Tērā pea he tangata koe e noho ana i runga i te tūru tari. Tērā pea he tangata koe e hikoi ana, e hiki ana i ngā taumaha i te rā katoa. Ahakoa he aha tāu mahi, ki te mea he Ankylosing Spondylitis (AS) tōu, e mōhio ana koe ki te uaua o te mahi mai i te 9 i te ata ki te 5 i te ahiahi. Ehara i te mea ngāwari te whakapau i te rā me te mamae o te tuara, te pakari o te tinana, me te kore e taea te neke. Engari kaua e manukanuka, he maha ngā mea hei āwhina i a koe kia angitu i roto i tō mahi ahakoa tēnei mate.
He aha rawa te Ankylosing Spondylitis (AS)?
He kupu ngāwari tēnei, he momo mate rumatiki e pā ana ki te tuaiwi. I ētahi wā ka kiia ko te mate a Bechterew. I roto i tēnei āhuatanga, ka mumura i waenganui i ngā tuaiwi o tō tuaiwi, ā, i roto i te wā, ka tīmata te hanumi o ngā tuaiwi, ka hanga he wahi kotahi. Ka taea e tēnei te meinga te tuaiwi kia ngaro tōna ngāwari, ka piko whakamua (scoliosis).
Hei tāpiri atu ki tēnei, he maha atu anō ngā tohu:
- Te mamae, te kore rānei e pai ki ngā rara, ki ngā hononga hope, me ngā hononga pakihiwi.
- Ka puta te whero, te mamae, me te uaua ki te kite i te mārama i te mumura o ngā kanohi.
Me ēnei tohu, he uaua ki te whakaaro kāore e whakararuraru i tāu mahi mā te tango noa i ngā rongoā, te haere rānei ki te whakaora tinana. Ko te mea nui ko te whakaaroaro matatau mō tēnei. Me mahi koe i ngā mahi hei whakaiti i te mamae e pāngia ana e tō tinana. Me tono pea koe ki tō wāhi mahi mō ngā whakaritenga motuhake hei āwhina i a koe ki te mahi tika i tāu mahi.
He aha te kore e pai ai te manawanui ki te mamae?
Ehara i te mea pai te mahi noa i tāu mahi me te whakaaro, "Āe... kāore he aha," me te haere tonu i roto i te mamae me te kore e hanga i tetahi huringa. Ki te tirohia e koe ngā whakaaturanga a ngā rangahau, ka kite koe i te kuware o te manawanui noa ki tēnei.
He tokomaha te hunga whai AS e pāngia ana e tētahi momo kore pumau o ā rātou mahi, ā, i waenga i te 10% me te 20% o te hunga e mahi ana i ngā mahi uaua ki te tinana ka tūpono ki tētahi momo hauātanga mahi.
Tata ki te kotahi i roto i te whitu o ngā tāngata e pangia ana e te mate me whakaiti i ā rātou mahi, me huri rānei i ā rātou mahi. Kua whakaatuhia hoki e ngā rangahau ko te kotahi i roto i te toru o ngā tāngata e noho ana ki te hōhipera nā te kino haere o ngā tohu me whakarērea ā rātou mahi i mua i te tau reti. Nō reira, ehara i te mea miharo he mea tēnei kāore e tika kia māmā noa iho, tika?
Ngā huringa ngāwari ka taea e koe te mahi i roto i tō wāhi mahi
I kitea i roto i tētahi rangahau, i whakaitihia e te hunga whai AS ō rātou raruraru mahi mā te whakarerekē auaha i tō rātou taiao mahi. Ahakoa te momo mahi e mahia ana e koe, anei ētahi tohutohu hei āwhina i a koe ki te whakahaere i tō āhua AS.
| Te huringa ka taea te mahi | Me pēhea te mahi (māmā noa iho) |
|---|---|
| Whakatikatikahia tō tūru. | Ki te mahi koe i runga i tētahi tēpu, whakatikatikahia te tuara o tō tūru kia tika tō tuara, kia tapawhā hoki ō pakihiwi. Me ō waewae ki runga i te papa, whakatikatikahia te teitei o tō tūru kia rite ō turi ki ō hope, kia paku ake rānei i runga ake i a rātou. Kaua e piko. |
| Tautokohia tō tuara. | Ki te kore e ranea te tautoko e whakaratohia ana e te tūru, whakamahia he tauera pōkai, he urunga iti, he urunga tautoko hope rānei. |
| Haere tonu. | Mena kei te hiahia tō mahi kia noho koe mō te wā roa, whakaritea he wā i roto i tō rā mahi hei whakatika me te hikoi haere. Whakatika i tō tēpu i ia wā, ā, me whai wā poto ki te okioki. Whakamahia te hikoi haere i taua wā me tō wā tina. |
| Kia tūpato ki te tū. | Ina haere koe ki te wharepaku, titiro ki te whakaata kia kite ai mēnā kei te tika, kei te piko rānei tō tuara. Ka taea hoki e koe te tono ki tētahi hoa kia kī mai mēnā kei te piko koe i te wā o te hui. |
| Kia pai te āhua o tō tēpu mahi. | I a koe e noho ana, me taea e koe te whakatakoto i ō ringaringa ki runga i te tēpu me te kore e pēhia. I a koe e whakamahi ana i te rorohiko, me tika ō ringaringa, me wātea hoki ō maihao. He pai ake kia rite te taha o runga o te mata rorohiko ki te taumata o te kanohi. |
| Me mahi tika ngā mahi totoro tinana. | Tonoa atu ki tō tākuta, ki tō kaiwhakaora tinana rānei, kia whakaakona koe ki ētahi mahi totoro ngāwari ka taea e koe te mahi. Kaua e wareware ki te mahi i ēnei ahakoa kei te noho koe i te rā roa, kei te taraiwa, kei te hiki taumaha rānei. |
| Kia tūpato i te wā e hiki ana i ngā mea taumaha. | Whakamahia ngā ringa e rua hei hiki i ngā taumaha. Ki te taea, hikihia ngā taumaha ki ngā ringa e rua, kaua ko ō maihao anake. Kia tata te kawenga ki tō tinana. Mā tēnei ka whakaitihia te pēhanga ki ō hononga. Panahia, tōia hoki i ngā wā katoa e taea ai. Whakaitihia te hiki. |
Kaua e wehi ki te tono āwhina mai i te wāhi mahi.
Mena kua oti i a koe ēnei mea, ā, kei te raru tonu koe ki te whakaoti i tō mahi, ko te mahi e whai ake nei ko te kōrero ki tō rangatira mō tēnei mea.
Me pēhea tāu whakatau i tēnei?
- Whakarite: I mua i tō kōrero ki tō rangatira, whakapaua he wiki, he rua rānei ki te tuhi i ō mahi me ngā mea e kino ake ai tō wairua. Mā tēnei ka mārama ake koe ki te wāhi e takoto ana te raruraru.
- Tukuna he tono tuhituhi: Tukuna he tono tuhituhi mō ngā whakaritenga e hiahiatia ana e koe. He mea tino nui kia tāpirihia he reta mai i tētahi tākuta e whakaū ana kei a koe te AS. Hei tauira, ka taea e koe te tono mō tētahi tūru ergonomic, tēpu rānei. Ka taea rānei e koe te tono kia paku whakarerekētia ō hāora mahi.
I Sri Lanka, kei a koe te tika ki te tono i ēnei momo whakaritenga i te wāhi mahi mō ngā take whaitake. Nō reira kaua e wehi, kaua hoki e whakama ki te kōrero mō tēnei.
He aha mēnā kāore e taea e koe te mahi tonu?
I ētahi wā tino kino, ka taea e te AS te aukati i a koe ki te mahi tonu. I roto i ēnei wā, he mea nui kia mōhio koe ki ō painga haumaru hapori, ki ngā kōwhiringa inihua rānei. I mua i te whakatau i tēnei, he pai ake te kōrero ki tō tākuta , ā, ki te tika, me rapu tohutohu ture.
Kia maumahara, he nui te kaha e hiahiatia ana hei whakahaere i te AS. Kaua e ngau noa i ō niho, e manawanui noa ki te mamae. Kia kaha ki te whakarerekē i tō wāhi mahi kia pai ake ai tō noho. Kaua e wehi ki te tono āwhina. He tika tōu ki te pārekareka ki tō oranga mahi.
Karere Tangohia ki te Kāinga
- He mate rumatiki kino te Ankylosing Spondylitis (AS) e pā ana ki te tuaiwi. Kaua e warewarehia te mamae me te kore whakamarie e puta mai ana i te wā e mahi ana.
- Whakatikatikahia ngā mea ngāwari pēnei i tō tūru mahi me tō tēpu mahi kia pai ai mō tō tinana. Whakamahia he tautoko tāpiri mō tō tuara.
- Kaua e noho roa i te tūranga kotahi. Nekeneke pinepine, whakatika, hikoi haere, me mahi i ngā mahi whakakori tinana e tika ana kia rite ki ngā tohutohu a tō tākuta.
- Kia tika te tū o te tinana ina hiki ana i ngā mea taumaha. Kaua e hiki i ngā mea taumaha i ngā wā katoa e taea ana.
- Kaua e wehi ki te kōrero tuwhera ki tō rangatira mō ngā whakaritenga e hiahiatia ana e koe. He tino āwhina te reta mai i te tākuta ki tēnei.
- Me whai tonu i ngā rongoā me ngā maimoatanga kua whakaritea e tō tākuta.
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