Sɔntɛnde, yu kin fil lɛk se yu an ɛn yu fut dɛn de lɔs trɛnk smɔl smɔl? Ɔ yu jɔs de fil tingling, ɔ yu de fil sɔntin we difrɛn, we nɔ gɛt layf? If dis sik dɔn de go ɔp smɔl smɔl fɔ pas tu mɔnt, nɔ jɔs dismis am as sɔntin we simpul. Tide wi de tɔk bɔt wan sik wae kin mek yu gɛt dis kayn sik, wae nɔr kin bɔrku, bɔt e fayn fɔ no bɔt. Dat na CIDP.
Fɔ tɔk am simpul wan, wetin na CIDP?
No fred di long nem CIDP. Mek wi kip am simpul. CIDP (Chronic Inflammatory Demyelinating Polyneuropathy) na wan sik we kin te we wi bɔdi in difɛns sistɛm, we na di imyun sistɛm, kin mistek atak wi yon nɛv dɛn.
Tink bɔt wi nɛf dɛn lɛk ilɛktrik waya. Jɔs lɛk aw ilɛktrik waya dɛn gɛt insuleshɔn rawnd dɛn, na so wi nɛv dɛn gɛt bak wan tin we de protɛkt wi we dɛn kɔl maylin . dis maylin sεt na in de alaw di signal dεm we de kכmכt na di bren fכ travul kwik εn kכrekt to di limb dεm. insay CIDP, wi yon imyun sistεm de atak dis maylin sεt. I tan lɛk se dɛn pul di swɛt we de na di ilɛktrik waya, di signal transmishɔn kin ambɔg. Dis kin mek yu gɛt sɔm sayn dɛm lɛk fɔ wik ɛn fɔ mek yu an ɛn fut dɛn nɔ gɛt bɛtɛ trɛnk.
CIDP na wan kכndyushכn we fiba di Guillain-Barre syndrome (GBS). Bɔt GBS kin apin afta pɔsin sik, lɛk kol ɔ bɛlɛ bɔg, dɔn i kin wɛl. Bɔku tɛm, i kin sɔlv kwik kwik wan. Bɔt CIDP nɔ kin apin afta dis kayn sik, ɛn na sik we kin de fɔ lɔng tɛm.
Wetin na di sayn dɛm fɔ CIDP?
Dɛn sayn ya nɔr kin bi di sem fɔ ɔlman. Bɔt sɔm men wan dɛn de we yu go si. Mɛmba se fɔ sɔspɛkt CIDP, dɛn sayn ya fɔ de fɔ at le 8 wiks .
Di fɔs ɛn kɔmɔn sayn na we di mɔsul dɛn kin wik ɛn we kin te fɔ pas tu mɔnt . Dis kin afɛkt ɔl tu di say dɛn na di bɔdi.
| Tayp fɔ di simptom | Tɔk bɔt |
|---|---|
| Di men sayn dɛn we de sho se i gɛt dis sik |
|
| Ɔda sayn dɛn we kin apin | |
| Ficha dɛn we nɔ bɔku |
Wetin mek CIDP de divɛlɔp? Yu tink se i kin pas?
Dɛn nɔ no yet di rayt tin we mek CIDP. Bɔt wi no se na prɔblɛm we de wit di imyun sistɛm kin mek i apin. I nɔ kin pas pɔsin atɔl. Yu nɔ go ebul fɔ kech am frɔm ɔda pɔsin, ɛn yu nɔ go ebul fɔ spre am to ɔda pɔsin.
Dɛn nɔ dɔn si yet se i gɛt jɛnɛtik link ɔ na ɛni infɛkshɔn mek i kam. Pan ɔl we ɛnibɔdi kin gɛt am, i kin apin mɔ pan pipul dɛn we ol bitwin 50 ɛn 60 ia ɛn pan man dɛn .
Aw dɔktɔ kin no se i gɛt CIDP?
No wan tɛst nɔ de we go tɛl yu fɔ tru if yu gɛt CIDP. So, yu dɔktɔ go aks yu fɔs bɔt yu sik dɛn. Ustɛm dɛn bigin, aw dɛn de fil, ɛn if dɛn de wɔs? Dɔn dɛn go du ɛgzam fɔ dɛn bɔdi.
Apat frɔm dat, dɛn kin du bɔku tɛst fɔ no if pɔsin gɛt dis sik ɛn fɔ mek dɛn nɔ no ɔda sik dɛn we pɔsin kin gɛt.
- Blɔd ɛn urine tɛst: Chɛk fɔ ɔda tin dɛn we kin mek yu gɛt urine.
- Nεv Kכndukshכn Stɔdi εn EMG:si if di maylin sεt fכ di nεv dεm dεn dכn pwεl εn aw di signal dεm de transmit.
- lכmba pankchכ: fכ chεk fכ εlevεt lεvεl dεm fכ di protin dεm we de asai wit CIDP insay di spεnal fכluid.
- MRI tɛst: Chɛk fɔ si if di nerve rut dɛn swel.
- Nɛv Bayɔpsi: Sɔntɛnde dɛn kin tek wan smɔl pat pan di nerv ɛn chɛk am.
Di tin we impɔtant pas ɔl na fɔ no di sik kwik kwik wan ɛn bigin fɔ trit am . Dis kin mek di nerv dɛn nɔ pwɛl bɛtɛ. If dɛn nɔ trit am, di sik kin wɔs as tɛm de go, ɛn dis kin mek sɔm pipul dɛn nid wilchia.
Wetin na di tritmɛnt dɛm fɔ CIDP?
Bɔrku pipul dɛm wae gɛt CIDP nid tritmɛnt. Di kwik we di tritmɛnt bigin, na di mɔ di chans fɔ mek i wɛl ful wan. Di men gol fɔ tritmɛnt na fɔ stɔp di imyun sistɛm fɔ pwɛl di nerv dɛm.
Men tritmɛnt we dɛn kin yuz
- Kɔtikosterɔyd: Dis na stɛroyd-tayp mɛrɛsin dɛn we de ridyus inflamɛns na di bɔdi ɛn kɔntrol di wok we di imyun sistɛm de du.
- Immunotherapy: Dɛn drɔgs ya de ambɔg di imyun sistɛm in prɔses ɛn stɔp am fɔ atak maylin.
- Intravenous Immunoglobulin (IVIG): Dis involv fכ gi wan kכnsantreyt dכz fכ antibodi dεm we dεn tek frכm hεlty pipul dεm intravenous (IV). Dis kin ɛp fɔ kɔntrol di bɔdi in abnɔmal imyun rispɔns.
- Plasma Exchange (PE): Dis min se yu fɔ tek di plasma pat pan yu blɔd, filta am fɔ pul di antibodi dɛn we de ambɔg yu, ɛn put am bak na yu bɔdi.
Adjɔnt tɛrapi we dɛn kin gi
Apat frɔm di men tritmɛnt dɛn, yu kin nid ɔda tritmɛnt dɛn fɔ mek yu layf izi ɛvride.
- Fizik Tɛrapi: Dis rili impɔtant fɔ mek di mɔsul dɛn gɛt trɛnk bak ɛn fɔ mek yu ebul fɔ waka fayn fayn wan.
- Occupational Therapy: De gi advays bɔt aw fɔ du ɛvride wok (lɛk fɔ kuk, drɛs) izi wan wit di kɔndishɔn.
- Ɛksesaiz ɛn it: If yu du ɛksɛsayz smɔl, dat kin ɛp fɔ mek yu gɛt trɛnk ɛn fɔ mek yu balans fayn. If yu it tin dɛn we gɛt bɛtɛ tin fɔ it, dat kin ɛp yu fɔ mek yu nɔ gɛt bɔku bɔku bɔdi we yu nɔ nid ɛn yu nɔ go gɛt mɔsul dɛn we nɔ gɛt bɛtɛ wɛlbɔdi. Kɔnsul yu dɔktɔ bɔt dis.
Liv wit CIDP ɛn mental wɛlbɔdi
Fɔ liv wit lɔng tɛm kɔndishɔn lɛk CIDP kin tranga. Wan mɛdikal tim de fɔ ɛp yu. Dis inklud wan dɔktɔ we de mɛn nyuro .Inklud pipul dɛm lɛk fizik thɛrapist.
Dis sik kin mek yu fil bad, wɔri, ɛn pwɛl hat. I rili kɔmɔn. If yu de fil dis kayn we, tɔk to yu fambul ɛn padi dɛn bɔt am. Nɔr shem fɔ aks fɔ ɛp frɔm pɔrsin wae sabi bɔt mɛntɛl hεlth if yu nid am. E kin bi big ɛp fɔ yu fɔ wɛl.
I rili impɔtant: If yu gɛt ɛni prɔblɛm fɔ blo, na imejensi. Go na di ɔspitul we de nia yu Imejɛnsi Dipatmɛnt (ETU) wantɛm wantɛm.
Mɛsej we dɛn kin kɛr go na os
- CIDP na wan kכndyushכn we de te we di bכdi in כwn imyun sistεm de atak di nεv dεm.
- Di men sayn na we di mɔsul dɛn kin wik ɛn nɔ kin fil fayn we kin go ɔp smɔl smɔl fɔ sɔm mɔnt.
- Dis nɔto sik we pɔsin kin pas, ɛn dɛn nɔ dɔn fɛn di rayt tin we kin mek i sik yet.
- Bɔrku pipul kin gɛt gud tin fɔ du bay wae dɛn no di sik kwik kwik wan ɛn gɛt di rayt tritmɛnt.
- If yu gɛt ɛni wan pan dɛn sik ya, nɔ ignore dɛn ɛn go to yu dɔktɔ kwik kwik wan fɔ advays.
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