Yu dɔn de fil pen bɔku tɛm na yu bak, yu hip, ɛn ɔda say dɛn frɔm we yu ol 20 ɔ 30 ia? We yu wek na mɔnin, yu bɔdi kin fil stif ɛn stif, ɛn yu nɔ kin ivin bɛn fɔ sɔm tɛm? Yu kin tink se dis na jɔs nɔmal bak-ak, sɔntin we kin apin we yu nɔ slip fayn. Bɔt if dɛn sik ya kɔntinyu, i kin bi di biginin fɔ wan sik we dɛn kɔl Ankylosing Spondylitis (AS). Tide, wi de tɔk bɔt dis sik ɛn de ɛkspiriɛns fɔ tu rial pipul dɛm wae dɔn chenj dɛn layf bay wae dɛn de liv wit am.
Fɔ tɔk am simpul wan, wetin na Ankylosing Spondylitis (AS)?
Dis na wan kayn at sik bak. Bɔt insay dis kes, i kin mɔs afɛkt di jɔyn dɛn na wi spayna . Fɔ tɔk am simpul wan, dis sik kin mek di jɔyn dɛn bitwin di vɛrbra dɛn na di spayna swel. As tεm de go, dis swεla de mek nyu bon dεm de fכm, εn di vεrbra dεm kin fכs tכgeda. Dis kin mek di spayna nɔ ebul fɔ chenj ɛn mek i butu. Dis pen nɔ kin jɔs de na di spayna, bɔt i kin afɛkt say dɛn bak lɛk di hip, sholda, rib, ɛn il.
Dis kin kam bikɔs ɔf wan sik we dɛn kɔl ɔtoimyun sik , we min se di imyun sistɛm we dɛn se de protɛkt wi bɔdi kin mistek atak wi yon wɛlbɔdi sɛl dɛn, insay dis kes di jɔyn dɛn.
Okay, naw lɛ wi luk di stori dɛm bɔt Lovaine ɛn Deverell, we bin de fes layf wit dis sik.
Loven in stori: Frɔm pen to nyu wok
Dɛn bin kam fɔ no se Lɔvɛn gɛt dis sik we i ol lɛk 30 ia so. Bɔt di sayn dɛn bin bigin bifo tɛm, afta we i bɔn in fɔs pikin. I bin bigin wit pen na in bak, ɛn smɔl smɔl i nɔ bin ebul fɔ waka. Afta sɔm tɛm, i bin gɛt fɔ yuz tik fɔ waka.
Dɛn bin no se i gɛt AS we i ol 31 ia, afta di pen bin go na in ɔp bak. In blɔd tɛst sho bak se wan pɔsitiv jin (HLA-B27) . Dis jin de fכn insay kכlכsכl כlman we gεt AS.
Loven se: "I bin rili fil fri we a gɛt nem fɔ mi sik. At ɔl a bin no wetin de apin to mi bɔdi."
Bɔt di stori nɔ bin dɔn de. We i bin dɔn pas 30 ia, i nɔ bin ebul fɔ bia di pen we i bin de fil. I bin gɛt fɔ tek ebi ebi mɛrɛsin dɛn we de mek i fil pen ɛn lɛf in wok. In dɔktɔ we de mɛn in rumat bin sɛn am fɔ mek dɛn tek ɛkstrem rayt. Na de i kam fɔ no se bɔku pan di katilej we de na in rayt hip dɔn west, ɛn di katilej we de na in lɛft hip dɔn lɔs kpatakpata.
Ɔpreshɔn we kin chenj in layf
We i bin ol 39 ia, dɛn bin gɛt fɔ du ɔpreshɔn fɔ chenj in hip na in lɛft hip. Di dɔktɔ we de du in ɔpreshɔn bin tɔk se na di bad bad inflamɛns we i dɔn ɛva si.
"We a wek afta di opareshɔn, sɔntin we wɔndaful apin. Di pen we a nɔ bin ebul fɔ bia nɔ de igen . I chenj mi layf. A bin de fil bad fɔ 4-5 ia. Bɔt afta di ɔpreshɔn, ɔltin chenj."
Di tɛm we dɛn bin de du di rihabiliteshɔn nɔ bin izi. I bin gɛt fɔ lan fɔ waka bak ɛn mek in mɔsul dɛn strɔng. I bin gɛt fɔ du fizik tɛrapi tri dez insay di wik fɔ sɛvin mɔnt. Afta wan ia, dɛn bin gɛt fɔ chenj in rayt hip jɔyn.
As tɛm de go, i kam fɔ no se in na uman we de liv wit tu atifishal hip. I bigin fɔ rid bɔt aw fɔ kɔntrol pen ɛn liv wit di sik. I bin de pe atɛnshɔn pan di tin dɛn we i go ebul fɔ kɔntrol. Dat bin min tin dɛn lɛk fɔ it, fɔ ɛksesaiz, ɛn fɔ tink bɔt gud tin dɛn . Tide, in na wɛlbɔdi advaysa we de ɛp pipul dɛn we gɛt di sem sik.
Deverell in Stori: Di Pen We Ivin Dɔktɔ Dɛn Nɔ Biliv
Deverell bin ol 22 ia we dɛn sik ya bigin. I nɔ bin ebul fɔ du ivin simpul tin dɛn lɛk fɔ klaym stej ɔ fɔ es wan katon we gɛt milk. We i tɛl in dɔktɔ bɔt di bad bad pen ɛn inflamɛns we de kɔmɔt insay in bɔdi, di dɔktɔ nɔ tek am siriɔs.
"We dat de hapun, yu no get konfidens fo yu sef. A no se mai bodi de fil difren, bot a bin get fo lisin to wetin mi dokta tok."
Afta tu ia, wit no rilif frɔm ɛni mɛrɛsin, di dɔktɔ tɛl am se, "Dis ɔl de na yu ed, natin nɔ de we a go ebul fɔ du."
Diagnosis we dɛn fɛn we dɛn nɔ giv ɔp
Bɔt Divɛril nɔ bin giv ɔp. I bin si wan ɔda dɔktɔ. I bin si bɔku dɔktɔ dɛn we spɛshal pan kansa, at at sik, ɛn sik dɛn we de na di bɛlɛ. Sɔm tɛst dɛn bin sho se wan sik lɛk mɔskul distrofi, bɔt dɛn nɔ bin ebul fɔ fɛn natin we rili klia.
Insay dis tɛm, in soshal layf bin stɔp kpatakpata. I bin jɔyn wan grup we de sɔpɔt pipul dɛn na di Intanɛt ɛn i bin tɔk bɔt in ɛkspiriɛns dɛn. Na de sɔmbɔdi advays am fɔ mek dɛn tɛst am (HLA-B27) .
We di tɛst kam bak se i gɛt pɔsitiv insay 2010, Deverell bin gladi pasmak. I bin dɔn fɛn di ansa to di kwɛstyɔn we i bin de tray fɔ 4 ia. Bɔt in gladi at nɔ bin te. In dɔktɔ tɛl am se no mɛrɛsin nɔ de ɛn se na siriɔs sik.
Chenj di we aw yu de luk pan pen
Afta da stori de, Deverel bin disayd fɔ du sɔntin we bin mek i sɔprayz. I sɛl ɔl wetin i gɛt ɛn muf go na Kepa Taun, Sawt Afrika. Na de i bin de spɛn in tɛm wit gladi at, de luk di si, di mawnten dɛn, ɛn wach pipul dɛn we de smayl. Bifo i fil lɛk se i de day, i bigin fɔ fil lɛk se in maynd ɛn in bɔdi de miks .
Na de i bigin fɔ du Hot Yoga bak. Di yoga ɛksesaiz dɛn we i bin de du na rum we wam bin de mek i nɔ fil pen ɛn i bin de mek in bak strɔng. I bin stɔp fɔ yuz di wɔd ‘pen’. Bifo dat, i kɔl am ‘diskɔmfɔt’.
"Yu de pan spɛktrum fɔ pen. Yu kin muf frɔm diskɔmfɔt to kɔmfɔt."
Tide, Deveral na Hot Yoga instrɔkta. I nɔ de tek ɛni mɛrɛsin. Di wangren tritmɛnt we i kin gi na yoga ɛn it we gɛt fayn fayn tin dɛn fɔ it.
| Tin | Di tin dɛn we dɔn apin na di wɔl | Di ɛkspiriɛns we Deverell bin gɛt |
|---|---|---|
| Di sayn dɛm we kin kam fɔs | Bak ɛn hip pen, i nɔ izi fɔ waka. | Bɔdi wik, i nɔ kin izi fɔ klaym stɛp, i kin fil bad bad wan ɛn i kin gɛt inflamɛns. |
| Diagnosis we dɛn kin gɛt | Dɛn bin no se a gɛt dis sik jɔs afta we di sik bigin, we a bin ol 31 ia. | Afta wan lɔng fɛt fɔ 4 ia, bitwin di we aw dɔktɔ dɛn nɔ bin biliv, dɛn bin kam fɔ no se a gɛt dis sik. |
| Di men tin we nɔ izi fɔ du | Pen na yu bɔdi we yu nɔ go ebul fɔ bia ɛn we yu jɔyn dɛn kin pwɛl. | Dɔktɔ dɛn nɔr de trɔst dɛnsɛf ɛn fɔdɔm pan pwɛl hat. |
| Wetin chenj mi layf | Hip riplesmɛnt ɔpreshɔn ɛn fɔ tink gud wan. | Chenj di envairomɛnt, Hot Yoga, ɛn chenj di we aw yu de si pen. |
| Wetin de fala naw | Mɛrɛsin (TNF-inhibitor), it, layt ɛksesaiz, ɛn advays. | Intɛns yoga ɛksesaiz, it kɔntrol (nɔ gɛt mɛrɛsin). |
Wetin wi kin lan frɔm dɛn tu stori ya?
Tɔk to yusɛf bɔt yu bɔdi.
As Deverell in stori sho, ivin dɔktɔ dɛn kin rɔng sɔntɛnde. If yu gɛt kɔnfidɛns pan wetin yu bɔdi de fil, nɔ fred fɔ tɔk bɔt am. Nɔ giv ɔp te yu gɛt ansa. Yu na yu yon bɛst padi .
Mentality na pawaful tin.
Lɔvɛn ɛn Divɛril ɔl tu bin chenj di we aw dɛn bin de si pen. Dɛn bin no se pen nɔto di ɛnd fɔ layf, bɔt dɛn kin liv wit am ɛn kɔntrol am. Fɔ tink gud wan tan lɛk we yu win af pan di fɛt.
No wan saiz-fit-ɔl sɔlv nɔ de.
Di ɔpreshɔn ɛn mɛrɛsin bin ɛp Lɔvɛn. Yoga ɛn chenj dɛn we dɛn bin de chenj in layf bin ɛp Divɛril. So if yu gɛt dis sik, e fayn fɔ tɔk to yu dɔktɔ ɛn fɛn di tritmɛnt ɛn layf we go fayn fɔ yu.
Di it ɛn ɛksesaiz
Dɛn ɔl tu bin de kia fɔ di tin dɛn we dɛn bin de it. Lowen se if yu nɔ gɛt bɔku shuga, flawa, ɛn sɔm kayn mit, dat kin ɛp fɔ mek yu nɔ gɛt pen ɛn swɛlin. Dɔn bak, if yu du ɛksesaiz dɛn we nɔ de ambɔg yu, lɛk fɔ waka ɛn yoga, ɛvride, dat kin ɛp fɔ mek di spayna strɔng ɛn ebul fɔ chenj.
"Di big big fɛt we yu kin gɛt we yu de dil wit yu pen we nɔ de dɔn na fɔ mek yu maynd go na ples usay yu go ebul fɔ bia wit di pen ɛn strɛs." - Lɔvɛn
If yu gɛt ɛni wan pan dɛn sik ya, duya nɔ ignore dɛn. Go to dɔktɔ we sabi du di wok wantɛm wantɛm fɔ mek dɛn no di sik ɛn tritmɛnt fayn fayn wan. Di kwik we yu bigin fɔ trit, na di mɔ yu nɔ go ebul fɔ kɔntrol yu jɔyn dɛn we de pwɛl.
Mɛsej we dɛn kin kɛr go na os
- Ankylosing Spondylitis (AS) na wan at at sik we de afɛkt di spayna, we kin bigin we i yɔŋ. Nɔ ignore bak pen ɔltɛm ɛn mɔnin stiffness.
- Lisin to yu bɔdi. If yu nɔ shɔ bɔt wan sayn, go to dɔktɔ te yu gɛt di rayt ansa.
- Pan ɔl we no patikyula mɛrɛsin nɔ de fɔ dis sik, dɛn kin kɔntrol di pen ɛn liv gud layf bay we dɛn tek mɛrɛsin, tritmɛnt fɔ bɔdi, ɛksesaiz, ɛn chenj di we aw pɔsin de liv in layf.
- Di we aw yu de tink bɔt pen rili impɔtant. If yu tink gud wan ɛn we yu de kɔntrol yu strɛs, dat kin mek yu ebul fɔ bia wit pen.
- Fɛn wetin go wok fayn fɔ yu. Pan ɔl we mɛrɛsin kin wok fayn fɔ sɔm pipul dɛn, yoga ɔ ɔda we fɔ du ɛksɛsayz kin wok fayn fɔ ɔda pipul dɛn. Tɔk to yu dɔktɔ ɛn mek wan plan we go wok fɔ yu.
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