yu likl pikin geht cleft lip/palate? (Cleft Lip/Cleft Palate) – Lɛ wi tɔk bɔt aw fɔ gi pikin bɔbi!

Oh, yu smol pikin born wit cleft lip or palate? As mama, yu go mɔs de tink bɔku tin we sɔntin lɛk dis apin. Bɔt nɔ wɔri, bɔku pikin dɛn kin bɔn wit dɛn tin ya. di tin we impɔtant pas ɔl na fɔ gi di pikin di rayt milk so dat i go gɛt wet fayn fayn wan ɛn i nɔ go gɛt wata na in bɔdi. Sɔntɛnde, dɛn pikin ya kin nid smɔl spɛshal ɛp fɔ drink milk.

Aw fɔ gi pikin in bɛlɛ we in lip skata?

Bɔku tɛm, pikin dɛn we dɛn bɔn wit lip we skata ɛn we nɔ gɛt prɔblɛm wit dɛn palata kin gi dɛn bɛlɛ fayn fayn wan we dɛn nɔ gɛt ɛni spɛshal tin. Dɛn kin gi dɛn mama in bɛlɛ nɔmal wan ɔ yuz bɔtul we dɛn kin yuz ɔltɛm. Sɔntɛnde ɔl wetin dɛn nid fɔ du na fɔ ajɔst di lat smɔl so dat di pikin go ebul fɔ lat fayn . If yu de gi pikin in mama in bɛlɛ, tray fɔ chenj di pozishɔn we yu pikin de so dat yu bɔdi go ful-ɔp di say we de bitwin yu bɔdi. Dis go ɛp yu pikin fɔ gi pikin in bɛlɛ izi wan.

Wetin na di prɔblɛm dɛn we pɔsin kin gɛt we i de gi pikin in bɛlɛ we in palata skata?

Bɔt di pikin dɛn we dɛn bɔn wit lip ɔ palata we skata, ilɛksɛf dɛn gɛt lip ɔ we nɔ gɛt klip, i nɔ kin izi fɔ dɛn fɔ sɔk dairekt frɔm di bɔdi. di rizin fכ dis na biכs dεn nכ kin mek di prεshכn insay dεn mכt fכ pul di milk frכm di nipl. Tink bɔt am lɛk we wi drink sɔntin tru straw, wi nid fɔ mek vaykum insay wi mɔt. Na dat mek i nɔ kin izi fɔ mek dɛn pikin ya du sɔntin lɛk dat bikɔs di palata kin skata. If yu tray fɔ gi dis kayn pikin in bɛlɛ, ilɛksɛf yu tray fɔ gi am in bɛlɛ wit bɔtul we yu kin yuz ɔltɛm, i nɔ go gɛt bɛtɛ milk ɛn i nɔ go gɛt mɔ wet (i nɔ go ebul fɔ gro fayn) . Dat min se di pikin nɔ kin gro fayn. Us ɔda prɔblɛm dɛn kin apin?

• We pikin de drink milk , milk kin kɔmɔt na in nos . Wi kin kɔl dis bak ``Nasal Regurgitation''. I kin mek mama dɛn fred fɔ si dis, bɔt na sɔntin we dɛn fɔ ɛkspɛkt pan dis kayn tin.
• di pikin kin swɛla mɔ briz pas di nɔmal pikin we i de gi in bɛlɛ, we kin mek in bɛlɛ nɔ fil fayn.
• sכmtεm, if di pikin gεt כda ``sεndrכm'', wan kכlekshכn fכ di rεlatεd simptom dεm, כda tin dεm we i de gi in bεlε, lεk di digεstiv prכblεm, kin apin.

Us kayn bɔtul dɛn fɔ yuz fɔ fid pikin we gɛt cleft palata?

Fɔ fid pikin we gɛt cleft palata , yu nid fɔ yuz spɛshal bɔtul sistɛm . Dɛn mek dɛn bɔtul ya fɔ gi di pikin di rayt tin fɔ it ɛn nɔ put tumɔs prɛshɔn pan di pikin fɔ mek i sok. Dɛn tin ya nɔ tan lɛk bɔtul dɛn we dɛn kin yuz ɔltɛm. Difrɛn kayn kleft fidin bɔtul sistɛm dɛn de. Lɛ wi tek wan luk pan wetin dɛn bi, fɔ mek i izi fɔ yu fɔ ɔndastand:

Di Spɛshal Fidin Sistɛm we Dɔktɔ Brawn bin mek

Dis bɔtul sistɛm gɛt wan-way fidin valv we de alaw milk fɔ flɔ na wan say nɔmɔ.. Dis kin mek di milk nɔ flɔ bak insay di bɔtul. dis min se di pikin nכ nid fכ sכk, εn i kin sכk di milk bay we i de bit כ sכk di nipl . difrεn kayn nipl dεm de we gεt difrεn fכ fכlכ rεt dipכnt pan di pikin in ej (frכm rili yכŋ pikin dεm (preemie) to lεvεl 3). Bɔku tɛm i kin izi fɔ mama ɛn papa ɛn di wan dɛn we de kia fɔ dɛn fɔ yuz dis bɔtul . Bikɔs di pikin de du di wok, di mama nɔ nid fɔ swɛt di bɔtul ɔ ol am na spɛshal pozishɔn.

Pijin Fida

dis bכtul sistεm gεt bak wan `wan-way valv` we de mek milk nכ fכ fכlכ bak insay di bכtul. di `Y-kכt nipl` (dat na, wan `nipple` we kכt insay di shep fכ di lεta Y) gεt wan tin sayd εn wan sayd we tik sכmtεm na di כda say.

• di tik sayd fכ de along di gכm layn na di pikin in כp jaw.
• di tin sayd fכ kam כp oba di pikin in tכng.
• di sכmכl notch כnda di ed fכ di nipl fכ put כnda di pikin in nos. Dis go ɛp yu fɔ chɛk if di nipple de fayn fayn wan na di mɔt.

Dis nipple de kam insay tu saiz. Yu kin ajɔst di flɔ rit bak bay we yu tayt ɔ lus di nipple. Dis kin tek sɔm tɛm fɔ mek yu yus to am.

Medela Speshal Nid Fida (Haberman) `(Medela Speshal Nid Fida (Haberman))`

Sɔm pipul dɛn kin kɔl dis bak `Haberman Feeder`. dis bכtul sistεm gεt `wan-way valv` bak fכ kip di milk insay di `nipl`. sכm pikin dεm kin tek milk bay we dεn prεs di `nipple` pan dεn gכm. Bɔt bɔku tɛm, di pɔsin we de kia fɔ di pikin kin gɛt fɔ swɛt di bɔtul fɔ mek i mach di pikin in ritm we i de sok ɛn swɛla :

• As di pikin bigin fɔ sok so, swɛt di bɔtul tayt wan ɛn rilaks .
• Dis fɔ jɔs du we di pikin de sok. Lisin gud wan to di sawnd we di pikin de swɛla milk .
• If di pikin stɔp fɔ blo fɔ smɔl tɛm, yu fɔ stɔp fɔ swɛt di bɔtul bak.

I kin tek sɔm tɛm fɔ praktis fɔ mek yu gɛt di rayt tɛm . Dat min se yu nid fɔ praktis fɔ swɛt we yu pikin de sok ɛn stɔp we dɛn stɔp. di tri layn dεm we de along di bכtul de sho di fכlכ rεt fכ di milk we de kכmכt na di nipl. Yu kin ajɔst di flɔ rit bay we yu de rɔta di bɔtul so dat wan pan di layn dɛn go de ɔnda yu pikin in nos.

Enfamil Mead Johnson Klɛft Lip/Palate Nɔs

Dis bɔtul nɔ gɛt `wan-way valv` . lεk di `Haberman` bכtul sistεm, di wan we de kia fכ di bכtul fכ swεl di bכtul εn ajɔst di spid to di pikin in sכk patεn . Dis kin tek bak fɔ praktis smɔl.

Mɛmba se dɛn mek ɛni wan pan dɛn bɔtul ya fɔ mek dis waka izi smɔl fɔ yu ɛn yu pikin. Sɔntɛnde, wan bɔtul nɔ kin wok, ɛn yu fɔ tray ɔda wan. Yu mɛdikal tim go ɛp yu wit dis, dɛn go pik di wan we go fayn fɔ yu pikin.

Us ɔda advays dɛn we go ɛp wi?

Okay, naw we wi dɔn tɔk bɔt bɔtul, sɔm ɔda tin dɛn de we kin ɛp yu wit dis we aw yu de gi pikin bɔbi. If yu fala dɛn tin ya kɔrɛkt wan, i go izi fɔ yu pikin.

• Wan it fɔ dɔn insay lɛs dan 30 minit . If i de tek lɔng pas dat, i kin min se di pikin de gɛt prɔblɛm fɔ gɛt milk, ɔ di nipple nɔ kin de pɔmp fast fast. If na so i bi, tray fɔ yuz nipple we de mek milk kɔmɔt kwik kwik wan.
• Ɛp yu pikin fɔ burp ɔltɛm . lεk εvri 5 minit we yu de gi pikin in bεlε. Dis na bikɔs pikin dɛn kin swɛla bɔku briz, so i fayn fɔ du dat. Dis go ɛp fɔ ridyus di bɛlɛ we de at ɛn vɔmit.
• Kip yu pikin tinap stret we yu de it am ɛn fɔ 20-30 minit afta yu dɔn gi am it. Dis kin ɛp fɔ ridyus di nos we de rɔn bak.
• If milk kɔmɔt na yu pikin in nos, was am wit klin klos . Nɔ nid fɔ yuz sɔkshɔn bɔl fɔ sok di milk kɔmɔt. If yu du dat, i nɔ kin mek yu pikin nɔ fil fayn.
• Pan ɔl we pikin dɛn we gɛt cleft palata nɔ kin ebul fɔ gi dɛn mama in bɛlɛ dairekt wan, mama dɛn kin gi dɛn mama in milk ɛn gi am to dɛn pikin frɔm spɛshal bɔtul . dis rili valyu, as di pikin de gεt di nyutriεnt dεm εn protεkshכn frכm sik dεm na di mama in milk.
• Dɔn bak, fɔ mek yu gɛt tayt padi biznɛs wit yu pikin mɔ, yu kin alaw am fɔ suk we nɔ gɛt bɛtɛ tin fɔ it . Dis min se di pikin jɔs de sok in bɔdi fɔ mek i fil fayn, nɔto fɔ drink milk. dis kin mek di pikin in mכsul dεm we i de sכk trכng bak. Bɔt nɔ mek i du dis fɔ pas 10 minit wan tɛm.

Aw a go no if mi pikin nɔ de gi in bɛlɛ fayn fayn wan?

Bikɔs ɔf dɛn prɔblɛm ya we dɛn kin gɛt we dɛn de gi pikin dɛn bɛlɛ, pikin dɛn we gɛt swɛt na dɛn palata kin de pan denja fɔ lɛ dɛn nɔ ebul fɔ gro fayn . So, yu pikin in dɔktɔ, ɔ di cleft tim, we na wan tim we gɛt spɛshal pipul dɛn we de trit dɛn cleft kɔndishɔn ya, go de chɛk yu pikin in wet ɔltɛm fɔ mek shɔ se i de gɛt inof wet. Dis rili impɔtant. Sɔntɛnde, ivin wit spɛshal bɔtul sistɛm, di pikin dɛn kin gɛt prɔblɛm wit aw dɛn de it ɛn dɛn kin gɛt prɔblɛm wit dɛn wet. Dɛn nɔ kin fil fayn we dɛn de gi dɛn mama in bɛlɛ, ɛn dɛn nɔ kin gɛt bɛtɛ milk. Yu fɔ pe atɛnshɔn gud wan to dɛn sayn ya :

• If yu de kray we yu de gi yu mama in bɛlɛ ɔ afta yu de gi yu mama in bɛlɛ.
• If yu fil se yu de chok, na ``chok'' .
• If kray wata kɔmɔt na di yay , na `` wata yay '' .
• di aybrɔw dɛn we de frɔ (dis de sho se di pikin nɔ fil fayn).
• if yu bεnd yu bכdi bak we yu de gi pikin bεlε, dεn kכl am ``bak arch'' .

If yu si ɛni wan pan dɛn sayn ya na yu pikin, i min se i gɛt sɔm prɔblɛm fɔ gi in bɛlɛ. Dɔn yu fɔ tray fɔ mek smɔl chenj na di we aw yu de it.

Fɔ ɛgzampul:

• Limit di milk we yu pikin de tek wan tɛm, ɛn tray fɔ yuz nipple we de flɔ sloslo .
• Tek stɔp ɔltɛm we yu de gi yu it. Gi yu pikin tɛm fɔ blo ɛn lɛ di milk go dɔŋ.
• Afta yu dɔn tek sɔm milk, tilt di bɔtul smɔl na di sayd ɛn stɔp di milk fɔ flɔ fɔ sɔm tɛm.

If yu gɛt ɛni wɔri ɔ kwɛstyɔn bɔt aw yu pikin de gi in bɛlɛ, tɔk to yu cleft ɛn kraniofacial tim wantɛm wantɛm . Wan pɔsin we de mɛn pikin ɔ nɔs we de wok na da tim de go chɛk yu pikin we yu de gi in bɛlɛ. Dɛn kin se yu fɔ chenj di we aw yu de gi yu mama in bɛlɛ ɔ ɔda tɛst. Nɔ ɛva de yu wan.

Aw mama ɛn papa dɛn go ɛp?

fכ gi pikin bεlε wit in lip/palate we kכlכs kin bi sכm chalenj fכs. Bɔt nɔto yu wangren de, bɔku ɛp de . Yu cleft tim, we na wan tim we gɛt spɛshal pipul dɛn, kin gi yu di sɔpɔt ɛn infɔmeshɔn we yu nid. Dɛn gɛt ɛkspiriɛns fɔ wok wit bebi dɛn we gɛt dis sik. Bɔku tim dɛn de we gɛt kleft we de gi kɔnsultɛshɔn bifo dɛn bɔn am if dɛn no se di pikin gɛt cleft we dɛn de du ɔltra saund. Dɔn mama ɛn papa dɛn kin mit wit di tim fɔ tɔk bɔt ɛni kwɛstyɔn we dɛn gɛt bɔt aw fɔ gi pikin dɛn bɛlɛ. afta dat dεn kin mek wan plan fכ it bifo dεn bכn di pikin . Dis kin rili mek wi fil fayn. Lɛ wi se yu kam fɔ no wantɛm wantɛm se yu gɛt cleft afta dɛn bɔn di pikin. Dɔn di wan dɛn we de wok na di inpatient go ɛp di mama ɛn papa fɔ fɛn wan bɔtul sistɛm we go wok fayn fɔ dɛn pikin . Di pikin in dɔktɔ kin sɛn di mama ɛn papa to wan tim we gɛt kleft. di cleft tim kin mit wit di mama εn papa εn di pikin insay di fכs wik כ tu wik afta dεn bכn di pikin. Dɛn go chɛk aw di mama in bɛlɛ de go ɛn ansa ɛni kwɛstyɔn we yu gɛt. Yu kin fɛn infɔmeshɔn bak bɔt dis na di Intanɛt. Fɔ ɛgzampul:

• American Cleft Palate-Craniofacial Association (ACPA) - Bɔrku yusful infɔmeshɔn de na di wɛbsayt dɛm fɔ ɔganayzeshɔn dɛm lɛk dis.

So, wetin na di impɔtant tin dɛn we wi fɔ kɛr go na os frɔm dis stori?

Okay, wi don tok plenti nau, no bi so? if yu sכm pikin gεt ``(Cleft Lip)`` כ ``(Cleft Palate)``, di bεlε kin difrεnt sכmtεm. Bɔt mɛmba dɛn tin ya:

• Bɔku tɛm, pikin dɛn we gɛt lip we skata kin gi dɛn mama in bɛlɛ nɔmal wan. Sɔntɛm dɛn jɔs nid fɔ mek smɔl chenj dɛn to dɛn pozishɔn .
• di pikin dεm we gεt cleft palata nid spεshal bכtul dεm biכs dεn kin gεt difrεnt fכ mek di prεshכn we dεn nid fכ sכk εn gεt milk.
• Speshal botul de laik `Dr. Brawn in`, `Pijin`, `Mɛdela SpɛshalNid (Haberman)`, ɛn `Enfamil`. Tɔk to yu mɛdikal tim ɛn pik di wan we go wok fayn fɔ yu pikin. Nɔ fred fɔ tray ɔda wan if wan bɔtul nɔ wok fayn fayn wan.
• Hol yu pikin tinap stret we yu de gi in mama in bɛlɛ, ɛp am fɔ bɔr bɔku tɛm, ɛn stɔp fɔ gi am fɔ 30 minit. Dɛn smɔl smɔl tin ya kin mek big difrɛns.
• If yu pikin de sho sayn dɛm fɔ chok ɔ chok, i kin bi prɔblɛm wit in mama in bɛlɛ. Go to dɔktɔ wantɛm wantɛm.
• Nɔto yu wan de! Di ``Cleft tim'' go ɛp yu wit ɔltin. Nɔ fred fɔ aks dɛn kwɛstyɔn, aks fɔ ɛp. Dɛn de de fɔ ɛp yu.

Di tin we impɔtant pas ɔl na fɔ gi yu pikin in bɛlɛ wit peshɛnt, lɔv, ɛn di rayt we dɛn . Pan ɔl we dis kin tan lɛk se i nɔ izi fɔ waka fɔs, yu kin du dis. Dɔn yu pikin go gro ɔp wit wɛlbɔdi ɛn gladi at. A de wish yu ɔl di bɛst fɔ dis joyn!

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Klɛft Lip, Klɛft Palata, Fɔ gi pikin in mama in bɛlɛ, spɛshal bɔtul, Chalenj fɔ gi pikin in mama in bɛlɛ, Mɛdikal Advays, Infant Nutrition