Yu pikin gɛt dɛn sik ya? Lɛ wi lan bɔt Hydromyelia!

Yu smɔl pikin kin kɔmplen bɔku tɛm bɔt ed we de at? Ɔ i kin fil se i nɔ ebul fɔ du natin ɔ i kin fil se i wik? Sɔntɛnde wi kin tink bɔt dɛn tin ya as jɔs nɔmal smɔl sik, bɔt if dɛn sayn ya kɔntinyu, i go fayn fɔ mek wi wɔri smɔl. Bikɔs dɛn tin ya kin bi sayn fɔ wan sik we nɔ kin apin so ɔltɛm bɔt we kin rili siriɔs we dɛn kɔl Hydromyelia we kin afɛkt yɔŋ pikin dɛn. So, lɛ wi tɔk bɔt dis simpul we tide.

Wetin na Hydromyelia? Lɛ wi ɔndastand am simpul wan.

Fɔ tɔk am simpul wan, haydromaylia na we di sεntri kanal, di spεs we de insay di spεnal kכd, we de na di tכp pat pan di spεnal kכd na yכŋ pikin dεm we nכ de wayd. Tink bɔt dis we: wan smɔl tiub de we de rɔn dɔŋ wi spayna we dɛn kɔl di sɛntral kanal . We dis big, i kin mek wan sak we ful-ɔp wit wata we dɛn kɔl sirinks .

dis sεntri kanal kin fulכp wit wan spεshal wata we dεn k כl sεribrospεnal fכluid (CSF) . dis `(CSF)` wata de protεkt wi bren εn spεnal kכd frכm difrεn denja dεm, εn i de gi dεm bak di it we wi nid. So, we dat `(syrinx)` de fכm, dis `(CSF)` fכluid kin kכmכt εn mek mכr prכblεm.

Udat kin gɛt haydromyelia? Us pat na di bren i kin afɛkt?

dis kכndyushכn we dεn kכl haydromaylia, de apin na di fכs vεntrikl na di bren . Dis de na di say we di bren de, nia di bren stem . dis fכs vεntrikl de kכnekt to di sεntri kanal we de kכntinyu fכ dכn di spεnal kכd. Dis tan lɛk wata tank we de gi wata to paip.

dis sεntri kanal de layn insay wan spεshal tכp sεl we dεn kכl `εpεndymal sεl dεm` . dis sεl dεm de fכnshכn nכmכ na di vεntrikl dεm na di bren εn na di sεntri kanal na di spεnal kכd. Dis impɔtant fɔ mɛmba, bikɔs i kin ɛp fɔ difrɛns dis frɔm ɔda tin we wi go tɔk bɔt leta.

Dis kכndyushכn (Hydromyelia) dεn kin si pan pikin dεm we dεn bכn wit sכm kכmpleks kכndyushכn dεm na dεn bren . Fɔ ɛgzampul:

• (Chiari malformation type II) : Dis na chenj we dεn bכn (bכn insay) chenj na di strכkchכ na di bren, spεshal wan na di lכw pat na di bren.
• (Dandy-Walker syndrome) : Dis na prɔblɛm bak we dɛn kin bɔn wit we nɔ kin apin so ɔltɛm we di bak pat na di bren (di sɛribɛl) de divɛlɔp.
• (Hydrocephalus) : Dis na wetin yu go dɔn yɛri we dɛn kɔl "wata akyumuleshɔn na di bren." Pikin dεm we gεt dis kכndyushכn kin gεt `(Hydromyelia)` bak.

Na sכmtεm, min se na rεli, dis kכndyushכn kin apin bak pan pikin dεm fכ כda rizin dεm. Dɛn rizin dɛn ya na:

• Tumɔs dɛn na di bren
• Infεkshכn dεm na di bren, fכ egzampl, εnεfalaytis
• Traumatik bren injuri dɛn

Aw dis kin afɛkt di pikin in wɛlbɔdi?

we da sist we fulכp wit wata we wi bin tכk bכt, di `(syrinx)`, bigin fכ gro, i de put prεshכn pan di spεnal kכd. Tink bɔt am lɛk we yu ful-ɔp balɔ wit wata, ɛn as i de gro, i de push di tin dɛn we de rawnd am kɔmɔt, nɔto so? Na so i bi wit dis wan. dis prεshכn de mek di dilik nεv dεm na di spεnal kכd de sכk εn dεm . Na da tɛm de difrɛn sayn dɛn kin sho.

Yu tink se Hydromyelia ɛn Syringomyelia na di sem tin? Wetin na di difrɛns?

Yɛs, dɛn tu nem ya tan lɛk se dɛn rili fiba. Di sayn dɛm bak kin rili fiba. insay di tu kes dεm, wan sist we fulכp wit wata (`cyst`-like growth`) de fכm na di spεnal kכd εn i de afekt di nεv sεl dεm. Bɔt sɔm smɔl smɔl tin dɛn de we difrɛn bitwin dɛn tu tin ya, bɔt we rili impɔtant. Lɛ wi si wetin dɛn bi?

Fɔ tɔk bɔt Hydromyelia:

• Dis kin mɔna di pikin dɛn ɛn smɔl pikin dɛn . I nɔ kin izi fɔ mek big pipul dɛn gɛt am.
• dat sak we fulכp wit wata (`syrinx`) de fכm insay di sεntri kanal na di spεnal kכd.
• insay da sist de (`syrinx`) na di spεshal εpendymal sεl dεm we wi bin tכk bכt fכs.

Bɔt di sik we dɛn kɔl Syringomyelia:

• Dis kin apin mɔ pan big pipul dɛn .
• di sak we fulכp wit wata (`syrinx`) de f כm ausayd di sεntri kanal, dat na, i de nia am (bכt ausayd di sεntri kanal) .
• nכ ependymal sεl dεm de insay dis sist (`syrinx`).

Dɛn chenj ya rili impɔtant fɔ mek dɔktɔ dɛn no di rayt we fɔ no di sik ɛn no di tritmɛnt we fit pas ɔl.

Wetin mek dis haydromaylia kin apin? Wetin na di kɔz?

Fɔ tɔk tru, di wan dɛn we de stɔdi bɔt dis stil de fɛn di rayt tin we kin mek dis apin. Dat min se, i at fɔ se fɔ tru "dis na di kɔz". pan ɔl we dɛn dɔn si se i gɛt fɔ du wit kɔndishɔn dɛn lɛk `(Chiari malformation)` ɛn `(Dandy-Walker syndrome)` we wi bin dɔn tɔk bɔt bifo tɛm, dɛn de du mɔ risach bɔt aw da kɔnekshɔn de kin apin.

Wetin na di sayn dɛm fɔ dis? Aw yu no am?

Insay sɔm pikin dɛn, di sirink kin rili smɔl. If na so i bi, i nɔ kin gɛt ɛni sayn , ɔ ivin if i de, i nɔ kin bi big prɔblɛm. Di pikin kin ple ɛn wok nɔmal wan.

Bɔt if di sirinks tu big, i kin prɛs di nɛv dɛn na di spɛshal kɔd, ɛn dis kin mek yu gɛt nyuropatik pen . Dɛn kin fil dis pen difrɛn we dɛn:

• Fɔ fil lɛk se yu de bɔn ɔlsay na di bɔdi : lɛk se yu de bɔn faya.
• Wan pen we pɔsin kin fil wantɛm wantɛm , we tan lɛk we kɔrɛnt kin jok ɔ we pɔsin chuk naif .
• Numbness : Sɔntɛnde yu nɔ kin fil yu yon an ɔ fut de tɔch yu bɔdi.
• Wan filin we ant ɔ priklin (pin-ɛn-nidul ɔ tingling sensation) de swɛt yu .

Apat frɔm dɛn nerve pen ya, ɔda sayn dɛn kin apin:

• Ed kin at ɔltɛm : Dis nɔr tan lɛk nɔmal ed pen, i kin tranga smɔl.
• Lɔs fɔ fil fɔ wam ɛn kol : Dis kin denja smɔl, bikɔs di pikin kin tɔch sɔntin we wam we i nɔ no ɛn bɔn insɛf, ɔ i kin gɛt kol ɛn gɛt prɔblɛm.
• di mכsul dεm stiff: Di limb dεm kin stif εn i at fכ bεnd.
• Skɔliosis : Sɔm pikin dɛn kin gɛt kɔba spayna na wan say.
• Wiknɛs na dɛn an ɛn fut : I nɔ kin izi fɔ di pikin fɔ ple, rɔn, jomp, ɛn i kin ivin gɛt prɔblɛm fɔ waka.

Imajin yu pikin de ple ɛn kray wantɛm wantɛm se, "Mama, mi an de tingling, i tan lɛk se ant de it am." Ɔ, dɛn kin tɔk ɔltɛm se, "A taya, mi leg dɛn kin fil lɛk se a nɔ gɛt bɛtɛ trɛnk." Nɔ jɔs giv ɔp pan tin dɛn lɛk dis.

Aw dɔktɔ dɛn kin no bɔt dis?

If yu pikin gɛt dɛn sik ya, yu fɔ rili go to dɔktɔ. Dɔktɔ go du bɔku tɛst fɔ no if dis na haydromaylia.

1. Nyurolɔjik ɛgzam : Fɔs, di dɔktɔ go chɛk di pikin gud gud wan. I go aks yu bɔt di pikin in sik ɛn aw i bad. I go luk di we aw di pikin de waka, rɔn, jomp, es ɛn dɔŋ in an ɛn fut, in mɔsul dɛn trɛnk, ɛn sɛns.

2. MRI skan : Dis na di impɔtant ɛn kɔrɛkt we fɔ no dis sik. MRI skan kin tek ditayli pikchɔ dɛn bɔt di spayna ɛn di bren. dis kin si klia wan if di sist we fulכp wit wata (syrinx) de, aw i big, εn if εni כda tin dεm we nכ de na di spayna.

3. Electromyography (EMG) : Dɛn kin du dis tɛst bak sɔm tɛm. I kin gi yu aidia bɔt aw di nerve ɛn mɔsul dɛn de wok. spεshal wan, i kin εp fכ difrεnt dis frכm כda kכndyushכn dεm lεk Syringomyelia.

Yu tink se smɔl sist kin bi haydromaylia?

Yɛs, dis na impɔtant kwɛstyɔn. ivin if MRI sho wan rili sכm, sכmtεm lεk slit, sist na di fכs vεntrikl, dat kin bi bak Hydromyelia. Ivin if di sist rili smɔl, i kin stil mek yu gɛt sɔm sayn dɛn .So fɔ no ɛn no di kɔrɛkt wan ivin smɔl smɔl tumbu dɛn lɛk dis, dɛn nid dɔktɔ we gɛt ɛkspiriɛns ɛn we spɛshal pan nyurolɔji.

Wetin na di tritmɛnt dɛm fɔ dis? (Tritmɛnt)

Di tritmɛnt fɔ haydromyelia de dipen pan di pikin in sik ɛn aw i siriɔs. Nɔto ɔl pikin dɛn kin gi di sem tritmɛnt.

• Sɔm sik ɔ nɔ gɛt ɛni sayn : If yu pikin nɔ gɛt bɛtɛ sayn, ɔ nɔ gɛt ɛni sayn atɔl , yu nɔ go nid ɛni tritmɛnt . Bɔt di dɔktɔ go kɔntinyu fɔ wach yu pikin fɔ si if ɛni chenj de.
• Disturbing symptoms : If simptom dɛm lɛk fɔ gɛt mɔsul dɛm we de stif ɛn wik de ambɔg yu pikin in wok ɛvride, fizik tritmɛnt kin gi am big rilif. Wan dɔktɔ we de mɛn yu pikin go tich yu pikin ɛksesaiz ɛn aw fɔ mek in mɔsul dɛn strɔng we go fayn fɔ yu pikin.
• Mɔdaret ɛn siriɔs sayn dɛm : If di simptom dɛm rili bad, we min se di pikin de gɛt bɔku pen ɛn nɔr de fil fayn, bɔku tɛm i kin nid fɔ du ɔpreshɔn .

Yu tink se a nid ɔpreshɔn? Us kayn ɔpreshɔn?

If di sayn dɛn rili bad, bɔku tɛm na ɔpreshɔn na di bɛst sɔlv. dis involv fכ put shunt fכ εp di pikin in bren fכ drεn di CSF (sεribrospεnal fכluid) nכmal wan.

Dis `shunt` na wan tin we rili dilik, we tan lɛk smɔl tiub. i de mek wan rod fכ di εksyכs `CSF` fכs we dεn kכlכm na di `fכs vεntrikl` fכ fכ fכlכ to כda pat pan di bכdi (usually di abdominal cavity). dis de ridyus di prεshכn insay di `syrinx` εn i de ridyus di simptom dεm.

Dis shunt ɔpreshɔn na wan nyurosɔjɔn de du am. I kin ridyus di sayn dɛm fɔ sɔm tɛm ɔ fɔ ɔltɛm . Bɔt sɔm pikin dɛn kin nid pas wan shunt insay dɛn layf, ɔ dɛn kin nid ɔpreshɔn fɔ kɔrɛkt wan shunt we dɔn de.

No we nɔ de fɔ mek dis nɔ apin?

Bɔt i sɔri fɔ no se dɛn nɔ no di rayt tin we kin mek pɔsin gɛt haydromaylia, so naw, no patikyula we nɔ de fɔ mek i nɔ apin . As wi bin dɔn tɔk, bɔku tɛm i kin gɛt fɔ du wit ɔda tin dɛn we dɛn kin bɔn wit (we kin de we dɛn bɔn am), so if dɛn nɔ kin ebul fɔ avɔyd dɛn ɔndalayn kɔndishɔn dɛn de, i nɔ kin izi fɔ mek dɛn nɔ gɛt dis wan bak.

Wetin na di fiuja fɔ pikin we gɛt Hydromyelia? (Prɔgnosis) .

Dis na di big kwɛstyɔn we ɔl mama ɛn papa gɛt. I at fɔ tɔk ɛnitin we difinitiv bɔt di fiuja fɔ pikin we gɛt `(Hydromyelia)`, bikɔs i kin difrɛn frɔm wan pikin to ɔda pikin.

• Na smɔl nɔmba pan pikin dɛn, di sik kin dɔn fɔ dɛnsɛf, dɛn nɔ kin gɛt ɛni tritmɛnt, ɔ dɛn kin stebul na di sem lɛvul . Bɔt dis kin tek lɔng lɔng tɛm.
• Bɔku pikin dɛn kin gɛt bɔku rilif frɔm dɛn sik dɛn afta dɛn dɔn gɛt shunt. Bɔt sɔntɛnde di sayn dɛn kin kam bak . Dat min se, di ol sik kin kam bak afta sɔm tɛm.
• So, i rili impɔtant fɔ kɔntinyu fɔ go to di dɔktɔ ɛn mek dɛn chɛk yu pikin (nyurolɔjik ɛgzam) ɛn if nid de, dɛn fɔ du MRI skan. Dis go ɛp fɔ no kwik if di sik kam bak ɔ if prɔblɛm de wit di shunt.

Aw pikin wae gɛt Hydromyelia de liv in layf ɛvride?

Aw dis sik kin afɛkt pikin in ɛvride layf kin dipen ɔl pan aw di sik dɛn kin tranga.

• If di sayn dɛm nɔr kin tranga , di pikin kin du in ɛvride woke lɛk aw i fɔ du. Sɔm smɔl tin kin de we kin mek pɔsin nɔ fil fayn, bɔt i nɔ kin bi prɔblɛm ɔltɛm.
• Bɔt if sɔm kayn sik dɛn de, layf kin tranga smɔl fɔ di pikin ɛn di famili :
• Pen : Dis kin kam ɛn go wantɛm wantɛm. Bikɔs yu nɔ go ebul fɔ no ustɛm ɔ aw i go kam, di pikin kin fred ɔltɛm ɛn nɔ kin fil fayn.
• Mɔsul dɛn we stif ɔ wik : Dis kin mek i nɔ izi fɔ di pikin fɔ muv, ple, kray, waka, ɛn du skul wok. Dɛn kin avɔyd fɔ du tin dɛn we dɛn kin ɛnjɔy wit ɔda pikin dɛn.
• Ɛd we de at : We pikin kin gɛt ed we kin at ɔltɛm, i kin mek i vɛks, i nɔ kin rɛst, ɛn i kin mis skul wok.

Mama ɛn papa dɛn nid bɔku peshɛnt, ɔndastandin, ɛn trɛnk fɔ kia fɔ pikin lɛk dis. I rili impɔtant fɔ fala di dɔktɔ in instrɔkshɔn, du tin lɛk fyzikal tritmɛnt fayn fayn wan, ɛn gi di pikin saykolojik sɔpɔt.

Di impɔtant tin dɛn we wi nid fɔ mɛmba (Take-Home Message) .

Okay, so, frɔm wetin wi dɔn tɔk bɔt, dɛn tin ya na di impɔtant tin dɛn we yu nid fɔ mɛmba:

• haydromyelia na wan kכndishכn we nכ kin apin bכt i kin kכnsεn we wan sak we fulכp wit wata (syrinx) de fכm na di sεntri kanal na di spεnal kכd insay yכŋ pikin dεm.
• Bikɔs wi nɔ no di rayt tin we kin mek dis apin, no we nɔ de fɔ mek i nɔ apin.
• Di sayn dɛm kin difrɛn frɔm wan pikin to ɔda pikin. Di men wan dɛm na inflamɛns, swɛt, wik na di limb dɛm, ed we de at, ɛn nɔ ebul fɔ fil ɔt/kol.
• Na MRI skan nɔmɔ dɛn kin no di sik kɔrɛkt wan.
• Di tritmɛnt dipen pan di sayn dɛm. Sɔm pipul dɛn nɔ kin nid tritmɛnt, sɔm kin nid fɔ gɛt fizik tritmɛnt, ɛn ɔda wan dɛn kin nid fɔ gɛt ɔpreshɔn pan shunt.
• Di tin we impɔtant pas ɔl na dat if yu tink se yu pikin gɛt wan ɔ mɔ pan dɛn sik ya, nɔ fred ɛn go to dɔktɔ we sabi du di wok wantɛm wantɛm, mɔ to dɔktɔ we de mɛn nyuro. If dɛn no di pikin kwik kwik wan, dat kin ɛp fɔ gi di pikin di tritmɛnt we i nid ɛn fɔ mek i liv bɛtɛ layf.

If yu gɛt ɛni ɔda kwɛstyɔn bɔt dis, mek shɔ se yu tɔk to yu dɔktɔ. A op se dis infɔmeshɔn go ɛp yu!

`Hydromyelia, spɛshal kɔd, bren, fluid sist, syrinx, CSF, pikin dɛn sik, nyurolɔjik sik, shunt ɔpreshɔn