Kua pāngia koe e te mamae puku tino kino, ā, kāore i taea e koe te tu atu? I ētahi wā, ehara tēnei mate i te mamae puku noa iho. Ko te AHP e kōrerohia ana e tātou i tēnei rā, arā, ko te Acute Hepatic Porphyria, he mate kino e puta ai te mamae puku nui me ētahi atu tohu. Kāore e rite mō te katoa. He maha ngā whakaekenga kino ki ētahi tāngata. Ko ētahi he torutoru noa iho ēnei whakaekenga i roto i ō rātou oranga.
Ko te mea pai rawa atu, ka taea e tātou te whakahaere pai i tēnei mate e kiia nei ko te AHP mā te rongoā me ngā huringa momo noho . Engari kāore e taea te whakaora katoa. I ngā wā tino kino, me whai whakawhitinga ate . Kaua e mataku. Ko te mea nui ko te tautuhi wawe i te mate, te tīmata i te maimoatanga tika, me te noho tawhiti atu i ngā mea e whakaoho ana . Ki te mahi tātou i tēnā, ka taea e tātou te aukati i te puta mai o ēnei mate kino, me te karo i ngā raruraru kino pērā i te toto toto tiketike , te whiu , me te ngoikore o te whatukuhu .
Me pēhea te rongoā a ngā tākuta i te AHP?
Ki te whakarapopoto, ka taea te wehewehe i te maimoatanga AHP kia rua ngā wāhanga. Ko te mea tuatahi, ko te mea nui rawa atu, ko te tautuhi tika i ngā mea e whakaoho ana i ō tohumate, me te karo i aua tohumate i ngā wā katoa e taea ana. Ko te tuarua, ko te whakamahi i ngā rongoā tika hei whakaiti i te auau o te putanga mai o ngā tohumate, me te whakahaere i aua tohumate ina puta.
E whā ngā momo matua o te AHP. Ka tohua e tō tākuta he maimoatanga māu i runga i te momo me tōna kaha.
| Ingoa momo AHP | He kupu whakataki poto |
|---|---|
| Te porphyria whakapeka whakapeka (AIP) | Koinei te momo AHP tino noa. |
| Te porphyria o te ngoikore o te waikawa aminolevulinic dehydratase (ALAD) | He momo tino onge tēnei. |
| Te porphyria momo-momo (VP) | Tērā pea ka puta ngā tohu kiri i tēnei momo. |
| Te koproporphyria tuku iho (HCP) | Ka taea hoki e tēnei momo te whakaputa i ngā tohu o te pūnaha io me te kiri. |
Ko te mea nui, ki te pāngia koe e te whakaekenga kino o te AHP, me kawe koe ki te hōhipera, me te rongoā. Nā te mea kāore e taea te whakahaere i te mamae nui , te toto toto tiketike, te whakapairuaki, te ruaki, me ngā taurite koretake o te electrolyte e puta ana i taua wā i te kāinga.
Me pēhea tātou e noho tawhiti atu ai i ngā mea e whakapiki ake ai i ngā tohu?
Ko te AHP e puta mai ana i ngā huringa o ō tātou ira. Heoi, mā ētahi āhuatanga taiao me ētahi o ā tātou tikanga ka puta ohorere mai ēnei tohu. Ka kiia ēnei e tātou he 'whakaoho'. Mā te mōhio tika ki ēnei mea, me te noho tawhiti atu i a rātou, ka taea e koe te ārai i te puta o te mate, te whakaiti rānei i te auau o tōna putanga mai.
Me tino tupato koe ki ēnei mea.
| Ngā mea hei karo/ngā mea hei whai | Me aha? |
|---|---|
| Ētahi rongoā | Tērā ētahi rongoā ka puta ai ngā tohumate AHP. Hei tauira, ko te carbamazepine (Tegretol), te phenobarbital, me te phenytoin (Dilantin).me ngā paturopi sulfonamide . Pātai atu ki tō tākuta mō tētahi rārangi katoa o ēnei rongoā. I mua i te tango i tētahi atu rongoā, kia tino mōhio koe ki te kōrero ki tō tākuta kei a koe te AHP. |
| Ngā tikanga kino | He pai ake te mutu rawa te inu waipiro. Ki te kore e taea, whakawhāitihia rawatia (kaua e neke atu i te kotahi inu ia rā mō ngā wāhine, kaua hoki e neke atu i te rua mō ngā tāne). Kaua rawa e whakamahi i ngā raau taero pēnei i te tarukino. Ki te kaipaipa koe, kōrero ki tō tākuta mō ngā huarahi hei āwhina i a koe ki te mutu (pēnei i te rongoā whakakapinga nikotīni). |
| Kai taurite kore | Kai i tētahi kai taurite. Āta karohia ngā tikanga kai tino taumaha pērā i te kai tere, te tango rawa rānei i ngā warowaihā, nā te mea ka kino ake te āhua mēnā ka whakaitihia ohoreretia ngā kaora. |
| Ngā mate urutā me ngā werohanga | Me werohanga i te wā tika. Pātai atu ki tō tākuta mō tēnei. Ki te pāngia koe e te mate, me rongoā tonu. |
| ahotea | Ko te ahotea tētahi o ngā tino take o te AHP, nō reira kimihia he huarahi hei whakangā i tō hinengaro me tō tinana. Tērā pea he whakaaroaro, he yoga, he whakarongo waiata, he aha atu rānei e pai ana ki a koe. |
| Te pānga o te rā | I roto i ētahi momo AHP (ina koa ko te VP me te HCP), ka tino pāngia te kiri e te hihi o te rā. Nō reira, me noho ki roto i te whare i ngā wā katoa e taea ana i waenga i te 10 i te ata me te 4 i te ahiahi , i te wā e tino kaha ana ngā hihi ultraviolet. Ki te hiahia koe ki te haere ki waho, mauria he kākahu tiaki rā, he pōtae whānui, me te whakamahi i te hinu ārai rā pai me te SPF o te 30, neke atu rānei. |
Tērā pea he uaua ki te whakarerekē i tō momo noho pēnei i te tīmatanga. Engari mā ēnei huringa iti, ka taea e koe te whakahaere nui i te putanga mai o ngā tohumate AHP. He pai ake te kōrero ki tō tākuta i ia wā, me te whakatau ko tēhea maimoatanga me te momo noho e pai ana mōu.
Karere Tangohia ki te Kāinga
- He mate ira kino te AHP engari ka taea te whakahaere, nō reira kaua e mataku noa.
- Ko ngā wāhanga matua e rua o te maimoatanga ko te karo i ngā mea whakaoho me te tango i ngā rongoā kua tohua e tō tākuta.
- I mua i te tango rongoā mō tētahi atu mate, he mea nui kia whakamōhio atu koe ki tō tākuta kei a koe te AHP.
- He mea nui te kai taurite, te karo i ngā raau taero, me te whakahaere i te ahotea ki te ārai i te tīmatanga o te mate.
- Ki te kaha haere ngā tohu, pērā i te mamae o te puku e kore e taea te manawanui, kaua e noho ki te kāinga, engari me haere tonu ki te hōhipera kia whiwhi maimoatanga.
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