I pum na lutuk, tuar theih loh khawpa na i nei tawh em? A châng chuan he natna hi pum na mai a ni lo. Vawiina kan sawi AHP hi Acute Hepatic Porphyria tihna a ni a, natna khirh tak a ni a, pum na tak tak leh symptom dang a thlen thei a ni. Mi zawng zawng tan a inang lo. Mi thenkhat chuan attack na tak tak an nei fo thin. Mi dangte chuan an dam chhungin heng beihna hi tlemte chauh an nei a ni.
A tha ber chu damdawi leh nunphung thlak danglam hmangin he AHP an tih hi kan control tha hle a ni . Mahse a dam kim thei lo. A nasat ber ah chuan liver transplant a ngai thin. Mahse, hlauthawng suh. A pawimawh ber chu natna hi hriat hmasak a, enkawlna dik tak tan a, a thlentu (triggers) atanga inthiarfihlim hi a ni . Chutianga kan tih chuan heng natna khirh tak takte hi kan titawp thei a, thisen sang , stroke , leh kal chak lohna ang chi harsatna lian tak takte pawh kan pumpelh thei bawk.
Doctor ten AHP hi engtin nge an enkawl?
A awlsam zawngin AHP enkawlna hi hmun hnih ah then theih a ni. A hmasa ber leh pawimawh ber chu i symptoms tichhuaktu dik tak hriatchhuah a, a theih ang anga pumpelh hi a ni. A pahnihna chu damdawi dik tak hmanga flare-up awm tam lohna tihtlem leh a lo awm hunah symptoms control hi a ni.
AHP hi chi li a awm a. I doctor chuan eng chi nge i neih leh a nasat dan a zirin enkawlna a pe ang che.
| AHP type hming | Thuhmahruai tawi te |
|---|---|
| Acute intermittent porphyria (AIP) hmanga natna hrik awm thei (AIP) . | Hei hi AHP chi khat hman tlanglawn ber a ni. |
| Aminolevulinic acid dehydratase tlakchhamna porphyria (ALAD) . | Hei hi chi khat hmuh tur awm lo tak a ni. |
| Porphyria chi hrang hrang (VP) . | Hetiang chi ah hian vun symptoms pawh a awm thei bawk. |
| Hereditary coproporphyria (HCP) atanga lo chhuak a ni. | Hetiang chi hian nervous system leh vun natna lanchhuahna a thlen thei bawk. |
A pawimawh ber chu AHP attack na tak i neih chuan damdawi inah dah leh enkawl i ngai ngei ang. A chhan chu chutih laia natna nasa tak , thisen sang , luak chhuak, luak chhuak, leh electrolyte imbalances te chu in lamah control theih a ni lo.
Engtin nge symptoms tipungtu triggers lakah kan inthiarfihlim?
AHP hi kan genes inthlak danglam vang a ni. Mahse, environment thil thenkhat leh kan tih dan thenkhatte hian heng symptoms te hi a rawn lang nghal thei a ni. Hengte hi ‘triggers’ kan ti thin. Chungte chu eng nge an nih chiang taka hriat a, anmahni atanga inthiarfihlim hian, chu natna chu i veng thei a, a lo awm tam dan pawh i tihtlem thei bawk.
Heng thilte hi i fimkhur hle a ngai a ni.
| Eng nge pumpelh tur/eng nge zawm tur | Engtin nge tih ang? |
|---|---|
| Damdawi thenkhat | AHP symptoms thlen thei damdawi thenkhat a awm. Entirnan , carbamazepine (Tegretol), phenobarbital, leh phenytoin (Dilantin) te hi a ni.leh sulfonamide antibiotics te pawh a awm bawk. Heng damdawi zawng zawng list kimchang chu doctor hnenah zawt rawh. Damdawi dang i ei hmain doctor hnenah AHP i vei tih hrilh hmasa phawt ang che. |
| Thiltih \ha lo | Zu in hi bansan vek a tha. Chutiang a nih theih loh chuan nasa takin tihtlem (hmeichhia tan ni khatah vawi khat aia tam in loh tur leh mipa tan pahnih aia tam in loh tur). Marijuana ang chi ruihhlo hman loh vek tur a ni. Meizial i zuk chuan i doctor nen in bânsan theih dan tur (nicotine replacement therapy ang chi) sawipui rawh. |
| Ei leh in inthlau lo | Ei leh in inthlau tak ei rawh. Extreme dieting methods crash diet emaw carbohydrates cut out vek emaw te hi pumpelh la, calorie tlahniam nghal chuan i dinhmun a tichhe thei a ni. |
| Infection leh vaccine pek dan te | I vaccine te chu a hun takah la rawh. Hemi chungchang hi doctor zawt rawh. Infection i neih chuan enkawl nghal rawh. |
| Rimtawng | Stress hi AHP thlentu lian ber a nih avangin i rilru leh taksa tih hahdam dan tur zawng rawh. Meditation, yoga, music ngaihthlak emaw, i duh zawng eng pawh a ni thei. |
| Ni chhuahna hmun | AHP chi thenkhat (a bik takin VP leh HCP) ah chuan vun hi ni êng lakah a sensitive hle. Chuvangin, a theih ang anga in chhungah zing dar 10 a.m. leh tlai dar 4 p.m. , ultraviolet ray a chak ber laiin. Pawn chhuah a ngai a nih chuan ni laka invenna thawmhnaw ha la, lukhum zau tak ha la, SPF 30 aia sang nei sunscreen tha tak hmang bawk ang che. |
Hetianga i nunphung siamrem chu a tir lamah chuan a harsa hlein a lang thei. Mahse heng inthlak danglamna tenau te hmang hian AHP symptoms lo awm hi nasa takin i control thei a ni. Doctor nen inbia fo a, i tan eng enkawlna leh nunphung nge tha ber tih i rel a tha ber.
Take-Home Thuchah a ni
- AHP hi genetic condition na tak mahse enkawl theih a nih avangin a tul lovah hlau suh.
- Enkawlna atana thil pawimawh pahnih chu triggers pumpelh leh doctor-in damdawi a pekte ei hi a ni.
- Condition dang damdawi i ei hmain AHP i vei tih doctor hnenah hriattir hmasak a pawimawh hle.
- Ei leh in inthlau tak te, ruihhlo ei loh te, leh stress enkawl dan te hian natna lo awm tur venna kawngah kawng thui tak a zawh a ni.
- A natna lan chhuah dan a nasat chuan, tuar theih loh pum na ang chi te chu in lama awm lo la, damdawi inah enkawl nghal vat tur a ni.
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