I taksa hian tui a tlakchham tih a hria em? Sjögren-a Syndrome a ni thei!

A chang chuan i mit a vawt a, i hmui a vawt ang maiin i inhria em? I chau mai mai a, heng thilte hi i neih reng chuan thil pangngai a ni lo tihna mai pawh a ni mai thei. Vawiin hian natna pakhat ‘Sjögren’s Syndrome’ tih kan sawi dawn a, chu chuan hming mak tak a nei a, mahse mi thenkhat a nghawng a ni. He hming hi i hre lo mai thei a, mahse a natna lan chhuah dan erawh i hre chiang hle mai thei.

‘Sjögren’s Syndrome’ hi eng nge ni?

A awlsam zawngin sawi ila, ‘Sjogren’s Syndrome’ hi autoimmune disease a ni a, kan taksaa tui siamtu glands te a nghawng a ni. Tunah chuan he ‘autoimmune’ hi eng nge a awmzia tih i ngaihtuah mai thei. Ngaihtuah teh, kan taksa hian natna laka min vengtu system a nei a, chu chu immune system an ti a. Kan ram humhalhtu sipai ang a ni. Mahse he ‘autoimmune’ natnaah hian thil thleng chu kanmahni vengtute, chu chu immune system te hian kan cell tha tak tak, he thu-ah hian moisture siamtu glands te hi an rawn bei sual a ni. Hei hi kan in chhunga security guard-in rukru anga ngaiin min rawn bei ang mai a ni.

Chuvang chuan i taksaa tui siamtu glands te chuan hna an thawk tha tawh lo. Hei hian a nghawng ber chu:

• Tear system: Hei hian mit a ti vawt thin.
• Ka chhunga salivary glands: Hei hian hmui a ti vawt tir thin.
• Hnar: Hnar a vawt thei.
• Throat: Kawr a vawt a, khuh a thlen thei.
• Digestive system pawh hian eng emaw chen a nghawng thei bawk.
• Hmeichhe vagina tan: Vagina chu a vawt thei.

He hming hi "Shaw-Granz syndrome" tia lam a ni. Mit emaw, hmui emaw vawt symptom thar i neih chuan, a bik takin symptom dang (na ang chi) nen a inzawm chuan doctor pan a pawimawh hle.

Sjögren’s Syndrome chi hrang hrang a awm em?

Ni e, doctor-te chuan hei hi chi hnih ah an then a:

1. Primary Sjögren’s syndrome: Hei hi damdawi lam thil dang avanga lo awm a ni lo. Chu chu a mah chauhin a thleng tihna a ni.

2. Secondary Sjögren’s syndrome: Hei hi natna dang emaw, harsatna dang emaw avanga lo awm a ni. Chu chu natna dang chu a bulpui ber a ni tihna a ni.

Hetiang dinhmun hi engtiang chiahin nge a awm?

Khawvel hmun hrang hrangah mi tam takin he natna hi ‘Sjögren’s Syndrome’ an tih hi an nei niin an sawi. America ang ramah chuan he natna hi mi maktaduai 2 velin an tuar niin an sawi. Kan ramah pawh hetiang dinhmun nei hi an awm mai thei.

Sjögren’s Syndrome natna lan chhuahna chu engte nge ni?

Hei hi a lan chhuahna ber leh langsar ber chu taksa peng hrang hranga vawt (abnormal dryness) hi a ni.

• Mit vawt emaw, itchy emaw: I mit chhungah sand awm ang maiin a awm thei. A chang chuan i mit pawh a sen thei bawk.
• Dry mouth (xerostomia): Kawng a vawt lutuk a, tawng leh ei tur ei harsa a ti thei. Kawng ulcer a awm thei. Saliva pawh a thick thei bawk.
• Hmeichhiaah vaginal dryness: Hei hian sex hman laiin natna a thlen thei.
• Vun ro: Vun a vawt thei a, a na thei bawk.
• Hnar vawt leh hnar thisen chhuak fo.
• Dry throat: Khuh vawt (dry cough) i nei fo thei.

Hetianga a vawt bakah hian Sjögren’s syndrome hian natna dang a thlen thei a:

• Joint pain: Arthritis ang chi.
• Muscle na emaw chak lohna emaw.
• Lymph node a lo hring chhuak.
• Fatigue: Eng anga mut pawh nise a bo ngai lo, chau reng reng tihna a ni .
• Chaw ei harsa (dysphagia) emaw, tawng harsa emaw.
• Brain fog: Thil chiang taka ngaihtuah harsa leh ngaihtuahna seng thei lo ang maia inhriatna.
• Taste a hloh.
• Ha ro emaw ha hloh emaw: Ka chhunga hmui siam chhuah a tlem chuan ha venhimna a tlahniam thin.
• Vun a rawn chhuak.
• Neuropathy: Ke ruh leh ke ruh natna leh tingling ang chi thil.
• Pum natna emaw ei leh in lama harsatna dang emaw a awm thei.
• Light sensitivity: Pawn lama i chhuah chuan mit a sen vek ang.

Sjögren’s Syndrome hi engte nge ni?

Hei hi ‘autoimmune’ natna a ni tih kan sawi tawh a . Chu chu kan taksa hriselna (immune system) hian kan glands (glands) te hi a bei tihna a ni. Mahse, doctor-te chuan hetiang thil hi a thlen chhan chiang takin an la hre chiang lo.

• Primary Sjögren’s syndrome hi a chhan dik tak hriat a la ni lo .
• Secondary Sjögren’s syndrome hi hriselna lama harsatna dang, a bik takin autoimmune natna dang leh virus infection thenkhat avanga lo awm a ni.

Secondary Sjögren’s syndrome thlen thei virus infection engemaw zat chu:

• Hepatitis C natna a ni
• `Cytomegalovirus (CMV) tih hi a ni` tih hi a ni
• Epstein-Barr virus a ni
• `Mihring T-lymphotropic virus 1 (HTLV)`
• `COVID-19` tih a ni

Sjögren’s syndrome nena inzawm autoimmune natna thenkhat chu:

• Rheumatoid arthritis natna a ni
• Psoriatic arthritis natna a ni
• `Lupus` tih a ni

Pawimawh:Heng natna vei zawng zawng hian Sjögren’s syndrome hi an vei vek dawn lo. Tin, Sjögren’s syndrome vei pawhin heng natna dangte hi a nei ve ngei ang tih rinhlelh rual a ni lo. Mahse, zirchianna chuan inzawmna a awm tih a tarlang.

Tute nge Sjögren’s Syndrome vei theihna chance sang zawk?

Tu pawhin he natna hi vei thei mah se, pawl thenkhat chu an hlauhawm zawk a ni:

• Hmeichhia: Sjögren’s syndrome vei zinga 90% aia tam chu hmeichhia an ni. Mipa pawhin an nei thei a, mahse a tlem hle.
• Autoimmune natna dang nei te: Sjögren’s syndrome vei zinga a chanve vel chuan autoimmune natna dang pakhat tal an nei a.
• Kum 45 leh 55 inkar mite: Naupang, tleirawl, leh kum 55 chunglam ah te a lo awm thei a, mahse, he kum group-ah hian a lo thang lian ber tlangpui.
• Chhungkaw history-a Sjögren’s syndrome nei tawhte: Sjögren’s syndrome vei zinga 10% vel chuan an chhungte hnai tak (nu leh pa emaw, unau emaw) he natna hi an nei a ni.

Engtin nge Sjögren’s Syndrome i vei tih chiang taka i hriat theih ang? (Diagnosis) tih a ni.

Doctor chuan taksa enfiahna a nei ang a, Sjögren’s syndrome i neih leh neih loh hriat nan test thenkhat a nei ang. Doctor chuan a enfiah ang che a, i symptoms te a zawt ang che. Heng inthlak danglamnate hi i hriat tirh lai khan doctor hnenah hrilh la, ni khata hun engemaw chen emaw, thil tih lai emawa i natna lan chhuahna a na zual em tih te hrilh bawk ang che.

Sjögren’s syndrome hriatchhuah hi a tlangpuiin differential diagnosis . Hei hian a awmzia chu i doctor-in Sjögren’s syndrome i vei tih a finfiah hmain, i natna lan chhuahna thlentu tur thil dang hriat loh nan test eng emaw zat an ti ang tihna a ni. Test i neih theih thenkhat chu:

• Thisen test: A bik takin, antibody chi hrang hrang enfiah nan.
• Mit enfiah: Mit chhunga tui awm leh awm loh enfiah nan test bik a awm a.
• Ha checkup: Ka chhunga salivary glands hnathawh dan a hriat theih.
• Urinalysis tih a ni.
• Biopsies: A chang chuan tissue te tak te, hmui chhung lam atanga lak a ni a, salivary glands-a inthlak danglamna zawng turin an enfiah thin.
• X-ray: I lungah nghawng a nei em tih en turin chest X-ray la turin an ti thei che a ni.

Specialist engemaw zat i hmuh a ngai thei bawk:

• Rheumatologist: Doctor, ruh natna leh autoimmune natna lama tui tak a ni.
• Mit enkawltu specialist te an ni.
• Ha siamtu.
• Otolaryngologist (ENT specialist) chu beng, hnar leh kawr lam thiam tak a ni.

Sjögren’s Syndrome natna avanga harsatna awm thei te chu engte nge ni?

Sjögren’s syndrome hian harsatna engemaw zat a thlen thei a ni. Mahse lungngai suh , mi tam zawk chuan harsatna lian tham an nei lo.

• Kawng leh mit natna vei theihna a sang: Humidity a hniam avangin natna hrik hian awlsam takin natna a thlen thei a ni.
• Liver emaw kidney emaw hnathawh dan dik lo.
• Lymphomas: Cancer chi khat, lymph node-a lo awm thin. Hetiang thil a thlen theihna hi a tlem hle a, mahse ngaihthah tur a ni lo.
• Lung lama harsatna: A chang chuan Pneumonia anga ngaih sual theih a ni.
• Neurological problems: Chak lohna, rilru hahna ang chi thil.

Sjögren’s syndrome vei tam zawk hi harsatna lian tham nei lovin an khawsa thin. Secondary Sjögren’s syndrome i neih chuan a hnuaia awm hian harsatna i neih theihna a tipung thei a ni. Hemi chungchang hi i doctor nen sawiho rawh.

Sjögren’s Syndrome hi engtin nge enkawl a nih?

I doctor chuan i natna lan chhuah dan tur control-na tur damdawi a rawn rawt ang che. Tunah hian Sjögren’s syndrome hi damdawi a la awm lo. Mahse, i doctor chuan i nitin nun leh nunphung a nghawng tlem thei ang bera enkawlna ruahmanna zawng turin a pui thei che a ni.

Enkawlna i mamawh chu i taksa peng engte nge Sjögren’s syndrome in a nghawng danah a innghat ang.

Mit, hmui emaw, vagina emaw vawt enkawlna hman tlanglawn thenkhat chu:

• Mittui siam chhuah: I mit specialist chuan over-the-counter (OTC) eye drop, prescription drop, emaw mit tithianghlimtu lubricant emaw a rawn rawt thei ang.
• Mit vawt (punctal plugs) tan surgery: Mit surgeon (ophthalmologist) chuan i mittui tlakna kawng thenkhat emaw, a zawng zawng emaw a plug thei. Hei hian i mittui pianpui chu i mitah rei zawk a awm tir thei a ni.
• Saliva siamtu: I dentist chuan over-the-counter saliva supplement emaw, i taksain saliva tam zawk siam chhuahna tura puitu damdawi emaw a rawn rawt thei ang. Chewing gum, tui in leh nitin ice cube in te hian i hmui a hnim reng thei a ni.
• Kawng silna emaw ha enkawlna atana hmanraw bik: Sjögren’s syndrome vei te hi ha lama harsatna nei an tam hle. Chuvangin, ha tihfai fo te, fluoride hmanga enkawlna bik emaw, prescription toothpaste leh hmui silna te hi a ngai mai thei.
• Vaginal moisturizer emaw lubricant emaw: 1.1.Doctor chuan nitin emaw, mipat hmeichhiatna hman lai emawa hman theih tur, over-the-counter emaw, prescription lubricant emaw a rawt thei a ni.
• Hormone therapy: Mi thenkhat chuan hormone inthlauhna avanga vaginal dryness enkawl nan hormone therapy, estrogen ang chi an mamawh mai thei.

Natna leh a lan chhuah dan dangte enkawlna:

• Over-the-counter pain reliever: Damdawi `NSAIDs (nonsteroidal anti-inflammatory drugs)` (e.g. ibuprofen) emaw `acetaminophen` (e.g. Panadol) te hian natna leh hliam tihziaawmna kawngah a pui thei a ni. Damdawi lam thurawn tel lo chuan heng damdawi te hi vawi khatah ni 10 aia tam ei loh tur a ni.
• Corticosteroids: Heng damdawi hi inflammation tihziaawmna damdawi a ni a, doctor-in pill emaw injection emaw angin pek thin a ni.
• Immunosuppressants: Heng damdawi te hian i immune system a ti reh a, a hnathawh a ti tlem bawk. I doctor chuan DMARDs (natna tidanglam thei antirheumatic drugs) ang chi damdawi a rawn rawt thei ang.

Sjögren’s Syndrome vei chuan eng ang thil tawn nge a beisei theih ang?

I natna lan chhuah dan chu rei tak i enkawl a ngai dawn a, i dam chhung zawng pawh a ni thei. Mahse, i tana enkawlna dik tak i hmuh veleh i natna lan chhuah dan nasatzia chu a tlahniam tur a ni. Sjögren’s syndrome vei te hian an natna lan chhuah dan enkawl dan an zir tlangpui a, chuvangin hun kal zelah an natna lanchhuahna nasatzia chu a tlahniam zel ang.

Sjögren’s Syndrome hi ven theih a ni em?

A chhan dik tak hriat a nih loh avangin Sjögren’s syndrome hi ven dan tur a awm lo. Tuin nge tihhmasawn ang tih leh engtikah nge a lo thanglian ang tih pawh sawi lawk theih a ni lo.

Engtikah nge Doctor i hmuh ang?

Symptom thar i neih chuan doctor pan rawh, a nih loh leh i symptoms a na zual a nih chuan. I symptoms te chu chhinchhiah la, a danglamna a awm chuan chhinchhiah rawh.

I doctor chuan follow-up appointment, test emaw, checkup dang emaw neihna tur i rawn luh fo tur thu a hrilh ang che. Enkawlna pakhatin hna a thawk lo emaw, a hma angin a thawk tha lo emaw nia i hriat chuan i doctor pan chu tihkhawtlai suh. Sjögren’s syndrome chhinchhiahna hi a chang chuan a fiah lo thei hle. Thil a dik loh lai chu nangmah chauhin i hre thin.

Emergency: Thâwk harsa emaw, ei leh in emaw i neih chuan damdawi inah kal nghal la, 1990 (emergency ambulance service) call rawh.

I doctor hnenah eng zawhna nge i zawh tur?

Doctor i hmuh hunah heng zawhnate hi zawh theihnghilh suh:

• Sjögren’s syndrome hi eng chi nge ka neih? (Primary nge secondary?)
• Eng test nge ka tih ngai?
• Specialist dang ka hmuh a ngai dawn em ni?
• Eng enkawlna nge ka mamawh?
• Eng inthlak danglamna emaw, symptom emaw ka fimkhur tur?

Sjögren’s syndrome enkawl hi a chang chuan a lungchhiatthlak thei hle. Mit a vawt, hmui a vawt, a nih loh leh sex a ti na thei vaginal dryness pawh neih hi a lungchhiatthlak thei hle. Mahse thu lawmawm tak chu Sjögren’s syndrome vei tam zawk chuan an tana tha tur damdawi inzawmkhawm an hmuh veleh an natna lan chhuah dan chu an enkawl tha thei a ni.

A tawp berah chuan thil hriat reng tur (Take-Home Message) .

Sjögren’s syndrome hi natna engemaw chen chu a nuam lo thei a, mahse enkawl dan dik tak chuan control theih a ni.

• Nangmah chauh i ni lo: heng dinhmunte neia khawsa midang an awm bawk.
• Enkawlna dik a pawimawh: I doctor nen inbia la, i tana enkawlna tur ruahmanna dik tak zawng rawh. Enkawlna hrang hrang i enchhin a ngai mai thei.
• I natna lan chhuah dan a danglam chuan doctor hrilh rawh: I natna lan chhuah dan a danglam a, a na zual a, nitin hnathawh a nghawng lutuk nia a lan chuan doctor hnenah hrilh rawh.
• Checkup neih fo: I doctor hnenah mit enfiah leh ha enfiah fo tur tih zawt rawh. Hetiang checkup neih fo hian harsatna a awm loh nan a pui thei a ni.

He thu hi in tan a tangkai ngei ka beisei. Zawhna i neih chuan Doctor zawt hreh suh.

` Sjögren’s Syndrome, mit ro, hmui ro, autoimmune, immune system, ruh natna