Yu dɔn notis wan smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl. Ɔ yu dɔktɔ bin tɔk bɔt am we dɛn bin de skan yu we yu gɛt bɛlɛ? Dis kin bi wan sik we dɛn kɔl Cystic Hygroma . Na nɔmal tin fɔ mek yu fred smɔl we yu yɛri dis nem. Bɔt we yu dɔn no wetin i bi, da fred de go dɔn ɛn yu go ɔndastand mɔ bɔt aw fɔ dil wit am.
Fɔ tɔk am simpul wan, wetin na Sistik Haygrɔma?
Cystic Hygroma na sist we ful-ɔp wit wata, ɔ bɔku bɔku sist. I tan lɛk wata balyɔn. Dɛn tin ya kin apin mɔ na di pikin in ed ɔ in nɛk. Bɔt sɔm tɛm dɛn kin kam bak na say dɛn lɛk di an ɛn di chɛst.
di rizin fכ dis na biכs wan blכk de na di limfatik sistεm na wi bכdi. Tink bɔt dis limfatik sistɛm as sistɛm we de pul dɔti na wi bɔdi. Dis sistεm na in de filta tin dεm we de du bad lεk jεm dεm εn de εp fכ kip di bכdi hεlth. so, if blכk de sכmsay na dis sistεm we di pikin de gro na di bכdi, wata de kכmכt de εn wan sist lεk dis de fכm.
Dis na tin we nɔ kin apin so ɔltɛm. Dis min se lɛk wan pan ɛvri 8,000 pikin dɛn kin gɛt dis sik. Dɔn bak, nɔto ɔl pikin dɛn we gɛt Sistik Haygrɔma gɛt ɔda big big wɛlbɔdi prɔblɛm. Sɔm pikin dɛn kin bɔn kɔmplit wɛlbɔdi wit dis sik.
Sɔntɛnde, dɛn tumbu ya kin wɛl fɔ dɛnsɛf we dɛn nɔ gɛt ɛni tritmɛnt. Bɔt if dɛn nɔ du dat, ɔpreshɔn fɔ pul dɛn na di bɛst tin, bikɔs dɛn kin pwɛl di ɔgan dɛn we de rawnd am, mek i gɛt infɛkshɔn, ɛn mek i nɔ fil fayn we di pikin de gro.
Wetin na di sayn dɛm fɔ dis?
di sayn dεm dipכnt pan di say εn di sayz we di tכmכro de. Sɔntɛnde, di tɔŋ kin ambɔg di nɔmal wok we di ɔgan dɛn we de rawnd am de du. Lɛ wi tek wan luk pan di men sayn dɛm.
| Di sayn we de sho se di sik de | Tɔk bɔt |
|---|---|
| Swel ɔnda di skin | Di pikin we dɛn jɔs bɔn kin gɛt say we saf ɛn we dɔn swel ɔnda dɛn skin. Sɔntɛnde dis kin gɛt smɔl blu kɔlɔ. |
| I nɔ izi fɔ blo ɛn swɛla | if di tכmכro de nia di trot כ di briz paip, i kin at fכ brith εn swεl di pikin we i de gi in bεlε. |
| Stunted growth | Bikɔs i nɔ izi fɔ it, dɛn kin gro slo smɔl pas ɔda pikin dɛn. |
| Tumɔs de big ɛn infɛkshɔn | di sist go gro bak as di pikin de gro. Dɔn bak, if di sist gɛt di sik ɔ blɔd insay di sist, i kin big wantɛm wantɛm. |
| Ifekt pan bon ɛn tit | If dɛn nɔ trit am fɔ lɔng tɛm, di bon ɛn tit dɛn we de rawnd di tumbu kin pwɛl. |
Wetin na di tin dɛm wae kin mek pɔrsin gɛt Cystic Hygroma?
di pikin in jin dεm εn di envayroment na di bεlε kin afekt di divεlכpmεnt fכ dis limf sistεm. wan prכblεm wit di divεlכpmεnt fכ dis sistεm na di praymar kכz fכ Cystic Hygroma.
Sɔntɛnde, i kin apin fɔ insɛf ɛn nɔr gɛt ɛni ɔda mɛrɛsin. Bɔt sɔm tɛm dɛn de, i kin gɛt sɔntin fɔ du wit di tin dɛn we de apin to pɔsin in jɛnɛtiks . Fɔ ɛgzampul:
- Turner sindrom we gɛt di sik
- Sindrom we gɛt di sik we dɛn kɔl Down syndrome
- Noonan sindrom we gɛt di sik
Dɔktɔ dɛn de du spɛshal tɛst fɔ si if kɔnekshɔn de wit tin dɛn lɛk dis.
If dis sik kin apin to big pipul, i kin bi bikɔs ɔf sɔm kayn aksidɛnt ( trauma ) ɔr wan infekshɔn we dɛn bin dɔn gɛt na di say we dɛn de blo trade. Bɔt bɔku tɛm, i nɔ kin izi fɔ fɛn patikyula kɔz fɔ dis sik pan big pipul dɛn.
Aw dɔktɔ dɛn kin no bɔt dis sik?
We uman gɛt bɛlɛ
Bɔku tɛm, we dɛn du ɔltrasɔund skan ɔltɛm we uman gɛt bɛlɛ, i go sho se:Dis na di tɛm we di dɔktɔ kin si dis tumbu fɔ di fɔstɛm. כltεm dεn kin no am arawnd 20 wiks we uman bεlε.
If di skan sho sɔntin lɛk dis, di dɔktɔ go tɛl yu fɔ du sɔm ɔda tɛst dɛn fɔ mek shɔ se di pikin nɔ gɛt ɛni ɔda prɔblɛm wit in jɛnɛtiks.
- CVS (Chorionic Villus Sampling) : dis involv fכ tek wan rili sכm tisu frכm di pikin in plasεnta εn tεst am fכ jεnεtik kכndishכn dεm.
- Amniocentesis: dis involv fכ tek sכm sכm wata (amniotic fluid) insay di pikin in bεlε εn tεst am.
Nɔ fred fɔ aks bɔt dɛn tɛst ya. Yu dɔktɔ go ɛksplen ɔltin to yu gud gud wan. Yu go nid bak fɔ gɛt skan ɔltɛm fɔ chɛk fɔ si if di tumbu chenj ɛn ɔda prɔblɛm dɛn.
Yu dɔktɔ go plan fɔ bɔn yu pikin bay sizarian sɛkshɔn (C-section) we i ol lɛk 38 wik. Yu fɔ pik bak ɔspitul we gɛt Nionatal Intensive Care Unit (NICU) ɛn dɔktɔ dɛn we de mɛn pikin dɛn . Dis na bikɔs di ɔspitul fɔ gɛt ɔl di tin dɛn we dɛn nid fɔ trit yu pikin if i nid tritmɛnt kwik kwik wan afta dɛn bɔn am. Yu dɔktɔ go ɛp yu fɔ pik ɔspitul we fayn fɔ dis.
Afta dɛn bɔn am
sכmtεm dεn kin si dis bכdi afta dεn bכn di pikin. If dis apin, di dɔktɔ go ɔda fɔ du tɛst lɛk ɛkstrem rayt na di chɛst, ɔltra saund skan, ɔ MRI/CT skan fɔ no if na sistik haygrɔma.
Wetin na di tritmɛnt dɛn?
di men εn di mכst saksesful tritmεnt fכ sistik haygrכma na fכ pul di tכmכro kכmplit wan tru כpεrayshכn.
Bɔt if ivin smɔl pat pan di tumbu lɛf we dɛn de du di ɔpreshɔn, na lɛk 15% risk de fɔ mek i kam bak. Bɔku ɔda tritmɛnt dɛn de, pan ɔl we dɛn nɔ kin wok fayn lɛk ɔpreshɔn.
- Kimotɛrapi
- Redyushɔn tɛrapi
- Stɛroyd dɛn we dɛn kin yuz
- Sklerotɛrapi: Dis kin min fɔ injɛkt spɛshal mɛrɛsin insay di tumbu, we kin mek i smɔl.
Wetin na di prɔblɛm dɛn we kin apin?
Risk de fɔ gɛt prɔblɛm dɛn we dis kayn tin apin. Bɔt i impɔtant fɔ no bɔt dɛn tin ya bifo tɛm. Dɔktɔ dɛn kin no ɔltɛm bɔt dɛn prɔblɛm ya ɛn dɛn kin du di tin dɛn we dɛn nid fɔ mek dɛn nɔ gɛt dɛn.
- di amount of amniotic fluid na di bεlε kin inkrεs כ dכn we uman bεlε.
- Sɔntɛnde, i kin izi fɔ mek di bɛlɛ nɔ bɔn.
- If di tumbu big, i kin blok di pikin in aywe.
- Sɔm chenj kin de na di shep fɔ di fes.
- Di tumbu kin mek pɔsin gɛt infɛkshɔn na di skin lɛk sɛlulitis .
- Risk kin de lɛk fɔ pwɛl di nerv ɔ fɔ blɔd pasmak afta dɛn dɔn du di ɔpreshɔn.
- Ivin afta dɛn dɔn du di ɔpreshɔn, smɔl chans de fɔ mek di tumbu gro bak.
Nɔ fred we yu yɛri dɛn tin ya. Nɔto ɔl dɛn tin ya go apin. Dis na jɔs "pɔsibul" tin dɛn. Yu mεdikal tim no כl dεn risk dεm ya εn dεn tren fכ dil wit dεm.
Mɛsej we dɛn kin kɛr go na os
- Sistik Haygrɔma na wan wata we ful-ɔp wit wata we de divɛlɔp bikɔs ɔf prɔblɛm wit di pikin in limf sistɛm. I nɔto kansa.
- Bɔku tɛm dɛn kin no dis we dɛn de du ɔltra saund skan we uman gɛt bɛlɛ.
- Bikɔs dis sik kin gɛt fɔ du wit sɔm sik dɛn we pɔsin kin gɛt we i kam pan jɛnɛtiks, yu dɔktɔ go tɛl yu fɔ du tɛst fɔ am.
- Di men tritmɛnt na fɔ pul di tumbu tru ɔpreshɔn. Nɔ wɔri, di dɔktɔ dɛn we de mɛn pikin dɛn sabi dis.
- If yu gɛt ɛnitin fɔ wɔri bɔt ɔ dawt, tɔk to yu dɔktɔ wantɛm wantɛm. Nɔ disayd fɔ du sɔntin bay di tin dɛn we yu dɔn fɛn na di intanɛt.
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