Yu don eva yehri boht di wohd G6PD? Sɔntɛm dɔktɔ dɔn tɛl yu bɔt am, ɔ sɔntɛm sɔmbɔdi na yu famili dɔn tɛl yu bɔt am. Ɔ sɔntɛm na sɔntin we rili nyu to yu. Bɔt, nɔ fred we yu yɛri di nem. G6PD dɛfisiɛns na wan rili kɔmɔn jɛnɛtik kɔndishɔn we de afɛkt lɛk 400 milyɔn pipul dɛn ɔlsay na di wɔl. I tan lɛk smɔl chenj na wi bɔdi pas sik. So lɛ wi tɔk bɔt ɔltin rili simpul ɛn fayn fayn wan tide.
Wetin na di ɛksaktɔli G6PD dɛfisiɛns?
Okay, mek wi put dis simpul wan. Wi blɔd gɛt wan kayn sɛl we dɛn kɔl rɛd blɔd sɛl . Dɛn sɛl dɛn ya kin kɛr ɔksijɛn go ɔlsay na wi bɔdi. I tan lɛk motoka we de kɛr guds go na os.
Naw, wan spɛshal ɛnzaym de we de ɛp dɛn rɛd blɔd sɛl ya fɔ gɛt wɛlbɔdi ɛn strɔng. wi kכl am `Glucose-6-Phosphate Dehydrogenase`, כ G6PD fכ sכt. tink bɔt dis ɛnzaym as pɔsin we de protɛkt di rεd bכdi sεl dεm, כ `pawa saplai' we de gi dεm enεji. dis G6PD εnzym de protεkt di rεd bכdi sεl dεm frכm sכm pan di bad tin dεm we de insay di bכdi.
wetin kin apin na di bכdi fכ pכsin we gεt G6PD dεfisiεns na dat di G6PD εnzym nכ de prodyuz insay inof kwantiti. Ɔ di ɛnzaym we dɛn mek nɔ de wok fayn. Dis na tin we pɔsin kin gɛt frɔm in mama ɛn papa . Dat min se yu gɛt dis frɔm yu mama ɔ papa, ɛn i nɔto sik we pɔsin kin pas.
Bɔrku tɛm, fɔ gɛt G6PD dɛfisiɛns nɔto big prɔblɛm. Bɔt if yu tek sɔm mɛrɛsin dɛn, kemikal dɛn, ɔ sɔm it dɛn (espɛshali sɔm kayn bins), di rɛd blɔd sɛl dɛn kin bigin fɔ pwɛl bikɔs da tin de we de protɛkt yu nɔ de. Dis na wetin wi kin kɔl `hemolytic anemia.` Lɛ wi luk am smɔl mɔ.
Wetin na di sayn dɛm we de sho se yu gɛt dis sik? Aw wi no dis?
Di amazing tin ya na dat bɔrku pipul dɛm wae gɛt G6PD deficiency nɔr de sho ɛni symptom . Dɛn de liv nɔmal layf. Di prɔblɛm kin jɔs kam we dɛn de pan wan pan di ‘trig’ we wi bin dɔn tɔk bɔt, dat na, wan bad bad drɔg ɔ it.
Bɔt sɔntɛnde di pikin kin gɛt janda (di skin kin yɔlɔ) afta dɛn bɔn am, we kin izi fɔ trit.
If pɔsin we nɔ gɛt G6PD gɛt sɔntin we de ambɔg am, i kin gɛt wan sik we dɛn kɔl `hemolytic anemia.` Fɔ tɔk am simpul wan, dis na we di rɛd blɔd sɛl dɛn kin brok ɛn pwɛl kwik pas aw dɛn kin mek am. Rɛd blɔd sɛl dɛn na di wan dɛn we de kɛr ɔksijɛn rawnd di bɔdi. So we dεn dכn dכn, di bכdi in כgan dεm nכ de gεt di כksijεn we dεn nid.
if dis kכndyushכn fכ `hεmolytic anemia` apin, i kin rili siriכs. So, e fayn fɔ no bɔt dɛn kayn sik ya.
Di tebul we de dɔŋ ya sho di kɔmɔn sayn dɛm fɔ ɛmolaytik anemia.
| Di sayn we de sho se di sik de | Tɔk bɔt |
|---|---|
| Pale skin | Di skin kin chenj in kɔlɔ ɛn i kin tan lɛk se di bɔdi nɔ gɛt blɔd. |
| Di skin ɛn yay we de yɔlɔ (Jaundice) . | Bilirubin, we na wan tin we dɛn kin mek we di rɛd blɔd sɛl dɛn brok, kin mek di skin ɛn di wayt pat na di yay tɔn yɔlɔ. |
| Dak urine | Di urine kin tɔn dak brawn ɔ kola kɔlɔ. |
| Fiva | Yu kin fil fiva fɔ natin. |
| Taya ɛn wik | Fɔ fil se yu nɔ gɛt layf, yu nɔ de blo fayn, ɛn yu taya pasmak. |
| Disoriɛnteshɔn | We di bren nɔ gɛt bɛtɛ ɔksijɛn, yu kin fil kɔnfyus ɛn nɔ kin no wetin fɔ du. |
| Di at we de blo | Di at rit de go ɔp. |
If dɛn sayn ya rili bad ɛn nɔ de chenj, yu fɔ go to dɔktɔ wantɛm wantɛm . Sɔntɛnde, yu kin nid fɔ go na ɔspitul in Imejɛnsi Dipatmɛnt (ETU).Sɔntɛm bak dɛn go nid fɔ pul am. Bɔt bɔku tɛm, we dɛn dɔn pul di tin we mek dis sik, i go wɛl fɔ insɛf insay lɛk tu wiks so.
Wetin na di rizin fɔ dis? Udat dɛn kin gɛt am mɔ?
As wi bin dɔn tɔk, G6PD dɛfisiɛns na kɔmplit jɛnɛtik kɔndishɔn . Dis min se yu gɛt am frɔm yu mama ɛn papa. No we nɔ de fɔ mek i nɔ apin.
Bɔt sɔm grup dɛn kin gɛt dis sik.
- Fɔ man dɛn (mɔ pas uman dɛn).
- Fɔ di wan dɛn we de na kɔntri dɛn na Afrika, Eshia, di Midul Is, ɛn di Mɛditarenian rijɔn.
If yu no se sɔmbɔdi na yu famili gɛt G6PD dɛfisiɛns, chans de fɔ mek yusɛf gɛt am. So i fayn fɔ tɔk to yu dɔktɔ bɔt am.
Aw yu go no if yu gɛt G6PD dɛfisiɛns?
Wan rili simpul we de fɔ no. Dat na bay we dɛn du wan blɔd tɛst . Yu dɔktɔ go tɛl yu fɔ du dis tɛst bay yu famili histri ɛn if yu gɛt sɔm sayn dɛn.
כltu, dεn kin du wan skrεnin tεst fכs fכ si if G6PD dεfisiεns de. If i sho se i nɔ gɛt bɛtɛ tin fɔ du, dɛn kin du ɔda tɛst fɔ si aw i rili bad. Di `Beutler test` na wan pan dɛn kayn tɛst ya.
Tru dɛn tɛst ya, yu kin no klia wan if yu gɛt G6PD dɛfisiɛns ɛn, if na so, wetin na di lɛvɛl.
Aw fɔ liv wit G6PD dɛfisiɛns? Wetin na di tin dɛn we wi fɔ avɔyd?
Dis na di pat we impɔtant pas ɔl. If dɛn no se yu nɔ gɛt G6PD, dɛn nɔ nid ɛni patikyula tritmɛnt . Ɔl wetin yu nid fɔ du na fɔ avɔyd di ‘trig’ dɛm we de pwɛl yu rɛd blɔd sɛl dɛm ɛn mek yu gɛt di sik we dɛn kɔl ɛmolaytik anemia.
Dat min se yu fɔ avɔyd sɔm mɛrɛsin dɛn, kemikal dɛn, ɛn it dɛn kpatakpata. Dɛn kɔl dɛn tin ya tin dɛn we kin mek pɔsin gɛt ‘ɔksidativ strɛs.’
Mɛmba di tebul we de dɔŋ ya. I rili impɔtant fɔ mek dɛn tin ya nɔ de na yu layf.
| Tin dɛm wae pipul dɛm wae gɛt G6PD dɛfisiɛns fɔ rili avɔyd | |
|---|---|
| Kayn | Ɛgzampul dɛn |
| It | Fava bins - Dis na di it we impɔtant pas ɔl ɛn we denja pas ɔl. Insay sɔm kɔntri dɛn, dɛn kin kɔl dɛn tin ya bak brayt bins. |
| Mɛrɛsin dɛn we dɛn kin yuz | Sɔm mɛrɛsin dɛn we de mek pɔsin fil pen (e.g., aspirin we dɛn kin yuz bɔku bɔku wan ) . |
| Antibayɔtik we gɛt "Sulf" (e.g. Sulfonamides) . | |
| Anti-malaria drɔgs we gɛt "quine". | |
| Kεmikכl dεm | Naftalin - Dɛn kin si dɛn tin ya na mɔtbɔl we dɛn kin put na wodrɔb. Ivin we yu blo dɛn sɛnt, dat kin ambɔg yu. |
Impɔtant: If yu gɛt G6PD dɛfisiɛns, yu fɔ tɛl yu dɔktɔ ɛvri tɛm we yu si am. Dɔn, we i gi yu mɛrɛsin, i go pik mɛrɛsin dɛn we nɔ bad fɔ yu. Nɔ ɛva tek ɛni mɛrɛsin if yu nɔ go to dɔktɔ fɔs.
Mɛsej we dɛn kin kɛr go na os
- G6PD dɛfisiɛns nɔto sik we yu fɔ fred. Na wan sik we bɔku pipul dɛn na di wɔl gɛt, ɛn i kin pas frɔm wan jɛnɛreshɔn to ɔda jɛnɛreshɔn.
- Bɔrku pipul nɔr kin gɛt ɛni sayn ɛn dɛn kin sik nɔmɔ if dɛn gɛt bad bad mɛrɛsin, it (especially fava bins), ɔr kemikal.
- Fɔ mek yu ebul fɔ kɔntrol yu layf fayn fayn wan, yu nid fɔ no gud gud wan wetin bad fɔ yu ɛn nɔ de nia dɛn.
- If yu gɛt sɔm sayn dɛn lɛk fiva, taya pasmak, yu skin yɔlɔ, ɛn yu urine dak, go to dɔktɔ wantɛm wantɛm.
- Mɛmba yu dɔktɔ ɛvri tɛm we yu si am se yu gɛt G6PD dɛfisiɛns. I rili impɔtant fɔ yu sef.
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