Nangmah emaw, i chhûngkaw zînga mi tu emaw chuan i doctor-in damdawi thar, i hriat loh thu a hrilh a ni mai thei. Olipudase Alfa (Xenpozyme) tia koh theih a ni. Hei hi damdawi hman tlanglawn, hman tlanglawn tak, kan hriat fo thin a ni lo. Hei hi damdawi lam harsatna bik tak tak atana pek thin a ni. Chuvang chuan hemi chungchanga zawhna tam tak i neih hi thil pangngai a ni. Zawhna i nei thei bawk a, "Hei hi eng nge thleng ang?", "Hei hi a him em?", "Eng thilte nge fimkhur tur?" Ngaihtuah buai suh, he damdawi hi chiang tak leh awlsam takin kan sawi dawn a, eng nge a tih tih leh fimkhur tur thilte kan sawi dawn a ni.
He damdawi hi eng nge thleng tak tak?
He damdawi hi genetic condition hmuh tur awm lo tak enkawlna atan hman a ni. Damdawi lamah chuan Acid Sphingomyelinase Deficiency , a tawi zawngin (ASMD) an ti a.
A awlsam zawngin ASMD vei te hian an taksaa pianphung atanga siam enzyme an siam lo. Enzyme hi kan taksaa chemical process hrang hranga puitu protein chi khat a ni. He enzyme bik hi a tlakchham chuan lipid chi khat bik sphingomyelin tih chu kan liver, spleen leh lung ang chi organ pawimawh tak takah a lo awm tan thin. Tui pipe bawlhhlawhin a khuh a, a tawpah chuan a inkhar vek ang maiin han ngaihtuah teh.
Hetah hian damdawi pakhat Olipudase Alfa tih chu a rawn chhanchhuak a ni. He damdawi hian a tih chu pawn lam atanga taksaa enzyme tlakchham chu a pe chhuak a ni. Hei hi enzyme replacement therapy an ti a . Tichuan ṭul lova thau khawlkhawm zat chu a tlahniam zauh zauh a, taksa peng hrang hrangte chhiatna chu a thunun a, a natna lan chhuah dan chu a reh ta a ni.
He damdawi hi i hman hmaa i doctor hnena i hrilh tur thilte
He damdawi hi i ei tan hmain a hnuaia thilte hi doctor hnenah hriattir hmasak phawt a pawimawh. Heng thilte hi thup suh, i himna atan a pawimawh em em a ni.
- He damdawi hi allergy i neih chuan Olipudase alfa, damdawi dang, ei tur, dye emaw preservatives emaw ei tur a dah tel a ni.
- Naupai i nih chuan, emaw nakin lawkah naute i beisei a nih chuan , hei hi a pawimawh hle. Kan sawi belh leh ang u.
- Nu naupai lai i nih chuan .
Damdawi pek dan leh hriat tur
He damdawi hi vein pakhata injection angin pek thin a ni. A dik tak chuan saline solution ang maiin vein hmangin taksaah a inject a ni. Hetiang kalphung hi damdawi in emaw clinic emaw-ah tih a ni tlangpui a, doctor emaw trained nursing staff emaw enkawlna hnuaiah tih a ni.
Mahse, a then phei chuan in lamah i hmu thei mai thei. Chutiang a nih chuan a buatsaih dan tur leh injection pek dan tur uluk taka zirtir i ni ang. Doctor-in a hrilh ang chiah khan instruction i zawm tur a ni.
Needle leh syringe paih dan
In lama i hman thin needle leh syringe te chu bawlhhlawh bawlhhlawh pangngaiah paih ngai suh . An tan hian sharps container bik a awm bawk. I neih loh chuan i doctor emaw hospital emaw hnenah pakhat chungchang zawt la.
Hei hi naupang tê tête hnenah i pe em?
Ni e, he damdawi hi nau piang thar leh naupang tan pawh damdawi lam dinhmun bik atan pek theih a ni. Mahse, fimkhur tur thil tlemte a awm. Chuvang chuan he damdawi hi naupang i pe dawn a nih chuan Doctor nen uluk takin sawipui la, engkim hrilhfiah rawh.
Damdawi dose tihpun a nih chuan eng nge tih tur?
Overdose i ei nia i hriat chuan hlau suh la, National Hospital-a National Poisons Information Center call nghal la, a nih loh leh damdawi in hnai ber Emergency Treatment Unit (ETU)-ah kal nghal rawh.
Thil bik fimkhur tur leh side effects te
He damdawi i ei lai hian i doctor chuan i dinhmun enfiah turin regular check-up nei turin a rawn lut ang che. Thisen hnathawh ang chi thil a tih a ngai bawk ang. He damdawi hlawkna kimchang i hriat theih nan hun engemaw chen a la ngai thei a, chuvangin i enkawlnaah dawhthei taka i awm a pawimawh.
Mi thenkhat chuan he damdawi hi an pek hian allergy nasa tak emaw infusion reaction emaw an nei thei. Hetiang hlauhawmna tihziaawm nan hian i doctor hian he damdawi hi a pek hmain damdawi dang (piritan ang chi) a pe thei che a ni. Thupek chu dik takin zawm rawh.
Naupai leh nau neih dan tur: Hei hi thil pawimawh tak a ni. Naupai laiin he damdawi hi ei hian naute piansualna na tak a thlen thei a ni. Chuvangin he damdawi ei lai leh damdawi ei chawlhsan hnu ni 14 chhung atan naupai venna hmanraw dik tak hman a pawimawh hle. Hemi chungchang hi i doctor nen inbia la, i tana tha ber tur chu thlang rawh.
A hnuaia table-ah hian he damdawi hmanga side effect awm thei chi hrang hrangte tarlan a ni.
| Olipudase Alfa Vaccine hian a nghawng tha lo a nei thei | |
|---|---|
| Side effect na tak tak, doctor hnenah report nghal tur a ni | |
| Allergy emaw Angioedema emaw a awm thei | Vun vun rawng, hnim hring, hmai, mit, hmui, lei, kut emaw ke emaw a hring, ei leh thawk harsa. |
| Infusion hmanga thil tih dan | Chhung na, thawk harsa, muhil, luak chhuak tih hriat. |
| Liver hliam chhinchhiahna | Pum dinglam chunglam na, chaw ei chak lohna, luak chhuak, bawlhhlawh rawng hring, zun dum emaw sen emaw, mit emaw vun sen emaw, hahna danglam tak. |
| Side effects nasat loh tlangpui, mahse a awm reng chuan doctor hnenah hriattir tur a ni | |
| Thil dang pawh a awm | Khuh, luak (bloating), khawsik, lu na, ruh na, luak chhuak, luak chhuak. |
Damdawi dangah harsatna a awm em?
Kan hriat chinah chuan he damdawi hian damdawi dang nen inzawmna lian tham a nei tih hriat a la ni lo. Mahse, chutiang chu a ni ang tih ring suh. I doctor hnenah damdawi i ei zawng zawng (vitamin, herbal remedies, leh supplement te pawh tel) list kimchang pe rawh. Tin, zu i in emaw, zu i in emaw chuan doctor hnenah hrilh ngei ang che.
Take-Home Thuchah a ni
- Olipudase Alfa hi ASMD tih hming pu genetic condition hmuh tur awm lo tan enzyme replacement therapy bik a ni.
- Hei hi vein-a injection angin pek thin a ni a, a tlangpuiin damdawi inah pek thin a ni.
- Enkawlna i tan hmain i doctor hnenah i allergy zawng zawng, naupai tur ruahmanna leh damdawi dang i ei zawng zawngte hrilh hmasa phawt ang che.
- He damdawi hi i ei lai hian allergy na tak, injection reaction, emaw liver chhiatna (e.g., vun sen, zun dum) chhinchhiahna te fimkhur rawh. Heng chhinchhiahnate hi i hmuh chuan doctor hnenah hrilh nghal rawh.
- He damdawi ei lai hian naupai loh tur. Nau neih dan tur dik tak chungchangah i doctor nen inbia ang che.
- I doctor thupek dik tak zawm la, clinical appointment ruahman zawng zawngah tel vek rawh.
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