Hospice Care: Lɛ Wi Tɔk Bɔt Am

Tɛm dɛn de na wi layf, nɔto so? Dat min, we siriɔs sik kam, ɛn di dɔktɔ dɛn se i nɔ pɔsibul igen fɔ mɛn am kpatakpata. Fɔ tru, na lod to di maynd. Bɔt, pan dis kayn tɛm, aw i go valyu fɔ gɛt ɛp fɔ spɛn di ɔda tɛm we lɛf as kɔmfyut as yu ebul, witout pen, as yu want, wit di wan dɛn we yu lɛk ? Tide, wi go tɔk bɔt wan rili impɔtant kia savis we kin kam fɔ ɛp dɛn kayn tɛm ya, ɛn we bɔku pipul dɛn nɔ no bɔt. Dɛn kɔl dis `(Hospice Care)` ɔ "ɛnd-ɔf-layf kia".

Wetin na Hospice Care? Fɔ tɔk am simpul wan...

Fɔ tɔk am simpul wan, we yu gɛt sɔm kayn mɛrɛsin ɛn dɛn de mɛzhɔ yu layf we yu de liv insay mɔnt pas ia, ɛn yu praymar gol na fɔ ridyus pen ɛn de kɔmfyut , dis na wetin dɛn kɔl ``Hospice Care``. Tink bɔt am, sɔm sik dɛn de, fɔ ɛgzampul, sɔm kayn kansa de, ɔ tin dɛn de lɛk ``At sik``, we, wans dɛn rich wan patikyula stej, i nɔ kin izi fɔ mɛn ɔltogɛda wit ɔda mɛrɛsin. Na da tɛm de yu fɔ tink bɔt dis kia.

Di men gol fɔ dis na fɔ ɛp yu fɔ kɔntinyu fɔ kɔntrol yu layf, fɔ alaw yu fɔ liv fayn ɛn wit rɛspɛkt as yu ebul, ɛn fɔ gi yu di trɛnk ɛn sɔpɔt we yu nid as yu de rɛdi fɔ di ɛnd fɔ yu layf insay yu yon we. Di pipul dɛm wae de gi dis savis na pipul dɛm wae sabi bɔt aw fɔ mɛn di sik dɛm. So yu kin spɛn di las dez na yu layf di we we go mek yu gɛt minin, ɛn yu nɔ go fil pen. Dis na big rilif fɔ yu ɛn yu famili. Wan tim we gɛt hospice nɔs dɛm, soshal woka dɛm, spiritual advaysa dɛm, hom wɛlbɔdi wokman dɛm, dɔktɔ dɛm, volontia dɛm ɛn sɔri-at advaysa dɛm go rawnd yu ɛn gi yu ɔl di sɔpɔt we yu nid.

Wetin na di 4 lɛvul dɛm fɔ kia fɔ pipul dɛm na hospice?

Yɛs, 4 lɛvul dɛn de fɔ kia fɔ yu dipen pan wetin yu nid. Yu hospice tim go disayd us lɛvul go bɛtɛ fɔ yu. Dis lɛvɛl kin chenj as yu kɔndishɔn de chenj.

• Kia we yu kin kia fɔ yu na os ɔltɛm: Dis na we yu famili ɔ di wan dɛn we yu lɛk kin kia fɔ yu na os. Di wan dɛn we de kia fɔ di wan dɛn we de kia fɔ di wan dɛn we sik kin kam na yu os pan di de dɛn we dɛn dɔn sɛtul ɛn gi yu di kia ɛn advays we yu nid. Insay wi Sri Lanka kɔlchɔ, bɔku pipul dɛn kin lɛk fɔ de na os, wit di wan dɛn we dɛn lɛk. Dis we aw dɛn de du tin rili valyu fɔ dɛn.
• Jɛnɛral inpatient kia (GIP): If yu gɛt pen ɔ ɔda sayn dɛn we tu bad fɔ manej na os, dɛn go admit yu na ɔspitul ɔ say we dɛn dɔn pik fɔ kia fɔ yu na os.
• Kɔntinyu fɔ kia fɔ dɛn na os:Dɛn kin yuse dis if yu gɛt wan sik wae de kam pan yu sik kwik kwik wan ɛn yu nid fɔ gɛt mɔr intensiv, shɔt tɛm kia na os. Dɛn kin gi dis to pipul dɛn we kwalifay fɔ di `(GIP)` lɛvɛl bɔt we want fɔ de na os.
• Respite care: If yu nid fɔ gi di wan dɛn we de kia fɔ yu tɛm fɔ blo, dɛn kin gi yu hospice kia fɔ shɔt tɛm. Na bikɔs dɛn nid tɛm bak fɔ rɛst ɛn rilaks we dɛn de kɔntinyu fɔ kia fɔ pɔsin.

Udat dɛn kin bɛnifit frɔm Hospice Care?

Bɔku tɛm, dɔktɔ dɛn kin yuz tin dɛn lɛk di gaydlain dɛn na Mɛdikal sɛf fɔ no if pɔsin kwalifay fɔ gɛt kia na di hospice. Dat min se if yu sik de go bifo lɛk aw yu kin liv ɛn yu gɛt siks mɔnt ɔ smɔl pas dat fɔ liv, yu kin kwalifay fɔ gɛt kia fɔ yu na hospice. Dɛn kin se dɛn fɔ kia fɔ dis kayn we we dɔktɔ dɛn biliv se di tritmɛnt dɛn we dɛn de gi yu naw nɔ go ɛp yu igen ɛn no op nɔ de fɔ se yu sik go bɛtɛ. Bɔku tɛm, na Mɛdikal, Mɛdikal ɛp, ɛn bɔku prayvet inshɔrans plan dɛn kin kɔba di kia we dɛn kin kia fɔ di wan dɛn we sik.

Bɔrku pipul dɛm wae de kia fɔ dɛn na hospice kin gɛt sik dɛm wae nɔr de mɛn ɛn smɔl smɔl kin wɔs ɛn leta dɛn nɔr kin ebul fɔ mɛn. Fɔ ɛgzampul:

• ALS (na sik we de afɛkt di nervɔs sistɛm) .
• Dis sik we dɛn kɔl Alzaima
• Kansa
• Dimɛnshɔnal sik
• At sik
• Kidni sik
• Dis sik we dɛn kɔl Parkinson
• Di sik we de na di lɔng
• Ɛn ɔda sik dɛn.

Di mɛmba dɛm na di hospice tim na masta sabi pipul dɛm wae sabi di spɛshal nid dɛm fɔ pipul dɛm wae de liv di las mɔnt, wik, ɛn de dɛm na dɛn layf.

Udat de gi dis hospice kia? Na wan grup de we rili brayt...

Insay dis kia, difrɛn savis provayda dɛn de we de kia fɔ yu bɔdi, maynd, sɔshal ɛn spiritual wɛlbɔdi:

• Dɔktɔ: Hospice dɔktɔ dɛn kin wok wit yu ɛn di wan dɛn we yu lɛk fɔ mek wan plan fɔ kia fɔ yu we de pe atɛnshɔn pan yu kɔmfɔt ɛn rɛspɛkt.
• Nɔs dɛm: Hospice nɔs dɛm kin kam si yu wan ɔr bɔku tɛm insay di wik ɛn gi yu di kia we yu nid. Dɛn kin tich yu ɛn di wan dɛn we de kia fɔ yu aw fɔ kɔntrol yu sik dɛn. Di nɔs dɛn kin kɔdinɛt di wok wit di ɔda wan dɛn we de na di hospice tim.
• Di wan dɛm wae de ɛp yu fɔ gɛt wɛl bɔdi na os: Dɛn pipul ya kin kam wan tɛm ɔr sɔm tɛm insay di wik ɛn ɛp fɔ du ɛvride wok lɛk fɔ was ɛn fɔ klin yusɛf. Dɛn kin du smɔl smɔl wok dɛn bak na os. Lɛk nɔs dɛn, dɛn pipul ya kin tich yu bɔku tin. Dɛn kin tich yu ɛn yu famili aw fɔ kia fɔ yu we nɔs ɔ wɛlbɔdi wokman nɔ de nia yu.
• Di wan dɛn we de advays pipul dɛn bɔt Gɔd biznɛs:Dɛn pipul ya kin ɛp yu fɔ dil wit de chenj wae yu kin fil as yu de kam nia fɔ dɔn yu layf, ɛn ɛp yu fɔ chenj to di las stej dɛm na yu layf. Yu nɔ nid fɔ bi pɔsin we biliv pan wan patikyula rilijɔn. Dis na pɔsin we go ebul fɔ kɔrej yu, tɔk to yu di we we yu biliv, ɛn ɛp yu fɔ disayd fɔ du sɔntin.
• Soshal woka dɛm: Dɛn pipul ya kin gi yu sɔpɔt ɛn advays pan yu filin. Dɛn kin ɛp yu bak fɔ pripia dɔkyumɛnt dɛn lɛk wetin yu las want (advance directives) ɛn tɔk bɔt mɔni biznɛs. Dɛn kin kɔnɛkt yu bak to valyu tin dɛn lɛk fɔ ɛp yu wit mɔni, ɛp fɔ it, ɛn fɔ gi yu advays.

Dipen pan wetin yu nid, sɔmtɛm, di kia fɔ di hospice kin gɛt tin dɛn lɛk masaj tɛrapi, art tɛrapi, ɛn myuzik tɛrapi.

Wetin yu kin rili gɛt frɔm Hospice Care?

Hospice care de gi bɔku tin dɛn ɛn sɔpɔt to di wan dɛn we de na di las stej na dɛn layf:

• Holistic end-of-life care: Di men tin we hospice de pe atɛnshɔn pan na fɔ trit yu lɛk ɔlman ɛn sɔpɔt yu famili. Yu go wok klos wit dɔktɔ ɛn nɔs dɛm we de kia fɔ yu bɔdi nid dɛm, ɛn soshal wokman dɛm ɛn spiritual advaysa dɛm we de kia fɔ yu maynd, filin, soshal, ɛn spiritual wɛlbɔdi.
• Kɔmfɔt mɛrɛsin: Yu go gɛt mɛrɛsin ɛn ɔda tritmɛnt fɔ ɛp fɔ pul yu pen ɛn ridyus ɔda sayn dɛm. Di hospice tim go wok wit yu fɔ mek wan plan fɔ yu mɛrɛsin dɛm we go fayn fɔ yu. Dɛn go ri-assess yu nid dɛm wan wan tɛm as yu kɔndishɔn de chenj. Yu go kɔntinyu fɔ gɛt mɛrɛsin dɛn we go mek yu fil fayn ɛn gɛt bɛtɛ layf.
• Medikal ikwipmɛnt ɛn sapɔt: Yu go gɛt ikwipmɛnt fɔ ɛp yu fɔ de na bed ɛn muv rawnd – tin dɛn lɛk ilɛktronik ɔspitul bed dɛn we dɛn kin es ɛn dɔŋ, wilchia, ɛn pipul dɛn we de waka. Yu kin gɛt tin dɛn bak fɔ ɛp yu fɔ blo, lɛk ɔksijɛn. Yu go gɛt impɔtant tin dɛn bak lɛk bedpan, bandej, ɛn sirinj.
• Fɔ kia fɔ shɔt tɛm na say we dɛn de sɔpɔt yu: If nid de we dɛn nɔ go ebul fɔ mit na os, dɛn kin transfa yu kia to say usay pipul dɛn kin de fɔ shɔt tɛm.
• Sɔpɔt fɔ di wan dɛn we de kia fɔ dɛn:Hospice kia de go bak to yu praymar kia dɛm – yu fambul ɔr padi dɛm wae de spɛn mɔr tɛm wit yu. Di wan dɛn we de wok na di hospice kin wok tranga wan wit dɛn pipul ya we de kia fɔ yu fɔ ɛp dɛn fɔ ɔndastand aw fɔ kia fɔ yu. Dɛn kin kɔnɛkt dɛn bak wit tin dɛn fɔ kia fɔ dɛn yon wɛlbɔdi we dɛn de kia fɔ yu. Fɔ ɛgzampul, i kin gɛt fɔ du wit rɛst, we kin mek di wan dɛn we de kia fɔ yu fɔs fɔ blo ɛn yu kin de na fayn ples fɔ shɔt tɛm. Hospice care inklud bak fɔ sɔpɔt di wan dɛn we yu dɔn day, we kin ɛp di wan dɛn we yu lɛk fɔ bia wit dɛn pwɛl at afta yu day.

Wetin Hospice Care nɔ de kɔba?

We yu de plan fɔ di ɛnd ɔf layf, pan ɔl we yu de tink bɔt di bɛnifit dɛn we di hospice kia fɔ gɛt, i impɔtant fɔ no di tin dɛn we hospice nɔ de gi:

• Kia fɔ mɛn yu: Hospice care na fɔ kip yu kɔmfyut ɛn gi yu di bɛst kwaliti layf we pɔsibul we di tritmɛnt fɔ mɛn nɔr de ɛp igen. I nɔ de trit yu sik fɔ mɛn am. If yu chenj yu maynd ɛn disayd se yu want fɔ kɔntinyu fɔ trit yu sik, yu kin stɔp fɔ kia fɔ yu na hospice. Fɔ ɛgzampul, sɔm pipul dɛn kin bigin fɔ trit am bak we nyu mɛrɛsin ɔ tritmɛnt kam fɔ tray.
• Rum ɛn it: Di kia we dɛn de kia fɔ di wan dɛn we de mɛn pipul dɛn we sik nɔto fɔ tek di ples fɔ di kia we yu de kia fɔ 24 awa na say usay dɛn de liv, lɛk na say usay dɛn de kia fɔ ol pipul dɛn. Yu kin gɛt hospice kia ɛnisay we yu tink se na os – yu yon os, nɔs os, hospice kia sɛnta, ɔr assisted living fasiliti. Bɔt if dɛn gɛt kia fɔ yu na say usay dɛn de kia fɔ yu, yu go nid fɔ pe fɔ am yusɛf. If yu want fɔ go na dis kayn ples bɔt yu nɔ shɔ bɔt di kɔst, chɛk wit yu inshɔrans plan.
• Di kia fɔ lɔng tɛm, 24 awa: Di kia we dɛn de kia fɔ yu kin dipen pan difrɛn tin dɛn, lɛk usay yu de, di sik we yu gɛt, ɛn yu inshɔrans. Jɛnɛral wan, pan ɔl we di wan dɛn we de wok na di hospice kin de 24/7 fɔ ansa yu mɛdikal kwɛstyɔn dɛn, dɛn nɔ kin gi yu dairekt kia to yu 24 awa ɛvride fɔ lɔng tɛm. Bifo dat, dɛn kin kam si yu di de dɛn we dɛn dɔn sɛtul. Bɔrku pipul dɛm wae kin gɛt hospice kia na os kin gɛt fambul ɔr padi dɛm wae kin kia fɔ dɛn ful-taym.

Aw lɔng pɔsin kin de na di hospice care?

Sɔm pipul dɛn kin fred se, "If wi liv lɔng pas siks mɔnt, wi go lɔs hospice?" Bɔt nɔto so i bi. Di tru tin na dat, nɔbɔdi nɔ no aw lɔng ɔda pɔsin go liv. Siks mɔnt na di tɛm we Mɛdikal de yuz. Ɔda inshɔrans kɔmni dɛn kin yuz di Mɛdikal tɛm fɔ du bak as dɛn standad. Bɔku pipul dɛn kin gɛt bɔku gud kia na hospice dat dɛn kin liv lɔng pas aw dɛn bin tink se dɛn go liv.

Yu hospice dɔktɔ go kɔntinyu fɔ asɛs yu kɔndishɔn. Dɛn kin ɛkstɛnd di kia we dɛn de kia fɔ di hospice pas siks mɔnt. If yu sik bɛtɛ, yu dɔktɔ go dischaj yu na hospice. Di bɛnifit dɛn we yu go gɛt go dipen pan di patikyula tin dɛn we yu nid.

Wetin na di difrɛns bitwin Hospice Care ɛn Palliative Care?

Bɔku pipul dɛn kin kɔnfyus bɔt dɛn tu tin ya. Lɛ wi si wetin na di difrɛns simpul wan.

Palliative care na wan kayn kia wae de pe atɛnshɔn fɔ mek pipul dɛm wae gɛt siriɔs sik gɛt bɛtɛ layf. Yu kin gɛt palliativ kia pan ɛni stej we yu gɛt siriɔs sik, wit tritmɛnt fɔ mɛn . Dis min se yu kin gɛt dis kia fɔ ridyus pen, diskɔmfɔt, ɛn maynd wɛl bɔdi we yu de tek mɛrɛsin fɔ trit di sik. Di gol na fɔ pul di prɔblɛm dɛn we kin apin to pɔsin we gɛt siriɔs sik, na in bɔdi, aw i de fil, aw i de wit ɔda pipul dɛn, ɛn aw i kin gɛt tayt padi biznɛs wit Gɔd.

Hospice care na wan kayn kia we de pe atɛnshɔn fɔ gi kɔmfɔt ɛn ɔda sɔpɔt we dɛn de mɛzhɔ di tɛm fɔ liv insay mɔnt, nɔto ia . Hospice kia kin fayn wae de tritmɛnt wae de mɛn pɔrsin nɔr de ɛp igen, ɔr wae pɔrsin dɔn disayd fɔ stɔp fɔ trit in sik. Insay hospice, di men gol na fɔ kɔmfɔt .

Imajin, sɔmbɔdi gɛt kansa ɛn dɛn de du tritmɛnt. Wae yu de du tritmɛnt, yu kin gɛt palliativ kia fɔ ridyus tin dɛm lɛk pen ɛn nɔs. Bɔt, if wan de di dɔktɔ dɛn se, "Dis kansa nɔ de mɛn igen, ɛn i bɛtɛ fɔ liv fayn fɔ di res ɔf yu layf," den yu kin tink bɔt fɔ kia fɔ yu na hospice.

Fɔ gɛt hospice kia min "giv ɔp"?

Nɔto so atɔl! Dis na sɔntin we rili impɔtant fɔ ɔndastand. Fɔ gɛt hospice kia min se yu de tray fɔ liv yu layf fayn fayn wan ɛn fayn fayn wan, pan ɔl we yu wɛlbɔdi de go dɔŋ. If yu dɔktɔ tɛl yu fɔ kia fɔ yu na hospice, i de sho aw dɛn dɔn mekɔp dɛn maynd fɔ mek yu gɛt wɛlbɔdi.

Bɔt mɛmba se di las tin we yu fɔ disayd fɔ go na di hospice care ɔ kɔntinyu fɔ gɛt tritmɛnt na yu yon. Yu kin chenj yu maynd ɛnitɛm.

Day na pat pan layf jɔs lɛk aw fɔ bɔn pikin. Day na sɔntin we wi ɔl kin gɛt sɔm tɛm. If yu gɛt siriɔs sik, fɔ tɔk to di wan dɛn we yu lɛk bɔt wetin impɔtant to yu ɛn aw (ɛn usay, wit udat) yu go lɛk fɔ spɛn di las mɔnt na yu layf, dat go ɛp yu ɛn yu famili fɔ disayd bɔt aw fɔ kia fɔ yu. If yu gɛt klia aidia bɔt wetin yu want fɔ yu las dez, dat go gi yu fridɔm fɔ liv ɛvride na yu layf wit mɔ pis na yu maynd. Tɔk to yu dɔktɔ bɔt dis bak (advance care planning).

Di tin dɛn we impɔtant pas ɔl fɔ mɛmba (Take-Home Message) .

Hospice Care na big blɛsin insay di tɛm we tin tranga pas ɔl na layf. I de gi:

• Ridyus pen ɛn diskɔmfɔt: I de ɛp yu fɔ de fil fayn as yu ebul.
• Rispɛkt ɛn Kɔntrol: I de mek yu liv di ɛnd pan yu layf wit rɛspɛkt, akɔdin to wetin yu want.
• Rilif fɔ di famili: Dis kin gi bak big sɔpɔt ɛn rilaks to di famili we de kia fɔ di pɔsin we sik.
• Wɛlbɔdi na yu maynd ɛn na yu spirit: Nɔto jɔs fɔ ɛp yu bɔdi, bɔt i de ɛp bak fɔ mek yu gɛt pis na yu maynd.
• Na nɔto "giv up": na fayn step fɔ no di rial layf ɛn mek di bɛst pan di tɛm we lɛf.

If yu ɔ pɔrsin wae yu sabi gɛt dis kayn tin, nɔr shem fɔ tɔk to yu dɔktɔ bɔt aw fɔ kia fɔ yu na hospice. I kin mek yu fil fayn we yu nɔ go ebul fɔ imajin.

` Hospice, ɛnd-ɔf-layf kia, palliativ kia, pen mɛnejɛmɛnt, krɛse sik, kɔmfɔt, kwaliti layf