I doctor chuan nangmah emaw, i chhungte tu emaw hnenah Pompe natna vei a nih thu leh enkawlna atan Avalglucosidase Alfa tih vaccine i ei tan a ngai tih a hrilh tawh em? Hetiang hming i hriat hian tlem a hlauthawng leh hlauthawng deuh hi thil pangngai a ni. Mahse, lungngai suh. He thuziak ah hian he damdawi hi eng nge a nih, eng nge a tih, eng nge kan fimkhur a tul tih kan sawi dawn a ni.
He damdawi hi eng nge ni tak tak? (Avalglucosidase Alfa chu eng nge ni?)
A awlsam zawngin sawi ila, Avalglucosidase Alfa hi mihring siam, kan taksaa enzyme pakhat, naturally produced copy a ni. Nexviazyme tih hming puin an hralh chhuak a ni . Enzyme Replacement Therapy tih treatment class pakhatah a tel a ni .
Ngaihtuah teh, Pompe natna hi kan taksaa genetic defect pakhatin enzyme bik siam chhuahna a tihtlem emaw, a ti bo vek emaw a ni. He enzyme hi a awm loh chuan kan cell chhungah hian sugar chi khat glycogen an tih chu a lo awm tan a, a bik takin muscle cell chhungah a awm khawm tan thin. Hetianga khawlkhawm hian taksa ruh chak lohna leh thawk harsa tih ang chi symptoms a thlen thin.
Chuvangin he Avalglucosidase Alfa vaccine hian a tih chu pawn lam atanga enzyme bo chu taksaah a pe a ni. Pawn lam atanga tank tui luah khat ang mai a ni. Mahse hei hian natna hi a tidam kim thei lo. Mahse, he enkawlna hian natnain a tihchhiat thunun nan leh a natna lanchhuahna tihziaawmna leh nun awlsam zawkna kawngah nasa takin a pui a ni.
Damdawi i ei hmaa i doctor hnena i hrilh tur thilte
He damdawi hi i tan hmain i hriselna chanchin kimchang i doctor nen sawiho hmasak a pawimawh hle. A bik takin a hnuaia condition te hi i sawi tur a ni:
| Hriselna dinhmun emaw remchang emaw | Engvangin nge i hriattir ang? |
|---|---|
| Lung natna emaw, thinlung tha lo emaw | He damdawi hian taksaa fluid balance a nghawng theih avangin thinlung natna hriat a pawimawh hle. |
| Lung natna | Thâwk lama harsatna awm thei a awm chuan, a bik takin medical team-te chuan an fimkhur hle tur a ni. |
| Damdawi dang, ei tur dang emaw, thil dang emaw allergy nei | Avalglucosidase Alfa emaw a thil tel emaw allergy i neih leh neih loh hriat a pawimawh. |
| Naupai emaw, nau pai tum emaw i nih chuan | Naupai lai hian he damdawi hi a him dan tur chu doctor nen in sawiho tur a ni. |
| Naute chu hnute pek a nih chuan | Damdawi hi nu hnute hmanga naute hnena a kal leh kal loh chungchangah doctor thurawn lak a pawimawh hle. |
Engtin nge he damdawi hi pek a nih?
Avalglucosidase Alfa hi damdawi in lama hruai theih a ni lo. Saline solution hmanga vein chhunga injection (intravenous infusion) a ni. Chumi awmzia chu he enkawlna dawng tur hian damdawi in emaw, specialised clinic emaw i pan a ngai dawn tihna a ni. Chutah chuan doctor emaw nurse emaw trained chuan injection chu a pe ang che.
- Naupang tê tê tê tân: Hetiang enkawlna hi a châng chuan naupang kum khat chunglamte hnênah an pe ṭhin. Mahse, thutlukna chu naupang enkawltu doctor-in a siam a ni. Hemi atan hian fimkhurna bik zawm a ni.
- Dose pakhat ka miss a nih chuan engtin nge ni ang? He damdawi hi a hun ruatah dik taka ei a pawimawh hle. Date ruat i neih loh chuan i doctor call nghal la, appointment dang an neih theih nan hriattir rawh.
- Dose tihpun a nih chuan engtin nge ni ang? Hei hi damdawi inah pek a nih avangin hetiang thil thleng theihna chance hi a tlem hle. Amaherawhchu, damdawi i ei tam lutuk nia i hriat chuan medical team-te hriattir nghal tur a ni. A dang pawhin Colombo National Hospital-a National Poisons Information Center-ah i call thei a, Emergency Treatment Unit (ETU)-ah pawh i kal thei bawk.
Damdawi ei laia fimkhur tur thilte
Enkawl i tan hnuah i doctor chuan i dinhmun a enfiah fo ang che. Heng check-up te hi kal ngei ngei tur a ni. I natna lan chhuah dan a ṭhat loh emaw, a zual zel ang tih emaw a nih chuan doctor hnenah hrilh rawh.
Pawimawh: He damdawi hian mi thenkhatah allergy na tak a thlen thei a. Hetiang hlauhawmna tihziaawm nan hian i doctor hian he vaccine hi a pek hmain damdawi dang (piritan an tih ang chi) a pe thei che a ni. Chuvangin i doctor thupek ang chiah kha zawm rawh.
Damdawi dang nen a inzawm dawn em?
Tunah hian Avalglucosidase Alfa leh damdawi dang inzawmna na tak a awm tih report a la awm lo. Mahse, i damdawi ei zawng zawng (condition dang damdawi, vitamin, herbal remedies, leh supplement te pawh tel) chu i doctor hnenah hrilh ngei ang che . Tin, zu i in emaw, zu i in emaw chuan doctor hnenah hrilh bawk ang che, heng thil thenkhat hian i enkawlna a nghawng thei a ni.
Damdawi hian eng side effect nge a neih theih?
Damdawi dang ang bawkin he damdawi hian side effect engemaw zat a nei thei. Mahse, mi zawng zawngin an hmu vek lo. Hengte hi chi hnih ah then ila.
| Side effects awm thei chu doctor hnenah hriattir nghal tur a ni | |
|---|---|
| Allergy natna a awm thei | Vun vun rawng, hnim hring, hmai, hmui emaw lei emaw a hring. |
| Thâwk lak harsatna | Thâwk a tawi, thawk rang. |
| A rilru a na | A rilruah a tight emaw constriction emaw a awm tih hriat. |
| Thisen sang hniam | Luak chhuak, mit hmuhna fiah lo, ding laiin i tlu mai thei ang tih hriatna, hah lutuk. |
| Flushing a ni | A sen nghal vat a, hmai leh kawr ah lumna a awm bawk. |
| A tlangpuiin a na lo (mahse a awm reng chuan doctor hnenah hrilh rawh) . | |
| Lu na | Lu na tlangpui. |
| Luhai | Luak chhuak ang maia hriatna. |
| Kawthalo | Flatulence a awm. |
| Muscle emaw joint emaw a na | Muscle emaw joint emaw a na. |
He list-ah hian side effect awm thei zawng zawng a tel lo. Thil danglam bik i tawng a nih chuan, chu chu i doctor hnenah sawipui hlau suh.
Take-Home Thuchah a ni
- Avalglucosidase (Nexviazyme) hi Pompe natna enkawlna atana hman thin enzyme replacement therapy a ni. Natna a tidam lo va, a natna lan chhuah dan erawh a thunun tlat thung.
- He damdawi hi damdawi inah thisen zam chhunga injection angin an pe thin.
- Enkawl i tan hmain i damdawi lam dinhmun zawng zawng leh damdawi dang i ei tur zawng zawng doctor hnenah hrilh hmasa phawt ang che.
- Vaccine i dawn hian allergy na tak tak awm thei te chu hre reng ang che. Thâwk harsa emaw, hmai hring emaw ang chi symptom i neih chuan medical team-te hriattir nghal rawh.
- A hun taka enkawl hi a pawimawh hle. Eng thil vang pawhin enkawlna chu skip suh. Thil ngaihtuah tur i neih chuan i doctor nen inbia ang che.
- Zawhna emaw, ngaihtuahna emaw i neih apiang chu i doctor zawt hreh ngai suh.
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