Sɔmbɔdi na yu famili, sɔntɛm yu papa, yu mama, ɔ pɔsin we yu sabi, gɛt dis sik we dɛn kɔl Pakinsin? If na so i bi, sɔntɛm yusɛf go dɔn ɛkspiriɛns dis. Yu tink se pɔsin we bin de tɔk lawd wan ɛn klia wan in vɔys naw de sawnd smɔl kwayɛt ɛn slɔp? Yu kin si se yu de swɛ yu wɔd dɛn we yu de tɔk, ɔ i tan lɛk se yu nɔ ebul fɔ tɔk wetin yu de tray fɔ tɔk? Dis na tru tru wan kɔmɔn tin wae bɔrku pipul dɛm wae gɛt dis sik kin gɛt. Bɔt nɔr wɔri, bɔrku tin de wae wi kin du fɔ mɛn dis sik ɛn mek i izi fɔ tɔk to pipul dɛn. Lɛ wi tɔk bɔt am ditayli.
Wetin mek e nɔr kin izi fɔ tɔk pan Pakinsin sik?
Fɔ tɔk am simpul wan, di sik we dɛn kɔl Parkinson kin afɛkt di nerve cells na wi bren. Dis kin mek i nɔ izi fɔ kɔntrol di we aw wi bɔdi de muv. Dis kin afɛkt di fayn fayn mɔsul dɛn we wi nid fɔ waka, muv wi an ɛn fut dɛn, ɛn tɔk.
Jɔs tink, aw bɔku tin dɛn fɔ apin wan tɛm we wi de tɔk.
- Di briz fɔ kɔmɔt na di lɔng dɛn.
- Di vokal kɔd dɛn na di trot fɔ shek fayn fayn wan.
- Di tɔŋ, lip, ɛn ɔp palata na di mɔt fɔ muv prɛsishɔn fɔ mek wɔd dɛn.
Pakinsin sik kin mek di mכsul dεm εn di nεv dεm we de insay dis prכsεs nכ de wok lכs. I tan lɛk ɔkestra we dɛn dɔn tyun fayn fayn wan we de ple ɛni not di sem tɛm. Dis na di rizin we mek pipul dɛn de chenj di we aw dɛn de tɔk ɛn di we aw dɛn de tɔk. Insay mɛrɛsin, wi kin kɔl dis sik bak dysarthria .
Wetin na di prɔblɛm dɛn we kin apin we wi de tɔk dis?
Pɔsin wae gɛt dis sik kin gɛt difrɛn kayn sayn dɛm. Nɔto ɔlman kin gɛt ɔl dɛn tin ya. Bɔt sɔm tin dɛn de we kin apin we pipul dɛn kin gɛt dis sik. Lɛ wi tek wan luk pan wetin dɛn bi.
| Prɔblɛm/Symptom | Fɔ ɛksplen simpul wan... |
|---|---|
| Fɔ yɛri vɔys dɛn saful saful | A nɔ ebul fɔ tɔk lawd wan lɛk aw a bin de tɔk trade. A fɔ aks ɔda pipul dɛn se, "Wetin yu se?" ɔva ɛn ɔva bak. |
| Lɔs di vɔys pitch (Monotone) . | I tan lɛk rɔbɔt we de tɔk, di vɔys de sawnd flat ɛn nɔ gɛt ɛni filin. I at fɔ ɔndastand filin lɛk gladi at ɛn sɔri-at na yu vɔys. |
| Voys we de ala/raspy | Sɔntɛm yu vɔys de ala, lɛk se di trot dɔn lɔk wit mכkus, ɔ i kin tan lɛk se sɔmbɔdi de swɛt di trot. |
| Di we aw pɔsin kin blo | We yu de tɔk, i kin tan lɛk se yu de blo tranga wan wit di wɔd dɛn. Afta yu dɔn tɔk fɔ sɔm tɛm, yu kin fil lɛk se yu dɔn "out of breath." |
| Kɔnfyushɔn/ambiguity fɔ wɔd dɛn | I kin at fɔ kɔl lɛta ɛn wɔd dɛn kɔrɛkt wan. I nɔ kin izi fɔ mek di pɔsin we de lisin no di wɔd dɛn klia wan. |
| Fɔ tɔk kwik kwik wan, fɔ brok wɔd dɛn to smɔl smɔl | Sɔntɛnde, di stori kin spid wantɛm wantɛm ɛn di wɔd dɛn kin kɔmɔt lɛk se dɛn dɔn stɔp togɛda. |
| Tremor | Apat frɔm di an ɛn fut dɛn we de shek shek, sɔm pipul dɛn kin gɛt vɔys bak we de shek shek we dɛn de tɔk. |
Di impɔtant tin na dat bikɔs dɛn chenj ya kin apin smɔl smɔl, di pɔsin we sik nɔ kin no se chenj dɔn kam na in vɔys. Bɔt, fambul ɛn padi dɛn kin notis di chenj klia wan.
Udat a go gɛt ɛp frɔm fɔ dis?
If yu gɛt ɛni wan pan dɛn prɔblɛm ya, di fɔs tin we yu fɔ du na fɔ tɔk to yu dɔktɔ bɔt am. I kin rifer yu to pɔsin we de mɛn pipul dɛn we de tɔk ɛn tɔk, we spɛshal pan dis wok.
Aw pɔsin we de mɛn pipul dɛn we de tɔk kin ɛp?
Wan pɔsin we de mɛn pɔsin fɔ tɔk tan lɛk kɔch fɔ yu vɔys ɛn fɔ tɔk. Dɛn go asɛs yu kɔndishɔn ɛn ɛp yu di kayn we we go fayn fɔ yu.
- Dɛn go tich yu spɛshal ɛgzampul dɛn we go ɛp yu fɔ mek yu vɔys lawd ɛn klia.
- Dɛn kin praktis di we dɛn fɔ tɔk klia wan bɔt di ayd dɛn we dɛn nɔ de tray tranga wan we dɛn de tɔk.
- Wi de tich yu bɔt divays dɛn we de ɛp fɔ mek i izi fɔ tɔk to pipul dɛn.
- If ɛni prɔblɛm de fɔ swɛla (wi go tɔk bɔt dis leta), dɛn go trit dat bak.
Tritmɛnt dɛn de we dɛn mek spɛshal fɔ dis. Fɔ ɛgzampul, Li Silvaman Voys Tritmɛnt (LSVT) na wan tritmɛnt we rili fayn fɔ mek di vɔys in vɔys go ɔp pan di wan dɛn we gɛt Pakinsin.
Tin dɛn we yu kin du fɔ mek i izi fɔ tɔk to pipul dɛn
Pan ɔl we yu de go to dɔktɔ we de mɛn pipul dɛn we de tɔk, yu kin du smɔl smɔl tin dɛn bak na yu layf ɛvride fɔ mek i izi fɔ tɔk to pipul dɛn.
- Pik ples we kwayɛt: Bifo yu tɔk to pɔsin, ɔf ɛnitin we de mek nɔys na os, lɛk TV ɔ redio fɔ sɔm tɛm. If yu de na do, pik ples we kwayɛt ɛn we nɔ gɛt pipul dɛn.
- Tɔk sloslo ɛn klia wan: Nɔ tray fɔ tɔk bɔku wɔd dɛn insay wan briz. Se wan ɔ tu wɔd dɛn insay wan briz. Lɛf smɔl stɔp bitwin sɛntɛns dɛn.
- Tɔk fes to fes: Luk di pɔsin we yu de tɔk to in fes we yu de tɔk. Tɔk na ples we gɛt layt. Dis go mek am izi fɔ di ɔda pɔsin fɔ ɔndastand wetin yu de tɔk bay we i de luk di we aw yu lip dɛn de muv ɛn di we aw yu de mek yu fes.
- Yuz shɔt sɛntɛns: Bifo yu yuz lɔng sɛntɛns, tɔk wetin yu tink wit simpul shɔt sɛntɛns.
- Drink bɔku wata: If yu trot dray, dat kin mek i nɔ izi fɔ tɔk. Drink bɔku wata ɔl di de. Bɔt nɔ drink kafinɛ (ti, kɔfi) ɛn rɔm . Dɛn kin mek di bɔdi nɔ gɛt wata mɔ ɛn mɔ.
- Mek yu tinap fayn: If yu sidɔm na chia, kip yu bak stret ɛn yu chin ɔp smɔl. Dis kin mek di briz we de kɔmɔt na yu lɔng dɛn go rich na yu vɔkal kɔd dɛn we nɔ go ambɔg yu.
- Rɛst we yu fil taya: I kin at fɔ tɔk we yu taya. Gi yu vɔys fɔ blo ɔl di de. Tek tɛm blo bifo yu kɔl impɔtant fon ɔ tɔk to pɔsin.
If i at fɔ put insay wɔd dɛn, tray dɛn tin ya
Sɔm dez, i kin rili at fɔ tɔk. Nɔ panik dɛn kayn tɛm dɛn de, ɛn yuz ɔda we dɛn lɛk dis.
- Rayt: Ɔltɛm, kip smɔl notbuk ɛn pen nia yu. If sɔntin de we at fɔ tɔk, rayt am.
- Alfabɛt Bɔd: If i nɔ izi fɔ yu fɔ rayt lɛta, kip wan alfabɛt bɔd nia yu. Point di fɔs lɛta fɔ di wɔd dɛn wit yu finga.
- Yuz jes ɛn sayn: Yuz yu an fɔ sho simpul tin lɛk "kam," "go," ɛn "stɔp."
- Yuz shɔt wɔd dɛn: Insted fɔ se ful sɛntɛns lɛk "A want wan glas wata," jɔs tɔk di impɔtant wɔd dɛn lɛk "A nid wata."
- Divays dɛn we de ɛp pɔsin:Yu kin yuz divays dɛn lɛk smɔl amplifia we de mek yu vɔys go ɔp. Aks yu tɔk-tɛrapist bɔt dis.
Aw fambul ɛn padi dɛn go ɛp?
Apat frɔm di pɔsin we sik, yu, we de tɔk to am, kin mek dis waka izi.
- Peshɛnt: Nɔ rɔsh di pɔsin we yu de tɔk to. Gi dɛn tɛm fɔ tink ɛn kɔmpoz dɛn wɔd dɛn.
- Pe atɛnshɔn: Nɔ du ɛni ɔda tin we i de tɔk, jɔs luk in fes ɛn tek tɛm lisin.
- Aks kwɛstyɔn dɛn we yu kin ansa wit "yes" ɔ "no": I izi fɔ ansa "Yu want rays?" pas "Wetin yu want fo dina?"
- Rifrɛz wetin yu ɔndastand: If yu ɔndastand pat pan sɛntɛns nɔmɔ, aks sɔntin lɛk, "Yu se yu want fɔ go ɔp ɛn gɛt... wetin?" Da we de, dɛn nɔ go nid fɔ ripit di wan ol sɛntɛns.
- Nɔ gɛs: Nɔ tray fɔ gɛs wetin dɛn go tɔk ɛn tray fɔ kɔmplit dɛn sɛntɛns. Dat kin mek dɛn nɔ fil fayn mɔ ɛn mɔ.
Fɔ rɛdi fɔ ɛni imejensi
If pɔsin de in wan ɛn i nɔ izi fɔ tɔk to, we fɔ de fɔ aks fɔ ɛp if ɛnitin apin.
- Bɛl ɔ buza: Kip bɛl ɔ buza nia yu so dat yu go ebul fɔ ring am if ɛnitin apin.
- Spid Dayal: Kip fon nɔmba fɔ famili ɛn imejensi savis dɛn na spid dayal.
- Layf Kɔl bɔtin savis: Dɛn tin ya na smɔl smɔl tin dɛn we dɛn kin wɛr rawnd di nɛk ɔ an. We yu prɛs wan bɔtin we ɛnitin apin, i go wɔn pɔsin we de ɛp yu ɔ yu famili. Luk insay dis kayn savis.
Yu fɔ no se i nɔ izi fɔ swɛla (Dysphagia) .
Apat frɔm wae pɔrsin nɔr kin ebul fɔ tɔk fayn, ɔda prɔblɛm wae kin kam wit dis sik wae de kam wit Pakinsin sik na wae pɔrsin nɔr kin ebul fɔ swɛla (dysphagia) . Dis min se i nɔ izi fɔ swɛla it, drink, ɛn saliva.
Wonin: I nɔ kin izi fɔ swɛla nɔto sɔntin we pɔsin fɔ tek am layt. If it ɔ drink go insay di briz, i kin mek yu gɛt siriɔs infɛkshɔn lɛk aspireshɔn nyumonia . If yu gɛt sɔm sayn dɛn lɛk fɔ kɔf, chok, ɔ fɔ drɔl we yu de it, mek yu dɔktɔ no wantɛm wantɛm . Di wan dɛn we de mɛn pipul dɛn we de tɔk kin trit dis bak.
Fɔ liv wit dis sik wae de kam wit Pakinsin kin tranga. Bɔt if di wan dɛn we dɛn lɛk gɛt di rayt no, tritmɛnt, ɛn sɔpɔt dɛn, bɔku pan dɛn kin ebul fɔ win dɛn prɔblɛm dɛn ya. Kɔmyunikeshɔn na di brij we de kɔnɛkt wi to ɔda pipul dɛn. Dɛn advays ya go ɛp yu fɔ mek da brij de strɔng.
Mɛsej we dɛn kin kɛr go na os
- I nɔ kin izi fɔ tɔk bikɔs ɔf di sik we dɛn kɔl Pakinsin kin rili kɔmɔn. I nɔto natin fɔ shem.
- Wan pɔsin we de mɛn pipul dɛn we de tɔk ɛn we dɔn gɛt spɛshal trenin fɔ dis kin rili ɛp am. Tɔk to yu dɔktɔ bɔt dis fɔs.
- Simpul chenj dɛm lɛk fɔ tɔk sloslo, klia wan, ɛn fes-to-fes na say we kwayɛt kin mek big difrɛns pan kɔmyunikeshɔn.
- Di peshɛnt, atɛnshɔn, ɛn sɔpɔt we in famili ɛn padi dɛn kin gi kin mek di pɔsin we sik gɛt trɛnk na in maynd.
- If i nɔ izi fɔ yu fɔ swɛla, nɔ ignore am. Go to dɔktɔ wantɛm wantɛm.
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