Mena kei a koe te Ankylosing Spondylitis, te AS rānei hei whakarapopototanga, tera pea kua pāngia koe e te pikinga ohorere o te mamae o te tuara me te hope me te pakari. Me te mea kua kino haere te mate. I roto i ngā kupu hauora, ka kiia tēnei he 'flare-up', he 'come-up' rānei. He wheako tino whakararuraru, he wheako whakarihariha hoki. Engari ehara i te mea ko koe anake, he maha ngā tāngata whai AS e pāngia ana e tēnei.
He aha te 'whakapūtanga' o te AS? He aha ō whakaaro?
Ina hoki, kāore anō ngā tākuta kia whai whakamāramatanga tino tika, rite tonu ki te pukapuka, mō te tikanga o te pāwera. Engari, ki te pāngia koe e tēnei mate, e mōhio ana koe ki te āhua o te mamae. Tērā pea he rerekē ō kare ā-roto i ō kare ā-roto o tētahi atu. Mō ētahi, ka pā ki tō rātou tinana katoa, mō ētahi atu ia, ka pā ki tētahi wāhi motuhake anake, pērā i tō rātou tuara, i ō rātou hope rānei.
Whakaarohia, i ētahi rā kāore e taea e koe te ara ake i te moenga i te ata, ka tino pakari tō tinana katoa, ā, ka tino mamae tō tuara, kāore e taea te whakatika. Ahakoa te roa o te rā, kāore taua ngenge me te pakari e memeha. Koinei te āhuatanga matua o te 'whakaekenga'.
Kia tirohia ngā tohu tino kitea i tēnei wā.
| Tohu | Te āhua o te āhua |
|---|---|
| Mamae nui | Te mamae e kino rawa atu ana i te tikanga, inā koa ki te tuara, ki te hope, ki te kaki me ētahi atu hononga. |
| Ngenge | Ahakoa te nui o te okiokinga, te moe rānei, ka noho kore ora tonu. Ka hiamoe tonu i te rā katoa. |
| Te pakari | He uaua ki te neke i tō tinana, inā koa ka ara ake koe i te ata, ā, i muri i te noho i taua tūranga anō mō tētahi wā. Ka roa pea tēnei āhuatanga puta noa i te rā. |
| Ngā huringa hinengaro | Mā te mamae me te kore whakamarie e haere tonu ka ngaro te hiahia ki tetahi mea, ka riri, ā, i ētahi wā ka pouri. |
| Ētahi atu āhuatanga | Tērā pea ka pāngia ētahi tāngata e te kirika, te makariri, te werawera, te werawera i ngā hononga, me te mamae o ngā uaua. |
He aha te take i piki haere ohorere ai te mate penei?
He uaua ki te tohu i tētahi take kotahi mō tēnei, engari ko te mea nui ko te pikinga ake o te mumura i roto i te tinana. Ka piki ake tēnei mumura, ā, ka kino haere ngā tohu nā ētahi huringa o te mahi a tō tātou pūnaha ārai mate.
Hei tāpiri, he maha atu ngā take ka pā ki tēnei:
- Ētahi atu āhuatanga hauora: Mena kei a koe tētahi atu āhuatanga hauora hei tāpiri atu ki te AS, ka taea hoki e ia te puta ake ngā whakaekenga.
- Ngā Mate Pukupuku: Ahakoa te makariri, te kirika, te mate mimi rānei, ka taea e ia te whakanui ake i te mumura o te tinana, me te kino ake hoki o te AS.
- Whara: Ahakoa he whara iti noa ki te tuara, ki te hope, ki tētahi atu hononga rānei, ka pā mai pea te mate.
- Te karo i te rongoā: He mea tino nui tēnei. Ki te kore koe e tango i te rongoā kua tohua e tō tākuta i te wā tika, ki te ngaro rānei i a koe te horopeta, he nui te tūponotanga ka kore e taea te whakahaere te mate, ka kino haere.
- Te ahotea me te mahi nui rawa: He tokomaha e kī ana ka piki ake tēnei raruraru ina nui te ahotea me te mahi nui rawa. Whakaarohia he mahi nui tāu i te kāinga, he pukumahi rawa rānei koe i te mahi, ko ēnei momo āhuatanga ka taea hoki te take.
- Ngā Huringa o te Huarere: Ahakoa te āhua rerekē, ki ētahi tāngata, ka kino haere ngā tohu ina makariri, ina makuku hoki te rangi.
I ētahi wā, kāore he take e kitea ana, ka piki haere te kaha o te mate, ā, ka puta he 'pāwera'.
Me pēhea te whakahaere i ngā putanga o te mate pukupuku?
He uaua ki te whakatau i te putanga mai o te raruraru, engari he iti noa ngā mea ka taea e tātou te mahi hei whakahaere.
Ko te mea nui ko te whai i ngā tohutohu a tō tākuta. He mea āwhina te kōrero ki tō tākuta i mua i te wā, me te whakarite i tētahi mahere mō te mea hei mahi mēnā ka pā mai he mate puku.
Anei ngā mea ka taea e koe te mahi i te wā penei:
Te whakamahinga o ngā raau taero
Mena kua tohua e tō tākuta he rongoā whakamamae mamae, arā, he rongoā NSAID (hei tauira, Ibuprofen, Diclofenac), ka tonoa pea koe kia whakanuia te horopeta i ia wā. Engari kia maumahara, kaua e whakarerekē i te horopeta o te rongoā i runga i tō whakaaro ake. Me mahi noa i muri i te kōrero ki tō tākuta.
Mena kei te tango koe i tētahi momo rongoā motuhake e kiia nei ko te 'biologic', ka whakatau pea tō tākuta ki te whakarerekē i te horopeta o taua rongoā, ki te whakawhiti rānei i a koe ki tētahi atu rongoā.
Ngā tikanga kore-rongoā
Haunga ngā rongoā, ka āwhina anō hoki ēnei mea i a koe.
- Kia nui te moe me te okioki: Hoatu he okiokinga ki tō tinana i ngā wā katoa e taea ana. Mā te moe pai ka āwhina i te whakaiti i te mumura.
- Korikori tinana ngāwari: Kāore i te pai te noho noa iho nā te mea he pakari tō tinana. He tino āwhina ētahi korikori totoro ngāwari ka taea e koe te mahi i a koe e noho ana i runga i te moenga i tēnei wā. Ka whakaiti i te pakari o te tinana, ā, ka māmā ake te nekehanga o ngā hononga.
- Ngā whakamahinga wera me te makariri: Mā te paninga o te pounamu wai wera ki te wāhi mamae ka āwhina i te whakangāwari i ngā uaua me te whakaiti i te mamae. Ka kitea hoki e ētahi tāngata he whakamarie mai i ngā kete hukapapa. Tirohia te mea e pai ana mōu.
- Kaukau i te wai wera: Ka taea e te kaukau i te wai wera te whakaiti i te pakari me te mamae.
- Mirimiri: Ka taea e te mirimiri mārie, mārie te whakangāwari i ngā uaua me te whakaiti i te mamae.
Āhea rawa koe me toro atu ki te tākuta?
Ahakoa ka taea te whakahaere i te pupū ake o te mate i te kāinga, tera pea ētahi wā e tika ana kia tohutohuhia e te taote.
Mena kua kino haere tō mamae i muri i te whitu rā pea, ā, kāore koe e whakaorahia e ngā rongoā kāinga me ngā rongoā auau, me toro atu anō koe ki tō tākuta.
Kia mōhio hoki ki ēnei mea:
- Mena he kino rawa atu te mamae i te tikanga: Mena he kino rawa atu te mamae e pā ana ki a koe i tēnei wā i te tikanga, hei tauira, ki te mamae tō tuara e kore e taea te whakamanawanui, rapua tonutia he tohutohu hauora.
- Mena kei te piki haere ō mate pāwera: Mena kei te piki haere ō mate pāwera pēnei, kei te roa rānei te wā e ora ai ō mate pāwera, kōrero ki tō tākuta mō tēnei. He tohu pea tēnei kua tae ki te wā hei whakarerekē i tō maimoatanga.
Mā te pupuri i tētahi rātaka o ō tohumate me te wā e kino haere ana ka āwhina i tō tākuta kia mārama ake ai koe ki tō āhua.
Karere Tangohia ki te Kāinga
- He mea noa te pā mai o ngā mate pēnei i te Ankylosing Spondylitis (AS). Kaua e manukanuka, ehara i te mea ko koe anake.
- Ko te ahotea, te mahi nui, ngā mate pāwera, me te kore e tango rongoā ngā tino take ka kino haere ai tēnei mate. Kia tūpato ki ēnei mea.
- Tangohia te rongoā e tohua ana e tō tākuta kia tika, kia tika hoki i te wā tika. Kaua rawa e whakarerekē i te horopeta i runga i tāu ake whakaaro.
- Kōrero ki tō tākuta (tākuta rumatiki) i mua i te wā, ka whakatakoto i tētahi mahere mō te mea hei mahi mēnā ka pā mai he mate pāwera.
- Mena he nui te mamae, kāore e memeha i roto i ngā rā torutoru, he maha rānei ō mamae e pā mai ana, me toro atu koe ki te tākuta.
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