Sɔntɛnde, yu kin fil lɛk se yu nɔ gɛt bɛtɛ trɛnk ɛn yu kin fil pen bad bad wan na yu nɛk, yu sholda, ɔ yu an? Ɔ yu nɔ de fil fayn na sɔm pat dɛn na yu bɔdi? If yu gɛt pas wan pan dɛn sik ya, i kin bi bikɔs ɔf wan sik we nɔ kin apin so ɔltɛm we dɛn kɔl syringomyelia, we wi go tɔk bɔt. Nɔ wɔri, dis nɔto sɔntin we kin apin to bɔku pipul dɛn. Bɔt i impɔtant fɔ mek dis simpul frɔm di biginin.
Wetin na dis siringomyelia rili?
Fɔ tɔk am simpul wan, dis na di nem we dɛn gi fɔ mek wan sak ɔ sist we ful-ɔp wit wata insay wi spɛnal kɔd. Dɔktɔ dɛn kin kɔl dis sak we ful-ɔp wit wata ‘syrinx’. Dis na wae mek sɔm pipul dɛn kin kɔl dis sik bak Hydromyelia, Syringohydromyelia.
Bɔku tɛm, yu nɔ kin ivin notis am. Bɔt sɔntɛnde, if dis sist de gro as tɛm de go, i kin bigin fɔ prɛs ɛn pwɛl di dilik nerv dɛn na yu spayna. If na so i bi, dɛn nid fɔ gɛt tritmɛnt.
Dis sik kin mɔs pan big pipul dɛm wae ol bitwin 20 ɛn 40. I kin kam bak pan man dɛm pas uman dɛm.
Wetin kin bi di sayn dɛm?
di sayn dεm fכ dis dipכnt pan usay di sist de na di spayna εn aw i big. As tɛm de go, as di sist de gro, i kin pwɛl di nerv dɛn na di spayna. Na da tɛm de di prɔblɛm dɛn kin bigin.
Bɔrku tɛm, de sik kin apun kwik kwik wan, fɔ lɔng lɔng tɛm. Bɔt sɔntɛnde, di sayn dɛn kin apin wantɛm wantɛm afta aksidɛnt, lɛk we pɔsin fɔdɔm.
Di tebul dɔŋ ya de sho sɔm pan de men sayn dɛm wae yu kin si.
| Kategori fɔ di simptom dɛn | Tin dɛn fɔ si |
|---|---|
| Pen ɛn sɛns | Pen, swɛt, bɔn, ɔr yu de chuk yu na yu nɛk, yu sholda, yu an, ɛn yu an. We yu nɔ de fil wam/kol, lɛk ɔt wata ɔ ays, na yu an, finga, ɛn ɔp chɛst. |
| Di mɔsul dɛn we wik | di mכsul dεm wik (especially na di an εn di sכlda dεm), i at fכ waka biכs di mכsul dεm stif, εn di rεflεks dεm we de lכs. |
| Di bɔdi kin chenj | di kכva fכ di spayna, na wan kכndyushכn we wi kכl skכliosis . Chenj ɔ prɔblɛm fɔ kɔntrol di tɔylɛt ɔ di urine. |
| Ɔda tin dɛn we de apin | Ɛd we de at, we yu de swet pasmak, we yu blɔd prɛshɔn nɔ de chenj, we yu gɛt prɔblɛm wit mami ɛn dadi biznɛs, ɛn we yu nɔ de muv fayn fayn wan. |
Sɔntɛnde, if dis sist de pwɛl wan nerve we de kɔntrol di mɔsul dɛn na wi fes ɛn yay, wan sik we dɛn kɔl Horner syndrome kin apin. If na so i bi, yu kin si tin dɛn lɛk fɔ drɔp na di aylid na di say we di fes afɛkt, wan smɔl pupil, ɛn di swet we de go dɔŋ na da say de.
Wetin mek sɔntin lɛk dis kin apin?
Imajin se wan spɛshal wata we dɛn kɔl sɛribrospaynal fluid de rawnd wi bren ɛn spɛnal kɔd. We dis wata de flɔ nɔmal wan, prɔblɛm nɔ de. bכt if fכ sכm rizin dεn blכk di rod fכ dis wata, da wata de kin kכmכt insay di spεnal kכd εn fכm di sist we wi bin mεnshכn. Tu men kayn tin dɛn de we kin mek dis apin.
Di tin dɛn we kin mek pɔsin bɔn pikin
Dis na di tin we kin mek pɔsin gɛt dis sik. we dεn bכn sכm pikin dεm, di lכw pat pan dεn bren (sεribεl) kin push dכn tכwεd di spayna. Dɔktɔ dɛn kɔl dis Chiari I malfɔmeshɔn . dis de blok di fכ fכlכ di wata εn mek wan sist fכm. Bɔt nɔto ɔlman we gɛt dis Chiari I malfɔmeshɔn go gɛt syringomyelia . Di sayn dɛm kin sho bitwin 25 ɛn 40 ia.
Di Kɔz dɛn we dɛn dɔn gɛt
Sɔmtɛm dis sik kin kam bak we di spayna dɔn pwɛl, we min sɔntin we kin apin afta dɛn bɔn am.
- Spinal kɔd injuri
- Infεkshכn dεm lεk mεningayt
- Spinal tumor
- di membran dεm we de kכba di spayna de swεla
- Dɛn dɔn tay amdi kכndishכn f כ di spεnal kכd (we di lכw εnd pan di spεnal kכd de strεch abnכmal wan).
Na smɔl tɛm nɔmɔ, i kin kam we nɔ gɛt ɛni klia rizin. Dɔktɔ dɛn kɔl am idiopathic syringomyelia .
Aw yu rili si dis?
Di bɛst ɛn difinitiv we fɔ no dis sik na fɔ mek dɛn du MRI (Magnetic Resonance Imaging) skan . Dis kin skan yu bren ɛn wan ol spayna. dis kin sho klia wan if di sist de, aw i big, εn wetin mek i bi (e.g., wan Chiari malformation).
Sɔntɛnde, dɛn kin no dis sik wan wan we dɛn de du MRI fɔ ɔda rizin. Sɔntɛnde, yu dɔktɔ kin tɛl yu bak fɔ du CT (Computed Tomography) skan .
Aw dɛn kin trit am?
De tritmɛnt wae yu go gɛt go dipen pan if yu gɛt de sik ɛn aw dɛn tranga. Nɔto ɔlman dɛn kin gi di sem tritmɛnt.
If nɔr ɔ smɔl sayn de: fɔ wach
If yu nɔr gɛt ɛni sayn ɔr yu nɔr gɛt sɔm kayn sik, yu nɔr go nid ɛni big tritmɛnt. Bɔt yu dɔktɔ go mɔs de chɛk yu ɔltɛm . Dɛn go du MRI skan ɔltɛm fɔ chɛk fɔ ɛni nyu sayn ɔ fɔ si if di sist de big. Dɛn go advays yu bak fɔ avɔyd tin dɛn we de mek yu taya, lɛk fɔ es ebi ebi tin dɛn. Dɛn kin gi yu mɛrɛsin fɔ mek yu fil pen ɛn rifer yu to fizik tritmɛnt.
If di sayn dɛn rili bad: Dɛn fɔ du ɔpreshɔn pan am
If yu sik bad bad wan fɔ ambɔg yu ɛvride layf, yu kin nid fɔ gɛt ɔpreshɔn. Di men gol fɔ ɔpreshɔn na fɔ mek di wata we dɔn blok bak.
Di kayn ɔpreshɔn we yu go du go dipen pan wetin de mek yu gɛt dis sik. Fɔ ɛgzampul, if di kɔz na Chiari I malfɔmeshɔn, yu dɔktɔ kin du wan tin we dɛn kɔl posterior fossa decompression . Dis min se yu fɔ pul wan smɔl bon na di bak pat pan di skel ɛn di tap pat pan di spayna fɔ mek mɔ ples fɔ di bren ɛn di nɛv dɛn. Dis kin mek di prɛshɔn nɔ bɔku ɛn i kin mek di wata flɔ nɔmal wan.
I rili impɔtant fɔ tɔk to yu dɔktɔ bɔt di prɔblɛm ɛn bɛnifit dɛn we pɔsin kin gɛt we i du ɔpreshɔn bifo yu disayd fɔ du sɔntin.
Wetin kin apin afta dɛn dɔn trit am?
I fayn fɔ no bɔt dis bak. Sɔntɛnde, ivin afta dɛn dɔn du di ɔpreshɔn, dɛn nɔ kin sɔlv di prɔblɛm kpatakpata. Di wata kin gɛda bak. Dɔn bak, sɔntɛnde, di damej we di nerv dɛn kin pwɛl kin de sote go.
So, ivin afta dɛn dɔn du ɔpreshɔn, yuI impɔtant fɔ mek yu kɔntinyu fɔ tɔk to yu dɔktɔ ɔltɛm. Yu fɔ de du MRI skan ɔltɛm fɔ chɛk if di sist dɔn kam bak. Dis na kɔndishɔn wae nid fɔ de manej fɔ lɔng tɛm. So, i rili impɔtant fɔ fala wetin yu dɔktɔ tɛl yu fɔ du.
Mɛsej we dɛn kin kɛr go na os
- Syringomyelia na wan sik we nɔ kin apin so ɔltɛm we wan sist we ful-ɔp wit wata kin fɔm insay di spɛshal kɔd.
- Pen na yu nɛk, yu an, yu nɔ de fil fayn, ɛn mɔ we yu nɔ de fil fɔ wam/kol kin bi di men sayn dɛm.
- di men tin we kin mek dis apin na we di wata we de fכlכ na di bren εn di spεnal kכd de blok. Di prɔblɛm we kin apin we dɛn bɔn pikin pas ɔl na Chiari I malfɔmeshɔn.
- MRI skan impɔtant fɔ no if pɔsin gɛt di sik.
- Di tritmɛnt we dɛn kin pik na fɔ wach if nɔr de pan di sik, ɛn fɔ du ɔpreshɔn if di sik tranga. Tɔk to yu dɔktɔ bɔt ɛni sayn we yu gɛt.
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