We dɛn kam fɔ no se yu gɛt kansa, i nɔ kin izi fɔ tɔk bɔt wetin yu de fil. Na wan say, yu kin fil frayd, sɔri, ɛn vɛks, bɔt na di ɔda say, yu kin gɛt wan milyɔn kwɛstyɔn bɔt wetin go apin nɛks, aw di tritmɛnt go bi, ɛn if a go ebul fɔ bia wit dis. Yu kin dɔn yɛri ɛn rid bɔku tin bɔt kansa frɔm yu padi, fambul, ɔ ivin na di intanɛt. Bɔt tide wi go tɔk bɔt sɔm tin dɛn we bɔku pipul dɛn nɔ kin ɛkspɛkt, bɔt dɛn rili impɔtant fɔ no we dɛn de du tritmɛnt fɔ kansa . Lɛ wi ɔndastand dɛn tin ya lɛk se wi de tɔk to wi yon padi.
Dis no bi "battle", na "journey".
We dɛn no se wi gɛt kansa, pipul dɛn we de arawnd wi, sɔntɛnde ivin di midia, kin ɛnkɔrej wi fɔ "fayt kansa." Yu go dɔn yɛri stori dɛn lɛk, "Yu fɔ strɔng, yu fɔ win dis fɛt." Di tru tin na dat, if dɛn trit kansa we i bigin ɛn i kin mɛn am kpatakpata, i tan lɛk se pɔsin win wan fɛt.
Bɔt, we di kansa dɔn skata ɔlsay na di bɔdi, we na wetin wi kin kɔl pan mɛrɛsin ``Mɛtastatik kansa,'' nɔ "fayt fɔ win." I tan lɛk fɔ lan fɔ liv wit wan sik we nɔ de mɛn lɛk dayabitis ɔ ay blɔd prɛshɔn. Dɔn wetin wi nid fɔ du nɔto fɔ fɛt, bɔt fɔ manej dis kɔndishɔn ɛn ajɔst wi layf fɔ liv wit am.
Fɔ mek dis chenj na di maynd na di tin we at pas ɔl. Fɔ muf frɔm ples we "fayt" to ples we "manej ɛn liv" na wan pan di impɔtant tin dɛn we yu fɔ du na dis joyn.
Dis na tin we rili at, mɔ we kansa kam bak afta dɛn dɔn wɛl. Pipul dɛn kin fil lɛk se, "A nɔ gɛt di trɛnk fɔ fɛt dis igen." Mɛmba se nɔto yu wangren de du dis. Tɔk to yu dɔktɔ, tɔk to yu famili bɔt dis. Start fɔ tink bɔt am as joyn we yu nid fɔ manej, nɔto fɛt, as pat pan yu layf.
Wetin mek nɔto ɔlman kin gɛt di laytst tritmɛnt dɛn?
Bɔrku pipul kin kam na kansa klinik dɛm wit op fɔ di laytst, kɔt-ɛj tritmɛnt dɛm wae dɛn dɔn si na intanɛt ɛn na nyuspepa. Fɔ ɛgzampul, bɔku pipul dɛn kin tɔk bɔt tritmɛnt lɛk ``Immunotherapy.'' Sɔm pipul kin aks, "Yu nɔ kin gi mi da nyu mɛrɛsin de, dɔktɔ?"
Bɔt wetin wi nid fɔ ɔndastand na dat, pan kansa tritmɛnt, mɔ fɔ tin dɛm lɛk bɔdi kansa, wi kin yuz ``standad tritmɛnt dɛm`` we dɛn dɔn yuz fɔ lɔng tɛm ɛn we dɛn dɔn pruv fayn fayn wan se dɛn kin wok fayn . Di rizin fɔ dat na bikɔs wi no fɔ tru se dɛn tritmɛnt dɛn de kin mek gud tin apin.Nyu tritmɛnt nɔr kin woke fɔ ɔlman ɔltɛm, ɛn dɛn kin gɛt mɔr sayd ɛfɛkt. So, trɔst yu dɔktɔ fɔ pik di bɛst tritmɛnt we dɛn dɔn pruv fɔ yu.
Yu tink se di tritmɛnt bad lɛk aw yu tink? Nɔ fred di bad tin dɛn we go apin to yu!
We pipul dɛn kin tink bɔt kansa tritmɛnt, mɔ di kemotɛrapi, dɛn kin tink bɔt sɔntin we rili siriɔs, lɛk we dɛn ia kin lɔs, we dɛn kin vɔmit, ɛn we dɛn bɔdi kin at. I tan lɛk we dɛn de tɔk bɔt bɛlɛ, dɛn nɔ de tɔk bɔt nɔmal bɔn pikin, ɛn jɔs de tɔk bɔt di tin dɛn we at ɛn we de mek pɔsin fred.
Kimotɛrapi rili pɔyzin to di bɔdi, na dat mek i gɛt bad nem. Bɔt di impɔtant tin na dat, tide wi kin kɔntrol bɔku pan di bad tin dɛn we kin apin to wi . Yu mɛdikal tim dɔn rɛdi fɔ dat.
| Wan kɔmɔn sayd ɛfɛkt | Aw yu go ebul fɔ kɔntrol am? |
|---|---|
| Vɔmit ɛn nɔs (Nɔs) . | Naw, mɛrɛsin dɛn de we rili fayn fɔ kɔntrol dis sik. Dɛn kin gi dɛn tin ya bifo ɛn afta tritmɛnt. |
| Sɔl dɛn na yu mɔt | Yu kin kɔntrol dis wit spɛshal tin fɔ was yu mɔt ɛn mɛrɛsin fɔ mek yu fil pen. Aks yu dɔktɔ bɔt dis. |
| Rɔnbɛlɛ | Mɛrɛsin dɛn de fɔ dis bak. Di mɛdikal tim go advays yu bak fɔ chenj di it dɛn we yu de it. |
| Di ia we de lɔs | Pan ɔl we dɛn nɔ kin ebul fɔ stɔp dis pan sɔm tritmɛnt dɛn, dɛn kin ridyus am na sɔm kes dɛn bay we dɛn yuz we fɔ mek di ed kol. |
Di tin we impɔtant pas ɔl na fɔ tɛl yu dɔktɔ ɔ di wan dɛn we de wok na di nɔs bɔt ɛni sayn we yu fil, ivin smɔl smɔl . Aw yu kin fil faynNa de dɛn go disayd if dɛn fɔ kɔntinyu fɔ tek di tritmɛnt ɔ nɔ fɔ kɔntinyu fɔ du am . Nɔ de fil pen fɔ tink se, "Dis na nɔmal tin."
Yu ɛkspiriɛns kin rili difrɛn frɔm ɔda pipul dɛn.
Na komon tin fo Google enitin dis dez. Bɔt we i kam pan kansa, dis kin rili denja. Pipul dɛn kin sheb dɛn ɛkspiriɛns dɛn na di intanɛt chat grup ɛn fɔm dɛn. Bɔt dɛn kansa istri, di tritmɛnt we dɛn kin gɛt, ɛn di we aw dɛn bɔdi kin biev to am kin rili difrɛn frɔm yu yon.
Nɔ jomp to kɔnklushɔn bɔt yu sityueshɔn bays pan stori dɛn na di intanɛt. Dat go jɔs mek pɔsin fred ɛn strɛs we i nɔ nid.
Ivin sɔpɔt grup dɛn kin bi prɔblɛm. Imajin se sɔm pan yu padi dɛn dɔn dɔn di tritmɛnt ɛn dɛn de du wɛl, bɔt yu go gɛt fɔ tek tritmɛnt fɔ di res ɔf yu layf. I kin at fɔ si dat. So fɛn ples we fayn fɔ yu ɛn we gɛt pipul dɛn we ɔndastand yu sityueshɔn. If yu want fɔ no wetin go bi yu rizɔlt, di bɛst ples fɔ du dat na yu mɛdikal tim.
De kɔst fɔ tritmɛnt: De big tin wae wi nɔr kin tɔk bɔt
Dis na tin wae bɔrku pipul nɔr kin lɛk fɔ tɔk bɔt, bɔt e kin afɛkt bɔrku pipul. Sɔm pan di patikyula mɛrɛsin dɛn we dɛn kin yuz fɔ mɛn kansa kin rili dia. Te wi sik, wi nɔ kin no ɔmɔs wi inshɔrans go kɔba, ɔ ɔmɔs wi go gɛt fɔ pe na wi poket.
Sɔntɛnde, pipul dɛn kin gɛt fɔ lɛf fɔ du di tin dɛn we dɛn lɛk ɛn di tin dɛn we dɛn kin lɛk fɔ du bikɔs dɛn kin spɛn bɔku mɔni fɔ di tritmɛnt. Dis prɛshɔn fɔ mɔni kin ivin pas di prɛshɔn we di sik kin gɛt. Dis na big prɔblɛm we wi de si na Sri Lanka bak. So tɔk to di soshal woka dɛm na yu mɛdikal tim bɔt dis bak. Sɔntɛm we dɛn de fɔ gɛt sɔm rilif frɔm di famasi kɔmni dɛn, di gɔvmɛnt, ɔ ɔda ɔganayzeshɔn dɛn.
Mental wɛlbɔdi ɛn sɔpɔt impɔtant
Ivin fɔ pɔsin we dɔn liv wit kansa fɔ lɔng lɔng tɛm ɛn we dɔn ajɔst to am, tɛm kin de we ɔltin kin fil lɛk se i nɔ fayn ɛn i nɔ kin izi fɔ am wantɛm wantɛm. Sɔmtɛm, we yu kam bak na di klinik, yu kin mɛmba ol tin ɛn mɛmba aw di sik siriɔs bak.
Pipul dɛn de we kin ɛp yu di tɛm dɛn lɛk dis. Di advaysa dɛm na ɔspitul ɛn soshal woka dɛm kin ɛp yu fɔ tɔk bɔt aw yu de fil ɛn fri yu maynd.Di bɛst pipul dɛn we de rawnd. If yu fil se yu nid fɔ tɔk, nɔ wet fɔ di nɛks `klinik de.` Tɔk to dɛn.
Dɔn bak, fɛn tɛm fɔ du tin dɛn we go mek yu gladi . Sɔm pipul go tɛl yu fɔ "nɔ sɔri, tink gud wan ɔltɛm." Bɔt if yu de fil bad ɔ yu vɛks, natin nɔ bad fɔ tɔk bɔt am. If yu nɔ ebul fɔ tɛl yu famili, tɔk to pɔsin we yu kin abop pan fɔ advays yu. Na big big rilif fɔ ebul fɔ tɔk wetin de na yu maynd ɛn nɔ fred se dɛn go jɔj yu. Tɔk to yu padi dɛn, go waka, ɛn mek tɛm fɔ tin dɛn we go mek yu gladi ɛn rilaks.
Mɛsej we dɛn kin kɛr go na os
- Kansa nɔr kin bi "batɛl" ɔltɛm. Sɔntɛnde na "journey" we dɛn fɔ manej ɛn liv.
- Trust di tritmɛnt we yu dɔktɔ pik. Di nyu tritmɛnt nɔ kin bi di bɛst tritmɛnt ɔltɛm.
- Tɛl di mɛdikal tim bɔt ɛni sayd ɛfɛkt, ivin smɔl wan, we kin apin we dɛn de trit am. Nɔ de fil pen.
- Nɔ kɔmpia yusɛf to ɔda pipul dɛn bay we yu de rid tin dɛn na di Intanɛt ɔ yɛri bɔt dɛn ɛkspiriɛns. Ɔlman in waka difrɛn.
- Yu fɔ no di kɔst fɔ tritmɛnt bifo tɛm ɛn nɔ shem fɔ aks fɔ ɛp if nid de.
- Jɔs lɛk yu bɔdi wɛlbɔdi, yu maynd wɛlbɔdi bak rili impɔtant. Aks pɔsin we de gi advays fɔ ɛp yu we nid de.
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