I tan lɛk se yu pikin taya ɔltɛm? I kin kɔmplen se i kin fil lɛk se i taya, i kin gɛt fiva ɔltɛm, ɛn i kin gɛt pen na in jɔyn? Yu dɔn ɛva notis wan rɛd rɛd rɔsh we tan lɛk bɔtaflay na yu chɛst ɛn yu nos? As mama ɔ papa, i nɔmal fɔ mek yu fred bad bad wan ɛn wɔri we yu si sɔntin lɛk dis. Tide wi go tɔk bɔt wan kɔndishɔn we bɔku mama ɛn papa dɛn kin fred, bɔt if dɛn ɔndastand am ɛn manej am fayn, i kin ɛp yu pikin fɔ liv nɔmal layf. Dat na lupus na pikin dɛn.
Fɔ tɔk am simpul wan, wetin na Lupus?
Imajin se wan ami de insay wi bɔdi we de protɛkt wi frɔm sik. Wi kin kɔl dis ami di imyun sistɛm . We ɛnimi dɛn we de na do, lɛk vayrɔs ɛn baktri, kam insay di bɔdi, dis ami kin fɛt ɛn protɛkt wi.
Lupus na wan sik we pɔsin kin gɛt we i de fɛt insɛf . Wetin de apin ya na sɔntin we rili strenj. wi yon difεns fכs, di imyun sistεm, mistek tink se wi כwn hεlty sεl dεm εn tisu dεm na "εnεmi" εn bigin fכ atak dεm. I tan lɛk se wi yon sojaman dɛn de atak wi yon kɔntri. Dis atak kin mek yu gɛt inflamɛns , we na inflamɛns ɛn swel, na difrɛn pat dɛn na di bɔdi, ɛn i kin mek yu gɛt difrɛn sayn dɛn.
We pikin dɛn gɛt lupus, i kin tranga smɔl pas aw i kin bi pan big pipul dɛn. Dis min se:
- Di sik kin bi mɔr ɛn i kin tranga.
- Risk de fɔ pwɛl di men ɔgan dɛm lɛk di kidni, at, ɛn bren.
- Di tritmɛnt kin nid fɔ gɛt mɔ dos fɔ di mɛrɛsin dɛn we strɔng.
- Sɔm tritmɛnt dɛn (fɔ ɛgzampul, kɔtikosterɔyd) kin mek yu gɛt sayd ɛfɛkt we dɛn yuz am fɔ lɔng tɛm.
di kayn lupus we kin kכmכn pan pikin dεm na Systemic Lupus Erythematosus (SLE) . Wi kin kɔl dis kayn "lupus." Sɔntɛnde, dɔktɔ dɛn kin kɔl am bak ``Childhood-onset SLE'' ɔ ``Juvenile-onset SLE.'' Di sik kin bigin arawnd 12 ia, bɔt dɛn kin bigin bifo ɔ leta. Bɔt i nɔ kin izi fɔ mek pikin dɛn we nɔ rich 5 ia yet gɛt dis sik.
Wetin na di sayn dɛm fɔ lupus pan pikin?
Lupus nɔ de afɛkt ɔl pikin di sem we. Di sayn dɛm fɔ ɛni pikin kin difrɛn smɔl. Na dat mek dɔktɔ dɛn kin kɔl dis "lupus fingerprint," bikɔs i spɛshal fɔ ɛni pɔsin.
Fɔ mek i izi fɔ ɔndastand, lɛ wi sheb dɛn tin ya to tu pat.
| Simptom dεm (tin dεm we yu εn yu pikin de fil) . | Sayn dɛn we dɛn kin sho bay we dɛn de du mɛdikal tɛst |
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Mɛmba se, fɔ jɔs gɛt wan ɔ tu pan dɛn sik ya nɔmɔ nɔ min se yu gɛt lupus. Fɔ ɛgzampul, bɔku ɔda tin dɛn de we kin mek pɔsin gɛt fiva. Dɔktɔ dɛn kin jɔs sɔspɛkt lupus we sɔm pan dɛn sayn ya de sho togɛda.
Us ɔda kɔmplikɛshɔn dɛn kin apin bikɔs ɔf lupus?
Di rayt tritmɛnt kin ridyus di risk fɔ gɛt dɛn sik ya bad bad wan, bɔt sɔm pikin dɛn stil de pan denja fɔ gɛt dɛn sik ya.
- Kidni we de pwɛl: Dɛn kɔl dis lupus nɛfrayt . Dis na wan pan di siriɔs prɔblɛm dɛn we kin kam wit lupus.
- inflameshn na di lכng dεm εn at: inflameshn na di layn na di lכng dεm (pleurisy) כ inflameshn na di sak we de rawnd di at (pericarditis) kin apin. Dɛn tu tin ya kin mek pɔsin gɛt shap pen na in chɛst .
- di ifekt dεm na di sεntri nεv sεstem: di bren εn di spεnal kכd kin afekt. Dis kin mek yu ed pen, yu kin chenj yu bihayvya, ɛn yu kin gɛt sik .
- Blɔd kin klɔt: I kin mek blɔd klɔt, mɔ na di leg dɛn. Dis kin mek yu gɛt sɔm sayn dɛm lɛk pen, swel, ɛn rɛd na yu leg.
Wetin mek pikin dɛn kin gɛt lupus? Wetin na di kɔz?
Infakt, di wan dɛn we de stɔdi bɔt dis nɔ dɔn fɛn wan patikyula tin we kin mek pɔsin gɛt lupus. Aweva, dεn gεt wan tiori we dεn biliv pan.Dεn kכl am "tu-hit tiori." Dat min se, lupus kin apin we tu tin dɛn kam togɛda.
1. di fכs tin - Jεnεtiks: I fכ gεt jεnεtik prεdispכzishכn we de pas dכn frכm jεnereshכn to jεnereshכn. dat min se dεn bכn di pikin wit jεnεtik prεdispכzishכn fכ divεlכp lupus.
2. Sεkɔn tin - Trigεr: Ivin if jεnεtik prεdispכzishכn de, sכmtin mכst trigεr di sik fכ apin. Dis kayn tin we kin mek pɔsin want fɔ du sɔntin kin bi:
- Wan vayral infɛkshɔn
- di chenj dεm we de apin na di כmon lεvεl dεm (especially we di pikin de bכn) .
- We yu de na say we di san de shayn bad bad wan (UVA/UVB rayt) .
Bɔt nɔto ɔlman we gɛt dis jenɛtik prɛdispɔzishɔn go gɛt lupus. Sɔntɛnde, ivin if yu gɛt di jin dɛm we de mek yu gɛt dis sik, yu kin kɔntinyu fɔ gɛt sik fɔ di res ɔf yu layf.
Aw dɔktɔ kin no di rayt we fɔ no if pɔsin gɛt lupus?
If yu sɔspɛkt se yu pikin gɛt sayn dɛn fɔ lupus, yu fɔ rili go to dɔktɔ. Di dɔktɔ go mek di diagnosis bay we i fala dɛn step ya:
- Aks yu ɛn yu pikin bɔt de sik: Aks dɛn bɔt di sayn dɛm we yu pikin gɛt, aw lɔng i dɔn gɛt am, ɛn if ɛnibɔdi na di famili dɔn gɛt dis kayn sik.
- Wan kɔmplit bɔdi ɛgzamin: Dɛn kin chɛk di pikin frɔm in ed to in fut, ɛn dɛn kin pe spɛshal atɛnshɔn to di skin we de rɔsh ɛn di jɔyn dɛn we dɔn swel.
- Blɔd ɛn urine tɛst: Dɛn kin du difrɛn tɛst fɔ chɛk fɔ mak dɛn we gɛt fɔ du wit lupus. dis dεm inklud di `(ANA)` tεst we wi bin dכn tכk bכt εn di bכdi sεl kכnt.
Wetin na di tritmɛnt fɔ lupus?
Di fɔs tin fɔ tɔk na dat , no mɛrɛsin nɔ de fɔ lupus yet. Bɔt nɔ wɔri. Tritmɛnt dɛn de we rili fayn tide we go ɛp fɔ kɔntrol di sik, fɔ mek di sik nɔ bɔku, ɛn ɛp yu pikin fɔ liv nɔmal layf.
Di men gol dɛm fɔ tritmɛnt na:
- Fɔ ridyus di pikin in sayn dɛm (lɛk pen, taya).
- Fɔ mek di imyun sistɛm nɔ pwɛl di bɔdi in ɔgan dɛn.
- Fɔ mek di pikin gɛt ɔl in bɔdi ɛn maynd wɛlbɔdi na gud lɛvɛl.
Fɔ dis, wan tim fɔ dɔktɔ dɛn, we wan dɔktɔ we de mɛn pikin dɛn we de mɛn pikin dɛn, kin kam togɛda fɔ mek wan tritmɛnt plan we dɛn mek fɔ di pikin.
Dis dɔŋ ya na sɔm pan di mɛrɛsin dɛm wae dɛn kin yuse fɔ lupus.
| Di kayn drɔg we dɛn kin yuz | Wetin mek yu fɔ yuz am? | Ɛgzampul dɛn |
|---|---|---|
| Kɔtikosterɔyd dɛn | Fɔ kɔntrol di inflamɛns kwik kwik wan na di bɔdi. | Prednison we gɛt di sik |
| Di mɛrɛsin dɛn we dɛn kin yuz fɔ fɛt malaria | Fɔ kɔntrol di flawa ɛn fɔ di skin rash ɛn jɔyn pen. | Haydroksiklɔrokin we dɛn kɔl |
| Di tin dɛn we de mek di bɔdi nɔ ebul fɔ fɛt di sik | Fɔ kɔntrol di wok we wan ɔvaaktiv imyun sistɛm de du. | Azathioprine, Maykofenolayt Mofetil, Mɛtɔtreksɛt |
| Di tin dɛn we dɛn kin yuz fɔ mek pɔsin fil pen | Fɔ mek yu nɔ gɛt pen lɛk pen na yu jɔyn. | Ibuprofen, Naproksen, we dɛn kɔl Naproxen |
| Vitamin ɛn minral dɛn | Fɔ mek yu nɔ gɛt ɔstioporosis we kin kam wit stɛroyd mɛrɛsin. | Kalsiɔm ɛn Vitamin D |
Lɛ wi no bak bɔt di bad tin dɛn we di tritmɛnt dɛn kin du.
Pan ɔl we dɛn mɛrɛsin ya kin ɛp fɔ sev pikin in layf, dɛn kin mek sɔm sayd ɛfɛkt dɛn bak. I impɔtant fɔ no bɔt dis.
If yu tek sterɔyd mɛrɛsin lɛk `Prednisone` fɔ lɔng tɛm i kin mek tin dɛn lɛk:
- We yu de gɛt mɔ wet
- Stretch mak dɛn na di skin
- Di ay blɔd prɛshɔn
- Fɔ mek di bon dɛn tan (ɔstioporosis) .
- Pɔrsin wae gɛt pwɛl hat na yu maynd ɔr pwɛl hat
- Di shuga na di blɔd we de go ɔp (dayabitis) .
- Di we aw pɔsin kin gɛt katarakt ɔ glaukoma
Dɛn sayd ɛfɛkt ya kin afɛkt di we aw di pikin de luk, in maynd, ɛn aw i de gro. So, i rili impɔtant fɔ atɛnd klinik dɛn di rayt tɛm lɛk aw di dɔktɔ tɛl yu.
di drog `Hydroxychloroquine` kin rili rεli mek damej to di retina na di yay. So, ɔl pikin we de tek dis mɛrɛsin fɔ mek dɔktɔ we de mɛn in yay chɛk in yay ɔltɛm.
Aw a go ɛp mi pikin as mama ɔ papa?
Yu kin fil se yu nɔ ebul fɔ du natin we yu kam fɔ no se yu pikin gɛt lupus. Bɔt bɔku tin dɛn de we yu kin du fɔ ɛp yu pikin fɔ du dis waka.
- Protɛkt frɔm di san: San layt na wan men tin we kin mek di lupus wɔs. So, ɛnitɛm we yu pikin go na do , mek shɔ se yu wɛr sanglas, hat, ɛn klos we gɛt lɔng sliv. Dɔn bak, yuz sɔntin we de protɛkt yusɛf frɔm di san we gɛt SPF we na 30 ɔ pas dat. Dɛn fɔ du dis ivin pan de dɛn we klawd kin kam. Kip yu pikin kɔmɔt na di san as yu ebul bitwin 10 a.m. ɛn 4 p.m.
- Rɛst ɛn ɛksesaiz: Mek yu pikin rɛst if i fil taya. Bɔt di de dɛn we i de fil fayn, ɛnkɔrej am fɔ du ɛksesaiz dɛn we nɔ gɛt wan bɔt lɛk fɔ waka ɛn fɔ swim. Dis go ɛp fɔ mek in mɔsul dɛn strɔng.
- Protɛkt frɔm infɛkshɔn: Lupus ɛn sɔm mɛrɛsin dɛn we i de tek kin mek yu pikin in imyun sistɛm wik. Dis kin mek dɛn sik mɔ. Tich dɛn fɔ was dɛn an bɔku tɛm wit sop ɛn wata. Kip dɛn fa frɔm pipul dɛn we sik.
- Kip wan lɔg fɔ di sayn dɛm: Kip yu pikin in sayn dɛm, di de dɛm wae i de wɔs, ɛn ɛni nyu sayn dɛm wae de sho. Dis go rili yusful we yu go to dɔktɔ.
- Infɔm di skul: Tɛl di skul ticha dɛn ɛn di prinsipal bɔt di pikin in kɔndishɔn. Dis go ɛp dɛn fɔ gi di pikin di tin dɛn we dɛn nid.
- Tink bɔt mɛntɛl hεlth: Fɔ liv wit wan sik we nɔr de dɔn, kin tranga fɔ di pikin in maynd. Alaw yu pikin fɔ tɔk to yu opin wan. If nid de, aks pɔsin we de advays yu fɔ ɛp yu.
- Tek kia of yusɛf: Wit ɔl dis, i rili impɔtant fɔ tek kia ɔf yusɛf as mama ɛn papa. Tek tɛm rɛst ɛn tink bɔt yu wɛlbɔdi. Na if yu gɛt wɛlbɔdi nɔmɔ yu go ebul fɔ kia fɔ yu pikin fayn fayn wan.
Mɛsej we dɛn kin kɛr go na os
- Lupus na wan sik we de mek wi nɔ ebul fɔ fɛt insɛf we wi yon imyun sistɛm de atak wi yon bɔdi.
- I kin tranga pasmak we i de afɛkt pikin dɛm, bɔt dɛn kin kɔntrol am fayn fayn wan wit di rayt tritmɛnt.
- Wach fɔ di sayn dɛm lɛk fɔ gɛt rash we tan lɛk bɔtaflay, taya pasmak, pen na yu jɔyn dɛm, ɛn yu kin gɛt fiva ɔltɛm.
- Fɔ protɛkt yusɛf frɔm di san rili impɔtant. Dɛn fɔ wɛr tin fɔ protɛkt yusɛf frɔm di san ɛn fɔ protɛkt yusɛf.
- Nɔ ɛva fɔgɛt fɔ tek di mɛrɛsin dɛn we yu dɔktɔ tɛl yu ɛn go na klinik.
- Nɔto yu ɔ yu pikin nɔmɔ de du dis waka. Dɔktɔ, nɔs, ɛn advaysa dɛn rɛdi ɔltɛm fɔ sɔpɔt yu.
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