Yu dɔktɔ dɔn gi yu ɔ pɔsin na yu famili Ibrutinib? Yu go mɔs gɛt bɔku kwɛstyɔn bɔt dis mɛrɛsin, mɔ bikɔs i kin kam insay likwid (suspension) fɔm. Yu kin de wɔnda tin dɛm lɛk, "Wetin ɛksaktɔli dis de du?", "Wetin na di prɛkoshɔn dɛm?", "Ɛni sayd ɛfɛkt de?" Nɔ wɔri, na nɔmal tin. Lɛ wi tɔk bɔt ɔl dis simpul wan ɛn klia wan.
Fɔ tɔk am simpul wan, wetin na Ibrutinib?
Ibrutinib na wan targeted therapy drug we de kɔntrol di growth ɛn spred fɔ di kansa sɛl dɛm. Dɛn kin yuz am mɔ fɔ mɛn kansa na di blɔd ɛn di limfatik sistɛm, lɛk lukimiya ɛn limfoma.
Imajin se di kansa sel dεm gεt spεshal mεsenja (wan protin) we de tεl dεm fכ "divayd εn mכltiply." Wetin Ibrutinib de du na fɔ blok di akshɔn we da mɛsenja de du. Dɔn di kansa sɛl dɛn kin lɔs di signal fɔ gro. Dis we ya, dɛn kin kɔntrol di we aw di kansa sɛl dɛn kin skata.
pan tap dat, sכmtεm dεn kin yus dis mεdisin fכ trit wan spεshal riakshכn (krכnik graft vεrs di hכst sik) we kin apin afta dεn transplant bon mכro.
Tin dɛm wae yu fɔ tɛl yu dɔktɔ bifo yu bigin dis mɛrɛsin
Fɔ mek yu sef, i rili impɔtant fɔ tɔk to yu dɔktɔ opin wan bifo yu bigin dis mɛrɛsin. If ɛni wan pan dɛn tin ya apin to yu, mek shɔ se yu tɛl yu dɔktɔ.
| Di sityueshɔn ɔ abit we de apin to yu | Wetin mek dat impɔtant? |
|---|---|
| Blɔd disɔda ɔr kin lɛk fɔ blɔd izi wan | Ibrutinib kin mek yu gɛt mɔ blɔd. |
| Shuga | Di mɛrɛsin kin afɛkt di blɔd shuga lɛvɛl. |
| If dɛn jɔs dɔn du ɔpreshɔn pan yu ɔ yu de plan fɔ du am tumara bambay | I kin nid fɔ stɔp fɔ tek di mɛrɛsin fɔ sɔm tɛm bifo ɛn afta dɛn du di ɔpreshɔn. |
| At sik, ay blɔd prɛshɔn, ɔ ay kɔlɔstrel | Dis mɛrɛsin kin afɛkt di at rit ɛn blɔd prɛshɔn. |
| Liva sik | Bikɔs na di liva de prosɛs di mɛrɛsin, i kin nid fɔ chenj di doz. |
| If yu de tek mɛrɛsin dɛn we de mek yu blɔd tan (e.g. Aspirin, Warfarin, Clopidogrel) . | Di risk fɔ blɔd kin rili bɔku. |
| If yu de smok | Smok kin afɛkt di we aw sɔm mɛrɛsin dɛn kin wok. |
| If yu gɛt bɛlɛ, yu de tray fɔ gɛt bɛlɛ, ɔ yu de gi pikin in bɛlɛ | Dis mɛrɛsin kin ambɔg di pikin we nɔ bɔn yet ɛn i kin pas to di mama in milk. |
| If yu gɛt alɛji to ɔda mɛrɛsin, it, ɔ day | Yu fɔ no di pɔsibul fɔ mek yu gɛt alɛji fɔ ibrutinib. |
Aw a fɔ yuz di mɛrɛsin?
Bikɔs dis na wata, i rili impɔtant fɔ no di rayt we fɔ yuz am.
- Tek as yu dɔktɔ tɛl yu fɔ tek am: Tek di doz we yu dɔktɔ tɛl yu fɔ tek, di sem tɛm ɛvride. If yu tek am di sem tɛm we yu nɔ chenj di tɛm, dat go ɛp yu fɔ gɛt bɛtɛ rizɔlt.
- Shek gud gud wan bifo yu yuz am: Bikɔs dis na wata, sɔm pat dɛn pan di mɛrɛsin kin sidɔm na di bɔtul in bɔtul. So, shek di bɔtul fayn fayn wan bifo yu yuz am.
- Yuz di kɔrɛkt tin fɔ mɛzhɔ: Na di spɛshal ɔral sirinj ɔ mɛzhɔ kɔp nɔmɔ we de kam wit di mɛrɛsin. Nɔ yuz ti spɔnj ɔ sup spɔnj we yu kin yuz na os, bikɔs dɛn nɔ kin gi yu kɔrɛkt mɛzhɔ.
- Nɔ chenj di doz bay wilful:If yu gɛt sayd ɛfɛkt, yu dɔktɔ kin ridyus yu doz ɔ stɔp fɔ tek di mɛrɛsin fɔ sɔm tɛm. Bɔt nɔ ɛva stɔp fɔ tek di mɛrɛsin ɔ chenj di doz if yu dɔktɔ nɔ advays yu.
I rili impɔtant: Nɔ it grep ɔ drink grep jus we yu de tek dis mɛrɛsin. Dɔn bak, nɔ it Sɛvil ɔrɛnj. Dɛn frut ya kin ambɔg di we aw di mɛrɛsin de wok na yu bɔdi.
Wetin fɔ du if yu mis wan doz fɔ mɛrɛsin?
If yu fɔgɛt fɔ tek wan doz, tek am jɔs lɛk aw yu mɛmba. Bɔt if i dɔn lɛf smɔl fɔ lɛ yu tek yu nɛks doz (e.g., i jɔs de fɔ sɔm awa), skip di doz we yu mis ɛn tek yu nɛks doz na di tɛm we dɛn dɔn sɛtul. Nɔ tek dabl doz fɔ mek di doz we yu mis.
Wetin a go du if a tek bɔku mɛrɛsin?
If yu tink se yu dɔn tek bɔku mɛrɛsin, nɔ panik. Wantɛm wantɛm, kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital. Ɔ go na di Imejɛnsi Tritmɛnt Yunit (ETU) na di ɔspitul we de nia yu.
Ɔda tin dɛm wae kin miks wit dis mɛrɛsin
I impɔtant fɔ tɛl yu dɔktɔ bɔt ɔl di mɛrɛsin dɛn we yu de tek, lɛk di mɛrɛsin dɛn fɔ ɔda sik dɛn, vaytamɛn dɛn, tradishɔnal mɛrɛsin dɛn, ɛn ɔyl dɛn. If yu nɔ du dat, dat kin mek yu gɛt bad bad sayd ɛfɛkt dɛn.
Ibrutinib kin intarakt wit ɔda mɛrɛsin dɛn. Tek tɛm mɔ wit dɛn mɛrɛsin ya:
- Sɔm antibayɔtik ɛn antifɔngal
- Sɔm mɛrɛsin fɔ HIV ɔ epataytis
- Ɔda mɛrɛsin dɛn we de mek pɔsin nɔ gɛt kansa
- Sɔm mɛrɛsin dɛn fɔ mek pɔsin gɛt sik we de mek i sik
- Ɛrb dɛn lɛk Sɛnt Jɔn Wɔt
Dis nɔto kɔmplit list, so i go fayn fɔ tɛl yu dɔktɔ bɔt ɔltin we yu de tek.
Tin dɛn we yu fɔ tek tɛm wit we yu de tek mɛrɛsin
- Fɔ chɛk yu dɔktɔ ɔltɛm: Yu dɔktɔ go nid fɔ si yu ɔltɛm. I go ɔda bak fɔ mek dɛn du blɔd tɛst ɔltɛm fɔ si aw di mɛrɛsin de afɛkt yu bɔdi. Nɔ skip dɛn tin ya.
- Wach fɔ blɔd: Dis mɛrɛsin kin mek yu gɛt mɔ blɔd. Yu kin brus izi wan, ɔ ivin we yu kɔt smɔl, i kin tek lɔng tɛm fɔ lɛ yu stɔp fɔ blɔd. Tɛl yu dɔktɔ if yu notis ɛni blɔd we nɔ kɔmɔn (e.g., blɔd we de kɔmɔt na yu gɔm, blɔd we de kɔmɔt na yu nos).
- Tek tɛm wit infɛkshɔn: Yu imyun sistɛm kin wik smɔl. So, yu kin gɛt infɛkshɔn mɔ. If yu gɛt sɔm kayn sik lɛk fiva, bɔdi we de at, kɔf, ɔ yu nos we de rɔn, nɔr de mɛn yusɛf ɛn tɛl yu dɔktɔ. Avɔyd ples dɛn we pipul dɛn kin ful-ɔp ɛn ples dɛn we sik pipul dɛn de as mɔ as yu ebul.
- Dental tritmɛnt: If yu go gɛt dɛnt tritmɛnt ɔ ɔpreshɔn, mek shɔ se yu tɛl yu dɛntist se yu de tek Ibrutinib. I bɛtɛ fɔ mek yu nɔ du big ɔpreshɔn pan yu tit we yu de tek dis mɛrɛsin.
- Bεlε εn we yu de gi pikin in bεlε: Dis rili impɔtant. Nɔ gɛt bɛlɛ we yu de tek dis mɛrɛsin ɛn fɔ wan mɔnt afta yu dɔn stɔp am. Dɔn bak, nɔ gi pikin in bɛlɛ we yu de tek dis mɛrɛsin ɛn fɔ wan wik afta yu dɔn stɔp am. If yu gɛt ɛni kwɛstyɔn bɔt dis, tɔk to yu dɔktɔ.
Sayd ɛfɛkt dɛn we kin apin bikɔs ɔf mɛrɛsin
Lɛk ɛni mɛrɛsin, dis wan kin gɛt sayd ɛfɛkt. Sɔm dɛn denja, sɔm nɔmal.
| Siriɔs sayd ɛfɛkt dɛm we dɛn fɔ ripɔt to di dɔktɔ wantɛm wantɛm | |
|---|---|
| Alɛji we pɔsin kin gɛt | Skin rash, it, swel na yu fes, lip ɔ tong, i nɔ izi fɔ blo. |
| Blɔd we de kɔmɔt | Blak ɔ tar stɔl, vɔmit we tan lɛk kɔfi grɔn, rɛd/dak brawn urine, brus we nɔ kɔmɔn ɔ smɔl rɛd/pɔpul spat na di bɔdi. |
| Prɔblɛm dɛn we gɛt fɔ du wit at | I nɔ kin izi fɔ blo, di anklɛ ɛn fut kin swel, we yu gɛt wet wantɛm wantɛm, taya we yu nɔ kin taya, yu at kin bit fast ɔ we nɔ kin bit ɔltɛm, yu chɛst kin pen. |
| Sik we de prɛd | Fiva, kol, kɔf, trot we de at, wund dɛn we nɔ de wɛl. |
| Tumɔr Lisis Sindrom (TLS) . | Vɔmit, nɔs, dayarɛa, yu nɔ de pis smɔl, yu mɔsul dɛn de twitch, yu jɔyn dɛn de pen. |
| Sayd ɛfɛkt dɛm wae nɔr kin denja, bɔt dɛn fɔ ripɔt to di dɔktɔ if dɛn kɔntinyu fɔ de | |
| Rɔnbɛlɛ | Bɛlɛ we de at |
| Taya | Fɔ fil se yu taya pasmak ɛn yu taya. |
| Pen | Ed pen, mɔsul pen, bon pen, bɛlɛ pen. |
| Vɔmit | Fɔ fil lɛk se yu de vɔmit. |
Aw yu kin kip ɛn trowe di mɛrɛsin?
- Fɔ kip am: Stɔr am na rum tɛmpracha (bitwin 20-25 digri sɛlshiɔs) usay pikin ɛn animal dɛn we dɛn kin mɛn nɔ go ebul fɔ rich. Ɔltɛm, kip di mɛrɛsin insay in fɔs bɔtul.
- Aw fɔ trowe am: Mek shɔ se yu trowe ɛni mɛrɛsin we lɛf insay 60 dez afta yu opin di bɔtul. Di bɛst we fɔ trowe di mɛrɛsin we dɔn pas ɔ we yu nɔ want na fɔ kɛr am go na program fɔ tek mɛrɛsin bak na yu ɔspitul ɔ famasi. If dat nɔ pɔsibul, put di likwid mɛrɛsin insay bag, miks am wit sɔntin lɛk kɔfi grɔn we dɛn dɔn yuz, dɔti, ɔ pusi dɔti, sial di bag tayt, ɛn trowe am na dɔti. Nɔ ɛva flush am dɔŋ di tɔylɛt.
Mɛsej we dɛn kin kɛr go na os
- Ibrutinib na impɔtant mɛrɛsin fɔ mɛn kansa. Tek di rayt doz lɛk aw di dɔktɔ tɛl yu.
- Tɛl yu dɔktɔ bɔt ɔl di ɔda mɛrɛsin dɛn we yu de tek, ivin di vaytamɛn dɛn.
- Nɔ it grep ɛn Sɛvil ɔrɛnj ɔltogɛda we yu de tek di mɛrɛsin.
- Wach fɔ blɔd we nɔ kɔmɔn, fiva, ɔ sayn dɛn we de sho se yu gɛt di sik. If yu notis ɛnitin lɛk dat, tɛl yu dɔktɔ wantɛm wantɛm. (Wetin, dat na Tamil/Malayalam. Lɛ wi fiks am.) If yu notis ɛnitin lɛk dat, tɛl yu dɔktɔ wantɛm wantɛm.
- Nɔ gɛt bɛlɛ ɛn gi pikin in bɛlɛ we yu de tek di mɛrɛsin ɛn fɔ di tɛm we dɛn tɛl yu fɔ gi yu pikin.
- If yu gɛt ɛni kwɛstyɔn ɔ dawt, mek shɔ se yu tɔk to yu dɔktɔ bɔt am. Nɔ fred ɔ disayd fɔ yusɛf.
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