I fa hian lump mak tak a nei em? Rhabdomyosarcoma chungchang hi han sawi ila

Thil danglam tak, lump emaw, swelling emaw, i taksaah emaw, i fate taksaah emaw i hmuh hian hlauhna nasa tak i neih hi thil pangngai a ni. Chutiang hunah chuan thil tam tak kan ngaihtuah thin. Vawiin hian cancer chi khat, chutiang chu ni thei mahse tlem a tlem zawk chu kan sawi dawn a ni. Chu chu rhabdomyosarcoma a ni. A hming hi i hriat chuan a buaithlak deuhin a lang thei a, mahse awlsam takin sawi ila.

Rhabdomyosarcoma hi eng nge ni?

A awlsam zawngin sawi ila, rhabdomyosarcoma hi cancer chi khat a ni a, kan taksa soft tissue-ah a lo awm a. Kan ruhro (skeletal muscles an tih) nena inzawm taksa ruhte a nghawng tam ber. Naupang leh tleirawl puitlingah a tam ber , mahse puitlingah pawh a nghawng thei bawk. United States-ah hian kum tin mi 400 leh 500 velin he natna hi an vei nia chhut a ni. Hei hian cancer hmuh tur awm lo tak a ni tihna a ni . Rabdomyosarcoma hi chi hrang hrang a awm a. A chi thenkhat chu an chetsual hle a, chu chu an darh chak hle tihna a ni a, enkawl harsa tak an ni. Enkawlna tha tak a awm chuan a chang chuan a natna chu a bo vek thei (remission an ti). Mahse, a chang chuan cancer chu a lo let leh thei (cancer recurrence an ti).

He natna chi hrang hrang hi engte nge ni?

Rhabdomyosarcoma hi chi hrang hrang lian tak tak a awm a. Eng nge an nih hi han thlir ila:

1. Embryonal Rhabdomyosarcoma `(Embryonal Rhabdomyosarcoma)` tih a ni a, a chhuahna tur hmun hi a lar hle

Hei hi a tam ber chi a ni . Puitling aiin naupangah a awm zawk. Lu leh kawr vel hmunah a awm tlangpui. Entirnan, thluak khuh tu membrane-ah leh mit zung (mit pilna hmun)-ah te. Subtype pawh a awm bawk. Ṭhenkhat chu taksa peng hrui hring (hollow organs)-ah te, bladder leh vagina (``Botryoid Rhabdomyosarcoma'' tia koh)-ah te an lo awm thei bawk. Subtype dang chu naupang (``Spindle Cell Rhabdomyosarcoma'' an tih) testicles (sperms) vel ah a lo piang thei bawk.

2. A rilru a buai em em a, a rilru a hah em em bawk a. `(Alveolar Rhabdomyosarcoma)`

Hetiang chi hi naupang kum upa zawk leh puitling naupang, kum 20 leh 35 inkar ah hmuh tur a awm tlangpui a, kut, ke emaw, taksa peng emaw ah a awm tlangpui. He alveolar type hi a na hle a , a darh chak hle . A lo awm hnu lawkah a darh tan nghal mai.

3. Pleomorphic Rhabdomyosarcoma `(Mihring rilru natna)`

Hetiang chi hi kum 50 chunglam puitlingah hmuh tur a awm tlangpui a, taksa hmun dangah pawh a lo awm thei a, mahse keah hmuh tur a tam ber . Kut, rilru, pum, leh lu leh kawr hmun thenkhatah te pawh a lo awm thei bawk.

Rabdomyosarcoma natna lan chhuah dan chu engte nge ni?

He natna lan chhuah dan hi cancer awmna hmun azirin a inang lo . Entirnan, naupangin an bengah hetiang tumor a neih chuan beng na leh beng atanga tui chhuak ang chi symptoms an nei thei a ni. Mit hnung lamah tumor a lo awm chuan mit chu a hring leh a bulging angin a lang thei. Entirna dang thenkhat chu hetiang hi a ni:

• Kut emaw ke emaw a taksa ruh (muscle) a awm chuan: natna nena inzawm lump emaw swelling emaw.
• Abdominal (`(Abdomen)`): pum na , chaw ei kham, luak chhuak .
• Bladder leh urinary tract: Zun chhunga thisen (`(Hematuria)`), zun harsa.
• Hnar kawng: Hnar thisen chhuak (`(Epistaxis)`), sinus infection (`(Sinus Infection )`) ang chi natna lan chhuah dan.
• Vaginal: Naute vagina atanga lump chhuak ang chi thil.
• Testicular nodules: Naupang testicles vel a zung lian chak tak .

Pawimawh: Heng symptoms te hi a chang chuan natna khirh lo zawk avanga lo awm thei a ni. Hnar thisen chhuak, luak chhuak, taksaa lumps ang chi thil hi rhabdomyosarcoma vang a ni ngai lo. Mahse, nangmah emaw, i fa emaw hian heng natna lan chhuahna te hi i neih chuan, a la awm reng emaw, a na zual ang tih emaw a nih chuan, doctor i pan ngei tur a ni .

He natna hi engte nge ni?

Rhabdomyosarcoma hi kan taksa ruh (muscle cells) (immature muscle cells)-a genetic mutations avanga lo awm a ni a, chu chuan cancer a siam a, rang takin a inthen darh a, tumor a siam a ni. Genetic mutations thenkhat, PAX/FOX01 fusion gene te hian rhabdomyosarcoma chi thenkhat a thlen thei a ni. Tin, thlahtu natna thenkhat nei te pawhin he natna hi an vei theihna a sang zawk bawk. Chung dinhmun thenkhat chu:

• Li-Fraumeni natna a ni
• Beckwith-Wiedemann natna a ni
• Neurofibromatosis natna (neurofibromatosis) a ni
• Costello natna (Costello) natna a ni
• Cardiofasciocutaneous syndrome `(Cardiofasciocutaneous syndrome)` tih a ni a, a rilru a hah lutuk chuan a rilru a buai em em a

Engtin nge rhabdomyosarcoma hi hriat theih?

Nangmah emaw, i fain doctor i hmuh hunah i symptoms te an zawt hmasa ang. I chhungkuaah hian a chunga kan sawi tawh ang hian thlahtu natna nei an awm em tih an zawt bawk ang, hei hian natna i vei theihna tur ngaihtuahna a pe thei che a ni. Chumi hnuah taksa enfiahna an nei ang a, natna chhinchhiahna eng emaw zat, lump leh swelling te chu an zawng ang. Chu bâkah, an natna hriat theihna tûrin a hnuaia test te hi an ti thei bawk:

• CT scan `(Computed Tomography (CT) scan)` emaw MRI scan `(Magnetic Resonance Imaging (MRI) scan)` emaw hmanga tih theih a ni
• PET scan `(Positron Emission Tomography (PET) hmanga enfiah)` tih a ni
• Ruh scan a ni
• Lumbar puncture (spinal cord atanga tui tlemte lak chhuahna test) .
• Bone Marrow Biopsy hmanga tih a ni
• Biopsy (tumor atanga tissue te tak te pakhat enfiah tura lak) .
• Tissue test bik, immunohistochemistry ang chi te
• Cytology test a ni

Hei hi thisen test hmangin hriat theih a ni em?

Ni lo, rhabdomyosarcoma hriat theihna tur thisen test direct a awm lo. Mahse, i oncologist chuan a natna hmuhchhuah hnuah thisen test turin a ti mai thei. Entirnan, thisen chhiar kimchang (CBC) tih a ni thei a, chu natna chu ruhroah a darh tawh em tih hriat theih a ni. Enkawl lai hian thisen test pawh tih a ni a, i taksain enkawlna a dawn dan a hriat theih nan.

Rhabdomyosarcoma vei thei pawl hrang hrangte

Naupangte hian rhabdomyosarcoma an vei chuan oncologist-te chuan he natna hi risk group-ah an thliar hrang a. He classification hi thil pawimawh pathum atanga siam a ni a, chungte chu: 1. Tumor stage: Hei hi hriat chian nan Doctor-te chuan TNM Staging System an tih system an hmang a. T hian tumor lian leh te, a awmna hmun a kawk a, N hian cancer chu lymph node-ah a darh tawh em tih a kawk a, M hian cancer chu taksa peng dangah a darh tawh em tih a kawk bawk. 2. Clinical group: Hei hi biopsy emaw surgery emaw hnua hriat theih a ni. Entirnan, biopsy emaw, surgery emaw hmanga tumor chu lakchhuah vek theih a nih chuan Group I-ah dah a ni a, heng group-te hi 1 atanga 4 inkar an ni 3. Genetic changes: PAX/FOX01 fusion gene mutation a awm leh awm loh. Heng risk category te hi low risk, intermediate risk, leh high risk an ti a ni. I fate medical team chuan he risk category hi hmangin enkawlna ruahmanna an siam a, enkawlna hnua cancer a lo kir leh theihna tur chance an chhut a, enkawl hnua an beisei tur (prognosis) an ruat bawk.

He risk category tihfel dan hi a buaithlak deuh a ni. Thu hman zawng zawng chu i hrethiam nghal lo mai thei. Chuvangin, i fate medical team hnenah chiang zawka hriattirna zawt hreh suh . An hlim takin engkim an hrilhfiah che ang.

Rabdomyosarcoma hi eng enkawlna nge ni?

Natna chi hrang hrang a zirin enkawl dan pawh a inang lo. Rabdomyosarcoma hi natna hmuh tur awm lo tak a nih avangin nangmah emaw i fa emaw hian he natna hi i neih chuan .I medical team te hnenah clinical trial ah i tel thei em tih zawt rawh . Oncologist-te chuan heng enkawlnate hi an hmang tlangpui a:

• Inzai
• Radiation hmanga enkawlna a ni
• Chemotherapy (chemotherapy) hmanga enkawlna .

Rabdomyosarcoma hi a dam kim thei em?

A châng chuan, a ni, enkawlna chuan rhabdomyosarcoma a tidam thei . Hei hi natna ``remission'' an ti a. Chumi awmzia chu a natna lan chhuah dan a bo a, test-naah cancer cell hmuh tur a awm lo tihna a ni. A tam zawkah chuan he damdawi hi a awm reng a, mahse a chang chuan rhabdomyosarcoma hi a lo let leh thei bawk. A tlangpuiin, puitlingte chu naupangte aiin he natna a\ang hian an dam chhuak vek tlem zawk .

Rabdomyosarcoma vei dam rei zawng chu engzat nge ni ang?

Rabdomyosarcoma vei chu eng chen nge a dam dawn tih chiang takin a la awm lo. Mahse, zirchiangtute chuan rhabdomyosarcoma an vei tih hmuhchhuah a nih hnu kum nga chhunga dam zat chu an chhinchhiah reng a ni. He damchhuahna rate hi thil tam takah a innghat a, chung zingah chuan natna chi hrang hrang, risk group, leh enkawlna hnua natna lo awm leh leh loh te pawh a tel a ni . A pumpuiah chuan he natna vei naupang zinga 70% chu an hmuhchhuah atanga kum nga hnuah an dam tawh a ni. Puitling tan chuan kum nga chhunga dam rei zawng hi 20% vel a ni.

I dinhmun chu eng pawh ni se, heng damchhuah zat hi rhabdomyosarcoma vei tawh midangte thil tawn atanga chhut a ni tih hriat reng a pawimawh. Nangmah emaw i fa emaw hian hetiang dinhmun hi i nei a nih chuan hmalam hun tur hriat duh hi thil pangngai tak a ni. Chutiang a nih chuan, i medical team chu chu mi chungchâng sawipui tûr ṭha ber an ni .

Engtin nge ka fa leh keimah ka enkawl ang?

Cancer hian i nitin nunah nghawng lian tak a nei thei a ni. Rhabdomyosarcoma pawh hi chutiang bawk chu a ni. Nangmah emaw, i fa emaw hian he natna hi i neih chuan i lungkham hle thei a, i chau hle bawk. Hemi hun chhunga ṭanpui thei tur rawtna ṭhenkhat chu hetiang hi a ni:

• Palliative Care ngaihtuah rawh: Cancer natna lan chhuah dan leh enkawl dante hi hmachhawn harsa tak a ni thei. Palliative care hi nunphung tihchangtlunna atana puitu enkawlna a ni a, natna lan chhuah dan tihtlem atanga rilru lama puihna pek thlengin a pui a ni.
• Child Life Specialist nen inbia: Cancer hian naupang nun a tidanglam thei a ni. Ṭhiante leh nitin thiltih aṭangin a hruai bo thei a ni. Cancer natna vei hi naupang tan chuan an thiante hriatthiam theih loh thil tawn mek tan chuan mahni chauhna a ni thei. Child life specialist te hi a bik taka training nei health worker an ni a, naupangte chu damdawi lam thil tawn tawhte an hmachhawn theih nan an pui thin.
• Chawlh hahdam la:Cancer enkawl – leh cancer vei naupang enkawl hi a hahthlak hle thei. Enkawlna i neih chuan hun i neih lai chauh ni lovin, i mamawh hun apiangah chawlh hahdam tum ang che. Naupang rhabdomyosarcoma vei i enkawl a nih chuan i doctor hnenah respite care program leh service chungchang zawt rawh.
• Cancer Survivorship ngaihtuah rawh: Rhabdomyosarcoma hi enkawl hnuah a lo lang leh thei a ni. Cancer chu nangmah emaw i fa emaw tan a lo let leh ang tih i hlauh chuan i doctor hnenah cancer damchhuahna atana puihna service chungchang zawt rawh.

Engtikah nge ka oncologist hi ka biak ang?

Nang emaw i fa emaw enkawl i nih chuan, enkawlna avanga nghawng tha lo a neih chu beisei aia nasa zawk a nih chuan i doctor hnenah zawhfiah rawh . I dinhmun azirin i doctor chuan i rhabdomyosarcoma chu a darh zel emaw, a lo let leh emaw tih tilang thei symptoms chungchangah thupek chiang tak a pe che a ni mai thei. I ngaihtuahna eng pawh sawipui hreh suh.

Doctor hnenah eng zawhna nge ka zawh ang?

Rhabdomyosarcoma hi natna hmuh tur awm lo tak a ni. Chumi chungchang chu i hre tam lo mai thei. He natna hi i nei emaw, i fain a nei emaw, nakin lawka i beisei tur chungchangah zawhna tam tak i nei mai thei. Chutiang huna zawhna zawh tur thenkhat chu hetiang hi a ni:

• Kei/ka fa hian eng ang rhabdomyosarcoma nge kan neih?
• Risk group classification hi eng nge ni?
• Eng enkawlna nge i rawt?
• Enkawlna hian eng side effect nge a neih?
• Clinical trial kan tel theihna tur a awm em?
• Ka fa natna tur prognosis chu eng nge ni?
• Eng support service nge i neih a, min pui thei ang?

A tawp berah chuan eng nge hriat reng tur

Rhabdomyosarcoma hi cancer chi khat a ni a . Mithiamte chuan engvangin nge a thlen tih chiang takin an la hre lo. Nang emaw i fa emaw hian rhabdomyosarcoma i vei a nih chuan a thlen chhan dik tak i hriat loh avangin i lungawi lo mai thei. I medical team chuan chu chu an hrethiam a ni. Nangmah emaw i fa emaw hian rhabdomyosarcoma i vei chhan an sawifiah thei lo nain, a natna hmuhchhuah dan te, enkawl dan tur te, clinical trial-a tel theihna te ang chi thilte an sawifiah thei a ni. Support group leh specialized care ang chi resources zawng turin an pui thei bawk. Lungngai suh, nangmah chauh i ni lo. Rhabdomyosarcoma, cancer, naupan lai cancer, soft tissue cancer, cancer symptoms, cancer enkawlna, genetic diseases