I tana tha tur leh hrethiamtu doctor zawn chu a chang chuan a harsa deuh thei. Kan inang lo vek a, mamawh leh duh dan a inang lo. Chuvangin hATTR Amyloidosis ang chi natna hlauhawm tak i neih chuan a buaithlak zawkin i hmu mai thei. Hetiang dinhmun enkawl hian natna chungchang hrethiam tak, i mamawh level of care pe thei tur doctor zawn a pawimawh hle. Dik tak chuan enkawlna tha ber dawng tur chuan kawng hrang hranga specialist engemawzat i zawn a ngai a ni.
Eng ang doctor nge hATTR hi an enkawl?
A awlsam zawngin sawi ila, hATTR amyloidosis hi natna hmuh tur awm lo tak a ni a, a rualin i taksa peng hrang hrang a nghawng thei a ni. Hei hian specialist pakhat chauh hnen atangin enkawlna i dawng thei dawn lo tihna a ni. Multidisciplinary team puihna i mamawh dawn a ni.
Entirnan, he natna hian i thinlung a nghawng a nih chuan cardiologist i hmuh a ngai dawn a ni. A lehlamah chuan thluak lama harsatna i neih chuan, i ke ruh natna emaw, chak lohna emaw i neih chuan neurologist i pan a ngai dawn a ni. Chuvangin, i natna lan chhuah dan te, taksa peng hrang hrang a nghawng dan te, natnain a tihchhiat nasat dan te hian eng specialist nge i hmuh tur tih a hril ang.
A hnuaia table-ah hian hATTR natnaah hian eng specialist nge mamawh ber tih leh eng symptom chi hrang hrang nge an enkawl tih kan hmu ang.
| Specialist medical field-ah a awm bawk | An enkawl symptom/condition tlangpui |
|---|---|
| Cardiologist a ni | Lung hnathawh chak lo (Cardiomyopathy), thinlung rhythm mumal lo, thawk harsa. |
| Neurologist a ni | Ka taksa peng hrang hranga rilru hahna, tingling, natna, leh hriatna hloh (Peripheral Neuropathy). |
| Gastroenterologist a ni | Pum na, luak chhuak, chaw ei kham, taksa rihna tlahniam, luak chhuak. |
| Nephrologist a ni | Kidney a nghawng chuan (e.g. zun chhunga protein). |
| Mit lam doctor | Mit a nghawng chuan (e.g. mit pressure sang, mit hmuh lohna). |
| Genetic Counsellor a ni | Hei hi thlahtu natna a nih avangin chhungkaw tinte chu a hlauhawmna leh genetic testing chungchangah hriattir tur a ni. |
I natna lan chhuah dan chu natna thlentu Transthyretin (TTR) gene-a specific mutation-ah a innghat thei. Hei hian eng ang doctor nge i mamawh tih a hril ang. Natna a zual zel angin hun kal zelah symptom thar a lo awm a nih chuan specialist dang i hmuh a ngai mai thei bawk.
Sri Lanka ramah hian engtin nge hATTR specialist kan zawn theih ang?
Hetiang natna rare tak kan enkawl hian specialist care lak a pawimawh hle. Sri Lanka-ah chuan a tha ber chu damdawi in lian tak, hmun khata specialist engemaw zat hnathawhna hmuna kal hi a ni.
A tlangpuiin sorkar damdawi in lian tak tak Teaching Hospital leh National Hospital of Sri Lanka-ah te hian kawng hrang hranga specialist te chu damlo enkawl turin an inkhawm thin. Private hospital lian thenkhatah pawh he facility hi an nei thei bawk.
He zinnaah hian i hmalakna hmasa ber chu i chhungkaw doctor (GP) hmuh a ni tur a ni. I natna lan chhuah dan azirin specialist tling ber emaw, specialist team awmna damdawi inah emaw a refer thei che a ni.
Hetiang center-a enkawlna dawng a thatna chu i zawng zawng...Hmun khata medical record neih hian doctor-te chuan awlsam takin i dinhmun an sawiho thei a, enkawlna tur ruahmanna tha ber an siam thei tihna a ni. Enkawlna thar emaw clinical trial emaw pawh i zir thei bawk.
Ka chhungkaw doctor ka la mamawh dawn em ni?
Ni e, a dik tak zet. hATTR i nei a nih pawhin i primary care doctor hi a pawimawh hle. Amah hi i hriselna hmunpui ber a ni. I team of specialist leh i chhungkaw doctor te inkarah inbiakpawhna tha tak neih a pawimawh hle . I thil hmuh zawng zawng, i enkawl tawh zawng zawng, i test tawh zawng zawng, etc. i chhungkaw doctor hnenah hriattir theihnghilh suh, i specialist report copy pawh i chhungkaw doctor hnenah pe bawk ang che.
Engtin nge doctor tam tak nen ka enkawlna hi ka inrualrem ang?
Hei hi thil harsa deuh angin lang mahse, ruahmanna siam lawk chuan a awlsam hle.
- Mahni file vawng rawh: I test report, damdawi leh thupek zawng zawng chu file khatah dah vek rawh. Clinic book pakhat enkawl rawh.
- Engkim hriattir zel rawh: Doctor i hmuh apiang hnenah natna lan chhuahna thar i neih apiang hrilh la, a nih loh leh chhinchhiahna hlui a zual chuan hrilh rawh.
- Zawhna zawt rawh: I hriatthiam loh thil a awm a nih chuan i doctor zawh nawn hlau suh. I natna leh inenkawl dan hriatthiamna tha tak i neih a pawimawh hle.
Engtin nge ka tan doctor dik tak ka thlan ang?
I enkawltu doctor nen hian inzawmna tha tak i neih a ngai a, hei hi hun rei tak chhunga zinkawng a nih avangin.
I thusawi ngaithlatu, zah taka enkawltu leh i thusawi hrethiamtu doctor thlan chu i dikna a ni.
Nangmah ngeiin doctor i duh zawk mai thei. A nih loh leh, i hriatthiam theih tûra thil hrilhfiahtu i duh zâwk mai thei bawk. Hetiang hi hereditary condition i hmachhawn hian chhungkaw member dangte a nghawng dan leh eng test nge an mamawh theih tih kaihruai theitu doctor pan a pawimawh.
Doctor i hmuh hmasak ber nen khan i rilru a nuam lo a nih chuan lungngai suh. Doctor tha dang pawh i tana fit tha tur leh i mamawh hrethiam tur an awm bawk. Research engemaw tal ti la, i tan doctor tha ber zawng rawh.
Take-Home Thuchah a ni
- hATTR amyloidosis hi taksa peng hrang hrang khawih thei natna a nih avangin kawng hrang hranga thiamna nei doctor team te puihna i mamawh dawn a ni.
- I zinkawng hmasa ber chu chhungkaw doctor (GP) hmuh a ni tur a ni. Specialist dik tak hnenah a refer ang che.
- I enkawltu doctor zawng zawngte inkara inbiakpawhna tha neih reng a pawimawh hle. I medical record zawng zawng chu a felfai takin vawng reng ang che.
- I thusawi ngaithlatu, zahtu leh thil awlsam taka hrilhfiahtu doctor zawng turin hun hmang rawh. I rilru hahdamna leh i rintlak doctor hnena enkawlna zawng hi i rilru hriselna atan pawh a pawimawh hle.
- He zinkawngah hian nangmah chauh i ni lo tih hre reng ang che. Medical team dik tak kaihhruaina hnuaiah he natna hi hlawhtling takin i nung thei ang.
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