Yu pikin gɛt cleft palata? (Cleft Palate) - Mek wi tok abaut am ol!

Sɔntɛnde we yu luk pikin we dɛn jɔs bɔn, yu kin si smɔl difrɛns na di ruf na dɛn mɔt. I min se smɔl krak krak na di ruf na dɛn mɔt. Dis na wetin wi de kɔl am wit mɛrɛsin `(Cleft Palate)`. We sɔm mama ɛn papa dɛn yɛri dɛn wɔd ya, dɛn kin fred smɔl ɛn wɔri. "O, wetin don hapun to wi pikin?" Yu kin tink. Bɔt, rili no rizin nɔ de fɔ mek wi fred ɔ wɔri. If wi no dis fayn fayn wan, wi go ebul fɔ bia wit dis sik fayn fayn wan.

Wetin na Klɛft Palate?

Fɔ tɔk am simpul wan, di Inglish wɔd ‘cleft’ min krak ɔ gap. ‘Palate’ de tכk bכt di pat pan di ruf na wi mכt, di ruf na wi mכt. If yu rɔn yu tong oba di ruf na wi mɔt, yu go fil smɔl simpul ɔ knot na di midul, nɔto so? Na de, we yu bin smɔl na yu mama in bɛlɛ, di rayt ɛn lɛft say na di ruf na yu mɔt bin jɔyn togɛda. I tan lɛk se yu de siŋ tu klos togɛda.

Bɔt we dɛn bɔn sɔm pikin dɛn, dɛn tu pat ya na di ɔpa palata nɔ kin kam togɛda jɔs. Dat min se di sim nɔ kɔmplit. na we dis kכndishכn we dεn kכl `(Cleft Palate)` de apin, dat na krak krak na di כp palata. Dis na wan sik we dɛn bɔn wit . Dat min se na sɔntin we dɛn bɔn di pikin wit.

Wetin mek di palata kin skata?

Bɔku tɛm mama ɛn papa dɛn kin wɔnda se, "Wetin mek dis apin to wi pikin?" "Wi du somtin rong?" Infakt, i at fɔ sho jɔs wan rizin. Bɔku rizin dɛn de we kin apin. Lɛ wi tek wan luk pan wetin dɛn bi:

• jεnεtik fכs: sכmtεm, if pכsin na di famili, dat na di mama, papa, כ pכsin na dεn famili, dεn bin gεt dis kכndyushכn bifo, sכm chans de fכ di pikin bak gεt dis kכndyushכn. Dat min se sɔntin de we de ambɔg di jin dɛn.
• Sɔm tin dɛn we de apin na di say we i de ɛn ɔda tin dɛn we kin afɛkt di mama we i gɛt bɛlɛ:
• Sɔm mɛrɛsin dɛn we di mama kin tek we i gɛt bɛlɛ (espɛshali di wan dɛn we i tek we i nɔ gɛt dɔktɔ advays, we i want). Fɔ ɛgzampul, sɔm mɛrɛsin dɛn we dɛn kin gi fɔ mek pɔsin gɛt ɛpilepshɔn kin afɛkt am.
• If di mama smok ɔ yuz rɔm we i gɛt bɛlɛ , dɛn tin ya kin afɛkt di pikin in divɛlɔpmɛnt dairekt wan.
• We di mama gɛt bɛlɛ, i nɔ kin gɛt di tin dɛn we i nid lɛk fɔlik asid . Bɔku tɛm, dɔktɔ dɛn kin tɛl uman dɛn we gɛt bɛlɛ fɔ gi fɔlik asid pil fɔ ɛp fɔ mek dɛn nɔ gɛt dɛn sik ya.
• Sɔm vayral infɛkshɔn dɛm we di mama kin gɛt we i gɛt bɛlɛ.
• If di mama gɛt sik dɛn we i nɔ ebul fɔ kɔntrol lɛk Dayabitis Mɛlitɔs .
• If di mama fat pasmak.

Bɔt bɔku tɛm, di palata kin skata we nɔ gɛt ɛni rizin we klia. Dat min se, sɔntɛm no klia rizin nɔ go de. So nɔ ɛva fil bad bɔt am we yu tink se na yu fɔlt. I kin apin to ɛnibɔdi.

Yu tink se kayn tin dɛn de we de mek pɔsin in palata skata?

Yɛs, dɛn krak krak ya na di ɔp aylid kin gɛt difrɛn shep ɛn saiz. Fɔ tɔk di kɔrɛkt tin, smɔl difrɛns de dipen pan di sayz we di krak krak ɛn usay i de.

• Sɔm bebi dɛn kin jɔs gɛt skel na dɛn ed .
• Sɔm pikin dɛn kin gɛt bak dɛn lip we skata ɛn dɛn palata kin skata . Dis min se wan skel de na di lip ɛn di ɔpa palata. I kin bi jɔs di lip we skata ɔ jɔs di ɔpa palata.
• di cleft kin komplit , we min se di cleft kin kכmכt frכm di bכtכm pat na di nos כl di we to di bak pat pan di כp palata.
• Ɔ i kin bi cleft we nɔ kɔmplit , we min se di cleft de na smɔl pat nɔmɔ na di ɔpa palata.
• כda spεshal tכp na di sכbmכkus cleft palata . If na so i bi, yu nɔ go si di say we di skel kɔmɔt na do. pan ɔl we di skin (mucous membrane) we de oba di ɔpa palata dɔn lɔk fayn fayn wan, di mɔsul dɛn we de ɔnda am nɔ dɔn jɔyn fayn fayn wan. Sɔntɛnde dɛn kin no dis smɔl leta, we di pikin bigin fɔ tɔk, as chenj na in vɔys.

Us prɔblɛm dɛn pikin kin gɛt bikɔs in palata skata?

If yu palata skata, dat kin mek yu pikin gɛt sɔm smɔl smɔl prɔblɛm dɛn. Lɛ wi tek wan luk pan wetin dɛn bi. Fɔ no dɛn tin ya rili impɔtant fɔ ɛp yu pikin.

• I nɔ izi fɔ it:

Dis na di men prɔblɛm we wi kin si fɔs. Imajin, we di pikin de sok milk, di milk kin go insay di nos bikɔs ɔf dis gap bitwin di mɔt ɛn di nos. Dɔn i nɔ kin izi fɔ di pikin fɔ sok di milk fayn fayn wan, i kin at fɔ blo we i de sok milk, di milk kin kɔmɔt na in nos, ɛn bɔku tɛm di milk kin go bak na in trot. Bikɔs ɔf dis, di pikin nɔ kin gɛt bɛtɛ tin fɔ it ɛn i nɔ kin gɛt mɔ wet. fכ dis, dכkta dεn kin advays fכ yuz spεshal fכ it, sכmtεm spεshal nipl/bכtul dεm.

• Prɔblɛm dɛn we pɔsin kin gɛt we i de tɔk:

As yu pikin de ol ɛn bigin fɔ tɔk, difrɛns kin de na in vɔys. Bikɔs di palata skata, i nɔ kin izi fɔ kɔntrol di kayn briz we de kɔmɔt na di nos we yu de tɔk. dis kin mek di vɔys kin saund lεk se dεn de tכk am tru di nos (hypernasal speech / nasal voice) . Sɔm lɛta dɛn, mɔ lɛta dɛn lɛk ‘প’, ‘ব’, ‘ত’, ‘দ’, ‘ক’, ‘g’, kin at bak fɔ kɔl kɔrɛkt wan.

• Infɛkshɔn na yu yes ɛn prɔblɛm wit yu yɛri:

Wan smɔl tiub de bitwin di tap pat pan wi nos ɛn di midul yes we dɛn kɔl di Yustachian tiub.dis tכb de rεgεl di prεshכn insay di yes εn i de drεn wata frכm di midul yes. we cleft de na di כp yes, di wok we dis Yustachian tyub de du kin ambɔg. afta dat, wata kin gɛda na di midul ia, we kin mek yu yes gɛt infɛkshɔn bɔku tɛm (midul ia infɛkshɔn / ɔtitis midia) , ɛn yu nɔ kin yɛri smɔl. If dis kɔntinyu, i kin afɛkt bak di pikin in tɔk we i de tɔk.

• Prɔblɛm dɛn we gɛt fɔ du wit dɛn tit:

Dipen pan usay di cleft palata de, smɔl prɔblɛm dɛn kin apin we di tit dɛn kam insay.Dɛn kin pul di tit dɛn, sɔm tit dɛn kin mis, di tit dɛn kin kam let, ɔ dɛn kin nid fɔ put ɛkstra tit dɛn insay . So, di advays fɔ dɛntist (`(Dentist)` ɔ `(Orthodontist)`) nid fɔ de ɔltɛm.

Aw dɛn kin no dis cleft palata?

Bɔku tɛm, dɛn kin no dis skel we dɔktɔ dɛn kin chɛk insay di pikin in mɔt na di ɔspitul jɔs afta dɛn bɔn di pikin. Dat na di we we pipul dɛn kin yuz mɔ.

sכmtεm, di כltra saund skan dεm we dεn du bifo dεn bכn we uman bεlε kin gi klyu fכ dis kכndyushכn, spεshal wan if lip εn palata we kכlכs de. Bɔt if na klef palata nɔmɔ de, dat min se if lip nɔ skata, i kin at fɔ no am na di skan.

di sabmucous cleft palate we a bin tכk bכt, sכmtεm dεn kin no am nכmכ we di pikin big sכmtεm, fכ egzampl we dεn bigin fכ tכk εn gεt vכys prכblεm, כ we dεn gεt infεkshכn na in yes bכku tεm.

Wetin na di tritmɛnt dɛm fɔ dis? Na sɔntin we wi fɔ fred?

Fɔs, dis na sik we pɔsin kin mɛn ɔltogɛda . So nɔ wɔri. We di mɛrɛsin dɛn we dɛn de yuz tide dɔn go bifo, tritmɛnt dɛn de we rili fayn fɔ dis pikin.

Di men tritmɛnt na fɔ lɔk di cleft wit ɔpreshɔn . Dɛn kɔl dis palatoplasty . dis opareshכn involv fכ jכyn di tisu dεm na di tu say dεm na di palata εn stich di sכm sכm tכgeda. dis de mek di palata strכkchכ bak.

Ustɛm dɛn go du di ɔpreshɔn?

Dɛn kin du dis ɔpreshɔn bitwin 6 ɛn 18 mɔnt . Bɔt di dɔktɔ go disayd di bɛst tɛm bay di pikin in wɛlbɔdi, di stej we i de gro, ɛn di wet we i gɛt. Sɔntɛnde, dɛn kin du am bifo tɛm ɔ leta.

Wetin na di gol dɛn fɔ di ɔpreshɔn?

• Fɔ mek i izi fɔ it ɛn drink bay we yu nɔ gɛt di kɔnekshɔn bitwin di mɔt ɛn di nos.
• I de ɛp fɔ mek di mɔsul dɛn na di ɔpa jaw kɔntinyu fɔ wok fayn ɛn fɔ tɔk klia wan we yu de tɔk .
• i de mek di Yustachian tiub wok bak εn i de ridyus di infεkshכn we de apin na di yes .

Di mɛdikal tim we de trit

We yu de trit pikin lɛk dis, i nɔ jɔs bi wan dɔktɔ, bɔt na wan tim we gɛt spɛshal pipul dɛn (`(Multidisciplinary Team)`)Dɛn kin wok togɛda. Dis tim kin gɛt:

• Plastik ɛn Rikɔnstrɔktiv Sɔjɔn dɛn : Dɛn kin du di men ɔpreshɔn.
• Ear, Nose and Throat Specialists (ENT Surgeons) : Dɛn kin trit prɔblɛm dɛn we gɛt fɔ du wit yes ɛn dɛn kin du tɛst fɔ yɛri.
• Speech and Language Therapists : Dɛn kin trit ɛn advays bɔt di prɔblɛm dɛn we pɔsin kin gɛt we i de tɔk.
• Ɔtodɔntist ɛn Pikin Dɛntis : Dɛn de luk afta dɛn tit prɔblɛm ɛn di jaw divɛlɔpmɛnt.
• Pikin dɛm : Fokus pan di ɔl di pikin in wɛlbɔdi.
• Sɔntɛm, saykayatrist ɛn soshal woka dɛn kin jɔyn dis tim fɔ gi di mama ɛn papa dɛn di saykolojik sɔpɔt we dɛn nid.

Ɔl dɛn pipul ya kin wok togɛda fɔ mek ɛn impruv di bɛst tritmɛnt plan fɔ di pikin.

Wetin kin apin afta di ɔpreshɔn? Aw di kia fɔ lɔng tɛm tan lɛk?

Ivin afta di ɔpreshɔn dɔn fayn, di pikin go nid spɛshal atɛnshɔn ɛn fɔ fala am fɔ sɔm tɛm.

• Spich Tɛrapi (`(Spich Tɛrapi)`):

Sɔm pikin dɛn kin gɛt sɔm prɔblɛm fɔ tɔk ivin afta dɛn dɔn du di ɔpreshɔn. If dɛn kayn tin ya apin, i rili impɔtant fɔ lɛ pɔsin we de mɛn pipul dɛn we de tɔk, ɛp dɛn. Na dɛn kin tich di pikin fɔ kɔl di wɔd dɛn kɔrɛkt wan, fɔ tɔk klia wan, ɛn fɔ yuz di mɔsul dɛn na di ɔp jaw fayn fayn wan. Dis kin tek sɔm tɛm.

• Dental ɛn Ɔtodɔnt Keya:

We di tit dɛn kam insay, dɛn fɔ pe spɛshal atɛnshɔn to usay di tit dɛn de. So, i fayn ɔltɛm fɔ go to dɛntist ɛn gɛt advays. if eni gap de na di tit, dεn kin du tin lεk כtodכnt tritmεnt / bres we di pikin big sכmtεm.

• Keya fɔ yɛri (`(Chɛk fɔ yɛri)`):

Bikɔs yu yes infɛkshɔn kin apin mɔ, i impɔtant fɔ mek dɛn chɛk yu yɛri ɔltɛm. If yu gɛt ɛni prɔblɛm, yu kin go to tritmɛnt wantɛm wantɛm. Yu ENT dɔktɔ kin disayd bak fɔ put smɔl smɔl tiub dɛn (grommets / ventilation tubes) insay yu yes.

• Yu tink se dɛn go nid fɔ du mɔ ɔpreshɔn?

Sɔntɛnde, wan ɔpreshɔn nɔ kin fix ɔltin. As di pikin de gro, i kin dipen pan di we aw i de tɔk ɛn aw in jaw de gro, i kin nid fɔ du wan ɔ tu ɔda smɔl ɔpreshɔn dɛn. Fɔ ɛgzampul, ɔpreshɔn fɔ mek i tɔk klia wan, ɔ ɔpreshɔn fɔ kɔrɛkt di say we in jaw de. Na di mɛdikal tim we de trit dɛn kin disayd dis.

Mɛmba se dis sik nɔ go ambɔg di pikin in tumara bambay ɛni we. Dɛn gɛt di ful pawa fɔ go skul, ple, lan, mek padi, ɛn gro ɔp fɔ gɛt wok we dɛn lɛk, mared, ɛn liv fayn layf jɔs lɛk ɔda pikin dɛn!

Aw dis kin afɛkt mama ɛn papa dɛn maynd ɛn sɔpɔt

I nɔmal fɔ mek mama ɛn papa dɛn fil bad, wɔri, fred, ɛn sɔntɛm dɛn kin ivin fil gilti we dɛn kam fɔ no se dɛn pikin gɛt dis sik. Kwɛshɔn dɛn lɛk "Wetin mek dis apin to wi?" "Wi du somtin rong?" kin kam na yu maynd.

No se nɔto yu wangren de dis tɛm. Tɔk opin wan wit yu dɔktɔ ɛn nɔs dɛn bɔt dis. Dɛn go gi yu di mɛrɛsin infɔmeshɔn we yu nid ɛn bak fɔ sɔpɔt yu aw yu de fil. Sheb wit dɛm ɔl yu kwɛstyɔn ɛn fred.

Dɔn bak, if ɔda mama ɛn papa dɛn de we dɔn gɛt dis kayn tin, i kin rili ɛnkɔrej dɛn fɔ tɛl dɛn bɔt di tin dɛn we dɔn apin to dɛn. Sɔm ɔspitul dɛn kin ivin gɛt sɔpɔt grup fɔ mama ɛn papa dɛn lɛk dis. If yu kin jɔyn wan, i go rili valyu.

Di tin we impɔtant pas ɔl na fɔ tink gud wan ɛn gi yu pikin di lɔv, kia, ɛn ɛnkɔrejmɛnt we i nid . Yu trɛnk na in trɛnk we pas ɔl.

So, wetin na di impɔtant tin dɛn we wi fɔ mɛmba frɔm ɔl dɛn tin ya?

Okay, na sɔm tin dɛn we wi fɔ mɛmba frɔm wetin wi dɔn tɔk bɔt:

• Cleft Palate na split we de na di ruf na pikin in mɔt. Dis na sik we dɛn bɔn wit, we min se i de we dɛn bɔn am.
• Dis kin bi bikɔs ɔf wan ɔr mɔr rizin, bɔt bɔrku tɛm i nɔr kin izi fɔ fɛn klia rizin. Dis nɔto sɔntin we di mama ɛn papa fɔlt.
• Dis kin mek i nɔ izi fɔ di pikin fɔ it, tɔk, ɛn yɛri.
• Ɔpreshɔn kin rili mɛn dis sik. Dɛn kin du di men ɔpreshɔn we di pikin ol bitwin 6 ɛn 18 mɔnt.
• Dɛn kin kɔntinyu fɔ nid fɔ gɛt tɛrapi fɔ tɔk, fɔ kia fɔ dɛn tit, ɛn fɔ kia fɔ pɔsin fɔ yɛri afta dɛn dɔn du di ɔpreshɔn.
• If dɛn trit am fayn ɛn fala am ɔnda di sɔpɔtishɔn fɔ wan tim we gɛt bɔku difrɛn tin dɛn, dis pikin kin liv wɛlbɔdi, gladi, ɛn sakrifays layf lɛk ɔda pikin dɛn.
• Nɔto yu wan de na dis waka. Gɛt di sɔpɔt ɛn infɔmeshɔn we yu nid. Nɔ panik, bi pɔsitiv, ɛn peshɛnt. Yu pikin gɛt fayn fayn tumara bambay!

` Klɛft Palat, Bebi Wɛlbɔdi, Bɔn Difɛkt, Ɔpreshɔn, Tɔk Tɛrapi, Advays fɔ Mama ɛn Papa