Yu smɔl pikin gɛt dɛn 4 kɔmpleks at prɔblɛm dɛn ya? (Tetralogy of Fallot) - Lɛ wi tɔk bɔt dis!

Tetralogy of Fallot, כ ToF fכ sכt, na wan kכndyushכn we fכ abnכmal tin dεm de apin tכgeda na yu pikin in at we dεn bכn am. Dɛn prɔblɛm ya kin mek i nɔ izi fɔ di pikin in at fɔ pɔmp inof blɔd we gɛt ɔksijɛn to di ɔda pat dɛn na di bɔdi. Yu no aw ɔksijɛn impɔtant fɔ mek ɔltin na wi bɔdi wok fayn fayn wan. Na nɔmal tin fɔ fil frayd wae yu yɛri bɔt dis sik, bɔt lɛ wi tɔk bɔt am ditayli so dat yu go ɔndastand am bɛtɛ.

Wetin mek dis `(Tetralogy of Fallot)` spɛshal? Wetin kin apin na di at?

Fɔ tɔk am simpul wan, we pɔsin gɛt wɛlbɔdi at, blɔd kin travul na wan patikyula rod. Dat min se, di blɔd we nɔ gɛt ɔksijɛn kin go na di lɔng, i kin tek ɔksijɛn, dɔn i kin kam bak na di at fɔ mek i sheb ɔlsay na di bɔdi. bכt biכs fכ dεn fכ strכkchכral prכblεm dεm ya na di at fכ pikin we gεt ``Tetralogy of Fallot``, sכm pan di bכdi we dεn dכn כksijεn de go strεt na di bכdi insted fכ go na di lכng dεm. Dis na di men prɔblɛm.

Naw lɛ wi si wetin na dɛn 4 at prɔblɛm ya:

1. Ventricular Septal Defect (VSD) : Imajin se yu at gεt tu men chεmba dεm, wan na di rayt εn wan na di lεft. we VSD apin na di wכl bitwin di tu, di blכd we nכ gεt כksijεn (blu bכdi) na di rayt vεntrikl de miks wit di כksijεn bכdi (rεd bכdi) na di lεft vεntrikl. Dis nɔ fayn, bikɔs di bɔdi nid klin blɔd we gɛt ɔksijɛn.

2. Pulmonary Artery Stenosis : na di men bכdi we de kכri bכdi we nכ gεt כksijεn frכm di rayt vεntrikl na di at to di lכng dεm (di pulmonary artery) εn in valv (di valv) de sכm. I tan lɛk se wata paip de klos. Dis kin mek di blɔd we kin go na di lɔng dɛn nɔ bɔku wit ɛni at bit. Dis kin mek di ɔksijɛn we dɛn kin ad to di blɔd nɔ bɔku.

3. di men bכdi we de kכri bכdi go na di bכdi de na di rכng ples (`Overriding Aorta`) : di `(Aorta)` na di big bכdi we de kכri bכdi we gεt כksijεn insay wi bכdi. nכmal wan, dis kin kכnekt to di lכw lεft chεmba na di at. bכt wit `(VSD)`, dis `(Aorta)` de oba di tu chεmba dεm, we de opin to dεn tu. biכs fכ dis, כl tu di bכdi we nכ gεt כksijεn εn di bכdi we gεt כksijεn de bigin fכ fכlכ tru dis `(Aorta)` to di bכdi. Fɔ tɔk klia wan, sɔm pan di blɔd we fɔ go na di lɔng fɔ gɛt ɔksijɛn kin go dairekt na di bɔdi.

. Jɔs lɛk aw mɔsul kin big we yu es wan wet, na so di mɔsul layt we de na di wɔl na dis chɛmba kin big bak as tɛm de go. Dis kin ambɔg di at wok mɔ.

we dεn fכ prכblεm ya kam togεda, di kכndyushכn we dεn kכl ``Tetralogy of Fallot'' de apin.

Aw dis sik kin kɔmɔn? Udat dɛn kin gɛt am mɔ?

Tetralogy of Fallot na rili wan sik we nɔ kin apin so ɔltɛm.. Amɛrikin statystik dɛn sho se dis kin apin to lɛk wan pan ɛvri 2,000 pikin dɛn we dɛn bɔn. Bɔt pan di at sik dɛm we dɛn kin bɔn wit (`(Congenital Heart Disorders)`), dis na fayn tin we kin apin. Dis kכndyushכn kin kכmכn sכmtεm pan man pikin dεm. כlso, dכkta dεn dכn si se dεn kin si `(ToF)` bak pan pikin dεm we gεt כda kromozom komplikashכn dεm lεk `(Down Syndrome)`.

Na smɔl tɛm nɔmɔ, sɔm pipul dɛn kin gɛt prɔblɛm we dɛn dɔn big if dɛn nɔ trit dɛn we dɛn smɔl.

Aw dɔktɔ dɛn kin no se pɔsin gɛt Tetralogy of Fallot?

Yu dɔktɔ kin no dis sik we yu gɛt bɛlɛ ɔ afta dɛn bɔn di pikin . Bɔku tɛm, dɛn kin no am insay di fɔs wik ɔ mɔnt afta dɛn bɔn di pikin.

Tɛst dɛn we dɛn kin du bifo dɛn bɔn pikin

If di ɔltra saund skan we dɛn kin du ɔltɛm we uman gɛt bɛlɛ sho ɛnitin we nɔ fayn na di at, di dɔktɔ kin du spɛshal skan we dɛn kɔl fetal echocardiogram . dis kin bi bitwin 18 εn 22 wiks we di bεlε de fכ si klia wan aw di pikin in at strכkchכ εn fכ no if eni prכblεm de.

Tεst dεm afta dεn bכn di pikin

afta dεn bכn di pikin, we di dכkta de egzamin di pikin εn lisin to di at, dεn kin yεri wan כnכmal sawnd (`Hat Murmur`) . dis na kכmכn simptom we dεn kin si pan bebi dεm we gεt `(ToF)`.

Apat frɔm dat, dɛn de du bɔku ɔda tɛst dɛn fɔ no if dis tin apin:

• Pulse Oximetry : Dis na wan tɛst we rili simpul, we nɔ de mek pɔsin fil pen. Bifo yu kɛr yu pikin go na os, dɛn kin put smɔl sɛns na yu pikin in an ɔ in leg fɔ no di ɔksijɛn lɛvɛl we de na in blɔd. di lכw כksijεn lεvεl kin bi sayn fכ wan kכndyushכn we dεn kכl (ToF).
• Echocardiogram (dεn kin kכl am bak echo) : Dis tan lεk skan. I de yuz sawnd wev fɔ si klia wan aw di pikin in at tan, ivin in valv dɛn ɛn di blɔd we de flɔ.
• Chεst X-ray כ Cardiac CT Scan : dis kin sho sכmtεm wan abnכmal "boot-shaped" apinεns fכ di at. Dis na wan kwaliti we ToF gɛt.
• Ilektrokardiogram (EKG ɔ ECG) : Dis de tɛst di ilɛktrik aktiviti na di at. I kin no ɛni abnɔmal tin na di at ritm ɔ if di at chɛmba dɛn de wok tumɔs.
• Cardiac Catheterization : Dis na tɛst we kɔmplikt smɔl. Na if nid de nɔmɔ dɛn kin du am. Dɛn kin pas wan smɔl tiub (kateta) tru wan blɔd vesel na di leg ɔ an insay di at fɔ mɛzhɔ di prɛshɔn we de insay di at, tek blɔd sɛmpul, ɛn si di strɔkchɔ klia wan.

We dɛn de no dis sik pan big pɔsin ɔ pikin we dɔn big smɔl, dɛn kin yuz di tɛst dɛn we wi dɔn tɔk bɔt ɔp, lɛk `(EKG)` ɛn `(Cardiac Catheterization),`.

Aw dɛn kin trit dis kɔndishɔn `(Tetralogy of Fallot)`?

di men tritmεnt fכ pikin we gεt `(ToF)` na mεdikeshכn εn כpεrayshכn . as fכs step, dכkta dεm kin gi di pikin mεdikeshכn lεk `(Beta-blockers)` fכ kכntrכl di pikin in simptom dεm εn impruv di bכdi sakulεshכn. Dɛn kin gi ɛkstra ɔksijɛn bak.

Dɛn kin du ɔpreshɔn fɔ kɔrɛkt ɔl dɛn 4 at prɔblɛm dɛn ya bitwin tri ɛn siks mɔnt afta dɛn bɔn di pikin. Afta dis ɔpreshɔn, di we aw blɔd de pas na di at kin kam bak lɛk aw i bin de.

Wetin na di ɔpreshɔn we dɛn kin du?

Di tritmɛnt we dɛn kin pik kin difrɛn fɔ di pikin in kɔndishɔn. Sɔntɛnde, if di pikin rili smɔl ɔ i rili wik, i kin at fɔ du big ɔpreshɔn wan tɛm. insay dεn kayn kes dεm ya, dεn kin du simpul כpεrayshכn (`(Palliative Surgery)`) fכ kכntrכl di simptom dεm fכ sכm tεm te di pikin ol sכmtεm εn strכng. Na da tɛm de nɔmɔ dɛn go ebul fɔ du di `(Kɔmplit Ripa)`.

Bɔku men ɔpreshɔn dɛn de we dɛn kin du:

• Kɔmplit Ripa : Insay dis prɔsidyu, di ɔspitul de mek di valv we dɔn smɔl ɛn di rod we de kɛr blɔd go na di lɔng dɛn big. כlso, di ol bitwin di tu lכw chεmba dεm na di at (VSD) dεn kin kכl am wit pat.
• BTT Shunt Procedure : Dis na di tɛmporari ɔpreshɔn we wi bin dɔn tɔk bɔt. wan sכm tכb (Shunt) dεn de put bitwin di pikin in an at (Subclavian Artery) εn di pulmonary artery (Pulmonary Artery). Dis kin mek mɔ blɔd go na di lɔng dɛn.
• Di we aw fɔ du di kateshɔn : Sɔntɛnde, dɛn kin put stent insay di at tru kateshɔn we dɛn nɔ du ɔpreshɔn fɔ mek di rayt ventricle opin. dεn kin yus am bak fכ mek di pikin in patent ductus arteriosus (wan tכb we de kכnekt di pulmonary artery εn aorta) nכ kכloz.

Ɔpreshɔn fɔ big pipul dɛn

Na smɔl tɛm nɔmɔ, sɔm pipul dɛn kin ebul fɔ liv we dɛn smɔl we dɛn nɔ gɛt ɛni ɔpreshɔn ɛn dɛn kin big. Di wan dɛn we sabi bɔt dis kin advays dɛn kayn pipul dɛn ya fɔ mek dɛn du dɛn ɔpreshɔn kɔmplit wan fɔ mek dɛn nɔ gɛt prɔblɛm dɛn tumara bambay ɛn fɔ mek dɛn nɔ day wantɛm wantɛm.

Insay dis prɔsidyu, dɔktɔ we spɛshal pan big pipul dɛn we dɛn bɔn wit at sik (VSD) kin lɔk di prɔblɛm wit pat, opin di rayt atria, ɛn mek ɔ chenj di pulmonari valv. Di pulmonari at we de gi blɔd to ɔl tu di lɔng dɛn kin big. Sɔntɛnde dɛn kin put wan tiub bitwin di rayt atria ɛn di pulmonari at fɔ mek di blɔd go fayn.

Mɔs pan di big pipul dɛm we dɛn kin du ripa fɔ wan at prɔblɛm (ToF) nɔ go nid ɔda ɔpreshɔn tritmɛnt, bɔt dɛn fɔ kɔntinyu fɔ go to big pɔsin we dɛn bɔn wit dɛn at fɔ mek dɛn fala dɛn ɔltɛm.

Us prɔblɛm dɛn kin apin afta dɛn dɔn du di ɔpreshɔn?

Afta di Tetralogy of Fallot ɔpreshɔn, sɔmtɛm (ɛn sɔm tɛm ivin afta sɔm tɛm), sɔm kɔmplikeshɔn dɛn kin kam. Bɔt nɔ wɔri, di dɔktɔ dɛn kin pe atɛnshɔn to dis ɔltɛm.

• ilektrikal Disturbans: di pat we de klos di VSD kin intafεr di ilektrikal signal dεm sכmtεm frכm di כp chεmba dεm na di at (Atria) to di lכw chεmba dεm (Ventricles). Dɛn kin kɔrɛkt dis wit wan pesmɛka. wit ToF we dεn rεpεr, risk de fכ aritmi (hat bit we nכ de bit) na כl tu di כp εn lכw chεmba dεm na di at. If yu gɛt syncopal episode, dɛn fɔ chɛk yu fɔ dis.
• Residual Ventricular Septal Defect : Sɔntɛnde i kin gɛt smɔl lik rawnd di pat we dɛn yuz fɔ lɔk di VSD.
• Aneurism : Di pat we dɛn kin yuz fɔ mek di valv kin mek di wik say dɛn we de na di valv pul kɔmɔt ɛn mek wan aneurism (we kin tan lɛk balɔ na di blɔd vesel). di risk de bak fכ divεlכp aneurysm na di ascending aorta.
• Shunt Isyu : Bikɔs ɔf di shunt we dɛn put di tɛm we dɛn de du di fɔs tɛmporari ɔpreshɔn, prɔblɛm dɛn lɛk fɔ smɔl (stenosis), ay blɔd prɛshɔn na di pulmonari at, ɛn fɔ strɛs pasmak na di lɛft say na di at kin apin.
• Valv dεm we de lik : Bכd kin lik bak tru di valv dεm na yu lכng, aorta, כ di rayt say na yu at (Tricuspid). Sɔntɛnde, i kin nid fɔ gɛt pulmonari valv (Valve Replacement).

Wetin yu kin ɛkspɛkt we yu de liv wit dis sik?

Ivin if di blɔd we de flɔ na di at kin kam bak to nɔmal afta dɛn dɔn du di ɔpreshɔn fɔ Tetralogy of Fallot, sɔm tin dɛn stil de we yu ɔ yu pikin nid fɔ no bɔt:

• Hat Infεkshכn Risk : Di risk fכ εndokardaytis de hכy sכmtεm. So, yu fɔ rili tek tɛm wit yu tit wɛlbɔdi. Yu dɔktɔ kin advays yu fɔ tek antibayɔtik fɔ mek yu nɔ gɛt di sik we yu de trit yu tit.
• Slow divεlכpmεnt : Bebi dεm we gεt Tetralogy of Fallot kin gεt slo growth εn weit gεt. Dɛn kin nid fɔ gɛt tritmɛnt fɔ dɛn bɔdi, fɔ tɔk, ɔ fɔ du wok.
• Risk fɔ gɛt bɛlɛ : Di uman dɛn we dɔn ol fɔ gɛt spɛshal at chɛk-ap bifo dɛn gɛt bɛlɛ. Di risk fɔ mek uman gɛt bɛlɛ kin bɔku smɔl pas aw i kin bi.
• Di tin dɛn we yu fɔ du fɔ mek yu nɔ tek mɛrɛsin : As yu dɔn big, dɛn kin aks yu fɔ yuz sɔm mɛrɛsin dɛn nɔmɔ ɛn we fɔ kɔntrol yu pikin wit yu at sik.

Wetin na di fiuja fɔ `(ToF)` stetɔs?

wit di advansmεnt fכ mεdikal sayns, di fכs fכ pikin dεm we gεt `(Tetralogy of Fallot)` bεtε pas aw i bin de bifo. Ɔpreshɔn tritmɛnt kin rili fayn fɔ kɔrɛkt di prɔblɛm dɛn we de na di strɔkchɔ na di at ɛn di blɔd we de flɔ. Di sakses rεt fכ כpεrayshכn pan big pipul dεm we εkspiriεns kכnεkshכn hat כpεrayshכn de du bak rili hכy.

Tide, bɔku pan di bebi dɛn we dɛn du ɔpreshɔn fɔ kɔrɛkt di Tetralogy of Fallot de liv aktif layf. Bɔt sɔm tin dɛn kin de we kin mek pɔsin nɔ ebul fɔ du tin dɛn we kin mek pɔsin tranga, lɛk spɔt dɛn we pɔsin kin kɔmpit. di lכng tεm sכvayv rεt afta ToF כpεrayshכn rili gud. Bɔrku pipul dɛm wae gɛt ɔpreshɔn kin liv te to dɛn 30 ia. Bɔt if dɛn nɔ du di ɔpreshɔn, na lɛk 1 pan ɛvri 3 pipul dɛn nɔmɔ we gɛt Tetralogy of Fallot go liv fɔ 10 ia.

Sɔm big pipul dɛm wae dɔn gɛt ɔpreshɔn fɔ Tetralogy of Fallot as pikin kin gɛt prɔblɛm wae dɛn dɔn big ɛn dɛn kin nid mɛrɛsin, mɛrɛsin, ɔr ɔda ɔpreshɔn. So, i impɔtant fɔ mek big pipul go to dɛn dɔktɔ we de mɛn dɛn at bifo dɛn du ɔpreshɔn pan ɔda pat na dɛn bɔdi.

Ɛnitin de we a go du fɔ mek mi pikin fil fayn?

we yu pikin de wet fכ כpεrayshכn, yu kin εp am we i gεt "tet spells" (we i tכn blu εn i at fכ brith). We i nɔ izi fɔ blo, put am na say we i de skwatin ɛn in ni dɛn de nia in chɛst . dis posishכn de mek di bכdi fכ fכlכ pasmak na di lכng dεm, we kin εp yu pikin fכ fil bεtεh.

Dɔn bak, i rili impɔtant fɔ gi di pikin inof wata fɔ drink ɛn fɔ mek i nɔ tray tranga wan pasmak.

Ustɛm a fɔ go to mi dɔktɔ?

If yu pikin gɛt siriɔs "tet spell," we min se dɛn kin tɔn blu ɛn gɛt prɔblɛm fɔ blo, kɛr dɛn go na di ɔspitul imejensi rum we de nia yu wantɛm wantɛm . If yu na big pɔsin, if yu fil se yu nɔ gɛt bɛtɛ trɛnk, yu ed de tɔn, yu gɛt prɔblɛm fɔ blo, ɔ yu gɛt pen na yu chɛst, yu fɔ go bak na di imejensi rum.

Di big pipul dɛn we dɛn bin du dɛn fɔs ɔpreshɔn fɔ wan at valv (ToF) we dɛn bin smɔl fɔ gɛt kɔmplit at ɛgzam ɛvri ia ɔ tu ia . Dɛn kin du difrɛn tɛst dɛn fɔ chɛk aw di at de wok, fɔ ɛgzampul:

• `(Holter Monitor)` (Na divays we de rikodɔ wan `ECG` ɔl di de)
• Ilɛktrokardiogram (EKG) .
• Ɛksesaiz Strɛs Tɛst
• Echocardiogram (skan di at) .
• MRI fɔ di at

Dɔn bak, yu dɔktɔ go de wach ɔltɛm aw di rayt say na yu at de saiz ɛn aw i de wok.

Afta dɛn dɔn ripɛnt di Tetralogy of Fallot, yu pikin go nid fɔ de chɛk-ap ɔltɛm wit pikin dɛn we de mɛn dɛn at. Dis rutin kia go kɔntinyu te i big.

Sɔm kwɛstyɔn dɛn we yu kin aks yu dɔktɔ:

• Yu tink se mi pikin go gɛt fɔ stɔp fɔ du spɔt afta dɛn dɔn du am ɔpreshɔn?
• Yu tink se mi pikin go nid fɔ du mɔ ɔpreshɔn?
• Us ɔda mɛrɛsin (if ɛni wan de) mi pikin fɔ tek?

Fɔ dɔn, a fɔ se... (Tek-Home Message)

Na nɔmal tin fɔ fil bad ɛn sɔri we yu kam fɔ no se yu nyu bɔbɔ gɛt at sik. Bɔt mɛmba se yu mɛdikal tim dɔn ɛp bɔku ɔda mama ɛn papa dɛn we dɔn gɛt dis kayn tin, ɛn dɛnsɛf kin ɛp yu. If yu de fil strɛs fɔ kia fɔ pikin wae gɛt Tetralogy of Fallot, nɔr frayd fɔ tɔk to dɔktɔ wae de mɛn yu. Dɔn bak, dɔktɔ kin ɛp pikin ɛn yɔŋ pipul dɛn we fil se dɛn de bifo dɛn kɔmpin dɛn we dɛn de divɛlɔp. Trɔst se if dɛn trit dɛn pikin ya fayn ɛn dɛn de kia fɔ dɛn wit lɔv, dɛnsɛf go ebul fɔ liv fayn layf.

` Tetralogy of Fallot, Pediatric Hat Disease, Congenital At Difεkt, Hol dεm na di At, Blu Bebi Sindrom, At כpεrayshכn, At Strכkchכ