As mama we go bi mama, yu kin de wet fɔ mek yu pikin kam na di wɔl wit wɛlbɔdi. Bɔt sɔntɛnde, wɛlbɔdi prɔblɛm dɛn we wi nɔ bin de ɛkspɛkt kin kam. Tide, wi go tɔk bɔt wan bad bad sik we dɛn bɔn we bɔku pipul dɛn nɔ ivin yɛri bɔt. Dɛn kɔl dis Anencephaly. I rili impɔtant fɔ no bɔt dis.
Wetin rili na Anɛnsɛfali?
Fɔ tɔk am simpul wan, anɛnsɛfali na wan sik we dɛn kin bɔn pikin we nɔ de divɛlɔp di pat dɛn na di bren ɛn di skel fayn fayn wan. Dis na wan sik wae nɔr kin bɔrku ɛn wae kin rili siriɔs.
Mek wi ɔndastand dis smɔl mɔ. we yu bεlε, insay di fכs wik dεm, yu pikin in bren εn in spεnal kכd kin bigin fכ fכm lεk wan flat disk fכ sεl dεm. Tink bɔt am lɛk we yu de rol flat lif insay tiub, ɛn dis disk we gɛt sɛl dɛn kin fold smɔl smɔl ɛn mek wan tin we tan lɛk tiub. Wi kɔl dis di nyural tiub . dis nyural tכb fכ kכmplit wan bay 28-32 de dεm afta dεn bכn am.
Bɔt if fɔ sɔm rizin dis nyural tiub nɔ lɔk ɔl, wan smɔl opin de lɛf. Dis na wetin wi kɔl nyural tiub dɛfɛkt . Anɛnsɛfali na wan pan dɛn kayn nyural tyub dɛfɛkt ya. insay dis kes, di nyural tכb de stil opin na di bכs pat pan di sכkul. dis kin mek di fכnt εn כp pat dεm na di bren εn di pat dεm we de fכm di sכkul we de fכm di sכkul nכ de divεlכp.
Wetin kin mek pɔsin gɛt anencephaly?
I nɔ kin izi fɔ no wan rizin we mek dis apin. Wan kɔmbayn tin dɛn kin ɛp fɔ mek dis apin. Di tin dɛn we de mek di mama gɛt jɛnɛtiks, di tin dɛn we i nɔ de it, ɛn sɔm tin dɛn we di mama kin gɛt we i gɛt bɛlɛ, na sɔm pan di men tin dɛn.
Lɛ wi ɛksplen mɔ bɔt dɛn tin ya we kin mek wi gɛt prɔblɛm na di tebul we de dɔŋ ya.
| Risk factor | Tɔk bɔt |
|---|---|
| Fɔlik Asid we Nɔ Gɛt | di men tin we kin mek yu bכn na we yu nכ de gεt inof fכlik asid bifo εn we yu bεlε. dis vaytam in implεnt fכ divεlכpmεnt fכ di pikin in nyural tכb. |
| Sɔm mɛrɛsin dɛn | Sɔm mɛrɛsin dɛm wae dɛn kin yuse fɔ trit pɔrsin wae gɛt sik wae de mɛk pɔrsin fil fayn, wae de mɛk pɔrsin gɛt maynd sik lɛk bipolar disorder, ɛn maygren, lɛk Phenytoin, Carbamazepine, ɛn Valproic acid , kin mek di risk bɔku. |
| Dayabitis we dɛn nɔ ebul fɔ kɔntrol | If di mama gɛt dayabitis ɛn dɛn nɔ kɔntrol in blɔd shuga fayn fayn wan we i gɛt bɛlɛ, i kin afɛkt di pikin in divɛlɔpmɛnt bad bad wan. |
| Ay bɔdi tɛmpracha | insay di fכs wik dεm we di bεlε de fכm (we di nyural tyub de fכm), i kin denja fכ gεt hכy fiva כ de insay wata we rili wam, lεk hot tub כ sawna. |
| Fat | di mama in wet we pasmak na wan tin we kin afekt di pikin in growth we di pikin in bεlε bigin. |
| Di kɔndishɔn dɛn we de na di jɛnɛtiks | Anɛnsɛfali kin kam bak bikɔs ɔf sɔm jɛnɛtik kɔndishɔn dɛm, lɛk Trisomy 18. Bɔt bɔku tɛm, dɛn tin ya nɔ kin kɔmɔt frɔm dɛn mama ɛn papa, bɔt na di chenj dɛn we kin apin na di jɛnɛtiks we dɛn nɔ kin gɛt. |
| Yuz ɔpioid drɔgs | Sɔm stכdi dεn sho se pikin dεm we mama dεm we yuz opioid pen kil dεm lεk Codeine, Tramadol, εn Morphine insay di fכs tu mכnt dεm we dεn bεlε, kin gεt nyural tyub dεfekt. |
Yu tink se dɛn kin no dis sik we uman gɛt bɛlɛ?
Yɛs, na fɔ tru. As pat pan di kia we yu de kia fɔ yu bifo yu bɔn, yu dɔktɔ go du sɔm tɛst fɔ chɛk fɔ dɛn kayn nyural tyub ya we nɔ fayn.
- Ultrasound Skan we dɛn kin du:Dis na di men we aw dɛn kin du am. Di skan de mek di dɔktɔ si aw di pikin in skel, in bren, ɛn in spɛshal kɔd tan. Bɔku tɛm, dɛn kin no klia wan se dɛn gɛt anɛnsɛfali we dɛn de skan.
- Kwad Mak Skrin Blɔd Tɛst: Dis na tɛst we dɛn kin du pan di mama in blɔd. i de mכsu di lεvεl fכ wan kεmikכl we dεn kכl Alfa-fεtoprotein (AFP) insay di mama in bכdi. di pikin in liva de mek di AFP. if di AFP lεvεl na di mama in bכdi hכy pasmak, i kin sho se di pikin kin gεt nyural tyub dεfekt (lεk anεnsεfali).
- Fetal MRI scan: If sɔntin nɔ klia frɔm di ɔltra saund skan, dɛn kin du MRI skan fɔ gɛt klia, mɔ ditayli pikchɔ dɛn bɔt di pikin in bren ɛn spɛshal kɔd .
- Amniocentesis: Insay dis tεst, di dכkta de yuz wan rili fayn nidul fכ tek sכm sכm sכm sεmpl fכ di amniotic fluid we de rawnd di pikin. dis fluid dεn de tεst fכ di εlevεt lεvεl dεm fכ wan εnzym we dεn kכl AFP εn asetilkolinεstεrayz. di hכy lεvεl dεm fכ dis na sayn bak fכ nyural tyub dεfekt.
Yu tink se tritmɛnt de fɔ dis?
Dis na di pat we rili sɔri pan dis tɔpik.
Bɔt i sɔri fɔ no se, no tritmɛnt ɔ mɛrɛsin nɔ de fɔ di sik we dɛn kɔl anencephaly.
Dis na tin we rili at fɔ bia. bכku bεlε dεm we gεt nyural tyub dεfεkt de εnd wit miskεri. Sɔm pikin dɛn we gɛt anɛnsɛfali kin bɔn as pikin dɛn we dɔn day. Ivin if sɔm we dɛn bɔn di pikin layf layf wan, in layf kin jɔs de fɔ sɔm awa ɔ sɔm dez.
If dɛn no dis kayn tin, yu dɔktɔ ɛn di wan dɛn we de wok na di ɔspitul go gi yu ɛn yu famili di sɔpɔt we yu nid fɔ fil. We dɛn dɔn bɔn di pikin, dɛn go gi di pikin di tin dɛn we i nid fɔ spɛn bɔku tɛm wit di pikin insay da shɔt tɛm de.
Wetin wi go du fɔ ridyus di prɔblɛm?
Pan ɔl we dɛn nɔ kin ebul fɔ stɔp di sik we dɛn kɔl anencephaly 100% pan di tɛm, sɔm tin dɛn de we wi kin du fɔ ridyus di risk bad bad wan. Dis impɔtant mɔ fɔ uman dɛn we de plan fɔ bigin famili.
- Folic Acid: Dis na di tin we impɔtant pas ɔl. If yu de plan fɔ bɔn pikin , bigin fɔ tek 400 maykrogram (400 mcg) fɔlik asid ɛvride fɔ at le 3 mɔnt bifo yu gɛt bɛlɛ.Yu fɔ kɔntinyu fɔ tek dis fɔ di fɔs 3 mɔnt afta yu gɛt bɛlɛ. Yu dɔktɔ go tɛl yu di rayt doz we yu nid.
- Tek tɛm wit mɛrɛsin: If yu de plan fɔ bɔn pikin, tɔk to yu dɔktɔ bɔt ɛni mɛrɛsin we yu de tek naw (espɛshali fɔ sik dɛn lɛk ɛpilepsi ɔ maynd sik). I kin rikomɛnd ɔda we dɛn we nɔ gɛt wan prɔblɛm if nid de.
- Nɔ tek opioid pen kil: If yu tink se yu kin gɛt bɛlɛ ɔ yu gɛt bɛlɛ, nɔ tek opioid pen kil we yu nɔ gɛt yu dɔktɔ in advays.
- Kɔntrol yu bɔdi tɛmpracha: Nɔ go na hot tub ɛn sawna we yu gɛt bɛlɛ kwik kwik wan. If yu gɛt fiva, go to yu dɔktɔ bɔt aw fɔ ridyus di fiva fayn fayn wan.
- Mek yu gɛt wɛlbɔdi wet: Tray fɔ mek yu bɔdi gɛt wɛlbɔdi ivin bifo yu bɔn pikin.
- Manej dayabitis: If yu gɛt dayabitis, tɔk to yu dɔktɔ bɔt aw fɔ mɛn am fayn fayn wan bifo yu gɛt bɛlɛ ɛn ɔl di tɛm we yu gɛt bɛlɛ.
Mɛsej we dɛn kin kɛr go na os
- Anɛnsɛfali na wan bad bad tin we kin apin we dɛn bɔn pikin, we kin mek di pikin in bren ɛn in skel nɔ de divɛlɔp fayn.
- Nɔr tritmɛnt nɔr de fɔ dis sik.
- If yu de plan fɔ bɔn pikin, i rili impɔtant fɔ tek fɔlik asid sɔm mɔnt bifo yu gɛt bɛlɛ. dis kin ridyus di risk fכ di nyural tyub dεfekt bכku bכku wan.
- Tɔk to yu dɔktɔ bɔt ɛni mɛrɛsin we yu de tek ɛn di mɛrɛsin kɔndishɔn lɛk dayabitis bifo yu gɛt bɛlɛ.
- skan we yu bεlε kin no dεn kכndyushכn ya kwik kwik wan. So nɔ ɛva skip di klinik.
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