Imajin se yu jɔs sidɔm ɛn wantɛm wantɛm yu bak mɔsul dɛn kin stif lɛk rɔk, ɛn dɛn nɔ kin ebul fɔ muv. Ɔ se ivin di smɔl nɔys ɔ pɔsin we nak yu de mek yu bɔdi de rɔtin ɛn yu mɔsul dɛn de shek shek bikɔs i de fil bad bad wan. Dɛn tin ya nɔ kin jɔs bi bak-ak ɔ nɔmal mɔsul strɛs. Tide wi de tɔk bɔt wan sik we nɔ kin apin so ɔltɛm we bɔku pipul dɛn nɔ ivin yɛri bɔt, bɔt i rili impɔtant fɔ no bɔt. Dɛn kɔl dis Stiff Person Syndrome , ɔ SPS fɔ shɔt tɛm.
Fɔ tɔk am simpul wan, wetin na Stiff Person Syndrome (SPS)?
Stiff Person Syndrome na wan sik wae de kam wit nyurolɔjik wae nɔr kin bɔrku. I kin afɛkt wi bren ɛn wi spɛnal kɔd. Fɔ tɔk am simpul wan, na wan sik we de mek pɔsin ebul fɔ fɛt insɛf . Dis min se di imyun sistɛm we dɛn se de protɛkt wi bɔdi frɔm sik, kin mistek bigin fɔ atak wi yon wɛlbɔdi sɛl dɛn. Dis sik nɔ kin bɔku so ivin na kɔntri lɛk Amɛrika, nɔto 5,000 pipul dɛn we dɛn kin no se gɛt dis sik.
Pɔsin we gɛt dis sik kin fil fɔs se di mɔsul dɛn na di midul pat na in bɔdi, dat na di say we di trɔnk de tayt . As tɛm de go, dis tayt kin spre to di an ɛn leg. Apat frɔm dis tayt, di mɔsul dɛn we kin mek yu fil pen bad bad wan kin apin bak. Bikɔs ɔf dis tayt, di we aw di bɔdi de tinap kin chenj as tɛm de go, i kin ledɔm bifo smɔl ɛn luk .
Dɛn mɔsul dɛn ya kin apin bay dɛnsɛf ɔ na sɔntin kin mek dɛn gɛt am. Fɔ ɛgzampul, we yu mek lawd nɔys wantɛm wantɛm, pɔsin we bang yu, ɔ we yu strɛs pasmak, dat kin mek yu gɛt dɛn spam ya.
Wetin na di men sayn dɛm fɔ dis sik?
Pan ɔl we di tin dɛn we dis sik kin du kin difrɛn smɔl frɔm wan pɔsin to ɔda pɔsin, sɔm kɔmɔn sayn dɛn de we pɔsin kin si. Lɛ wi luk dɛn na wan tebul.
| Di sayn we de sho se di sik de | Wetin kin apin to am? |
|---|---|
| Di mɔsul dɛn we kin stif bad bad wan | I kin bigin na di trɔnk ɛn afta dat i kin skata to di limb dɛn. Pan ɔl we dis stiffness kin kam ɛn go fɔs, i kin bi ɔltɛm as tɛm de go. |
| Mɔsul dɛn we kin mek pɔsin fil pen | Dɛn tret ya kin te fɔ lɔng tɛm, ɛn sɔntɛnde dɛn kin so bad dat dɛn kin ivin mek pɔsin brok . |
| Difikulti fɔ Waka & Fɔl | We di mɔsul dɛn stif, dat kin mek i nɔ izi fɔ waka ɔ muv. Yu kin lɔs yu balans we yu tinap ɔ waka ɛn fɔdɔm. dis fכl dεn dεskrεb am "lεk lכg we de fכl oba" biכs di bכdi stif kכmplit εn yu nכ kin kכntrכl di fכl. |
| Di tin dɛn we kin apin to pɔsin in maynd | Na kɔmɔn tin fɔ dis sik kin mek pɔrsin wɔri ɛn pwɛl hat. Yu kin fred fɔ kɔmɔt na os bikɔs yu de fred fɔ gɛt sik we de mek yu sik. |
Bikɔs dɛn sik ya kin kam wantɛm wantɛm, di wan dɛn we sik kin fred fɔ go na pɔblik ples ɛn drayv. So, dɛn kin tray fɔ kɔmɔt nia di sosayti smɔl smɔl.
Wetin mek sɔntin lɛk dis kin apin?
Dɔktɔ dɛn stil nɔ dɔn fɛn ɛni patikyula kɔz fɔ dis, bɔt di men tiori na dat na prɔblɛm wit wi imyun sistɛm.
wan nyurotransmitta de we dεn kכl GABA we de εp fכ kכntrכl di muvmεnt fכ wi mכsul dεm. Tink bɔt am lɛk ‘switch’ we de sɛn signal to wi mɔsul dɛn fɔ ‘rilaks’. wan εnzym we dεn kכl `glutamic acid decarboxylase (GAD)` implεnt fכ mek dis GABA. pan mכst SPS pasεnshכn dεm, di bכdi de prodyuz antibodi dεm we de atak dis GAD εnzym. we dεn antibodi dεm ya go εn pwεl di GAD εnzym, GABA nכ de prodyuz fayn fayn wan. Dɔn di mɔsul dɛn nɔ kin gɛt di mɛsej fɔ ‘rilaks’ fayn fayn wan, ɛn dɛn kin tɛns ɛn twitch ɔltɛm.
Pipul wae gɛt SPS kin gɛt ɔda ɔtoimyun sik dɛm bak.
- Vitiligo - wayt pat pan di skin
- Tayp 1 Dayabitis
- Pernicious anemia - Anemia we kin kam bikɔs yu nɔ gɛt vaytamɛn B12
- Tayroyd (infεkshɔn na di tayroyd gland) .
Dɔn bak, pipul dɛm wae gɛt sɔm kayn kansa kin gɛt risk fɔ gɛt SPS (e.g. lכng, kidni, brɔst, tayroyd, kɔlon kansa).
Aw dɔktɔ kin no kɔrɛkt wan bɔt dis sik?
SPS simptom kin apin bitwin 30 ɛn 60. Uman dɛn kin gɛt dis sik tu tɛm pas man dɛn.
Bikɔs di sayn dɛm fɔ dis sik tan lɛk ɔda kɔmɔn sik dɛm , bɔku tɛm dɛn kin mistek kɔl SPS fɔ ɔda sik.
- Mɔltipɛl Sklɛrosis
- Dis sik we dɛn kɔl Parkinson
- Fibromyalgia we pɔsin kin gɛt
- Distrofi we de na di mɔsul dɛn
- Wɔri
Bikɔs ɔf dis, i kin tek sɔm tɛm fɔ mek dɛn no di sik kɔrɛkt wan. Yu dɔktɔ go fɔs chɛk yu, aks yu bɔt yu mɛdikal istri, dɔn ɔda fɔ du bɔku tɛst fɔ no ɔda tin dɛn we de apin.
1. Blɔd tɛst fɔ GAD antibodi dɛm: Dis na di tɛst we impɔtant pas ɔl. hכy lεvεl dεm fכ dεn GAD antibodi dεm ya kin fכn insay di bכdi fכ 60% - 80% pan di SPS pasεnshכn dεm.
2. Electromyography (EMG): Dis de mek yu no di ilektrikal aktiviti we yu mכsul dεm de du we dεn rilaks εn we dεn tεnshכn. di mכsul dεm fכ SPS pasεnshכn dεm de stil aktif ivin we dεn rilaks.
Wetin na di tritmɛnt dɛm fɔ dis?
Di fɔs tin fɔ tɔk na dat, no mɛrɛsin nɔ de yet fɔ dis sik . Bɔt bɔku tritmɛnt dɛn de we go ɛp yu fɔ kɔntrol di sik dɛn ɛn ɛp yu fɔ kɔntinyu fɔ du tin dɛn we yu de du ɛvride. Dɛn kin mek di tritmɛnt plan fɔ ɛni sikman, bay di sayn dɛn we dɛn gɛt.
Yu dɔktɔ go tray difrɛn mɛrɛsin fɔ kɔntrol di pen ɛn di mɔsul dɛn we de spam. Nɔto ɔlman in bɔdi kin ansa mɛrɛsin di sem we, so i kin tek sɔm tɛm fɔ fɛn di rayt kɔmbayn mɛrɛsin fɔ yu.
- fכ di mכsul dεm we stif: dεn kin yus bεnzodiazepin (e.g. dayazepam, klonazepam) εn baklofen.
- Fɔ pen: Di mɛrɛsin dɛn we de mek pɔsin fil pen ɛn sɔm mɛrɛsin dɛn we de mek pɔsin nɔ fil pen kin ɛp fɔ kɔntrol di pen.
- Intravenous Immunoglobulin (IVIG) therapy: Dis involv fɔ gi antibodi dɛn we dɛn tek frɔm pipul dɛn we gɛt wɛlbɔdi intravenous. Dɛn dɔn sho bak se dis na fayn tritmɛnt fɔ kɔntrol di SPS simptom dɛm.
Apat frɔm mɛrɛsin, fizik tritmɛnt, ɛksesaiz fɔ strɛch, masaj, ɛn akupankchaTin dɛm lɛk dis kin ɛp fɔ ridyus pen ɛn fɔ mek di mɔsul dɛn wok fayn.
Mɛsej we dɛn kin kɛr go na os
- Stiff Person Syndrome (SPS) nɔto jɔs pen na di mɔsul dɛm, na wan sik we nɔ kin apin so ɔltɛm we di ɔtoimyun nyurolɔjik sik.
- di men sayn dεm na di mכsul dεm we de stiff bad bad wan εn di spam dεm we de mek yu fil pen we de stat na di trכnk εria.
- Bikɔs bɔku tɛm dɛn kin kɔnfyus dis wit ɔda sik dɛn, i rili impɔtant fɔ mek dɔktɔ we gɛt ɛkspiriɛns ɛp am fɔ no di sik kɔrɛkt wan.
- Pan ɔl we dis sik nɔ go ebul fɔ wɛl ɔl, sɔm tritmɛnt dɛn de we go ɛp yu fɔ kɔntrol di sik dɛn we yu gɛt ɛn liv nɔmal layf.
- If yu ɔ pɔsin we yu sabi gɛt dɛn sik ya, nɔ ignore dɛn, se, "Na jɔs wan mɔsul strɛs." Si yu dɔktɔ wantɛm wantɛm ɛn go to dɔktɔ.
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