔ gɛt Alzaima sik pas di jenɛral pipul dɛm.
- Di sayn dɛm kin bigin insay di 40s ɔr di fɔs 50 dɛm, bɔku bifo tɛm pas di jenɛral pipul dɛm.
- Bifo yu nɔ ebul fɔ mɛmba, di fɔs sayn dɛm kin bi we yu de chenj yu bihayvya, we yu nɔ ebul fɔ du wok ɛvride, ɔr yu kin gɛt nyu sik.
- If yu notis ɛni chenj we klia wan pan yu pɔsin we yu lɛk in biev, di tin dɛn we i ebul fɔ du, ɔ di tin dɛn we i de du ɛvride, mek shɔ se yu tɔk to yu dɔktɔ bɔt dat.
- If yu no di pɔsin kwik kwik wan ɛn yu fɔ mɛn am fayn fayn wan, dat kin mek di pɔsin in layf bɛtɛ ɛn i kin mek yu fil fri as pɔsin we de kia fɔ am.
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