Sɔntɛnde, wi kin gɛt tingling na wan an ɔ fut, ɛn i kin go fɔ insɛf afta sɔm tɛm, nɔto so? Bɔt imajin, if yu an ɛn fut dɛn nɔ gɛt trɛnk smɔl smɔl, bigin fɔ fil lɛk se yu nɔ gɛt bɛtɛ trɛnk, ɛn di sik de go ɔp smɔl smɔl fɔ pas tu mɔnt? Dis na wan pan di men sayn dɛm fɔ wan nyurolɔjik kɔndishɔn we nɔ kin bɔku we dɛn kɔl CIDP (Chronic Inflammatory Demyelinating Polyneuropathy) . Pan ɔl we di nem kɔmplikt smɔl, lɛ wi ɔndastand am simpul wan. Pan ɔl we dis na sik we nɔ kin bɔku, i rili impɔtant fɔ mek ɔlman no bɔt dis.
Fɔ tɔk am simpul wan, wetin na CIDP?
CIDP na wan sik wae kin teik lɔng tɛm wae wi imyun sistɛm (di sistɛm wae de protɛkt wi frɔm sik ) mistek atak wi yone nerves . spεshal wan, i de pwεl di prכtektiv kכva we de rawnd di nεv dεm (dεn kכl am maylin ). Tink bɔt dis kɔva lɛk di plastic sheath we de rawnd ilɛktrik waya. we dis sεf dεn dכn pwεl, di nεv dεm nכ de sεnd mεsej to di bren εn כda pat dεm na di bכdi fayn fayn wan. Na dat kin mek yu gɛt sayn dɛm lɛk fɔ wik ɛn nɔr de fil fayn na yu an ɛn fut dɛm.
Pan ɔl we dis sik kin apin pan ɛni ej, i kin bɔku pan big pipul ɛn man.
Wetin na di difrɛns bitwin CIDP ɛn Guillain-Barre syndrome (GBS)?
Yu go mɔs dɔn yɛri bɔt di sik we dɛn kɔl Guillain-Barre syndrome ( GBS ). Dɛn tu sik ya kin afɛkt di nerv dɛm ɛn dɛn kin gɛt di sem sayn dɛm. Bɔt klia difrɛns de bitwin dɛn tu.
- Guillain-Barre Syndrome (GBS): Dis kin bigin wantɛm wantɛm sɔm dez afta yu gɛt di sik, lɛk we yu bɛlɛ de at. Bɔt wit tritmɛnt, i kin izi fɔ mek i wɛl kwik kwik wan.
- CIDP: Dis na wan sik wae kin teik lɔng tɛm wae kin kam fɔ sɔm mɔnt wae nɔr kin gɛt ɛni kɔnekshɔn to ɛni infɛkshɔn. GBS nɔ kin go bifo to CIDP if dɛn nɔ gɛt tritmɛnt.
Wetin na di sayn dɛm fɔ CIDP?
Di sayn dɛm fɔ CIDP nɔr de di sem fɔ ɔlman. Dɛn kin difrɛn difrɛn wan bay di kayn CIDP we yu gɛt. Jɛnɛral wan, yu kin taya pasmak, yu kin swɛ, ɛn yu kin fil pen. Dis kin mek yu rifleks slo ɛn yu an ɛn yu leg dɛn wik.
Di men ɛn fɔs sayn we pɔsin kin si na we di mɔsul dɛn kin bɔku smɔl smɔl fɔ tu mɔnt ɔ mɔ.Di mɔsul dɛn we wik . Dis wikɛd tin kin afɛkt ɔl tu di say dɛn na di bɔdi. Speshal wan:
- Hip ɛn shɔl
- Sholda ɛn ɔp an
- An dɛn
- Fut
Apat frɔm dis men sayn, yu kin si ɔda sayn dɛm:
- di mכsul dεm we de atrofi: di mכsul dεm de shrink εn sכm sכm.
- Paresthesia: Na filin wae de fil fɔ de swɛt ɔr de swɛt na yu finga dɛm.
- I nɔ kin izi fɔ waka: I nɔ kin balans ɛn i nɔ kin ebul fɔ waka fayn.
- Nyuropatik pen: Na bad bad pen we kin kam bikɔs ɔf prɔblɛm wit di nervɔs sistɛm.
- Wikɛd rispɔns (Dip tɛndon prɔblɛm): We dɔktɔ tap di ni wit smɔl hama, di rispɔns nɔ de igen, lɛk se dɛn de strɛch di leg.
Na smɔl tɛm nɔmɔ, i kin at fɔ swɛla (dysphagia) ɛn tɛmporari dabl vishɔn (diplopia) kin apin bak.
Fɔ sɔspɛkt CIDP, dɛn sik ya fɔ de fɔ at le 8 wiks .
Difrɛn kayn CIDP dɛn de?
Yes, dɛn kin sheb CIDP to sɔm men kayn dɛn bay di simptom dɛm. Dis infɔmeshɔn tebul go gi yu klia aidia.
| Di kayn CIDP we dɛn kin yuz | Men tin dɛn we de insay de |
|---|---|
| Tipik CIDP we dɛn kin yuz | Bɔrku pipul kin gɛt dis kayn, wae kin mek dɛn gɛt prɔblɛm wit dɛn sɛns lɛk wae di mɔsul dɛn wik ɛn nɔr kin fil fayn we kin afɛkt ɔl tu di say dɛm na di bɔdi. |
| Multifokal mכtal nyuropathy | di mכsul dεm we wik de apin na wan say na di bכdi כ na say dεm (asymmetric). |
| Lewis-Sumner sindrom we gɛt di sik | כl tu di mכsul dεm we wik εn di prכblεm fכ di sεns de apin na wan say na di bכdi. |
| Pure sɛnsri CIDP | Nɔbɔdi nɔ de we gɛt di mɔsul dɛn we wik, bɔt i de mek i nɔ ebul fɔ waka, i kin fil pen, ɛn i nɔ kin izi fɔ waka. |
| Pure moto CIDP | Nɔ prɔblɛm nɔ de fɔ di sɛns, bɔt di mɔsul dɛn kin wik ɛn nɔ kin ebul fɔ du sɔntin na di tu say dɛn na di bɔdi. |
Dɔn bak, dɔktɔ dɛn kin put dis sik insay tri pat bay aw i de biev:
- Progressive: De sik kin wɔs smɔl smɔl as tɛm de go.
- Rikɔrɛnt: Di sayn dɛm kin apia, nɔr de igen, ɛn kin kam bak.
- Monophasic: Dis sik kin apin wan tɛm nɔmɔ insay yu layf. I kin sɔlv afta lɛk 1-3 ia.
Wetin kin mek pɔsin gɛt CIDP? Yu tink se i kin pas?
wi nɔ no di rayt tin we kin mek pɔsin gɛt CIDP stil, bɔt wi no se na di inflamɛns na di nɛv ɛn di nerv rut dɛn kin mek i apin. As wi bin dɔn tɔk, dis kin pwɛl di maylin swɛt we de rawnd di nɛv dɛn.
Di tin we impɔtant pas ɔl na dat CIDP nɔto sik we pɔsin kin gɛt. Yu nɔ go ebul fɔ kech am frɔm ɔda pɔsin, ɛn yu nɔ go ebul fɔ kech am frɔm ɔda pɔsin.
Aw dɛn kin du di diagnosis?
No patikyula tɛst nɔ de fɔ CIDP. So, yu dɔktɔ go aks yu fɔs bɔt yu sik dɛn (we dɛn bigin, aw yu fil), dɔn du yu bɔdi ɛgzam ɛn tɛl yu fɔ du sɔm tɛst fɔ no ustɛm fɔ no wetin nɔr fayn wit yu nerv dɛm ɛn pul ɔda tin dɛm.
Dɛn tɛst ya kin bi:
- Blɔd ɛn urine tɛst.
- di nεv kכndukshכn stכdi εn Ilektromyogram (EMG): dεn ya de luk fכ damej pan di nεv dεm εn di maylin sεt.
- lכmba pankshכn: dεn de tek sכm fכs wata frכm di spεnal kכd fכ chεk fכ εlevεt protin lεvεl, we kכmכn na CIDP.
- Nɛv bayɔpsi: Dɛn kin tek wan smɔl pat pan di tisu frɔm wan nɛv ɛn chɛk am wit maykroskɔp.
- MRI skan: I kin chɛk fɔ si if di nerve rut dɛn swel.
I rili impɔtant: I impɔtant fɔ no dis sik kwik kwik wan ɛn bigin fɔ trit am.I rili impɔtant. I kin mek di nerv dɛn nɔ pwɛl. If dɛn nɔ trit am, di sayn dɛn kin rili bad, sɔntɛnde i kin te i nid fɔ yuz wilchia.
Wetin na di tritmɛnt dɛn we yu kin gɛt?
Bɔku pipul dɛn nid tritmɛnt. Di kwik we di tritmɛnt bigin, na di mɔ di chans fɔ mek i wɛl ful wan.
Di kayn drɔgs dɛn we dɛn kin yuz
- Kɔtikosterɔyd: Dis na stɛroyd-tayp mɛrɛsin dɛn we de ridyus inflamɛns ɛn kɔntrol di wok we di imyun sistɛm de du.
- Immunotherapy: Dɛn drɔgs ya de stɔp di imyun sistɛm fɔ atak maylin.
- Bayolojikal: Dɛn kin yuz drɔgs lɛk Vyvgart, we na nyu klas fɔ drɔgs we dɛn jɔs dɔn gri fɔ, dɛn kin yuz bak fɔ dis.
Speshal tritmɛnt dɛn
- Intravenous immunoglobulin (IVIG): Dɛn kin gi yu injɛkshɔn fɔ wan kɔnsɛntret fɔm fɔ antibodies we dɛn pul frɔm di blɔd fɔ pipul dɛn we gɛt wɛlbɔdi. Dis kin ɛp fɔ kɔntrol di we aw yu imyun sistɛm nɔ de wok fayn.
- Plasma exchange (PE): Dis min se yu fɔ tek yu blɔd, sɛn am tru spɛshal mashin, pul di blɔd plasma we gɛt antibodi dɛn we de ambɔg yu, dɔn yu put klin blɔd bak insay yu bɔdi.
- stεm sεl transplant: insay dis tritmεnt we rili rεs, dεn de transplant hεlty stεm sεl dεm fכ "rεset" di imyun sistεm.
Ɔda tritmɛnt dɛn we de sɔpɔt pɔsin
- Fizik tritmɛnt: Dis kin rili ɛp fɔ gɛt trɛnk we yu dɔn lɔs, fɔ waka, ɛn fɔ mek yu balans fayn fayn wan.
- Occupational therapy: De tich yu aw fɔ du ɛvride wok izi wan pan ɔl we yu gɛt dis sik.
- Ɛksesaiz ɛn it: If yu du ɛksesaiz smɔl, dat kin ɛp yu fɔ gɛt trɛnk. Bɔt yu fɔ jɔs du ɛksɛsayz ɔnda yu dɔktɔ ɔ pɔsin we de mɛn yu bɔdi. If yu it fayn, dat kin ɛp yu fɔ mek yu nɔ gɛt bɔku bɔku bɔdi we yu nɔ nid.
Livin wit CIDP ɛn di lukin-grɔn
We yu gɛt CIDP diagnosis, yu kin fil se yu gɛt bɔku prɔblɛm. Dat na nɔmal tin. E fayn fɔ de tɔk to yu dɔktɔ ɛn tɔk bɔt yu sik ɛn tritmɛnt.
Imejɛnsi Wɔnin: If yu gɛt prɔblɛm fɔ blo, go wantɛm wantɛm na di Imejɛnsi Dipatmɛnt (ETU) na di ɔspitul we de nia yu.
I rili impɔtant bak fɔ go to pɔsin we sabi du in wok fɔ mɛn di pen ɛn fɔ fɛn saykilɔjik rilif. Yu famili, padi dɛm, ɛn yu mɛdikal tim go bi big trɛnk fɔ yu pan dis joyn.
As fɔ di we aw yu de si tin, i dipen pan yu ej, di kayn sik we yu gɛt, aw dɛn bigin fɔ trit yu kwik kwik wan, ɛn aw yu bɔdi de du di tritmɛnt.De gud nyus na dat, wit tritmɛnt, lɛk 90% pan pipul dɛm kin wɛl. Sɔm pipul kin gɛt de sik bak. Bɔt, CIDP nɔ kin shɔt di layf we pɔsin kin liv.
Mɛsej we dɛn kin kɛr go na os
- CIDP na wan sik we nɔ kin apin so ɔltɛm, we kin te we di bɔdi in imyun sistɛm kin atak in yon nɛv dɛm.
- Di men sayn na we di mɔsul dɛn kin wik ɛn nɔ kin fil fayn we kin go ɔp smɔl smɔl fɔ sɔm mɔnt.
- Dis nɔto sik we pɔsin kin pas, ɛn dɛn nɔ dɔn fɛn di rayt tin we kin mek i sik yet.
- If yu gɛt dɛn sik ya, i rili impɔtant fɔ go to dɔktɔ wantɛm wantɛm. If yu no di sik kwik kwik wan ɛn trit yu, dat kin mek yu nɔ gɛt di nerv dɛn we nɔ pwɛl.
- If dɛn trit dɛn fayn, bɔku pipul dɛn kin liv fayn layf, ɛn dis nɔ kin bi sik we go mek dɛn day.
CIDP, nyuropati, swɛt, mɔsul wik, maylin, Guillain-Barre sindrom, imyunotɛrapi, ɔtoimyun sik, CIDP sinhala
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