Te Ate Ngako Kino o te Hapūtanga (AFLP): He mea nui tēnei, kia tūpato tātou!

I mōhio koe ka puta pea ngā raruraru hauora ohorere i te wā e hapu ana? I tēnei rā ka kōrero tātou mō tētahi mate kino pea e tika ana kia mōhiotia, ahakoa he ahua ohorere. Ahakoa kāore tēnei e pā ki te nuinga o te tangata, ki te pā mai, me rongoā tonu.

He aha tēnei mea e kiia nei ko te mate ate momona (AFLP) i te wā e hapu ana?

Ki te whakarapopoto, he mate onge engari he tino kino te Ate Ngako Koretake o te Hapūtanga (AFLP) . Koinei te wā ka kī rawa tō ate i te ngako i te wā e hapū ana. Ka arahi pea tēnei ki te ngoikore o te ate me ētahi atu raruraru morearea. Inaa, e kiia ana he āhuatanga ohorere hauora . Mena ka puta tēnei, ko te mea pai ko te whānau wawe tonu i te pēpi.

He pēhea te noa o te AFLP?

Kaua e manukanuka, ehara tēnei i te mea tino noa. He tino onge tēnei mate e kiia nei ko te AFLP. E kiia ana ka pā ki te kotahi anake i roto i te 10,000 ki te 20,000 hāputanga ia tau. Nō reira, ehara tēnei i te mea e kitea pinepinetia ana.

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He aha ngā tohu o te AFLP? (Kia mōhio ki ēnei)

Ko te AFLP ka tīmata i te mutunga o te toru o ngā marama o te hapūtanga – tata ki te 36 wiki – ā, ko te nuinga o te wā ka kitea. Heoi, i ētahi wā ka puta wawe atu, tae noa ki te whānautanga o te pēpi.

Anei ētahi tohu e kitea pinepine ana i roto i tēnei mate:

• Whakapairuaki me te ruaki: Ahakoa he āhua noa tēnei i te wā e hapu ana, i ētahi wā he tohu pea nō te AFLP.
• Mamae puku: Ka pā tēnei mamae ki te taha matau o runga o te puku.
• Ngenge nui: Ehara i te ngenge noa iho, engari he kare ā-roto o te ngenge nui.
• Te āhua o te kore whakamarie i roto i te tinana: He āhua o te kore whakamarie i roto i te tinana, me te mea kei te pāngia koe e te mate.
• Anorexia: Te ngaro o te hiahia katoa ki te kai.
• Te nui o te matewai: Ahakoa te nui o te wai e inuhia ana, e ahua ana kāore e ranea.
• Te kiri māwhero: Ka huri te kiri me te mā o ō kanohi hei kōwhai. He tohu tino kitea tēnei.
• Pōhēhē, kore rānei e taea te arotahi: He uaua ki te arotahi, he koretake te noho.

Kia maumahara, he rite tonu ngā tohu o te AFLP ki ērā o ētahi atu mate hauora. Nō reira, he mea nui kia kōrero koe ki tō tākuta mō ngā tohu rerekē katoa e pā ana ki a koe i te wā e hapu ana. He āhuatanga ohorere hauora te AFLP e hiahia ana kia rongoatia tonutia.

He aha i puta ai tēnei AFLP? He aha te take?

Kāore anō kia tino mōhiotia e ngā kairangahau te take o te AFLP. Ko tētahi o ngā mahi matua a tō tātou ate ko te wawahi i ngā waikawa ngako. I roto i te AFLP, he raruraru kei te kaha o te ate ki te wawahi i ēnei waikawa ngako, ka puta te nui o te ngako i roto i te ate. Kātahi ka mau tēnei ngako ki roto i te ate, ka whakararuraru i te mahi noa o te ate. Ka taea e tēnei te whakararu i te ora mēnā kāore e rongoatia.

He hononga ira kei reira? (te ngoikore o te LCHAD)

Kua whakaatuhia e ētahi rangahau he pānga ira pea tō te AFLP. Arā, tera pea nā te ngoikore o te whākōkī e kiia nei ko te ngoikore o te mekameka roa o te 3-hydroxyacyl-CoA dehydrogenase (LCHAD) .

He tino onge tēnei mate (autosomal recessive) ( koretake) (LCHAD). Ki te kī ngāwari, kia riro mai i te pēpi tēnei mate, me whiwhi ngā mātua e rua i te ira e tika ana mōna. Kāore e taea e te pēpi he mate (LCHAD) te whakapūmau tika i ngā waikawa ngako. Kātahi ka uru ēnei waikawa ngako ki te toto o te whaea mā te whenua whānau. Ka taea e tēnei te whakaemi i te ngako ki te ate o te whaea. Whakaarohia te pānga o te huringa o te pākia o te tinana o te pēpi ki te whaea!

He aha ngā āhuatanga mōrearea e pā ana ki te whakawhanaketanga o te AFLP?

E mōhio ana tātou ināianei ko tēnei mate, e kiia nei ko te AFLP, he mea ira. Ko te tikanga ka taea te tuku iho mai i ngā mātua. Hei tāpiri, he maha atu anō ngā āhuatanga mōrearea:

• Mena koinei tō haputanga tuatahi.
• Mena kei te tatari koe kia whānau māhanga, neke atu rānei.
• Ki te mea kei te tatari koe ki tētahi tama.
• Mena he mate huka tōu.
• Mena he cholestasis intrahepatic tōu o te hāputanga.
• Mena kei a koe te preeclampsia.
• Mena he momona koe.

Ahakoa ēnei āhuatanga mōrearea katoa, kāore e taea e tō tākuta te matapae mēnā ka pāngia koe e te AFLP. Ā, ehara i te mea ka taea e koe te matapae me te ārai. Koia te mea e nui ake ai te āwangawanga.

He aha ngā raruraru ka pā mai i te AFLP? (He mea morearea pea tēnei)

Ka mate pea te ate momona whakapeka (AFLP) i te wā e hapu ana. Kei te mōrearea koe me tō pēpi ki ngā raruraru maha. Ko ētahi o ēnei:

• Te ngoikore o te ate.
• Te ngoikore o te whatukuhu.
• Te ngoikore o te pūkahukahu.
• Te mate urutā.
• Te toto.

He whakamataku te rongo i ēnei mea, kāore? Koia te mea nui kia mōhio ki tēnei āhuatanga.

Me pēhea te tautuhi i te tūnga AFLP?

Nā te mea ka taea e te AFLP te whakararu i te mahi a ngā okana,He mea nui kia wawe te tātaritanga o te mate, kia tere hoki te tīmata i te maimoatanga. Ko te tātaritanga tika rawa ko te koiora ate . Koinei te wāhi e tirohia ai e tō tākuta te kiko o tō ate i raro i te karuārai. Heoi, kāore i te haumaru tonu tēnei mahi i te wā e hapu ana. Nō reira, ka taea e tō tākuta te tātaritanga i te AFLP i runga i ō tohu me tō hītori hauora.

He aha ngā mea e tirohia ana e ngā whakamātautau toto?

Ka whakahau tō tākuta i ngā whakamātautau toto hei tirotiro mō te AFLP. I ētahi wā ka whakapae pea tō tākuta kei te pāngia koe e te AFLP i runga i ngā hua o ngā whakamātautau toto mahi ate . He maha ngā wā ka whakaatuhia e ēnei whakamātautau ngā mea penei:

• Ngā whākōkī ate kua piki ake.
• Ngā raruraru ki te tukanga toto totoka.
• Te pikinga ake o te haukini, te waikawa uric, me te pūmua i roto i te toto.
• Te iti o te huka toto.
• Ngā tohu o te pakaru o te whatukuhu.

Ētahi atu whakamātautau

Hei whakaū i te mate, ka tono pea tō tākuta i tētahi matawai ultrasound , i tētahi matawai CT rānei. Ka taea e ēnei te whakarato i ngā whakaahua taipitopito o te ate.

Me pēhea te rongoā mō te AFLP? (He mea nui te rongoā tere!)

Hei karo i ngā raruraru e morearea ai te ora, ka tūtohu tō tākuta kia whānau wawe tonu tō pēpi . Whai muri i te tangohanga o te pēpi me te whenua whānau, ka tīmata te ora haere o tō ate. Koinei te maimoatanga matua, me te maimoatanga anake mō tēnei mate.

He aha ngā mea ka taea e au te mahi hei whakaiti i te mōrearea o te AFLP?

He raruraru tēnei e pāngia ana e te tini tāngata. He mate onge te AFLP. Ā, kāore he mea e taea e koe te mahi hei ārai, hei kite rānei i mua . Koinei te wāhanga kino o tēnei mate.

Ka aha mēnā kei a au te AFLP?

Mena kei a koe te AFLP, me whānau tonu tō pēpi . Ka tīmata te mahi a tō ate ki te hoki ki te āhua noa i roto i te 10 rā i muri i te whānautanga. Me aroturuki koe e ngā tākuta o te hōhipera kia hoki rā anō ngā hua o tō whakamātautau ate ki te āhua noa.

Kāore e taea te kī tika i te nui o tō mōrearea ki te whakawhanake anō i te AFLP. Tērā pea ka tūtohu tō tākuta kia whakamātauria he whakamātautau ira hei tirotiro mēnā he rerekētanga kei roto i ngā waikawa ngako i whai wāhi pea ki te whanaketanga o te AFLP. Tērā pea ka tohutohu anō rātou mēnā ka hapu anō koe ā muri ake nei, me tirotirohia tō haputanga e te tohunga rongoā whaea-pēpi .

He aha te hē o te pēpi?

Ko te kaha o te mate i roto i te whaea te mea e whakatau ana i te nui o tōna pānga ki te pēpi. Ko ētahi pēpi kei te mōrearea ki te whakawhanake i tētahi mate e kiia nei ko te koretake o te hāora toto (he kore e taea te tukatuka tika i ngā waikawa amino). Ko ētahi atu pea ka whakawhanake i ngā mate pēnei i te cardiomyopathy whānui (he ngoikore o te uaua o te ngākau) te neuropathy rānei (he kino o ngā io). Heoi, i te nuinga o te wā, he iti ake te mōrearea ki te pēpi i te mōrearea ki te whaea.

Kia pēhea te wā me toro atu ahau ki te tākuta?

He mea nui kia whakapuakina e koe tō hītori hauora katoa ki tō tākuta i te wā e hapu ana koe, me te whakamōhio atu ki a rātou mō ngā tohumate e pā ana ki a koe. Mā te pono koe e āwhina ki te whiwhi i te tiaki hauora pai rawa atu e hiahiatia ana e koe.

Mena ka pāngia koe e tētahi o ngā tohu e whai ake nei i te wā e hapu ana, me toro atu ki te tākuta tonu :

• Te mamae o te puku, o te hope rānei, e kore e memeha.
• Te ngenge nui, te koretake rānei o te tinana.
• Te whakapairuaki me te ruaki tonu.
• He mamae upoko e kore e memeha.

He tohu noa iho pea ēnei mō te hāputanga, engari he tohu anō hoki pea mō tētahi mea kino. Nō reira kaua e whakapae.

He aha ngā pātai me pātai atu e au ki taku tākuta?

Whakaarohia, mēnā i kī atu tō tākuta kei a koe te AFLP... he mea noa kia maha āu pātai. Me pātai pea koe ki a koe anō i ēnei pātai:

• "E te tākuta, me whānau te pēpi ināianei?"
• "Kei te mōrearea tōku ora?"
• "Kei te mōrearea te ora o taku pēpi?"
• "Ka pai ake rānei tēnei āhuatanga o te AFLP?"
• "He aha te momo maimoatanga e hiahiatia ana e au?"
• "Ka tupu anō rānei tēnei mēnā ka hapu anō ahau?"
• "He aha i pā mai ai tēnei ki ahau, e te tākuta?"

Pātaihia ngā pātai katoa e taea e koe te whakaaro pēnei. Kaua e huna tetahi mea.

He aha te rerekētanga i waenga i te AFLP me te HELLP syndrome?

Ko te mate HELLP ( Hemolysis, Elevated Liver Enzymes, and Low Platelet Count Syndrome)** he mate e puta ana i te wā e hapu ana, ā, he rite ki te AFLP. Ko te rerekētanga matua i waenga i ngā mate e rua ko te rerekētanga o ngā hua o te whakamātautau toto i roto i te wā. Ko te AFLP he maha ngā raruraru ki te toto totoka me ngā huringa o ngā taumata o ngā pereti toto. Heoi, ko te mate HELLP he maha ngā wā ka heke haere te maha o ngā pereti toto.

Hei tāpiri, ko te hunga whai AFLP he nui ake te tūponotanga ka pāngia e:

• Ngā hapa nui o ngā whakamātautau mahi ate.
• Tetahi āhuatanga rerekē o te huka toto.
• Ngā tohu o ngā āhuatanga rerekē o te mahi a te whatukuhu.
• Te teitei o ngā taumata bilirubin (he para te bilirubin) i roto i ngā whakamātautau.
• Te waikawa (te pikinga o te waikawa o te toto).
• (Pūroteinuria)(Te kitea o te pūmua i roto i te mimi).
• Ngā panonitanga ki te mahi a te roro (hei tauira, te kore e taea te whakaaro mārama, te pōhēhē).

He mea noa te pāngia o te ate momona i te wā e hapu ana?

Ahakoa i roto i te hunga kāore i te hapu, he mate noa te mate ate momona, ā, ka taea te rongoā. He nui te ngako kei roto i te ate o te nuinga o te tangata. Heoi, ki te nui haere te ngako nei, ka taea te ngoikore o te ate. He tino morearea tēnei i te wā e hapu ana , nā te mea ko te ate te huarahi a te tinana ki te tango i ngā paitini. Ki te kore tō ate (te ate rānei o tō pēpi) e mahi tika ana, ka nui haere ngā matū kino ki roto i ō toto.

Hei whakamutunga, koinei taku e mea atu nei ki a koe (Karere hei tango ki te kāinga)

He mate onge engari he kino te AFLP, arā, te mate ate momona whakapeka o te hāputanga. Kāore e taea te ārai, te matapae rānei. Ko te tikanga he mea nui kia kōrero koe ki tō tākuta mō tō hītori hauora me ngā tohu rerekē ka pā ki a koe i te wā e hāpu ana koe. Mā ēnei kōrerorero ka āwhina i tō tākuta ki te tautuhi i ngā raruraru pea, me te whakarato i te tiaki hauora e hiahiatia ana e koe.

Kaua e mataku, engari kia tūpato . Kia aro ki tō tinana. Ki te rongo koe i tētahi mea rerekē, rapua tonutia he tohutohu hauora. Ko te mea nui kia noho ora kōrua ko tō pēpi.