Imajin se yu bin gɛt kol ɔ yu bɛlɛ pen sɔm dez bifo ɛn naw yu de fil fayn smɔl. Bɔt wantɛm wantɛm yu kin fil lɛk se yu yay nɔ de si bɛtɛ, yu de si tin dɛn na tu pat. Yu kin fil se yu nɔ stedi we yu de waka, yu leg dɛn kin tandul. If sɔntin lɛk dis apin, ɔlman go rili fred, nɔto so? Tide wi de tɔk bɔt wan sik wae kin mek pɔrsin gɛt sɔm kayn sik lɛk dis, wae bɔrku pipul nɔr dɔn yɛri bɔt, bɔt i rili impɔtant fɔ no. Dat na di sik we dɛn kɔl Miller Fisher Syndrome.
Fɔ tɔk am simpul wan, wetin na Miller Fisher Syndrome?
Miller Fisher syndrome na wan sik wae de kam wit nyurolɔjik wae nɔr kin bɔrku. Sɔntɛm yu dɔn yɛri bɔt di sik we dɛn kɔl Guillain-Barré syndrome (GBS). Na sik bak we wi imyun sistɛm kin atak wi yon nerv dɛm. Miller Fisher syndrome na wan kayn we fɔ GBS. I nɔ kin so bɔku dat i kin afɛkt bitwin 1% ɛn 5% pan di wan dɛn we gɛt GBS na di Wɛstɛn kɔntri dɛn. Bɔt na sɔm kɔntri dɛn na Eshia lɛk Taywan ɛn Jepan, di nɔmba pas am smɔl. So yu kin ɔndastand se dis nɔto sik we pɔsin kin gɛt ɛvride. Bɔt i rili impɔtant fɔ no bɔt dis.
Wetin mek dis kin apin? Wetin na di rizin dɛn?
Dis na di tin we impɔtant pas ɔl. Ɔl tu di Miller Fisher syndrome ɛn GBS de divɛlɔp fɔ ansa to wan infɛkshɔn we de kam insay wi bɔdi.
Fɔ tɔk am simpul wan, wi yon difɛns sistɛm, di imyun sistɛm, kin ‘kɔnfyus’ smɔl ɛn instead fɔ fɛt di infɛkshɔn, i kin bigin fɔ atak wi yon nerv dɛn bay mistek. Dɔktɔ dɛn stil nɔ no bɛtɛ bɛtɛ wan wetin kin mek dis sik. Dɛn sayn ya kin apin insay sɔm dez to 4 wiks afta yu gɛt sik, mɔr lɛk wae yu bɛlɛ de at lɛk dayarɛa, ɔr yu gɛt infekshɔn na yu respiratory (kol, flu). di men baktri dεm we kin mek dis kכndyushכn na `Campylobacter jejuni`. Dis na wetin kin mek yu bɛlɛ kramp ɛn dayarɛa. Apat frɔm dat, vayrɔs dɛn de bak we kin mek pɔsin gɛt dis sik:
- Zika vayrɔs
- Yuman Imyunodefisiɛns Vayrɔs ( HIV ) .
- Epstein-Barr virus, we de mek di sik we tan lɛk fiva mononucleosis.
Wetin na di sayn dɛm we de sho se yu gɛt dis sik? Aw yu no dis?
Bɔku pipul dɛn kin go to dɔktɔ
bikɔs dɛn nɔ kin si kwik kwik wan insay sɔm dez ɛn
i nɔ kin izi fɔ dɛn fɔ waka . Tri men sayn dɛm de wae de sho se yu gɛt Miller Fisher syndrome. Lɛ wi ɔndastand dɛn tin ya na wan tebul.
| Di men simptom | Fɔ tɔk am simpul wan, wetin kin apin? |
|---|
| We di yay mɔsul dɛn wik (Ophthalmoplegia) . | Dabl vishɔn kin apin, ɛn i kin at fɔ kɔntrol ɛn dayrɛkt di yay dɛn na di say we yu want. |
| Lɔs fɔ balans (Ataxia) . | A kin stɔp we a de waka, a kin fil lɛk se a nɔ balans. I nɔ kin izi fɔ mi fɔ kɔdin mi an ɛn fut dɛn. |
| Arefleksia we de na di bɔdi | Tin dɛm lɛk we di dɔktɔ tap yu ni wit smɔl hama, yu leg nɔ go muf. Di tin dɛn we di bɔdi de du kin lɔs. |
Apat frɔm dɛn tri men sayn ya, sɔm pipul dɛn kin sho ɔda sayn dɛn:
- Di pupil dɛn we dɔn dilayt .
- Di mɔsul dɛn we de na di fes wik
- di trot mכsul dεm we wik (di gag rεflεks dεn dכn dכn) .
Impɔtant: If dɛn sayn ya de kam wit wik na yu an ɛn yu bɔdi we yu de blo, i kin bi wan sik we dɛn kɔl GBS-MFS ɔvlap sindrom. Di men sayn fɔ GBS na wikɛd we de bigin na di leg ɛn spre ɔlsay na di bɔdi.
Aw dɔktɔ kin no bɔt dis?
E kin tranga smɔl fɔ no dis sik kɔrɛkt wan. Bikɔs bɔku ɔda nyurolɔjik sik dɛn de we gɛt di sem kayn sayn. fכ egzampl, sik dεm lεk `Basal meningitis`, `Botulism`, `Brainstem stroke`, `Myasthenia Gravis`. So, di dɔktɔ go tek tɛm chɛk yu, aks yu bɔt di sik dɛn we yu gɛt ɛn di sik dɛn we yu dɔn gɛt dis biɛn tɛm. Dɔn, i go du bɔku tɛst fɔ no if i gɛt di sik.
| Tɛst | Simply put, wetin yu de du/si wit am? |
|---|
| Lumbar pankshכn | sכm sכm wata we de rawnd yu spεnal kכd (sεribrospεnal fכluid) dεn de tek am εn chεk fכ hכy lεvεl fכ protin. Dis kin εlevεt bכku tεm pan Miller Fisher pasεnshכn dεm. |
| Blɔd Tɛst | dεn de tεst di bכdi fכ si if wan antibodi we dεn kכl `anti-GQ1b`, we spεsifi k fכ dis sik. dis antibodi kin si pan 95% pan di sik pipul dεm. |
| Nεv Kכndukshכn Stɔdi (EMG) . | Dɛn kin yuz wan rili smɔl ilɛktrik kɔrɛnt we nɔ de mek yu fil pen fɔ no aw yu nɛv ɛn mɔsul dɛn de wok fayn. Dis sik de sho sɔm abnɔmal tin dɛm na di nerv dɛm. |
| MRI Skan we dɛn kin du | Dɛn kin du dis tɛst fɔ mek dɛn nɔ gɛt ɔda tin dɛn lɛk we pɔsin gɛt strok. Insay Miller Fisher, MRI kin sho nɔmal rizɔlt. |
Wetin na di tritmɛnt dɛm fɔ dis? Aw lɔng i kin tek fɔ mek i wɛl?
Fɔs, no patikyula ‘kyu’ nɔ de we go ebul fɔ mɛn dis sik ɔltogɛda.
Bɔt sɔm tritmɛnt dɛn de we rili fayn we go ɛp yu fɔ kɔntrol di sik dɛn ɛn ɛp yu fɔ wɛl kwik kwik wan. Bɔrku tɛm, pɔrsin wae gɛt dis sik kin go na ɔspitul. Dis na fɔ tek tɛm wach fɔ siriɔs kes dɛm fɔ GBS sik. Bikɔs sɔntɛnde, GBS kin mek pɔsin in layf de pan denja. tu men we dεn de yuz as tritmεnt: 1.
Intravenous Immunoglobulin (IVIg): Dis na wata mεdisin we lεk salin we dεn gi insay wan vein. I gɛt antibodi dɛn we dɛn dɔn klin we dɛn dɔn separet frɔm di blɔd plasma fɔ bɔku bɔku pipul dɛn we gɛt wɛlbɔdi. Dɛn kin gi dis ɔltɛm fɔ lɛk 5 dez. 2.
Plasma Exchange (Plasmapheresis): Dis na sɔm kayn tin we kɔmplikt. Fɔ tɔk am simpul wan, dɛn kin pul smɔl blɔd na yu bɔdi, wan spɛshal mashin kin pul di plasma we gɛt prɔblɛm (di pat we gɛt antibodi dɛn we de atak di nerv dɛn) ɛn put yu yon blɔd sɛl dɛn wit di plasma we go tek in ples. Dɛn kin du dis lɛk 5 tɛm insay tu wiks. If yu mɔsul dɛn wik bad bad wan afta dɛn tritmɛnt ya, yu kin
nid fɔ gɛt fisiotɛrapi fɔ mek dɛn strɔng bak.I nid fɔ du dat. As fɔ wɛl bɔdi, i kin tek bitwin 8 ɛn 12 wik fɔ mek i wɛl fayn fayn wan.
Bɔrku pipul kin wɛl ɔlsay insay 6 mɔnt. di rεkכrεshכn rεt na less dan 3%. So, fɔ no di sik kwik kwik wan ɛn fɔ trit am na di tin dɛn we impɔtant pas ɔl.
Mɛsej we dɛn kin kɛr go na os
- Miller Fisher syndrome na wan sik wae nɔr kin bɔrku wae kin apun wae wi yone imyun sistɛm atak wi nerv dɛm bikɔs ɔf wan infekshɔn we wi jɔs gɛt.
- Di men sayn dɛm na we di yay mɔsul dɛn wik ( we yu de si tu tɛm ), we yu nɔ de balans (i nɔ izi fɔ waka), ɛn we yu nɔ de fil fayn.
- If yu ɔ pɔsin we yu sabi gɛt dɛn sik ya wantɛm wantɛm, go to dɔktɔ wantɛm wantɛm. Nɔ panik, bɔt nɔ delay sɛf.
- Dis na wan sik wae dɛn kin trit wit ɔspitul ɛn fizik tritmɛnt , ɛn bɔrku pipul dɛn kin wɛl ful wan.
Miller Fisher Syndrome, Guillain-Barré syndrome, Nyurolɔjik sik dɛm, Vishɔn lɔs, I nɔ izi fɔ waka, GBS, Ɔtoimyun sik dɛm
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