Imajin, yu gɛt gud wɛlbɔdi ɛn wantɛm wantɛm wan pan yu an ɔ yu leg dɛn go swɛ ɛn yu pas. Ɔ yu wan ol bɔdi kin wik so dat yu nɔ kin ebul fɔ muv. Na nɔmal tin fɔ fil bad bad wan we sɔntin lɛk dis apin. Bɔku pipul dɛn kin tink se dis kin apin bikɔs dɛn taya ɔ ɔda tin. Bɔt sɔntɛnde, wan mɛrɛsin kin de biɛn dis we wi nid fɔ tɔk mɔ bɔt. Tide wi de tɔk bɔt dis kayn sik we nɔ kin apin bɔt we rili impɔtant fɔ no bɔt.
Fɔ tɔk am simpul wan, wetin na Praymari Piɔriɔdik Paralayz (PPP)?
Primary Periodic Paralysis, ɔ PPP fɔ shɔt, na wan grup we nɔ kin apin so ɔltɛm we kin afɛkt wi mɔsul dɛn wantɛm wantɛm. Wetin kin apin na dat, if yu nɔ wɔn yu , yu mɔsul dɛn kin wik, stif, ɔ paralayz kpatakpata. Dis sik kin las fɔ sɔm minit fɔ sɔm pipul dɛm, ɛn fɔ ɔda pipul dɛm i kin las fɔ sɔm dez.
Di men rizin fɔ dis de insay wi mɔsul sɛl dɛn. Imajin se wi mɔsul sɛl dɛn gɛt smɔl smɔl chanɛl dɛn. dis chanεl dεm na di say we imכtant minral dεm lεk potashכm, sכdiכm, εn kalsi כm de kכmכt εn kכmכt na di sεl dεm. fכ mek di mכsul wok fayn fayn wan, di כmכnt fכ dεn minral dεm ya insay εn ausayd di sεl fכ bεlε fayn fayn wan. Wetin kin apin to pɔsin we gɛt PPP na dat dis balans kin lɔs bikɔs ɔf wan difrɛns na dɛn chanɛl ya. Dɔn di mɔsul dɛn nɔ kin ebul fɔ wok fayn.
Bɔrku tɛm, dɛn sik ya kin bigin wae dɛn smɔl ɔr yɔŋ, bɔt sɔm pipul dɛn nɔr kin sho ɛni sayn te dɛn ol 60 ɔr 70 ia.
Wetin na di men kayn dis sik?
Dɛn sheb PPP to sɔm men kayn dɛn. dis klasification de mεntal infכmeshכn bay us minral chεnal dεfεkt de insay yu mכsul sεl dεm.
| Tayp fɔ di mɛdikal kɔndishɔn | Wetin de apin (insay simpul wɔd dɛn) . |
|---|---|
| Hypokalemic Pɛriɔdik Paralayz (hypoKPP) . | wetin kin apin pan dis na dat di potashכm lεvεl na di bכdi kin dכn bכku bכku wan wan wan. |
| Haypakalemik Pɛriɔdik Paralayz (haypaKPP) . | wetin kin apin pan dis na dat di potashכm lεvεl na di bכdi kin inkrεs bכku wan wan. |
| Paramyotonia we dɛn bɔn wit | na ya, di bכlεns bitwin sכdiכm εn potashכm na di mכsul sεl dεm de ambɔg. |
| Andersen-Tawil Sindrom (ATS) we gɛt di sik we dɛn kɔl Andersen-Tawil Sindrom (ATS) . | insay dis kכndishכn, di prכsεs we potashכm de muv insay εn kכmכt na di sεl dεm nכ de apin fayn fayn wan. Di lɛvɛl we di potashɔm de na di blɔd kin bɔku, smɔl, ɔ nɔmal. |
Sɔntɛnde, ɔda tin dɛn kin mek di mɔsul dɛn wik. Wan ɛgzampul na Tyrotoxic Periodic Paralysis (TPP) . Dis na wan sik we di tayroyd gland de mek tumɔs tayroyd ɔmon. Dis kin kam wit di smɔl smɔl potashɔm lɛvɛl na di blɔd, we kin mek yu gɛt sayn dɛn we fiba HypoKPP.
Wetin na di kɔz ɛn "triggering" factor dɛm fɔ dis situeshɔn?
PPP na bikɔs ɔf wan jenɛtik difrɛns . Fɔ tɔk am simpul wan, na bikɔs di jin dɛn we de kɔntrol di chanɛl dɛn we de na di mɔsul sɛl dɛn we wi bin dɔn tɔk bɔt bifo tɛm, nɔ fayn. Bɔku tɛm, pikin kin gɛt dis jin we nɔ fayn frɔm wan pan dɛn mama ɛn papa. Bɔt na smɔl tɛm nɔmɔ pikin kin gɛt dis sik ilɛksɛf in mama ɛn papa nɔ gɛt dis jin.
Naw lɛ wi luk wetin kin "trig" dis mɔsul wikɛdnɛs. Dɛn tin ya kin difrɛn frɔm wan pɔsin to ɔda pɔsin.
- Di it: Fɔ it pasmak it dɛn we gɛt bɔku potashɔm (we gɛt haypaKPP) ɔ we gɛt smɔl potashɔm (we gɛt haypoKPP). Dɔn bak, fɔ it it dɛn we gɛt bɔku kabɔhaydrɛt (stach/shuga).
- Ɛksesaiz : We yu de rɛst afta yu dɔn du bɔku ɛksesaiz.
- Rɛst: Sidɔm na di sem pozishɔn fɔ lɔng tɛm, we yu wek na mɔnin, ɔ afta yu dɔn slip.
- Ɔda tin dɛn we kin mek yu gɛt strɛs, yu kin gɛt kol pasmak, yu kin drink rɔm, ɛn sɔm mɛrɛsin dɛn (e.g., tin dɛn we de mek yu mɔsul rilaks, sɔm mɛrɛsin dɛn we de mek yu gɛt asma, tin dɛn we de mek yu fil pen).
Wetin na di men sayn dɛm?
Di men sayn na we yu mɔsul dɛn wik wantɛm wantɛm ɔ yu paralayz ɔl. Dis kin afɛkt jɔs wan an ɔ leg wan tɛm, ɔ di wan ol bɔdi ɔda tɛm.
Apat frɔm dis men sayn, sɔm pipul dɛn kin gɛt ɔda sayn dɛm bak we dɛn gɛt dis wikɛd tin:
- Di mɔsul dɛn we de na di fes wik
- Mɔsul dɛn kin pen ɛn stiff
- Di at we nɔ de bit ɔltɛm
- I nɔ kin izi fɔ yu fɔ blo ɔ fɔ swɛla
HypoKPP (tayp we gɛt smɔl potashɔm) .
Di sayn dɛm kin apin lɛk wan tɛm insay di de, ɔr nɔr kin apin lɛk wan tɛm insay di ia. Dɛn kin las fɔ wan ɔ tu awa, ɔ dɛn kin las fɔ tu ɔ tri dez. As tɛm de go, di mɔsul dɛn kin wik fɔ ɔltɛm.
HyperKPP (tayp we di potashכm we de inkrεs) .
De wikɛd tin kin de fɔ shɔt tɛm, bɔt i kin apin bɔrku tɛm. Di sayn dɛn kin kam wantɛm wantɛm, ɛn sɔntɛnde i kin ivin las fɔ sɔm minit. Ivin we no wikɛd tin nɔ de, yu kin fil se yu mɔsul dɛn de swɛt ɔ yu kin stif.
Andersen-Tawil Sindrom (ATS) we gɛt di sik we dɛn kɔl Andersen-Tawil Sindrom (ATS) .
Apat frɔm we di mɔsul dɛn wik, dɛn kin si ɔda sayn dɛn bak na di bɔdi.
- At bit kwik kwik wan ɔ we nɔ de bit ɔltɛm
- Skɔliosis we de mek pɔsin gɛt sik
- Finga dɛn we gɛt wɛb
- Smɔl pas avrej an ɛn fut
- Sɔm chenj dɛn na di fes (e.g., brayt fɔrɛst, yes dɛn we nɔ gɛt bɛtɛ sɛt) .
Aw fɔ no dis sik kɔrɛkt wan?
Bikɔs PPP na wan sik we nɔ kin apin so ɔltɛm ɛn in sayn dɛn kin tan lɛk ɔda kɔmɔn sik dɛn, i kin tek sɔm tɛm fɔ no di sik kɔrɛkt wan. So, if yu gɛt dɛn sik ya, i go fayn fɔ go to dɔktɔ we spɛshal pan sik dɛn we gɛt fɔ du wit di nervous system (Neurologist) .
Yu dɔktɔ kin aks yu kwɛstyɔn dɛn lɛk dis fɔ no if yu gɛt dis sik:
- Ustɛm dɛn sik ya bigin?
- Yu tink se ɛni ɔda pɔsin na di famili gɛt dis kayn sik?
- Wetin kin apin we wikɛd pɔsin?
- Yu dɔn ɛva fil se wan patikyula it ɔ akshɔn bin mek dis apin?
Apat frɔm dat, dɛn kin du bɔku tɛst fɔ no if di sik gɛt:
- Blɔd tɛst: Chɛk di lɛvɛl we di potashɔm, di tayroyd ɔmon, ɛn ɔda tin dɛn de.
- Ilɛktromayografi (EMG): Fɔ tɛst di mɔsul ɛn di nɛv dɛn we de wok.
- Ilɛktrokadiogram (EKG): Fɔ chɛk aw di at de bit ɔltɛm.
- Muscle Biopsy: Fɔ tek smɔl pat pan di mɔsul ɛn chɛk am.
Aw fɔ trit ɛn manej?
Di men tritmɛnt fɔ dis na fɔ no ɛn avɔyd di tin dɛn we kin mek pɔsin gɛt dis sik . Dis min se yu fɔ chenj sɔm tin dɛn we yu de it ɛn di we aw yu de du ɛksɛsayz.
Apat frɔm dat, mɛrɛsin dɛn de fɔ kɔntrol di potashɔm lɛvɛl na di bɔdi.
- Di drɔg we dɛn kɔl Dichlorphenamide (Keveyis) na in dɛn dɔn gri fɔ trit ɔl tu di hypoKPP ɛn hyperKPP.
- Sɔntɛnde, dɔktɔ dɛn kin tɛl yu bak fɔ tek wan mɛrɛsin we dɛn kɔl Acetazolamide (Diamox) .
- Dɛn kin gi potassium suplimɛnt to di wan dɛn we gɛt HypoKPP.
- Pɔsin we gɛt HyperKPP kin kɔntrol wikɛdnɛs sɔmtɛm bay we i drink drink we gɛt shuga (e.g., soda) jɔs lɛk aw i bigin.
Di tin we impɔtant pas ɔl na fɔ nɔ ɛva stɔp fɔ tek ɔ stɔp fɔ tek mɛrɛsin fɔ yusɛf. Du ɔltin jɔs bay di advays we yu dɔktɔ gi yu. If yu wik bad bad wan wantɛm wantɛm, i nɔ izi fɔ blo, ɔ yu chɛst de pen, go na di Imejɛnsi Dipatmɛnt (ETU) na di ɔspitul we de nia yu wantɛm wantɛm.
Yu kin kɔntrol dis sik bad bad wan bay we yu mek smɔl chenj dɛn na yu layf.
- Fɔ it: If yu gɛt hyperKPP (high potassium), yu go nid fɔ stɔp fɔ it tin dɛn we gɛt potassium lɛk banana, dɛt, brɔkoli, ɛn pinat. If yu gɛt hypoKPP (low potassium), yu go nid fɔ stɔp fɔ it tin dɛn we gɛt bɔku kabɔhaydrɛt lɛk bred, pasta, rays, ɛn swit. Gɛt di rayt advays frɔm yu dɔktɔ bɔt dis.
- Ɛksesaiz: Jɔs lɛk fɔ ɛksesaiz pasmak, no ɛksesaiz nɔ bad bak. Tɔk to yu dɔktɔ bɔt di lɛvul fɔ ɛksesaiz we fayn fɔ yu.
Mɛsej we dɛn kin kɛr go na os
- Primary Periodic Paralysis (PPP) nכto jכs fyzikal disabiliti, na jεnεtik difεkt we de apin na di ayכn chεnal dεm na di mכsul sεl dεm.
- Trigεr dεm de wae kin trig dis kכndyushכn. Yu fɔ mɛmba tin dɛn lɛk aw yu de it, ɛksesaiz, ɛn strɛs, ɛn no ɛn avɔyd tin dɛn we de afɛkt yu.
- If di sik sho, i rili impɔtant fɔ go to spɛshal dɔktɔ fɔ no di sik kɔrɛkt wan.
- Bɔrku pipul kin ebul fɔ kɔntrol dis sik fayn fayn wan ɛn liv aktif layf tru chenj na dɛn layf ɛn mɛrɛsin wae dɛn dɔktɔ gi dɛn.
- Ɔltɛm fala yu dɔktɔ in advays. Nɔ disayd fɔ yusɛf, lɛk fɔ tek mɛrɛsin ɔ chenj di tin dɛn we yu de it.
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